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- Heatherisle replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease8Pain in the right side of abdomen
I know these topics are a few years old but thought I would comment. My daughter was diagnosed last November from endoscopy end of August. Having good and bad days but recently having a bout of lower back pain, bloating, some abdominal discomfort with a feeling of pressure. She’s doing her best with gluten free and finally has an appointment with the dietitian t... -
- trents replied to science enthusiast Christi's topic in Coping with Celiac Disease1Sugar intolerance 10 years into gluten-free diet
Welcome to the celiac.com community, @science enthusiast Christi! I don't have a problem with disaccharides but I do with polysaccharides and complex carbohydrates which are so common in many gluten free processed foods. Gar gum, xanthan gum, pea fiber, chicory root, inulin etc. All those "prebiotics". -
- science enthusiast Christi posted a topic in Coping with Celiac Disease1Sugar intolerance 10 years into gluten-free diet
Hey Celiac friends, I'm wondering how weird I am. About a year ago, I started getting bloated all the time and having extremely smelly gas. Lots of it. I had to avoid people, keep windows open, etc. It really upended my life in a somewhat horrifying way. I figured out that if I didn't eat any sugar, the symptoms mostly resolved. With more experimentation... -
- trents replied to Healthierbody2026's topic in Introduce Yourself / Share Stuff1
New at gluten sensitivity
Welcome to the celiac.com community, @Healthierbody2026! Just let me check something with you because there is still much confusion in the general population regarding the terminology associated with gluten disorders. You say you have recently been diagnosed with gluten sensitivity. Do you mean NCGS (Non Celiac Gluten Sensitivity) or Celiac disease... -
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By Heatherisle · Posted
I know these topics are a few years old but thought I would comment. My daughter was diagnosed last November from endoscopy end of August. Having good and bad days but recently having a bout of lower back pain, bloating, some abdominal discomfort with a feeling of pressure. She’s doing her best with gluten free and finally has an appointment with the dietitian this week, also waiting to have several blood tests done. Have told her it takes time for things to settle but she’s worried it might be recurrence of an ovarian cyst from 2/3 years ago. -
Welcome to the celiac.com community, @science enthusiast Christi! I don't have a problem with disaccharides but I do with polysaccharides and complex carbohydrates which are so common in many gluten free processed foods. Gar gum, xanthan gum, pea fiber, chicory root, inulin etc. All those "prebiotics".
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By science enthusiast Christi · Posted
Hey Celiac friends, I'm wondering how weird I am. About a year ago, I started getting bloated all the time and having extremely smelly gas. Lots of it. I had to avoid people, keep windows open, etc. It really upended my life in a somewhat horrifying way. I figured out that if I didn't eat any sugar, the symptoms mostly resolved. With more experimentation, I found out that I'm intolerant to any disaccharides (things with sucrose, maltose) and some starches. I've since figured my small intestine stopped making some digestive enzymes. Since Celiac causes the immune system to attack the small intestine, I wonder if I was getting low-level gluten contamination from my environment. (My family eats gluten in our home, and I have to use a shared kitchen at work for lunch.) I am apparently among the 2% of Celiacs who also have a similar reaction to soy. I've been avoiding both gluten and soy for over a decade now, but sometimes you just get poisoned. For example, I love my houseplants and bought an insect-preventing spray online. After spraying it on all my houseplants, I found out it has soybean oil. Sure enough, two days later I was sick. Soy is such a big ingredient used in everything, I doubt it's possible for me to avoid it completely. Everyone uses lotions with soy on their hands, so every doorknob and switch and item I touch is risky for me. I was just wondering, has anyone else had carbohydrate intolerance after or related to Celiac? My doctor doesn't know anything about it, especially since I can still digest lactose. Wondering if there are other people out there with similar stories. If eating was complicated before, now it's a bit crazy to be honest. Thanks, Community! -
Welcome to the celiac.com community, @Healthierbody2026! Just let me check something with you because there is still much confusion in the general population regarding the terminology associated with gluten disorders. You say you have recently been diagnosed with gluten sensitivity. Do you mean NCGS (Non Celiac Gluten Sensitivity) or Celiac disease (aka, "gluten intolerance")? The symptoms of these two conditions overlap. Celiac disease has an autoimmune base and so, there are tests that can be run to detect antibodies in the blood that are produced. Celiac disease does damage to the small bowel lining because of the inflammation present from the autoimmune attack. This is not the case with NCGS for which there are no tests. Celiac disease must first be ruled out in order to arrive at a diagnosis of "gluten sensitivity".
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