Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Who Else Takes...

num1habsfan

Recommended Posts

num1habsfan Rising Star
num1habsfan
Posted

I know I mentioned this in my last post but nobody's replied since so I'm gonna put this in a separate area so everyone sees it...

Like I had said, I have now been prescribed Zelnorm which WILL drive me completely broke!! ($150/month, no drug plan covers it)...

My pharmacist said it'll probably take a month before my mody accepts the meds...

The side affects listed are:

  • headache
  • diarrhea
  • abdominal pain
  • nausea
  • flatulence
  • dizziness
  • back pain
  • flu-like symptoms (fever, muscle ache, fatigue, headache and/or cough)

Since I started these yesterday I've definitely had more diarrhea than normal, and gas, and back pain, and a fever...

Has anyone else had side affects from Zelnorm? and how long did they last for you???

~ lisa ~

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


linds Apprentice
linds
Posted

I took it!! for IBS before going gluten free. It gave me diarrhea the first week or so and then everything worked itself out as I had had constipation before. I also felt dizzy and was really sleepy all the time but that went away after a week or two also. I stopped taking it because we wanted to know that going gluten free was what was helping me feel better not the pills. But i really liked it. Its a bummer that your insurance doesn't cover it. I never realized how much it was since my insurance did cover it. Hope that helps you some.

debmidge Rising Star
debmidge
Posted

Lisa: what reason does insurance give you for not covering it? (I am asking only in event I can help you to get them to at least pay something towards it.) I do insurance as my job.

jenvan Collaborator
jenvan
Posted

I took Zelnorm for a while. I am not a huge fan of it. For most folks I've talked to, it just gives you D. Have you tried psyllium/fiber supplements? I would exhaust the more natural options first, if you haven't. Psyllium works better for me than Zelnorm ever did...

AmandaD Community Regular
AmandaD
Posted

Use Citrucel for IBS-D or C. IT's amazing.

num1habsfan Rising Star
num1habsfan
Posted
  • Author

I'm in Canada, theres no such thing as insurance ;) We have things called drug plans, where you can apply to be covered for 65% of any prescription expenses. Some certain things just arent covered.

I dont actually have IBS-D or IBS-C. He's just giving me this for pain relief because I said that Buscopan doesnt help me any (and I can tell Zelnorm is much stronger because it REALLY knocks me out literally speaking of course).

I'm supposed to be on it for 3 months so I'm not gonna quit it but yeah the diarrhea/tiredness/fever/headache/back pain really sucks I tell ya -- more excuse to miss class for the bathroom i guess :lol:

~ lisa ~

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Ibuprofen

      Yes, some people do get withdrawal from gluten but gluten withdrawal doesn't usually cause gut pain. Maybe more like general body aches and discomfort. We have articles on gluten withdrawal on this forum. You might do a search for them. Applesauce is very acidic and some brands have added vitamin C (ascorbic acid) which makes them more acidic. This can...
    2. Colleen H
      - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Ibuprofen

      Do you or anyone know alot about ibuprofen I wasn't sure if I was eating too much apple sauce. Something is making my pain so much worse I'm referring to the intense pins and needles in my feet and lower legs. Jaw actually has tardive dystonia and muscle spasms throughout my back Almost like an opposite effect that a pain reliever...
    3. Colleen H
      - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Ibuprofen

    4. Colleen H
      - Colleen H posted a topic in Coping with Celiac Disease
      0

      Oh my goodness medication causing pain !!!!

      I think I found a huge culprit for severe reactions to create worsening of my c symptoms. Do people with celiac have sensitivity and /or have opposite reaction to certain medications Where can I find a list ? I'm new here I'm.wondering why I am getting worse when I take certain medicine...the burning feet. Rebound muscle pain so intense ...
    5. Colleen H
      - Colleen H replied to Colleen H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Stomach burning and neuropathy

      Does anyone know if that includes scrambled eggs and healthy smart butter (,gluten free) I add a very tiny amount of margarine less than a teaspoon. I did no't have any bread It just seems like no matter what I eat my stomach and nerves over fire and here comes a host of horrible symptoms. My lower abdomen feels horrible, my right...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,848
    • Most Online (within 30 mins)
      7,748
    Francis M
    Newest Member
    Francis M
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Ibuprofen

      By trents · Posted

      Yes, some people do get withdrawal from gluten but gluten withdrawal doesn't usually cause gut pain. Maybe more like general body aches and discomfort. We have articles on gluten withdrawal on this forum. You might do a search for them. Applesauce is very acidic and some brands have added vitamin C (ascorbic acid) which makes them more acidic. This can damage the stomach lining if you eat it too often. Especially if your stomach lining is already compromised. Ibuprofen inhibits the body's ability to rebuild the stomach's protective mucosal lining. That's why it can cause peptic ulcers. As strange as it may sound, low level irritation/inflammation stimulates the body to rebuild the stomach lining. There are two steps in this rebuilding process known as COX 1 and COX 2. Ibuprofen represses both COX 1 and COX 2. Celecoxcib, a prescription anti inflammatory, inhibits only COX 2, making it less likely to cause damage to the gut lining.
    • Colleen H
      Ibuprofen

      By Colleen H · Posted

      Do you or anyone know alot about ibuprofen  I wasn't sure if I was eating too much apple sauce.   Something is making my pain so much worse  I'm referring to the intense pins and needles in my feet and lower legs.  Jaw actually has tardive dystonia and muscle spasms throughout my back Almost like an opposite effect that a pain reliever would do. I'm fairly new to this. Whatever is going on seems to be worsening  Do people get a withdrawal effect from gluten?  It's extremely painful 😖  I'll post that question or research on the site  Thank you everyone for responding 
    • Colleen H
      Ibuprofen

      By Colleen H · Posted

    • Colleen H
      Oh my goodness medication causing pain !!!!

      By Colleen H · Posted

      I think I found a huge culprit for severe reactions to create worsening of my c symptoms. Do people with celiac have sensitivity and /or have opposite reaction to certain medications Where can I find a list ?  I'm new here I'm.wondering why I am getting worse when I take certain medicine...the burning feet.  Rebound muscle pain so intense  How many people get opposite effects or have a horrible attack after these meds
    • Colleen H
      Stomach burning and neuropathy

      By Colleen H · Posted

      Does anyone know if that includes scrambled eggs and healthy smart butter (,gluten free) I add a very tiny amount of margarine less than a teaspoon.  I did no't have any bread    It just seems like no matter what I eat my stomach and nerves over fire and here comes a host of horrible symptoms. My lower abdomen feels horrible, my right leg thigh muscle.. very odd. Jaw pain. Burning feet , joint pain , you name it  The anxiety just creeps up into brain fog. I don't think I could explain this to anyone who is unfamiliar.  Also,  I most likely will not remember posting this until I check it.  This is highly unusual for me because I have an excellent memory.  One weekend before I knew anything about celiac I lost an entire weekend from severe brain fog, confusion, pain, etc.  I honestly thought I was losing my mind. When I think back I recall eating a lot of PBJ sandwiches and turkey sandwiches.  Once again did not know about gluten.  I was just too sick to cook. Do people fast during attacks ?? It seems horrible to keep going through this. I hope I'm not causing my own problems... I wonder if I should fast because I'm not eating gluten .  Chicken ,  scrambled eggs no milk , canned carrots,  gluten free low sugar low fat Greek yogurt which I already posted about 😞 Any suggestions I am open... I am bedridden when this happens to me.  Thank you Celiac community. 🙏🏻❤️      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.