Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Who Else Takes...

num1habsfan

Recommended Posts

num1habsfan Rising Star
num1habsfan
Posted

I know I mentioned this in my last post but nobody's replied since so I'm gonna put this in a separate area so everyone sees it...

Like I had said, I have now been prescribed Zelnorm which WILL drive me completely broke!! ($150/month, no drug plan covers it)...

My pharmacist said it'll probably take a month before my mody accepts the meds...

The side affects listed are:

  • headache
  • diarrhea
  • abdominal pain
  • nausea
  • flatulence
  • dizziness
  • back pain
  • flu-like symptoms (fever, muscle ache, fatigue, headache and/or cough)

Since I started these yesterday I've definitely had more diarrhea than normal, and gas, and back pain, and a fever...

Has anyone else had side affects from Zelnorm? and how long did they last for you???

~ lisa ~

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


linds Apprentice
linds
Posted

I took it!! for IBS before going gluten free. It gave me diarrhea the first week or so and then everything worked itself out as I had had constipation before. I also felt dizzy and was really sleepy all the time but that went away after a week or two also. I stopped taking it because we wanted to know that going gluten free was what was helping me feel better not the pills. But i really liked it. Its a bummer that your insurance doesn't cover it. I never realized how much it was since my insurance did cover it. Hope that helps you some.

debmidge Rising Star
debmidge
Posted

Lisa: what reason does insurance give you for not covering it? (I am asking only in event I can help you to get them to at least pay something towards it.) I do insurance as my job.

jenvan Collaborator
jenvan
Posted

I took Zelnorm for a while. I am not a huge fan of it. For most folks I've talked to, it just gives you D. Have you tried psyllium/fiber supplements? I would exhaust the more natural options first, if you haven't. Psyllium works better for me than Zelnorm ever did...

AmandaD Community Regular
AmandaD
Posted

Use Citrucel for IBS-D or C. IT's amazing.

num1habsfan Rising Star
num1habsfan
Posted
  • Author

I'm in Canada, theres no such thing as insurance ;) We have things called drug plans, where you can apply to be covered for 65% of any prescription expenses. Some certain things just arent covered.

I dont actually have IBS-D or IBS-C. He's just giving me this for pain relief because I said that Buscopan doesnt help me any (and I can tell Zelnorm is much stronger because it REALLY knocks me out literally speaking of course).

I'm supposed to be on it for 3 months so I'm not gonna quit it but yeah the diarrhea/tiredness/fever/headache/back pain really sucks I tell ya -- more excuse to miss class for the bathroom i guess :lol:

~ lisa ~

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Ginger38's topic in Related Issues & Disorders
      1

      Shingles - Could It Be Related to Gluten/ Celiac

      I don't know of a connection. Lots of people who don't have celiac disease/gluten issues get shingles.
    2. Ginger38
      - Ginger38 posted a topic in Related Issues & Disorders
      1

      Shingles - Could It Be Related to Gluten/ Celiac

      I’m 43, just newly diagnosed with a horrible case of shingles last week . They are all over my face , around my eye, ear , all in my scalp. Lymph nodes are a mess. Ear is a mess. My eye is hurting and sensitive. Pain has been a 10/10+ daily. Taking Motrin and Tylenol around the clock. I AM MISERABLE. The pain is unrelenting. I just want to cry. But Developing s...
    3. Russ H
      - Russ H commented on Scott Adams's article in Latest Research
      5

      Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)

      This is the test KelleyJo is referring to: Blood-Based T-Cell Diagnosis of Celiac Disease
    4. Russ H
      - Russ H posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Coeliac UK Research Conference 2025

      There were some interesting talks, particularly Prof Ludvig Stollid's talk on therapeutics for coeliac disease. https://www.youtube.com/playlist?list=PLRcl2mPE0WdigRtJPvylUJbkCx263KF_t
    5. Rejoicephd
      - Rejoicephd replied to Rejoicephd's topic in Related Issues & Disorders
      5

      Basic metabolic panel results - more flags

      Thank you @trents for letting me know you experience something similar thanks @knitty kitty for your response and resources. I will be following up with my doctor about these results and I’ll read the articles you sent. Thanks - I really appreciate you all.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,374
    • Most Online (within 30 mins)
      7,748
    Lynt
    Newest Member
    Lynt
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Shingles - Could It Be Related to Gluten/ Celiac

      By trents · Posted

      I don't know of a connection. Lots of people who don't have celiac disease/gluten issues get shingles.
    • Ginger38
      Shingles - Could It Be Related to Gluten/ Celiac

      By Ginger38 · Posted

      I’m 43, just newly diagnosed with a horrible case of shingles last week . They are all over my face , around my eye, ear , all in my scalp. Lymph nodes are a mess. Ear is a mess. My eye is hurting and sensitive. Pain has been a 10/10+ daily. Taking Motrin and Tylenol around the clock. I AM MISERABLE. The pain is unrelenting. I just want to cry.   But Developing shingles has me a bit concerned about my immune system which also has me wondering about celiac and if there’s a connection to celiac / gluten and shingles; particularly since I haven't been 💯 gluten free because of all the confusing test results and doctors advice etc., is there a connection here? I’ve never had shingles and the gluten/ celiac  roller coaster has been ongoing for a while but I’ve had gluten off and on the last year bc of all the confusion  
    • Russ H
      Coeliac UK Research Conference 2025

      By Russ H · Posted

      There were some interesting talks, particularly Prof Ludvig Stollid's talk on therapeutics for coeliac disease.    https://www.youtube.com/playlist?list=PLRcl2mPE0WdigRtJPvylUJbkCx263KF_t
    • Rejoicephd
      Basic metabolic panel results - more flags

      By Rejoicephd · Posted

      Thank you @trents for letting me know you experience something similar thanks @knitty kitty for your response and resources.  I will be following up with my doctor about these results and I’ll read the articles you sent. Thanks - I really appreciate you all.
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.