Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hypothyroid


hannahsue01

Recommended Posts

hannahsue01 Enthusiast

After reading somthing somewhere on this site I looked up symptoms for hypothyroid and have found that I have every symptom listed on there. How many people have both this and celiacs.....is it comon? What to you do to treat it.....my regular doctor already thinks I am nuts. Any information on what to do about this would be helpful.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



georgie Enthusiast

Autoimmune diseases can happen together and there are types of autoimmune Thyroid so - yes - you can have both. I have. I found the HypoThyroid first and had to fight 3 Drs to get a dx and proper treatment. This Dr was so good she knew of the link between Thyroid and Celiac and B12 and tested me for those as well. My signature has a link. That is where I got the info that saved my life. How are your temps ? Low temps are an indicator for low Thyroid and possibly Adrenal Fatigue. You aren't nuts at all - your Dr needs to rethink. Or you need a new Dr.

hannahsue01 Enthusiast
  georgie said:
Autoimmune diseases can happen together and there are types of autoimmune Thyroid so - yes - you can have both. I have. I found the HypoThyroid first and had to fight 3 Drs to get a dx and proper treatment. This Dr was so good she knew of the link between Thyroid and Celiac and B12 and tested me for those as well. My signature has a link. That is where I got the info that saved my life. How are your temps ? Low temps are an indicator for low Thyroid and possibly Adrenal Fatigue. You aren't nuts at all - your Dr needs to rethink. Or you need a new Dr.

Unfortionantly the doctor who doesn't think I am nuts isn't covered under my insurance. I donno if I currently have actuall low temps. I have always had a problem with being cold when no one else is and have had cold hands and feet even in the summer. Another thing that keeps coming to mind is that about 6 years ago I took an anatomy and physiology class where we had to take our temps every hour for two days and average them for an asignment.....the thing is mine was on the low side......I wanna say at that point it avg somewere in the 97's.

georgie Enthusiast
  Quote
Another thing that keeps coming to mind is that about 6 years ago I took an anatomy and physiology class where we had to take our temps every hour for two days and average them for an asignment.....the thing is mine was on the low side......I wanna say at that point it avg somewere in the 97's.

Yup. Sounds Hypo. Warrants further testing. Have you read STTM ? It lists all the tests you need for Thyroid.

Ksmith Contributor
  georgie said:
Yup. Sounds Hypo. Warrants further testing. Have you read STTM ? It lists all the tests you need for Thyroid.

STTM???

hannahsue01 Enthusiast

The doc that I can't go to anymore becuase of insurance did do a thyroid test wich came back ok. I had a 1.82 and they say .34-5.60 are ok. Can these tests be wrong or inacurate? The test name was thyroid stim hormone.

Budew Rookie

Me too hypothyrodism and celiac. I just wanted to add that thyroid meds did not work for me because iodine blocked the uptake. Took me 20 years to figure that one out. It was not until I figured that one out that I actually began to get better. Fairly common with DH. They thought I was nuts too. The reality is they were ignorant. My doctor is not covered by my insurance, but worth every penny.

Good luck!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



georgie Enthusiast
  Quote
The doc that I can't go to anymore becuase of insurance did do a thyroid test wich came back ok. I had a 1.82 and they say .34-5.60 are ok.

Firstly. The lab range for TSH is 0.5 - 3.0 now and your Dr and lab are using old refernces. Most good Drs start to treat Hypo as TSH >2.

Read this and Print for your Dr to read.

Open Original Shared Link

Open Original Shared Link

There are also many doctors, general practitioners and even endocrinologists who are still routinely diagnosing and treating patients according to the old reference range simply because they aren't even aware of the new reference range guidelines.

Your Dr hasn't ordered all the Thyroid testing. You need FREE T3, FREE T4 and ANTIBODIES tested.

Its the Antibodies that will link you to Celiac as that is autoimmune Thyroid. Yes. It IS possible to have a normal TSH and have Antibodies for Hashis Thyroid. This is what happened to me and about EIGHT Drs got it wrong over THIRTY years !!

