Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

For The "real" Teens


Kassie

Recommended Posts

KoolGuyMkgee Newbie

I'm from Portland, Or. but im up in spokane at Gonzaga right now.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 126
  • Created
  • Last Reply
x1x-Stargirl-x1x Apprentice

i live in california

.::STARGIRL::.

x1x-Stargirl-x1x Apprentice

...

Daughter-of-TheLight Apprentice

Hey!'m from FL. I don't know any celiac teens. Only my mom, little brother, and some old lady my parents have known FOREVER.

  • 2 weeks later...
Guest Joshua

im from tennessee

Daughter-of-TheLight Apprentice
Hey!'m from FL. I don't know any celiac teens. Only my mom, little brother, and some old lady my parents have known FOREVER. Thank God for FL. I live in paradise...
taylor- Rookie

What part of florida do you live in? there are quite a few people from florida. like me :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Daughter-of-TheLight Apprentice

Not allowed to say. I don't want stalkers hunting me down. Not that I think any of you are stalkers, but anyone can read this. So... yeah. I live in FL and that's about all I'm allowed to say.

taylor- Rookie
Not allowed to say. I don't want stalkers hunting me down. Not that I think any of you are stalkers, but anyone can read this. So... yeah. I live in FL and that's about all I'm allowed to say.

Oh ok, well im from the tampa bay area, but I live in Tallahassee now for school. But there are people all over florida here.

  • 1 month later...
prettyXmuchXrad Newbie

Anybody else from Northern Indiana or anyplace around there? I feel like I'm the only one!

nzgirl Newbie

Hey I'm from New Zealand

anyone else from around here?!

Stargate-geek Newbie

Eastern Massachusetts, USA.

  • 2 weeks later...
HilaBean Newbie

Phoenix AZ. Any one? i know like one person who goes to my school,and she just found out she's gluten intolerant. I was for some reason, excited. i know thats terrible to say...

  • 2 weeks later...
Daughter-of-TheLight Apprentice

South FL? Anyone? (Yeah, I've already posted here, but WHO'S gonna look way in the middle for my post, I ask?)

  • 2 weeks later...
Kenpo89 Newbie

I live in Utah. I was diagnosed with celiac in feb. 2007

  • 1 month later...
fatcat11188 Newbie

Im from MA- New England's cold

OnlySamwise Newbie

i'm from Hawaii ;)

  • 2 weeks later...
Daughter-of-TheLight Apprentice

Awesome! i wish I lived in hawaii... Though I do like South FL...

nikky Contributor

Cool id love to live in Hawaii or FL ... but wales is ok ... though we get a lot of rain

fatcat11188 Newbie

New England, 1/2 hour away from Boston!

  • 2 weeks later...
OnlySamwise Newbie

That's cool :) . . . UK and FL sounds good to me :D

kiraalyx Newbie

anyone frommm cannnada?

  • 4 weeks later...
Fishy Guy Newbie

Heh, I'm from Michigan, and still searching for more celiacs my age...

  • 1 month later...
Tiger73549 Newbie

I live just South of Philadelphia, Pennsylvania.

I'm a 21 yo Male.

Ericka Newbie

Im from Minnesota, i know some people here with it too. Im very happy to live here there is so many places to eat and shop here for gluten-free foods its awesome i really do feel..i donno blessed maybe.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Scatterbrain's topic in Sports and Fitness
      9

      Feel like I’m starting over

    2. - Scatterbrain replied to Scatterbrain's topic in Sports and Fitness
      9

      Feel like I’m starting over

    3. - knitty kitty replied to Scatterbrain's topic in Sports and Fitness
      9

      Feel like I’m starting over

    4. - knitty kitty replied to Larzipan's topic in Related Issues & Disorders
      34

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,311
    • Most Online (within 30 mins)
      7,748

