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For The "real" Teens


Kassie

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KoolGuyMkgee Newbie

I'm from Portland, Or. but im up in spokane at Gonzaga right now.


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  • Replies 126
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x1x-Stargirl-x1x Apprentice

i live in california

.::STARGIRL::.

x1x-Stargirl-x1x Apprentice

...

Daughter-of-TheLight Apprentice

Hey!'m from FL. I don't know any celiac teens. Only my mom, little brother, and some old lady my parents have known FOREVER.

  • 2 weeks later...
Guest Joshua

im from tennessee

Daughter-of-TheLight Apprentice
Hey!'m from FL. I don't know any celiac teens. Only my mom, little brother, and some old lady my parents have known FOREVER. Thank God for FL. I live in paradise...
taylor- Rookie

What part of florida do you live in? there are quite a few people from florida. like me :D


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Daughter-of-TheLight Apprentice

Not allowed to say. I don't want stalkers hunting me down. Not that I think any of you are stalkers, but anyone can read this. So... yeah. I live in FL and that's about all I'm allowed to say.

taylor- Rookie
Not allowed to say. I don't want stalkers hunting me down. Not that I think any of you are stalkers, but anyone can read this. So... yeah. I live in FL and that's about all I'm allowed to say.

Oh ok, well im from the tampa bay area, but I live in Tallahassee now for school. But there are people all over florida here.

  • 1 month later...
prettyXmuchXrad Newbie

Anybody else from Northern Indiana or anyplace around there? I feel like I'm the only one!

nzgirl Newbie

Hey I'm from New Zealand

anyone else from around here?!

Stargate-geek Newbie

Eastern Massachusetts, USA.

  • 2 weeks later...
HilaBean Newbie

Phoenix AZ. Any one? i know like one person who goes to my school,and she just found out she's gluten intolerant. I was for some reason, excited. i know thats terrible to say...

  • 2 weeks later...
Daughter-of-TheLight Apprentice

South FL? Anyone? (Yeah, I've already posted here, but WHO'S gonna look way in the middle for my post, I ask?)

  • 2 weeks later...
Kenpo89 Newbie

I live in Utah. I was diagnosed with celiac in feb. 2007

  • 1 month later...
fatcat11188 Newbie

Im from MA- New England's cold

OnlySamwise Newbie

i'm from Hawaii ;)

  • 2 weeks later...
Daughter-of-TheLight Apprentice

Awesome! i wish I lived in hawaii... Though I do like South FL...

nikky Contributor

Cool id love to live in Hawaii or FL ... but wales is ok ... though we get a lot of rain

fatcat11188 Newbie

New England, 1/2 hour away from Boston!

  • 2 weeks later...
OnlySamwise Newbie

That's cool :) . . . UK and FL sounds good to me :D

kiraalyx Newbie

anyone frommm cannnada?

  • 4 weeks later...
Fishy Guy Newbie

Heh, I'm from Michigan, and still searching for more celiacs my age...

  • 1 month later...
Tiger73549 Newbie

I live just South of Philadelphia, Pennsylvania.

I'm a 21 yo Male.

Ericka Newbie

Im from Minnesota, i know some people here with it too. Im very happy to live here there is so many places to eat and shop here for gluten-free foods its awesome i really do feel..i donno blessed maybe.

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    • trents
      Possibly. Your total IGA (Immunoglobulin A, Qn, Serum) is actually high so you are not IGA deficient. In the absence of IGA deficiency, the most reliable celiac antibody test would be the t-Transglutaminase (tTG) IgA for which your score is within normal range. There are other things besides celiac disease that might cause an elevated DGP-IGA (Deamidated Gliadin Abs, lgA) for which you do have a positive score. It might also be of concern that your total IGA is elevated as that can indicate some other health problems, some of which are serious.  Had you been practicing a gluten free or a reduced gluten free diet prior to the blood draw? Talk to your physician about these things. I would also seek an endoscopy/biopsy of the small bowel to check for damage to the villous lining, which is the gold standard diagnostic test for celiac disease.
    • MicG
      Test results as follows: Deamidated Gliadin Abs, lgA 40 H (normal range 0-19) Deamidated Gliadin Abs, IgG 4 (0-19) t-Transglutaminase (tTG) IgA <2 (0-3) t-Transglutaminase (tTG) IgG <2 (0-5) Endomysial Antibody IgA Negative (Negative) Immunoglobulin A, Qn, Serum 535 H (87-352) Do I have celiac?
    • catnapt
      how long does it take for the genetic blood test for celiac to come back? I saw the GI today, she was great. She says I def have an issue with gluten and that my symptoms align more with celiac disease than NCGS, so she's doing the genetic testing, Ordered a test for SIBO but said that's just to cover all bases, she doesn't think I have that. If the blood work comes back negative for the genes, then I will cancel the endoscopy. If positive, I will try the 2 week gluten challenge and get the endoscopy done. If I can't manage the gluten challenge (I had HORRIBLE symptoms last time and quit after 12 days) then we'll just assume it's celiac disease and go from there. She says she does a full nutrient panel on all her pts every year, that was nice to hear.I'm on so many supplements it would be nice to only have to get the ones I truly need! so yeh, really anxious about the test results for the genes!! I have an identical twin sister so I'd need to tell her if it's positive, she'd prob want to get tested too. *interesting note: when I said if the blood work comes back that I don't have the genes, then I'm in the clear - she said, well,,,,,,not necessarily. But she didn't want to go into as we had a lot to go over. I did make a  mental note of that comment and will ask her when I see her next time.   she was very thorough! I was impressed! she even checked- up on some lab work I had done that my Endo ordered. I like her, I am looking forward to seeing her again. I think I'll get some good advice and info from her she also complimented me on my diet.   said it was a very gut friendly and healthy diet 
    • Scott Adams
      I'm not sure why "colonoscopy" keeps coming up for you, again it would be an endoscopy to diagnose celiac disease, but it seems that Kaiser should still have your records. If you were diagnosed by them in the 1990's using a blood test and endoscopy, then you definitely have celiac disease, and hopefully you've been gluten-free since that time. You should be able to contact Kaiser for those records.
    • Russ H
      This sounds like a GP who is ignorant regarding coeliac disease. The risk with consuming gluten for several days is that it triggers the coeliac immune response, leading to raised auto-antibodies and active disease for several months. People may not even be aware of symptoms during this process, but it is causing damage to the body. As trents has said, the gut lining normally recovers on a strict gluten-free diet, and this happens much faster in children than in adults.
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