So go back to your Dr and make a fuss.

loraleena Contributor

I second Georgie. The only test that showed my hypo was the thyroid peroxidase antibodies.

dionnek Enthusiast

I have hypothryoid (dx 2 years ago when I was trying to get pregnant) and now celiac (dx 6 months ago) - not sure which came first.

elye Community Regular

Yep, these autoimmune disorders ABSOLUTELY tend to happen in clusters...the number of people with three or four conditions is just too big to be a coincidence! I have type one diabetes, celiac and most recently hypothyroidism. Many endocrinologists run the celiac panel on their diabetic patients every couple of years, and thyroid tests even more frequently.

Just read a fascinating post from frenchiemania on this very topic of celiac-thyroid connection...it's under "very interesting study on celiac..." in this related disorders section. Check it out! Very informative.

nikki-uk Enthusiast
  Ksmith said:
STTM???

I think it's a website - Stop the Thyroid Madness

Open Original Shared Link

Ksmith Contributor

Do all of you also have low body temps? Thanks!

georgie Enthusiast
  Quote
Do all of you also have low body temps? Thanks!

Oh yes! Did have. Not now I have my Thyroid Armour meds. Back 4 months ago I was wearing 2 thermals, 3 jumpers and a coat inside !!! And still cold. I needed a granny rug every night ! ( no central heating in Aust homes). When I learnt about Thyroid I started graphing my temp as per the Dr Rind web site, and my temps were 35.8 , 36.1 - highest ever was 36.3. Lowest was 35.1. I am titrating my Armour still, and am up to 3 1/2 grains and my temps are getting better 36.5 ... am going to add some more Armour soon. You go up 1/4 grain every 6 weeks - so it takes a while to get normal ! Good news is the weight. All my life its been a struggle and now - its all starting to melt away. I just feel so alive for the first time in years!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,183
    • Most Online (within 30 mins)
      7,748

    Portia
    Newest Member
    Portia
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      First, welcome to the forum, @boy-wonder! Second, a little clarification in terminology is in order. Granted, inconsistency is rampant when it comes to the terminology associated with gluten disorders, but it has more or less become settled in this fashion: "Gluten intolerance" is a general term that car refer to either celiac disease or NCGS (Non Celiac Gluten Sensitivity). "Gluten Sensitivity" is the shortened version of NCGS. Third, Celiac disease is not an allergy to gluten. It is an autoimmune disorder characterized by gluten ingestion causing the immunes system to attack the lining of the small bowel, causing damage to it over time due to the constant inflammation that wears...
    • AllyJR
      Has anyone found a gluten free parakeet seed mix? I can't find a single one! My doctor wants me to make sure all pet food in the house is gluten free but I'm not sure if that's even possible with parakeets. We love our birds so much! I'm wondering if anyone has ever made their own bird seed mix if gluten free ones are not available. 
    • boy-wonder
      Hi, new member. About me, I had been suffering with weight gain, bloating and irregular and extreme bowel habits for a year or so. For example, I went on holiday in 2023, then again I  2024 at the same time of year and every shirt I wore in 2023 didn't fit anymore, couldn't even do the buttons up. Being in my mid 50s I put it down to age and middle aged spread. I'd been lucky all my life having good metabolism and being able to eat anything and as much as I like without putting on any weight, it drove my other half mad. Over a conversation with a friend health and age Related stuff came up and he mentioned someone he knew who had recently found out they were gluten...
    • ValerieC
      Does anybody know of a guide that ranks reevaluates universities and colleges in terms of their accommodation of celiac disease or food allergies?   Thanks in advance for any leads! Valerie 
    • thejayland10
      thank you, i have been doing that the last few weeks and will continue to do so. I had not had my ttg iga checked since I was diagnosed 14 yrs ago so I am not sure if they ever dropped below the 15-20 range.    all my other labs are completely normal but I am concerned that this may be signs of refractor celiac or something else since I'm so careful with gluten-free diet 
×
×
  • Create New...