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Scared

Jo.R

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Jo.R Contributor
Jo.R
Posted

My blood test said I have celiac. I'm waiting for an endoscopy. The more I read the more worried I get. My symptoms seem mild compared to what I've read. I had thought that I would just have to watch how much gluten I took in. After reading several posts, I am beging to wonder. People are worried about cross contamination, and getting cancer from the cross contamination. Is it really that serious for all people who have celiac?

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CarlaB Enthusiast
CarlaB
Posted

Welcome to the board.

Don't be scared. Celiac is serious, but it's not life-threatening if you are on a gluten-free diet. It can cause lots of health problems if untreated.

It is important to know how all your food is prepared to avoid contamination as even a crumb is too much.

In the beginning, do not look at what you can't have and do not try to find substitutes for everything you eat now. Rethink the way you eat ... it's much less frustrating! Start out with meat, chicken, fish, eggs, nuts, fruit, veggies, potatoes, rice ... it's all naturally gluten-free and you will most likely heal faster and feel better more quickly eating healthy, whole foods for a while.

Then figure out if processed foods you currently use are already gluten-free. You can ask here. For example, Lays Stax are made on dedicated lines and are gluten-free. Kraft products are clearly labeled.

To that add gluten-free substitutes of food you like. I use a lot of Tinkyada Pasta and Kinnikinnick bread, donuts, and pizza crusts.

DO NOT go gluten-free until after your biopsy. Don't even cut back a little. You have to be consuming gluten for it to be accurate.

Guhlia Rising Star
Guhlia
Posted

I don't have much to add. I just wanted to say welcome to the forum!

oceangirl Collaborator
oceangirl
Posted
I don't have much to add. I just wanted to say welcome to the forum!

Welcome and fear not! Wishing you well.

lisa

Jo.R Contributor
Jo.R
Posted
  • Author

Thank-you!

KaitiUSA Enthusiast
KaitiUSA
Posted

If you follow the diet diligently you will be fine.

Annie/NM Apprentice
Annie/NM
Posted

I have really mild symptoms too but my bloodwork came back positive and my 3 year old son was diagnosed in June. He has had amazing changes since the diet so we will see what my biopsy says (it is tomorrow at 4:00 pm). With me, because I have such mild symptoms, I needed to do the biopsy to prove it to myself. I don't love a lot of the food my son likes that is gluten free so I think I was in denial. So we shall see. Good luck to you!

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IrishKelly Contributor
IrishKelly
Posted
My blood test said I have celiac. I'm waiting for an endoscopy. The more I read the more worried I get. My symptoms seem mild compared to what I've read. I had thought that I would just have to watch how much gluten I took in. After reading several posts, I am beging to wonder. People are worried about cross contamination, and getting cancer from the cross contamination. Is it really that serious for all people who have celiac?

OH, you poor thing, don't be scared...it's just a food allergy! If you follow the diet you will be fine. If you do extevsive research, you will see that it's older people who don't stick to the diet that end up with those horrible problems...so relax and enjoy your new healthy diet ;)

Lisa Mentor
Lisa
Posted
OH, you poor thing, don't be scared...it's just a food allergy! If you follow the diet you will be fine. If you do extevsive research, you will see that it's older people who don't stick to the diet that end up with those horrible problems...so relax and enjoy your new healthy diet ;)

First of all, who do you think is older :rolleyes: Me, oh surely not!!!!! <_<

Celiac Disease in not an ALLERGY, and let's not make any bones about it. Celiac is an INTOLLERENCE with the proteins in the glutens in wheat, barley, rye, malt and some oats, that cause and autoimmune reaction in our body (the small intestines).

The dx can be one of concern in the beginning, but the best part of it is that it can be healed by strict diet control........and the best part of it is, no more medical bills. We have all taken one step at a time and with wonderful support here.......lots of us have made it over the mountian. You will as well. :)

Welcome here. We have good people and great anwsers and a whole lot of experience. You can find a home here.

I am sure that you have many questions and the slightest is always welcome. We have all been where you are now.........so there is an understanding.

Hugs to you.

Lisa

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