Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hypothyroid

hannahsue01

By hannahsue01
in Related Issues & Disorders

Recommended Posts

hannahsue01 Enthusiast
hannahsue01
Posted

After reading somthing somewhere on this site I looked up symptoms for hypothyroid and have found that I have every symptom listed on there. How many people have both this and celiacs.....is it comon? What to you do to treat it.....my regular doctor already thinks I am nuts. Any information on what to do about this would be helpful.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


georgie Enthusiast
georgie
Posted

Autoimmune diseases can happen together and there are types of autoimmune Thyroid so - yes - you can have both. I have. I found the HypoThyroid first and had to fight 3 Drs to get a dx and proper treatment. This Dr was so good she knew of the link between Thyroid and Celiac and B12 and tested me for those as well. My signature has a link. That is where I got the info that saved my life. How are your temps ? Low temps are an indicator for low Thyroid and possibly Adrenal Fatigue. You aren't nuts at all - your Dr needs to rethink. Or you need a new Dr.

hannahsue01 Enthusiast
hannahsue01
Posted
  • Author
Autoimmune diseases can happen together and there are types of autoimmune Thyroid so - yes - you can have both. I have. I found the HypoThyroid first and had to fight 3 Drs to get a dx and proper treatment. This Dr was so good she knew of the link between Thyroid and Celiac and B12 and tested me for those as well. My signature has a link. That is where I got the info that saved my life. How are your temps ? Low temps are an indicator for low Thyroid and possibly Adrenal Fatigue. You aren't nuts at all - your Dr needs to rethink. Or you need a new Dr.

Unfortionantly the doctor who doesn't think I am nuts isn't covered under my insurance. I donno if I currently have actuall low temps. I have always had a problem with being cold when no one else is and have had cold hands and feet even in the summer. Another thing that keeps coming to mind is that about 6 years ago I took an anatomy and physiology class where we had to take our temps every hour for two days and average them for an asignment.....the thing is mine was on the low side......I wanna say at that point it avg somewere in the 97's.

georgie Enthusiast
georgie
Posted
Another thing that keeps coming to mind is that about 6 years ago I took an anatomy and physiology class where we had to take our temps every hour for two days and average them for an asignment.....the thing is mine was on the low side......I wanna say at that point it avg somewere in the 97's.

Yup. Sounds Hypo. Warrants further testing. Have you read STTM ? It lists all the tests you need for Thyroid.

Ksmith Contributor
Ksmith
Posted
Yup. Sounds Hypo. Warrants further testing. Have you read STTM ? It lists all the tests you need for Thyroid.

STTM???

hannahsue01 Enthusiast
hannahsue01
Posted
  • Author

The doc that I can't go to anymore becuase of insurance did do a thyroid test wich came back ok. I had a 1.82 and they say .34-5.60 are ok. Can these tests be wrong or inacurate? The test name was thyroid stim hormone.

Budew Rookie
Budew
Posted

Me too hypothyrodism and celiac. I just wanted to add that thyroid meds did not work for me because iodine blocked the uptake. Took me 20 years to figure that one out. It was not until I figured that one out that I actually began to get better. Fairly common with DH. They thought I was nuts too. The reality is they were ignorant. My doctor is not covered by my insurance, but worth every penny.

Good luck!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


georgie Enthusiast
georgie
Posted
The doc that I can't go to anymore becuase of insurance did do a thyroid test wich came back ok. I had a 1.82 and they say .34-5.60 are ok.

Firstly. The lab range for TSH is 0.5 - 3.0 now and your Dr and lab are using old refernces. Most good Drs start to treat Hypo as TSH >2.

Read this and Print for your Dr to read.

Open Original Shared Link

Open Original Shared Link

There are also many doctors, general practitioners and even endocrinologists who are still routinely diagnosing and treating patients according to the old reference range simply because they aren't even aware of the new reference range guidelines.

Your Dr hasn't ordered all the Thyroid testing. You need FREE T3, FREE T4 and ANTIBODIES tested.

