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For The "real" Teens


Kassie

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KoolGuyMkgee Newbie

I'm from Portland, Or. but im up in spokane at Gonzaga right now.


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  • Replies 126
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x1x-Stargirl-x1x Apprentice

i live in california

.::STARGIRL::.

x1x-Stargirl-x1x Apprentice

...

Daughter-of-TheLight Apprentice

Hey!'m from FL. I don't know any celiac teens. Only my mom, little brother, and some old lady my parents have known FOREVER.

  • 2 weeks later...
Guest Joshua

im from tennessee

Daughter-of-TheLight Apprentice
Hey!'m from FL. I don't know any celiac teens. Only my mom, little brother, and some old lady my parents have known FOREVER. Thank God for FL. I live in paradise...
taylor- Rookie

What part of florida do you live in? there are quite a few people from florida. like me :D


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Daughter-of-TheLight Apprentice

Not allowed to say. I don't want stalkers hunting me down. Not that I think any of you are stalkers, but anyone can read this. So... yeah. I live in FL and that's about all I'm allowed to say.

taylor- Rookie
Not allowed to say. I don't want stalkers hunting me down. Not that I think any of you are stalkers, but anyone can read this. So... yeah. I live in FL and that's about all I'm allowed to say.

Oh ok, well im from the tampa bay area, but I live in Tallahassee now for school. But there are people all over florida here.

  • 1 month later...
prettyXmuchXrad Newbie

Anybody else from Northern Indiana or anyplace around there? I feel like I'm the only one!

nzgirl Newbie

Hey I'm from New Zealand

anyone else from around here?!

Stargate-geek Newbie

Eastern Massachusetts, USA.

  • 2 weeks later...
HilaBean Newbie

Phoenix AZ. Any one? i know like one person who goes to my school,and she just found out she's gluten intolerant. I was for some reason, excited. i know thats terrible to say...

  • 2 weeks later...
Daughter-of-TheLight Apprentice

South FL? Anyone? (Yeah, I've already posted here, but WHO'S gonna look way in the middle for my post, I ask?)

  • 2 weeks later...
Kenpo89 Newbie

I live in Utah. I was diagnosed with celiac in feb. 2007

  • 1 month later...
fatcat11188 Newbie

Im from MA- New England's cold

OnlySamwise Newbie

i'm from Hawaii ;)

  • 2 weeks later...
Daughter-of-TheLight Apprentice

Awesome! i wish I lived in hawaii... Though I do like South FL...

nikky Contributor

Cool id love to live in Hawaii or FL ... but wales is ok ... though we get a lot of rain

fatcat11188 Newbie

New England, 1/2 hour away from Boston!

  • 2 weeks later...
OnlySamwise Newbie

That's cool :) . . . UK and FL sounds good to me :D

kiraalyx Newbie

anyone frommm cannnada?

  • 4 weeks later...
Fishy Guy Newbie

Heh, I'm from Michigan, and still searching for more celiacs my age...

  • 1 month later...
Tiger73549 Newbie

I live just South of Philadelphia, Pennsylvania.

I'm a 21 yo Male.

Ericka Newbie

Im from Minnesota, i know some people here with it too. Im very happy to live here there is so many places to eat and shop here for gluten-free foods its awesome i really do feel..i donno blessed maybe.

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    • Redanafs
      Hi everyone. Back in 2022 I had blood work drawn for iga ext gliadin. Since then I’ve developed worse stomach issues and all other health issues. My doctor just said cut out gluten. He did no further testing. Please see my test results attached. I just need some direction cause I feel so ill and the stomach pain is becoming worse. Can this test show indications for other gastrointestinal diseases?
    • Fayeb23
      Thank you. These were the results TTG ABS NUMERICAL: > 250.0 U/mL [< 14.99]  Really don’t understand the results!
    • Scott Adams
      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
    • RMJ
      To evaluate the TTG antibody result we’d need to know the normal range for that lab.  Labs don’t all use the same units.  However, based on any normal ranges that I’ve seen and the listed result being greater than a number rather than a specific number, I’d say yes, that is high! Higher than the range where the test can give a quantitative result. You got good advice not to change your diet yet.  If you went gluten free your intestines would start to heal, confusing any further testing,
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      Scott is correct….Thank you for catching that!      Direct link for info  of fillers.    http://www.glutenfreedrugs.com/Excipients.htm Link is on 2nd page  of www.glutenfreedrugs.com   Site was started by a pharmacist (or 2) maybe 15-20 yrs ago with LAST updated in  2017.  This makes it’s Drug List so old that it’s no longer relevant. Companies & contacts, along with suppliers &  sources would need to be referenced, same amount effort  as starting with current data on DailyMed      That being said, Excipient List is still be relevant since major changes to product labeling occurred prior ’17.           List is the dictionary that sources the ‘foreign-to-us’ terms used on pharmaceutical labels, terms we need to rule out gluten.    Note on DailyMed INFO— When you look for a specific drug on DailyMed, notice that nearly all of companies (brands/labels) are flagged as a ‘Repackager’… This would seem to suggest the actual ‘pills’ are being mass produced by a limited number of wholesaler suppliers (esp for older meds out of  patent protection.).      If so, multiple repackager-get  bulk shipments  from same supplier will all  be selling identical meds —same formula/fillers. Others repackager-could be switching suppliers  frequently based on cost, or runs both gluten-free & non- items on same lines.  No way to know  without contacting company.     While some I know have  searched pharmacies chasing a specific brand, long-term  solution is to find (or teach) pharmacy staff who’s willing help.    When I got 1st Rx ~8 years ago, I went to Walgreens & said I needed gluten-free.  Walked  out when pharmacist said  ‘How am I supposed  to know…’  (ar least he as honest… ). Walmart pharmacists down the block were ‘No problem!’—Once, they wouldn’t release my Rx, still waiting on gluten-free status from a new supplier. Re: Timeliness of DailyMed info?   A serendipitous conversation with cousin in Mi was unexpectedly reassuring.  She works in office of Perrigo, major products of OTC meds (was 1st to add gluten-free labels).  I TOTALLY lucked out when I asked about her job: “TODAY I trained a new full-time employee to make entries to Daily Med.’  Task had grown to hours a day, time she needed for tasks that couldn’t be delegated….We can only hope majorities of companies are as  conscientious!   For the Newbies…. SOLE  purpose of  fillers (possible gluten) in meds is to  hold the active ingredients together in a doseable form.  Drugs  given by injection or as IV are always gluten-free!  (Sometimes drs can do antibiotics w/ one-time injection rather than 7-10 days of  pills .) Liquid meds (typically for kids)—still read labels, but  could be an a simpler option for some products…
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