Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Save Me!


Mal

Recommended Posts

Mal Explorer

Ok Guys,

Diagnosed, 10 days ago, im dying to get something in my stomach other then glutenfree/wheatfree snacks....

where the heck can i go, that I can eat out

I go to school on Long Island, in Suffolk, but my boyfriend lives in Nassau, so any kind of resturant options, would be glorious as well as fast food...

i just dont know where to even start, i need all the help i can get, so thank youuu ahead of time!! <3


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



2kids4me Contributor

Wendys - frosty, chili, some of the salads. Meat patties (burger without the bun) Caution here - I watch like a hawk at wendys cause more than once , I saw them take the meat off the bun to put it in a tray. I just say : excuse me but it needs to be right off the grill otherwise my son/daughter will get violently ill.

comfort foods - corn chips with melted cheese and salsa to dip

ask chef at restaurants if they are knowledgable about gluten free - and what they can offer you that is not cross contaminated etc.

chocolate, glorious choclate - caramilk, jersey milk, crispy crunch (at least in Canada)

Nantzie Collaborator

Don't know about the restaurants. Other than PF Changs and Outback, who both have gluten-free menus.

Here's some mainstream snacks though

Cool Ranch Doritos.

Cheetos

Lays Stax

Fritos

Reese's PB Cups

M&M's (all but the crispy kind I believe)

Butterfinger's

None of the crispy rice chocolate bars are gluten-free in the US (they add barley malt). Might have to go to Canada to get some...

B)

Nancy

GFBetsy Rookie

Outback Steakhouse, PF Changs, and even some Old Spaghetti Factories have gluten free menus. Outback's Chocolate Thunder from Down Under is a flourless brownie . . . so you can eat that!

Good luck!

Okay, so I just realized that Nantzie posted this information right before I did. Sorry! I skimmed her post too fast!

CarlaB Enthusiast

Bonefish Grill, Cheeseburger in Paradise, Maggiano's, Carrabas can also accomodate gluten-free.

Grilled chicken salad at Chick-fil-a -- without the croutons and without the sunflower seeds, but you can use the tortilla stips. Their waffles fries are also okay.

amber-rose Contributor

I dont know if anyone has listed this one yet.

Claim Jumper

Here's the link, but i dont know where you live, because they're only in Arizona, California, Illinois, Colorado, Nevada, & Washington. But they're opening up two in Oregon also.

Open Original Shared Link

clbevilacqua Explorer

If you ever go into the city, there are some great options. One of our favs when we visit is Rissoteria in the Village. Gluten Free Pizza & breadsticks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mal Explorer

thank you all...

ya, i cant eat the cool ranch doritos...they have whey, i got really excited for a second....lol

but CL, i'm DEFF going to be heading into the city like ASAP to try that place out, you can bet that, i heart pizza and breadsticks!!

thank you all!!!

::HUGS::

Fiddle-Faddle Community Regular

Just out of curiosity, why are you whey-free?

Mal Explorer

see thats funny u asked, i was just asking my mother the same question today, my chef here at school had said something about it, but I think i can have it, i have to call my doctor!

does anyone have any problems with whey?

hez Enthusiast

I do not have any problems with whey. Whey is dairy so if you are avoiding dairy (many people do especially when starting the gluten-free diet) you will have to watch out for it. However, if you are just talking about gluten, whey is gluten-free.

Hez

Mal Explorer

hmmmm interesting....thankyyy <333 :D

Fiddle-Faddle Community Regular

Seems to me you you would either need to avoid ALL dairy--or none. Or am I missing something?

Mal Explorer

no im fine with eggs and cheese, so maybe im missing something and chef is loosing it...lol im eating something with whey in it right now - - - so i guess we will see how it sits...

Aerin328 Apprentice

Many celiacs are also intolerant to casein, the protein found in cow's milk (and in whey). (Enterolab automatically checks casein at the same time in their full celiac panel - www.enterolab.com )

Awesome restaraunt is Outback Steakhouse (mentioned above as well) - it's expensive but they have a gluten-free menu that tastes great!

Christian

valzues Rookie
Don't know about the restaurants. Other than PF Changs and Outback, who both have gluten-free menus.

Here's some mainstream snacks though

Cool Ranch Doritos.

Cheetos

Lays Stax

Fritos

Reese's PB Cups

M&M's (all but the crispy kind I believe)

Butterfinger's

None of the crispy rice chocolate bars are gluten-free in the US (they add barley malt). Might have to go to Canada to get some...

B)

Nancy

I had on halloween a butterfinger mini and reese's mini peanut butter cups. I felt awful the next day. Major cramps and bloating. Are you sure they are Gluten Free?

2Boys4Me Enthusiast
None of the crispy rice chocolate bars are gluten-free in the US (they add barley malt). Might have to go to Canada to get some...

