Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Confused

Amooliakin

By Amooliakin
in Coping with Celiac Disease

Recommended Posts

Amooliakin Apprentice
Amooliakin
Posted

I read two things that seem to contradict each other. I'm wondering if they are both true but for different people.

One said that it is common to go gluten-free for a few years as a kid, then let gluten back in the diet with no symptoms. The book was explaining that no symptoms does NOT mean no Celiac disease. But I had not heard before of symptoms disappearing with age.

On the other hand, I hear a LOT from people who had less symptoms BEFORE going gluten-free and who find that after they have gotten all gluten out of their bodies they have a much STRONGER reaction to even tiny amounts.

So which is true?

Or can it be both?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


happygirl Collaborator
happygirl
Posted

I believe it is both.

It makes sense because they describe celiac as a medical chameleon. Some people are 100% asymptomatic, others are debilitated and have every symptom, and most fall somewhere in between.

So yes, it is possible to have reactions sometimes, and others not. But, like you said, the lack of symptoms does not mean celiac is not there (proof: Asymptomatic celiacs with completely blutned villi)

And yes, some people who get gluten out get increasingly sensitive (I am a lucky one of those people).

mommida Enthusiast
mommida
Posted

Both are true.

In the old days, they thought children outgrew Celiac because the symptoms lesson.

Since going gluten free my symptoms of accidental glutening have been worse in my opinion. (To explain all of that would be TMI.)

L.

happygirl Collaborator
happygirl
Posted

isn't it interesting what docs "used" to know...

Nantzie Collaborator
Nantzie
Posted
isn't it interesting what docs "used" to know...

Are you suggesting that leeches AREN'T gluten-free??? :lol:

I'm going to have to rethink my HMO...

B)

But seriously folks...

I think I read the same book. They said that during adolescence that the symptoms can lessen. I think at this point they're not sure if it's a true remission, where no celiac or intolerance is present and no damage is being done at all, or if it's still damaging you, but just not showing outward symptoms.

Nancy

Saz Explorer
Saz
Posted

I've never been somone to get sick on just a piece bread, however even I have always had my limits.

When I was younger my limit was a lot less than what was since I was prolly about 14, howver even I have been able to eat more gluten in my teens, I most def still have limits.

From what I have read tho, this doesn't mean its not hurting you - I think it is much like a smoker, Just because it doesnt effect you immediately doesn't mean that it is not doing any damage.

I have heard of people who are allergic to gluten but after following a gluten free diet for a year or so can eat it again and they don't have problems.

almostnrn Explorer
almostnrn
Posted
Both are true.

In the old days, they thought children outgrew Celiac because the symptoms lesson.

Since going gluten free my symptoms of accidental glutening have been worse in my opinion. (To explain all of that would be TMI.)

L.

I had a clinical intstructor in nursing school try to tell me that this was the case with her. How do you correct your professor and the keeper of your clinical grade?! I tried to test the waters and she wouldn't hear of it...there was no way she could be wrong and her student was right. I let it go quickly, lol. Although that does explain a lot of her mental instabilities! :P

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mommida Enthusiast
mommida
Posted

Danna Korn has mentioned "the honeymoon phase" in her book Kid's with celiac disease. There are other documented sources out there.

Wait until your grade is in, set in stone, and then drop off an information packet to this "teacher". ;)

L.

Amooliakin Apprentice
Amooliakin
Posted
  • Author

I know I am going off the topic now... but you bring up an interesting phenomenon. Now that I know about celiac, and we are taking care of our daughter in the right way, I find there are SO MANY adults who I meet who think they outrgrew celiac years ago, or their adult kids did, etc. They do not want to hear differntly - and I don't know them well enough to tell them the truth. I wish there was one simple booklet that I could hand out instead of trying to explain it or refer them to books they don't want to read or web sites they don't think they need....

Tim-n-VA Contributor
Tim-n-VA
Posted

Doesn't some of the confusion come from the fact that you can outgrow an allergy and a wheat allergy could have very similar outward symptoms to celiac?

Lisa Mentor
Lisa
Posted
Doesn't some of the confusion come from the fact that you can outgrow an allergy and a wheat allergy could have very similar outward symptoms to celiac?

Yes, most likely. Some many out grow an allergy, but an intolerance, never. <_<

lindalee Enthusiast
lindalee
Posted

I was a celiac baby and thought I outgrew it until this year. I don't understand why symptoms are hidden. I have heard that smoking hides the symptoms.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    2. Ello
      - Ello replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results. Thank you
    3. trents
      - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to...
    4. Ello
      - Ello replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response.
    5. trents
      - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,831
    • Most Online (within 30 mins)
      7,748
    ATownCeliac
    Newest Member
    ATownCeliac
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      Small Bowel Resection 12 inches

      By Ello · Posted

      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Small Bowel Resection 12 inches

      By Ello · Posted

      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.