Its the Antibodies that will link you to Celiac as that is autoimmune Thyroid. Yes. It IS possible to have a normal TSH and have Antibodies for Hashis Thyroid. This is what happened to me and about EIGHT Drs got it wrong over THIRTY years !!

So go back to your Dr and make a fuss.

loraleena Contributor
loraleena
Posted

I second Georgie. The only test that showed my hypo was the thyroid peroxidase antibodies.

dionnek Enthusiast
dionnek
Posted

I have hypothryoid (dx 2 years ago when I was trying to get pregnant) and now celiac (dx 6 months ago) - not sure which came first.

elye Community Regular
elye
Posted

Yep, these autoimmune disorders ABSOLUTELY tend to happen in clusters...the number of people with three or four conditions is just too big to be a coincidence! I have type one diabetes, celiac and most recently hypothyroidism. Many endocrinologists run the celiac panel on their diabetic patients every couple of years, and thyroid tests even more frequently.

Just read a fascinating post from frenchiemania on this very topic of celiac-thyroid connection...it's under "very interesting study on celiac..." in this related disorders section. Check it out! Very informative.

nikki-uk Enthusiast
nikki-uk
Posted
STTM???

I think it's a website - Stop the Thyroid Madness

Open Original Shared Link

Ksmith Contributor
Ksmith
Posted

Do all of you also have low body temps? Thanks!

georgie Enthusiast
georgie
Posted
Do all of you also have low body temps? Thanks!

Oh yes! Did have. Not now I have my Thyroid Armour meds. Back 4 months ago I was wearing 2 thermals, 3 jumpers and a coat inside !!! And still cold. I needed a granny rug every night ! ( no central heating in Aust homes). When I learnt about Thyroid I started graphing my temp as per the Dr Rind web site, and my temps were 35.8 , 36.1 - highest ever was 36.3. Lowest was 35.1. I am titrating my Armour still, and am up to 3 1/2 grains and my temps are getting better 36.5 ... am going to add some more Armour soon. You go up 1/4 grain every 6 weeks - so it takes a while to get normal ! Good news is the weight. All my life its been a struggle and now - its all starting to melt away. I just feel so alive for the first time in years!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      My journey is it gluten or fiber?

      I don't know if I am getting sufficient Omega Threes. I read about phosphotidyl choline may cause heart issues. I will have o do further research on heathy Omega 3 supplements or from foods. Is there a blood test that can tell you everything level in your system such as Thiamine, Benfotiamine levels etc? Thanks
    2. Scott Adams
      0

      Gluten-Free Cantonese Steamed Fish with Ginger, Scallions, and Sizzling Oil

    3. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      results from 13 day gluten challenge - does this mean I can't have celiac?

      If lectins were my problem, I would react to wheat germ (the highest source of wheat lectins) and beans. I don't. I only react to bread and pasta, which are the highest sources of gluten. Therefore, my issue is wheat-specific (Gluten/ATIs), not a general lectin issue. I have eaten a supposedly high lectin diet (I say supposedly because lectin...
    4. knitty kitty
      - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      results from 13 day gluten challenge - does this mean I can't have celiac?

      @catnapt, Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract. They can stimulate IgG antibody production as your blood test shows. Even beans have lectins. You've simply eaten too many lectins and irritated your digestive tract. You may want to allow your digestive tract...
    5. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      My journey is it gluten or fiber?