B)

Nancy

Don't come here. We sprinkle malt on everything :P. I was reading labels on hot chocolate - Cadbury's contains malt!? :blink: Couldn't believe it.

new to LI Newbie

there are some other places to eat that have not been mentioned

in oakdale you have mamma's

in waughtugh you have baldo's

and in plainview you have b well's

the first to are italian resturants

b well's is the best gluten-free store and deli i have found on long island

amber-rose Contributor
there are some other places to eat that have not been mentioned

in oakdale you have mamma's

in waughtugh you have baldo's

and in plainview you have b well's

the first to are italian resturants

b well's is the best gluten-free store and deli i have found on long island

Hi! I see that you mentioned Baldo's. We also have a couple over here where I live. Is there a gluten-free menu or items that I can eat? I dont know if I would trust mine anyhow though. When I wasnt gluten-free I found chicken joints in my chicken quesdilla!! :o:blink:

Mal Explorer
there are some other places to eat that have not been mentioned

in oakdale you have mamma's

in waughtugh you have baldo's

and in plainview you have b well's

the first to are italian resturants

b well's is the best gluten-free store and deli i have found on long island

thank you SOOO much, i'm just going to have to make my boyfriend take me out one night!! hehehe thanks again!!!

<3

new to LI Newbie
Hi! I see that you mentioned Baldo's. We also have a couple over here where I live. Is there a gluten-free menu or items that I can eat? I dont know if I would trust mine anyhow though. When I wasnt gluten-free I found chicken joints in my chicken quesdilla!! :o:blink:

If you are from long island the full name i s cafe baldo's.

it is a family owned resturant, not a chian... :(

thank you SOOO much, i'm just going to have to make my boyfriend take me out one night!! hehehe thanks again!!!

<3

If you go to b. wells in plainviw ask for Erin she's one of the owners and will treat you like a queen. she also is very generious with samples of the food. the also carry a line of frozen food i have not seen any place else... safe harbor foods... the stuffed shells and ravioli are AMAZING and the baked ziti is also fantastic.

GOOD LUCK

amber-rose Contributor
If you are from long island the full name i s cafe baldo's.

it is a family owned resturant, not a chian... :(

Oh okay! We have Baldo's here in the bay area of CA. But the name is just Baldo's. I think its family owned here too, but they have all over Northern CA, so I thought maybe they put one in NY! lol. :P

de caps Contributor
:) You can also go to Trader Joe's in Merrick and Oceanside. Fairway in Plainview is the best for gluten-free food shopping. Wholefoods in Manhasset is also good. I would watch out for Cafe Baldo in Wantagh I got sick after eating there. Good Luck
new to LI Newbie

you aslo have jandi's in oceanside

rising tide in glen cove

trader joe's is also in plainview

the best in hicksville

ive been all over nassau in search for the best selection of gluten-free foods...

b well's has the largest selection of any store that i have been to.

fairway is getting better but it still is not there yet

jkmunchkin Rising Star

I just saw this thread.

Mama's in Oakdale is AMAZING!!!!! There are a few Mama's in Suffolk, but it's the one not affiliated with the others. You can get the address off the GFRAP website.

B Well in Plainview has a lot of good products that you won't find everywhere else.

Sweet Karma bakery in East Meadow that sells bagels and english muffins from a woman, Joan. They are the most incredible bagels. This is one of my favorite products.

This is not on Long Island, but my favorite bread for sandwiches is from a place in Chester, NY (up by Woodbury Commons) called the Gluten Free Bread Basket. You can order from their website and they will ship.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

    2. - trents replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      46

      Supplements for those Diagnosed with Celiac Disease

    3. - trents replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Is it gluten?

    4. - RMJ replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

    5. - asaT replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,342
    • Most Online (within 30 mins)
      7,748

    Muhammad
    Newest Member
    Muhammad
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • nanny marley
      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
    • trents
      @par18, no, Scott's use of the term "false negative" is intentional and appropriate. The "total IGA" test is not a test used to diagnose celiac disease per se. The IGA immune spectrum response encompasses more than just celiac disease. So, "total IGA" refers to the whole pie, not just the celiac response part of it. But if the whole pie is deficient, the spectrum of components making it up will likely be also, including the celiac disease response spectrum. In other words, IGA deficiency may produce a tTG-IGA score that is negative that might have been positive had there not been IGA deficiency. So, the tTG-IGA negative score may be "false", i.e, inaccurate, aka, not to be trusted.
    • RMJ
      This may be the problem. Every time you eat gluten it is like giving a booster shot to your immune system, telling it to react and produce antibodies again.
    • asaT
      Scott, I am mostly asymptomatic. I was diagnosed based on high antibodies, low ferritin (3) and low vitamin D (10). I wasn't able to get in for the biopsy until 3 months after the blood test came back. I was supposed to keep eating gluten during this time. Well why would I continue doing something that I know to be harmful for 3 more months to just get this test? So I did quit gluten and had the biopsy. It was negative for celiacs. I continued gluten free with iron supps and my ferritin came back up to a reasonable, but not great level of around 30-35.  Could there be something else going on? Is there any reason why my antibodies would be high (>80) with a negative biopsy? could me intestines have healed that quickly (3 months)?  I'm having a hard time staying gluten free because I am asymptomatic and i'm wondering about that biopsy. I do have the celiacs gene, and all of the antibody tests have always come back high. I recently had them tested again. Still very high. I am gluten free mostly, but not totally. I will occasionally eat something with gluten, but try to keep to a minimum. It's really hard when the immediate consequences are nil.  with high antibodies, the gene, but a negative biopsy (after 3 months strict gluten-free), do i really have celiacs? please say no. lol. i think i know the answer.  Asa
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.