Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Who Else Takes...


num1habsfan

Recommended Posts

num1habsfan Rising Star

I know I mentioned this in my last post but nobody's replied since so I'm gonna put this in a separate area so everyone sees it...

Like I had said, I have now been prescribed Zelnorm which WILL drive me completely broke!! ($150/month, no drug plan covers it)...

My pharmacist said it'll probably take a month before my mody accepts the meds...

The side affects listed are:

  • headache
  • diarrhea
  • abdominal pain
  • nausea
  • flatulence
  • dizziness
  • back pain
  • flu-like symptoms (fever, muscle ache, fatigue, headache and/or cough)

Since I started these yesterday I've definitely had more diarrhea than normal, and gas, and back pain, and a fever...

Has anyone else had side affects from Zelnorm? and how long did they last for you???

~ lisa ~


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



linds Apprentice

I took it!! for IBS before going gluten free. It gave me diarrhea the first week or so and then everything worked itself out as I had had constipation before. I also felt dizzy and was really sleepy all the time but that went away after a week or two also. I stopped taking it because we wanted to know that going gluten free was what was helping me feel better not the pills. But i really liked it. Its a bummer that your insurance doesn't cover it. I never realized how much it was since my insurance did cover it. Hope that helps you some.

debmidge Rising Star

Lisa: what reason does insurance give you for not covering it? (I am asking only in event I can help you to get them to at least pay something towards it.) I do insurance as my job.

jenvan Collaborator

I took Zelnorm for a while. I am not a huge fan of it. For most folks I've talked to, it just gives you D. Have you tried psyllium/fiber supplements? I would exhaust the more natural options first, if you haven't. Psyllium works better for me than Zelnorm ever did...

AmandaD Community Regular

Use Citrucel for IBS-D or C. IT's amazing.

num1habsfan Rising Star

I'm in Canada, theres no such thing as insurance ;) We have things called drug plans, where you can apply to be covered for 65% of any prescription expenses. Some certain things just arent covered.

I dont actually have IBS-D or IBS-C. He's just giving me this for pain relief because I said that Buscopan doesnt help me any (and I can tell Zelnorm is much stronger because it REALLY knocks me out literally speaking of course).

I'm supposed to be on it for 3 months so I'm not gonna quit it but yeah the diarrhea/tiredness/fever/headache/back pain really sucks I tell ya -- more excuse to miss class for the bathroom i guess :lol:

~ lisa ~

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    3. - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    4. - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

    5. - Scott Adams replied to Silk tha Shocker's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Help


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,483
    • Most Online (within 30 mins)
      7,748

    AML2013
    Newest Member
    AML2013
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Flash1970
      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
    • Roses8721
      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
    • Ginger38
      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress but I have been on / off the gluten free diet for the last year , after being talked into going back on gluten to have a biopsy, that looked okay. But I do have positive antibody levels that have been responsive  to a gluten free diet. I can’t help but wonder if the last year has caused all this. 
    • Scott Adams
      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.