      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg). Both are gluten free and free of other allergens. I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25". It's gluten and allergen free and made in the USA. It's a powder form of Vitamin A. ...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748
    Klairep
    Newest Member
    Klairep
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      I don't know if I am getting sufficient Omega Threes. I read about  phosphotidyl choline may cause heart issues. I will have o do further research on heathy Omega 3 supplements or from foods. Is there a blood test that can tell you everything level in your system such as Thiamine, Benfotiamine levels etc? Thanks
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      If lectins were my problem, I would react to wheat germ (the highest source of wheat lectins) and beans. I don't. I only react to bread and pasta, which are the highest sources of gluten. Therefore, my issue is wheat-specific (Gluten/ATIs), not a general lectin issue.   I have eaten a supposedly high lectin diet (I say supposedly because lectin content in these foods is greatly reduced by proper cooking and I eat very few of those foods raw, and even then, rarely!!) for years. My health has improved greatly on my whole foods plant forward diet. I have asked all my drs and a registered dietician about my diet, asked if eating such a high amnt of fiber might interfere with the digestion of any other nutrients and the answer has always been NO.     while doing the gluten challenge I did not eat ANY wheat germ (since it doesn't have hardly any gluten, and I was too sick from the bread and pasta to want to eat much anyway) I will NOT put that poison in my body again. That was a horrific experience and if this is what most celiac patients have to deal with, I am very sorry for them I don't care if I have celiac or NCGS I won't intentionally cause myself that much pain and suffering it's not worth it.  
    • knitty kitty
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By knitty kitty · Posted

      @catnapt,  Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract.  They can stimulate IgG antibody production as your blood test shows.   Even beans have lectins.  You've simply eaten too many lectins and irritated your digestive tract.   You may want to allow your digestive tract to rest for a week, then start on gluten in "normal" food, not in concentrated vital wheat gluten. This explains it well: Lectins, agglutinins, and their roles in autoimmune reactivities https://pubmed.ncbi.nlm.nih.gov/25599185/
    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg).   Both are gluten free and free of other allergens.  I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25".  It's gluten and allergen free and made in the USA.  It's a powder form of Vitamin A.  I was having trouble digesting fats at one point, but found I tolerated the powder form much better and have stuck with it since.   Tryptophan and Vitamin A help heal the intestines as well as improves skin health.  I get Dermatitis Herpetiformis and eczema flairs when my stomach is upset.  So I'm healing the outside as well as the inside.   I take one 1000 mg Tryptophan before bedtime.   With the Thiamine HCl, take 100 mg to start.  If you don't notice anything, three hours later take another. You can keep increasing your dose in this manner until you do notice improvement.  Remember not to take it in the evening so it won't keep you too energized to sleep. When I first started Thiamine HCl, taking 500 mg to 1000 mg to start was recommended.  If you've been thiamine insufficient for a while, you do notice a big difference.  It's like the start of a NASCAR race: Zoom, Zoom, turn it up!   This scared or made some people uncomfortable, but it's just your body beginning to function properly, like putting new spark plugs in your engine.  I took 1000 mg all at once without food.  It kicked in beautifully, but I got a tummy ache, so take with food.  I added in Thiamine TTFD and Benfotiamine weeks later and felt like I was Formula One racing.  So cool.  You may feel worse for a couple days as your body adjusts to having sufficient thiamine.  Feels sort of like you haven't cranked your engine for a while and it backfires and sputters, but it will settle down and start purring soon enough.  Adjust your dose to what feels right for you, increasing your dose as long as you feel improvement.  You can reach a plateau, so stay there for several days, then try bumping it up again.  If no more improvements happen, you can stay at the plateau amount and experiment with increasing your Thiamine TTFD.  It's like being your own lab rat.  LoL Yes, take one Benfotiamine at breakfast and one at lunch.  Take the B Complex at breakfast. Take the TTFD at breakfast and lunch as well.  I like to take the vitamins at the beginning of meals and the NeuroMag at the end of meals.   You may want to add in some zinc.  I take Thorne Zinc 30 mg at breakfast at the beginning of the meal.   Are you getting sufficient Omega Threes?  Our brains are made up mostly of fat.  Flaxseed oil supplements, sunflower seed oil supplements (or eat the seeds themselves) can improve that.  Cooking with extra virgin olive oil, avocado oil, or coconut oil is also helpful.   @Wheatwacked likes phosphotidyl choline supplements for his Omega Threes.  He's also had dramatic health improvement by supplementing thiamine.  You're doing great!  Thank you for sharing your journey with us.  This path will smooth out.  Keep going!  
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.