Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Brain Cancer

jkmunchkin

Recommended Posts

jkmunchkin Rising Star
jkmunchkin
Posted

I just found out today that one of my friends has brain cancer. She is in her mid-20's. :(

I guess I'm just looking for someone to tell me that I'm wrong, and that she has more than a few years to live. She is one of the funniest, sweetest, most incredible people I have ever met. It's just not fair. I don't want the reality of it to be true.

Someone please tell me some miraculous story of someone they know who beat brain cancer.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CarlaB Enthusiast
CarlaB
Posted

I know one person who had a tumor removed in college and did fine.

I know another person that was given six months for an inoperable tumor, decided to enjoy what time he had, five years later, we moved, so I don't know how he's doing.

So, you get two stories!! I'll say a prayer for your friend.

Canadian Karen Community Regular
Canadian Karen
Posted

The principal at my husband's school had brain cancer about three years ago. She had the surgery, was off for 1/2 year, and then back stronger than ever! She's still the principal there........ no signs of recurrence...

Prayer being said here too........

Hugs.

Karen

Mtndog Collaborator
Mtndog
Posted

Yep- my sister's best friend had brain cancer and she's back working as a nurse!

I'm sorry to hear about your friend's diagnosis but you kno we're all here for you!

Corkdarrr Enthusiast
Corkdarrr
Posted

One of our family friends had brain cancer towards the end of highschool. He had several surgeries and essentially now has two 'trapdoors' in teh back of his head.

Either way, that was almost 10 years ago and last I heard he's livin' it up in Colorado or something fun like that. Ski instructor maybe?

almostnrn Explorer
almostnrn
Posted

My mom was diagnosed with cancer (lung) last fall. She had 5 affected areas on her brain as well. Now I am not a specialist and I can only speak to my moms case. The oncology team that she had told her that the cancer on her brain was the least of their worries as far as being a treatable condition. They worked on those spots first and were able to eliminate them completly. I"m so sorry to hear about your friend and I understand how scary that kind of diagnosis is. I will keep you and your friend in my prayers for the challanges you both have ahead of you. The treatments available now for all kinds of cancers are amazing but she will be going through alot emotionally and medically.

tarnalberry Community Regular
tarnalberry
Posted

I'm sorry to hear about your friend. :( I hope it's treatable!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Michi8 Contributor
Michi8
Posted

I'm so sorry to hear about your friend. If anything, she's got age and strength behind her, so she may do really well.

My FIL was diagnosed with two kinds of brain cancer last May and, unfortunately, is not doing as well as we'd hoped...one cancer (oligodenderoglioma) was stage 4, and the other (gioblastoma) stage 1, but very agressive. We have not given up hope, though, he continues to go through chemo treatment...still has 5 months of treatment to go.

However, in my search for more information I found a a couple of inspirational stories online. One is of a man who has beat the odds and has survived more than 9 years post surgery:

Open Original Shared Link

The other is of a man who has survived about 8 years now:

Open Original Shared Link

There are also some really positive new treatments being discovered/tested now. I hope that your friend has great success with beating this tumor. Support of friends will help a lot.

Michelle

lovegrov Collaborator
lovegrov
Posted

Lance Armstrong's didn't start as brain cancer but it did spread to his brain.

richard

jkmunchkin Rising Star
jkmunchkin
Posted
  • Author

Thanks guys!!! These stories really cheered me up and gave me hope for her. I've been so upset about it since I found out.

jerseyangel Proficient
jerseyangel
Posted

Jillian,

I don't have any experience or stories about this, but I certainly wish the best for your friend. :)

floridanative Community Regular
floridanative
Posted

Jillian - I am so sorry to hear about your friend but I have a feeling with a friend like you - she'll be just fine. I truly believe that the power of the human spirit is stronger than science will ever understand or be able to explain. The way you describe your friend I think she's already way ahead of the game. We're all pulling for you both to get through this trying time.

ianm Apprentice
ianm
Posted

I have a friend who discovered she had very advanced lymphoma when she was 21. There were no symptoms until it was spread throughout her body. After a year of agressive radiation and chemotherapy the cancer was gone. 15 years later she is doing just fine and the cancer has never returned which is unusual for lymphoma. It is possible to beat cancer.

NicoleAJ Enthusiast
NicoleAJ
Posted

When I was in third grade, one of my friends, a fellow classmate, was diagnosed with brain cancer. She had to miss the second half of the school year and stay back a grade, but as far as I know, she's still doing well, and we're in our late twenties now.

I wish all the best for your friend's recovery.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen...
    2. Scott Adams
      - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that y...
    3. Scott Adams
      - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid mul...
    4. Scott Adams
      - Scott Adams commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      2

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

      Better to know late than never, and it is too bad they did not test you for it earlier!
    5. Scott Adams
      0

      Koikoi Trading Inc., Issues Allergy Alert on Undeclared Wheat and Sesame in FU ZHOU FISH BALL

  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,323
    • Most Online (within 30 mins)
      7,748
    bttyknight83
    Newest Member
    bttyknight83
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      IBS-D vs Celiac

      By Scott Adams · Posted

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Question

      By Scott Adams · Posted

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      IBS-D vs Celiac

      By trents · Posted

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.