    EMP6543
    Newest Member
    EMP6543
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Check your multivitamin to see if it contains Thiamine Mononitrate, which is a "shelf-stable" form of thiamine that doesn't break down with exposure to light, heat, and time sitting on a shelf waiting to be sold.  Our bodies have difficulty absorbing and utilizing it.  Only 30% is absorbed and less can be utilized.   There's some question as to how well multivitamins dissolve in the digestive tract.  You can test this at home.  YouTube has instructional videos.   Talk to your nutritionist about adding a B Complex.  The B vitamins are water soluble, so any excess is easily excreted if not needed.  Consider adding additional Thiamine in the forms Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) or thiamine hydrochloride.   Thiamine is needed to help control electrolytes.  Without sufficient thiamine, the kidneys loose electrolytes easily resulting in low sodium and chloride.   We need extra thiamine when we're emotionally stressed, physically ill, and when we exercise regularly, are an athlete, or do physical labor outdoors, and in hot weather.  Your return to activities and athletics may have depleted your thiamine and other B vitamins to a point symptoms are appearing.   The deficiency symptoms of B vitamins overlap, and can be pretty vague, or easily written off as due to something else like being tired after a busy day.  The symptoms you listed are the same as early B vitamin deficiency symptoms, especially Thiamine.  Thiamine deficiency symptoms can appear in as little as three days.  I recognize the symptoms as those I had when I was deficient.  It can get much worse. "My symptoms are as follows: Dizziness, lightheaded, headaches (mostly sinus), jaw/neck pain, severe tinnitus, joint stiffness, fatigue, irregular heart rate, post exercise muscle fatigue and soreness, brain fog, insomnia.  Generally feeling unwell." I took a B 50 Complex twice a day and extra thiamine in the forms Benfotiamine and TTFD.  I currently take the Ex Plus supplement used in this study which shows B vitamins, especially Thiamine B 1, Riboflavin B2, Pyridoxine B 6, and B12 Cobalamine are very helpful.   A functional evaluation of anti-fatigue and exercise performance improvement following vitamin B complex supplementation in healthy humans, a randomized double-blind trial https://pmc.ncbi.nlm.nih.gov/articles/PMC10542023/
    • Scatterbrain
      I am taking a multivitamin which is pretty bolstered with B’s.  Additional Calcium, D3, Magnesium, Vit C, and Ubiquinol.  Started Creapure creatine monohydrate in June for athletic recovery and brain fog.  I have been working with a Nutritionist along side my Dr. since February.  My TTG IGA levels in January were 52.8 and my DGP IGA was >250 (I don’t know the exact number since it was so high).  All my other labs were normal except Sodium and Chloride which were low.  I have more labs coming up in Dec.  I make my own bread, and don’t eat a lot of processed gluten-free snacks.
    • knitty kitty
      @Scatterbrain, What supplements are you taking? I agree that the problem may be nutritional deficiencies.  It's worth talking to a dietician or nutritionist about.   Did you get a Marsh score at your diagnosis?  Was your tTg IgA level very high?  These can indicate more intestinal damage and poorer absorption of nutrients.   Are you eating processed gluten free food stuffs?  Have you looked into the Autoimmune Protocol Diet?  
    • knitty kitty
      Vitamin and mineral deficiencies can make TMJ worse.  Vitamins like B12 , Thiamine B1, and Pyridoxine B6 help relieve pain.  Half of the patients in one study were deficient in these three vitamins in one study below. Malabsorption of vitamins and minerals is common in celiac disease.  It's important to eat healthy nutrient dense diets like the Autoimmune Protocol Diet, a Paleo diet that has similarities to the Mediterranean diet mentioned in one of the studies.   Is there a link between diet and painful temporomandibular disorders? A cross-sectional study https://pmc.ncbi.nlm.nih.gov/articles/PMC12442269/   Nutritional Strategies for Chronic Craniofacial Pain and Temporomandibular Disorders: Current Clinical and Preclinical Insights https://pmc.ncbi.nlm.nih.gov/articles/PMC11397166/   Serum nutrient deficiencies in the patient with complex temporomandibular joint problems https://pmc.ncbi.nlm.nih.gov/articles/PMC2446412/  
    • Iam
      Yes.  I have had the tmj condition for 40 years. My only help was strictly following celiac and also eliminating soy.  Numerous dental visits and several professionally made bite plates  did very little to help with symptoms
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.