Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Who Else Takes...


num1habsfan

Recommended Posts

num1habsfan Rising Star

I know I mentioned this in my last post but nobody's replied since so I'm gonna put this in a separate area so everyone sees it...

Like I had said, I have now been prescribed Zelnorm which WILL drive me completely broke!! ($150/month, no drug plan covers it)...

My pharmacist said it'll probably take a month before my mody accepts the meds...

The side affects listed are:

  • headache
  • diarrhea
  • abdominal pain
  • nausea
  • flatulence
  • dizziness
  • back pain
  • flu-like symptoms (fever, muscle ache, fatigue, headache and/or cough)

Since I started these yesterday I've definitely had more diarrhea than normal, and gas, and back pain, and a fever...

Has anyone else had side affects from Zelnorm? and how long did they last for you???

~ lisa ~


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



linds Apprentice

I took it!! for IBS before going gluten free. It gave me diarrhea the first week or so and then everything worked itself out as I had had constipation before. I also felt dizzy and was really sleepy all the time but that went away after a week or two also. I stopped taking it because we wanted to know that going gluten free was what was helping me feel better not the pills. But i really liked it. Its a bummer that your insurance doesn't cover it. I never realized how much it was since my insurance did cover it. Hope that helps you some.

debmidge Rising Star

Lisa: what reason does insurance give you for not covering it? (I am asking only in event I can help you to get them to at least pay something towards it.) I do insurance as my job.

jenvan Collaborator

I took Zelnorm for a while. I am not a huge fan of it. For most folks I've talked to, it just gives you D. Have you tried psyllium/fiber supplements? I would exhaust the more natural options first, if you haven't. Psyllium works better for me than Zelnorm ever did...

AmandaD Community Regular

Use Citrucel for IBS-D or C. IT's amazing.

num1habsfan Rising Star

I'm in Canada, theres no such thing as insurance ;) We have things called drug plans, where you can apply to be covered for 65% of any prescription expenses. Some certain things just arent covered.

I dont actually have IBS-D or IBS-C. He's just giving me this for pain relief because I said that Buscopan doesnt help me any (and I can tell Zelnorm is much stronger because it REALLY knocks me out literally speaking of course).

I'm supposed to be on it for 3 months so I'm not gonna quit it but yeah the diarrhea/tiredness/fever/headache/back pain really sucks I tell ya -- more excuse to miss class for the bathroom i guess :lol:

~ lisa ~

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jmartes71's topic in Coping with Celiac Disease
      12

      Related issues

    2. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      12

      Related issues

    3. - Wheatwacked replied to Jmartes71's topic in Coping with Celiac Disease
      12

      Related issues

    4. - Known1 replied to Known1's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      What would you do - neighbor brought gluten-free pizza from Papa Murphy's

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,458
    • Most Online (within 30 mins)
      7,748

    Healthierbody2026
    Newest Member
    Healthierbody2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      I take Niacin, bilberry, Omega threes, zinc, selenium, and Vitamins C and A for eye health, skin health and digestive tract health.  The skin, digestive system and eyes are all derived from basically the same sort of cells.  Niacin is extremely important to keeping these tissues healthy.    Niacin has be shown to prevent cataracts and improve eye health.  Niacin is turned into tryptophan which is necessary to heal the digestive tract.  Tryptophan is used to make Serotonin, a very important neurotransmitter in mood regulation.  Those with Niacin insufficiency become irritable and easily upset, angry, even. Niacin improves skin health.  The flushing of Niacin opens the smallest blood vessels in the skin so that waste products can more easily be removed.  I have Dermatitis Herpetiformis.  Niacin helps drain away those built up antibodies in the blisters and improve skin health.   Bilberry contains lutein and zeaxanthin and other anthocyanins,  potent antioxidants that help protect the eyes from macular degeneration and cataracts.  Bilberry has sGLT1 and GLUT2 which help to lower glucose levels by removing excess glucose from the bloodstream.  High blood glucose levels are bad for eye health.   Omega Threes are important to provide relief in dry eyes.  You are familiar with how oil floats on water.  Same thing happens with eyes.  Omega threes provide the oily layer that protects water from evaporating from the eyes causing dry eyes.  Omega threes in olive oil, sunflower seed oil,  and flaxseed oils will help improve dry eyes. Vitamin A and Riboflavin B2 are important in this function as well.   None of the medications I was given improved my dry eyes.  I increased my Omega threes and Vitamin A, and had improvement very quickly. Selenium and zinc are important in skin and eye barrier functions, too, and are important to preventing infections. When I take 100 mg of Niacin every three hours (but not more than 500 mg/day), my skin and eye health improves.  If one is deficient in Niacin, the flushing effects may be uncomfortable, but ride it out, continue taking Niacin and the flushing goes away as niacin stores inside cells are repleted.  When flushing, don't scratch!  Use pressure applied over a bigger area above the itch.  I wrap up in a towel or blanket to create the counter pressure.  The flushing goes away the longer one takes Niacin.  Don't use Niacinamide (the non flushing form of Niacin).   Other vitamins that improve eye health are Vitamin E and Pyridoxine B6 and Thiamine B1.  Most Vitamin E sold is derived from wheat germ, so find another source of Vitamin E.  I used Evening Primrose oil, also a source of healthy Omega threes and helps with female problems like perimenopause  and menopause symptoms. Do be aware that antifungals and antibiotics (as are frequently prescribed) destroy Thiamine.  Immunosuppressive drugs can suppress production of tTg antibodies.  Supplementing with thiamine above the RDA is safe and nontoxic.  RDA were set as the lowest amount to prevent illness.  Optimal health is seen in higher amounts.   Do talk to your doctor and dietician about supplementing essential nutrients.   References: https://pubmed.ncbi.nlm.nih.gov/39183990/ https://pubmed.ncbi.nlm.nih.gov/41156490/ https://pmc.ncbi.nlm.nih.gov/articles/PMC7602486/
    • Jmartes71
      Thankyou. I have cyclosporine 0.05% OP single use drops and Erythromycin ophth ointment 3.5 Gmail for eyes. Dermatologist gave Pimecrolimus cream 1% and Clobetasol Propoonate USP 0.05% it doesn't help at all.i do see a difference taking Yarrow Pom but its too expensive!
    • Wheatwacked
      I've added NAC, N-Acetyl Cysteine; "crucial for replenishing glutathione—the body's master antioxidant." I used Clear Eyes 1% NAC lubricating eye drops for several years until the FDA forced them off the market.  In 2015 I had cataracts in bofh eyes.  In 2019 my left eye was clear, right eye was improved.  They are back now.  I discovered new companies with the drops at higher NAC but went with 500 mg NAC capsules.  Spread the cheer 🤓. My impression so far is the NAC is doing good.  Best with meal.
    • Known1
      When the pizza was dropped off she told me it had a Udi's certified gluten-free crust.  Even so, I am trying to play things as safe as possible for at least the next 6-months.  With that said, I returned the two slices to my neighbor and asked her to thank her mom for the pizza.  😊  I will likely bump into my neighbor's mom sometime next week.  She shuttles my neighbor's son, a freshman, to and from high school.  As mentioned, she is very kind so I am sure she will understand.  Heck, at least it went back to her family members and not in the trash.
    • Jmartes71
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.