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For The "real" Teens


Kassie

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brittanny Newbie
anyone frommm cannnada?

i'm from canada! ontario


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leadmeastray88 Contributor
i'm from canada! ontario

I'm from Canada as well...Winnipeg!

  • 2 months later...
Sunshine* Newbie

I'm from Wisconsin and I don't know any teenagers who have celiac.

I've been to support group meetings and such but its just middle aged/ elderly people.

so I feel kind of alone. :(

FaeLD Newbie

Hah! I'm from Malta, Europe.

I doubt anyone's from here :P

nikky Contributor
Hah! I'm from Malta, Europe.

I doubt anyone's from here :P

wow Malta.. howcome you arent in the eurovision dance contest? your in the song one arent you

FaeLD Newbie
wow Malta.. howcome you arent in the eurovision dance contest? your in the song one arent you

Yeah, people here take the esc way too seriously. We're not in the dance competition, but you'll see us in the song contest for sure.

(even though block voting = we never win :()

nikky Contributor
Yeah, people here take the esc way too seriously. We're not in the dance competition, but you'll see us in the song contest for sure.

(even though block voting = we never win :()

we never win either .. the voting is corrupt ..Malta has had some good entries


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FaeLD Newbie

I don't really mind that we don't win. I just watch it for some good laughs with friends.

Because seriously, some of the songs verge on stupid :D

nikky Contributor
I don't really mind that we don't win. I just watch it for some good laughs with friends.

Because seriously, some of the songs verge on stupid :D

im not bothered either i just wish the voting was fairer

someone entered a turkey last year...... lol

FaeLD Newbie

I know! That really cracked me up.

As well as the Spanish Entry.

nikky Contributor
I know! That really cracked me up.

As well as the Spanish Entry.

lol.. and the year before that guy with the silver costume

  • 2 weeks later...
B R I A N A Apprentice

The very polluted, over populated SOUTHERN CALIFORNIA.

  • 1 month later...
Kmarie Newbie

anyone from texas??

  • 2 weeks later...
Anna and Marie Newbie

How about kentucky? Louisville area...

eeyore Collaborator

Raleigh, NC?

minton Contributor

atlanta georgia area

nutrifoodie Apprentice

I'm 19, and in college.. so not "really" a teenager.

I'm from southern NH :D But I go to college is southern CA :D

LynziMarie Newbie

I'm 18, so I'm at the end of teenagedom and also a college student (well soon to be anyways)

I live in Northern Utah :)

  • 3 weeks later...
Youngceliac16 Apprentice
what part of the bay area i am from palo alto. you should join the bay area celiac teens support group!

I'm in the bay area too (Novato)! I didn't know their was a bay area... support group. Just wanted to say thanks for posting that and i'll go look it up. :P

Youngceliac16 Apprentice

Me again. I couldn't find the bay area teen celiac support group. Could someone post the link? Thank you!

  • 2 weeks later...
kim:) Apprentice
i'm from colorado and know of 2 other celiacs here, but no one around my age...

mia

What part of Colorado? Im from Steamboat Springs Colorado!!!!!

kim:) Apprentice
The center of Colorado, only 17 year old I know is me. sad day.

I know its been forever since this post was posted haha 2 years ago...but haha Im 15 now um and live in Steamboat Springs Colorado

lostnaphotograph Newbie

I'm Beth and I am from Michigan. I am 17 but soon to be 18 woot!! :)

CeliacJosie Newbie

I 'm in Canada. (:

kgies Newbie

I'm a legally an adult, but still 18. I noticed a few canadians and a MN. I'm from North Dakota, so you're the closest ones to me!

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    • RMJ
      This may be the problem. Every time you eat gluten it is like giving a booster shot to your immune system, telling it to react and produce antibodies again.
    • asaT
      Scott, I am mostly asymptomatic. I was diagnosed based on high antibodies, low ferritin (3) and low vitamin D (10). I wasn't able to get in for the biopsy until 3 months after the blood test came back. I was supposed to keep eating gluten during this time. Well why would I continue doing something that I know to be harmful for 3 more months to just get this test? So I did quit gluten and had the biopsy. It was negative for celiacs. I continued gluten free with iron supps and my ferritin came back up to a reasonable, but not great level of around 30-35.  Could there be something else going on? Is there any reason why my antibodies would be high (>80) with a negative biopsy? could me intestines have healed that quickly (3 months)?  I'm having a hard time staying gluten free because I am asymptomatic and i'm wondering about that biopsy. I do have the celiacs gene, and all of the antibody tests have always come back high. I recently had them tested again. Still very high. I am gluten free mostly, but not totally. I will occasionally eat something with gluten, but try to keep to a minimum. It's really hard when the immediate consequences are nil.  with high antibodies, the gene, but a negative biopsy (after 3 months strict gluten-free), do i really have celiacs? please say no. lol. i think i know the answer.  Asa
    • nanny marley
      I have had a long year of testing unfortunately still not diagnosed , although one thing they definitely agree I'm gluten intolerant, the thing for me I have severe back troubles they wouldnt perform the tests and I couldn't have a full MRI because I'm allergic to the solution , we tryed believe me  I tryed lol , another was to have another blood test after consuming gluten but it makes me so bad I tryed it for only a week, and because I have a trapped sciatic nerve when I get bad bowels it sets that off terribly so I just take it on myself now , I eat a gluten free diet , I'm the best I've ever been , and if I slip I know it so for me i have my own diagnosis  and I act accordingly, sometimes it's not so straight forward for some of us , for the first time in years I can plan to go out , and I have been absorbing my food better , running to the toilet has become occasionally now instead of all the time , i hope you find a solution 🤗
    • asaT
      I was undiagnosed for decades. My ferritin when checked in 2003 was 3. It never went above 10 in the next 20 years. I was just told to "take iron". I finally requested the TTgIgA test in 2023 when I was well and truly done with the chronic fatigue and feeling awful. My numbers were off the charts on the whole panel.  they offered me an endoscopic biopsy 3 months later, but that i would need to continue eating gluten for it to be accurate. so i quit eating gluten and my intestine had healed by the time i had the biopsy (i'm guessing??). Why else would my TTgIgA be so high if not celiacs? Anyway, your ferritin will rise as your intestine heals and take HEME iron (brand 4 arrows). I took 20mg of this with vitamin c and lactoferrin and my ferritin went up, now sits around 35.  you will feel dramatically better getting your ferritin up, and you can do it orally with the right supplements. I wouldn't get an infusion, you will get as good or better results taking heme iron/vc/lf.  
    • par18
      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test" itself. If you were gluten-free and got tested, you more than likely would test "true" negative or just negative. This means that the gluten-free diet is working and no anti-bodies should be present. I know it sounds confusing and if you don't agree feel free to respond. 
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