Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Brain Cancer


jkmunchkin

Recommended Posts

jkmunchkin Rising Star

I just found out today that one of my friends has brain cancer. She is in her mid-20's. :(

I guess I'm just looking for someone to tell me that I'm wrong, and that she has more than a few years to live. She is one of the funniest, sweetest, most incredible people I have ever met. It's just not fair. I don't want the reality of it to be true.

Someone please tell me some miraculous story of someone they know who beat brain cancer.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast

I know one person who had a tumor removed in college and did fine.

I know another person that was given six months for an inoperable tumor, decided to enjoy what time he had, five years later, we moved, so I don't know how he's doing.

So, you get two stories!! I'll say a prayer for your friend.

Canadian Karen Community Regular

The principal at my husband's school had brain cancer about three years ago. She had the surgery, was off for 1/2 year, and then back stronger than ever! She's still the principal there........ no signs of recurrence...

Prayer being said here too........

Hugs.

Karen

Mtndog Collaborator

Yep- my sister's best friend had brain cancer and she's back working as a nurse!

I'm sorry to hear about your friend's diagnosis but you kno we're all here for you!

Corkdarrr Enthusiast

One of our family friends had brain cancer towards the end of highschool. He had several surgeries and essentially now has two 'trapdoors' in teh back of his head.

Either way, that was almost 10 years ago and last I heard he's livin' it up in Colorado or something fun like that. Ski instructor maybe?

almostnrn Explorer

My mom was diagnosed with cancer (lung) last fall. She had 5 affected areas on her brain as well. Now I am not a specialist and I can only speak to my moms case. The oncology team that she had told her that the cancer on her brain was the least of their worries as far as being a treatable condition. They worked on those spots first and were able to eliminate them completly. I"m so sorry to hear about your friend and I understand how scary that kind of diagnosis is. I will keep you and your friend in my prayers for the challanges you both have ahead of you. The treatments available now for all kinds of cancers are amazing but she will be going through alot emotionally and medically.

tarnalberry Community Regular

I'm sorry to hear about your friend. :( I hope it's treatable!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Michi8 Contributor

I'm so sorry to hear about your friend. If anything, she's got age and strength behind her, so she may do really well.

My FIL was diagnosed with two kinds of brain cancer last May and, unfortunately, is not doing as well as we'd hoped...one cancer (oligodenderoglioma) was stage 4, and the other (gioblastoma) stage 1, but very agressive. We have not given up hope, though, he continues to go through chemo treatment...still has 5 months of treatment to go.

However, in my search for more information I found a a couple of inspirational stories online. One is of a man who has beat the odds and has survived more than 9 years post surgery:

Open Original Shared Link

The other is of a man who has survived about 8 years now:

Open Original Shared Link

There are also some really positive new treatments being discovered/tested now. I hope that your friend has great success with beating this tumor. Support of friends will help a lot.

Michelle

lovegrov Collaborator

Lance Armstrong's didn't start as brain cancer but it did spread to his brain.

richard

jkmunchkin Rising Star

Thanks guys!!! These stories really cheered me up and gave me hope for her. I've been so upset about it since I found out.

jerseyangel Proficient

Jillian,

I don't have any experience or stories about this, but I certainly wish the best for your friend. :)

floridanative Community Regular

Jillian - I am so sorry to hear about your friend but I have a feeling with a friend like you - she'll be just fine. I truly believe that the power of the human spirit is stronger than science will ever understand or be able to explain. The way you describe your friend I think she's already way ahead of the game. We're all pulling for you both to get through this trying time.

ianm Apprentice

I have a friend who discovered she had very advanced lymphoma when she was 21. There were no symptoms until it was spread throughout her body. After a year of agressive radiation and chemotherapy the cancer was gone. 15 years later she is doing just fine and the cancer has never returned which is unusual for lymphoma. It is possible to beat cancer.

NicoleAJ Enthusiast

When I was in third grade, one of my friends, a fellow classmate, was diagnosed with brain cancer. She had to miss the second half of the school year and stay back a grade, but as far as I know, she's still doing well, and we're in our late twenties now.

I wish all the best for your friend's recovery.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,608
    • Most Online (within 30 mins)
      7,748

    lorrasmama
    Newest Member
    lorrasmama
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      It seems like you have two choices--do a proper gluten challenge and get re-tested, or just go gluten-free because you already know that it is gluten that is causing your symptoms. In order to screen someone for celiac disease they need to be eating gluten daily, a lot of it--they usually recommend at least 2 slices of wheat bread daily for 6-8 weeks before a blood screening, and at least 2 weeks before an endoscopy (a colonoscopy is no used to diagnose celiac disease). Normally the blood panel is your first step, and if you have ANY positive results there for celiac disease the next step would be to take biopsies of your villi via an endoscopy given by a gastroenterologist.  More info on the blood tests and the gluten challenge beforehand is below: The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:   Not to discourage you from a formal diagnosis, but once you are diagnosed it may lead to higher life and medical insurance rates (things will be changing quickly in the USA with the ACA starting in 2026), as well as the need to disclose it on job applications. While I do think it's best to know for sure--especially because all of your first degree relatives should also get screened for it--I also want to disclose some negative possibilities around a formal diagnosis that you may want to also consider.  
    • Wheatwacked
      Yes.  Now, if you hit your finger with a hammer once, wouldn't you do your best not to do it again?  You have identified a direct connection between gluten and pain.  Gluten is your hammer.  Now you have to decide if you need a medical diagnosis.  Some countries have aid benefits tgat you can get if you have the diagnosis, but you must continue eating a gluten-normal diet while pursuing the diagnosis. Otherwise the only reason to continue eating gluten is social. There are over 200 symptoms that could be a result of celiac disease.. Celiac Disease and Non Celiac Gluten Sensitivity  both cause multiple vitamin and mineral deficiency.  Dealing with that should help your recovery, even while eating gluten.  Phosphatidyl Choline supplements can help your gut if digesting fats is a problem,  Consider that any medications you take could be causing some of the symptoms, aside from gluten.        
    • trents
      Welcome to the forum, @Ben98! If you have been consciously or unconsciously avoiding gluten because of the discomfort it produces then it is likely that your blood antibody testing for celiac disease has been rendered invalid. Valid testing requires regular consumption of generous amounts of gluten. The other strong possibility is that you have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but does not have the autoimmune component and thus does not damage the small bowel lining. It is 10x mor common than celiac disease. There is currently no test for NCGS. Celiac disease must first be ruled out. Some experts in the field believe it can be a precursor to the development of celiac disease. Having one or both of the primary genes for developing celiac disease does not imply that you will develop active celiac disease. It simply establishes the potential for it. About 40% of the population has the genetic potential but only about 1% develop active celiac disease. 
    • Ben98
      TTG blood test and total IGA tested on many occasions which have always remained normal, upper GI pain under my ribs since 2022. I had an endoscopy in 2023 which showed moderate gastritis. no biopsy’s were taken unfortunately. genetic test was positive for HLADQ2. extreme bloating after eating gluten, it’ll feel like I’ve got bricks in my stomach so uncomfortably full. the pain is like a dull ache under the upper left almost like a stitch feeling after a long walk. I am just wanting some advice has anyone here experienced gastritis with a gluten issue before? thank you  
    • Wheatwacked
      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.