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For The "real" Teens

Kassie

By Kassie
in Introduce Yourself / Share Stuff

Recommended Posts

brittanny Newbie
brittanny
Posted
anyone frommm cannnada?

i'm from canada! ontario

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  • Replies 126
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leadmeastray88 Contributor
leadmeastray88
Posted
i'm from canada! ontario

I'm from Canada as well...Winnipeg!

  • 2 months later...
Sunshine* Newbie
Sunshine*
Posted

I'm from Wisconsin and I don't know any teenagers who have celiac.

I've been to support group meetings and such but its just middle aged/ elderly people.

so I feel kind of alone. :(

FaeLD Newbie
FaeLD
Posted

Hah! I'm from Malta, Europe.

I doubt anyone's from here :P

nikky Contributor
nikky
Posted
Hah! I'm from Malta, Europe.

I doubt anyone's from here :P

wow Malta.. howcome you arent in the eurovision dance contest? your in the song one arent you

FaeLD Newbie
FaeLD
Posted
wow Malta.. howcome you arent in the eurovision dance contest? your in the song one arent you

Yeah, people here take the esc way too seriously. We're not in the dance competition, but you'll see us in the song contest for sure.

(even though block voting = we never win :()

nikky Contributor
nikky
Posted
Yeah, people here take the esc way too seriously. We're not in the dance competition, but you'll see us in the song contest for sure.

(even though block voting = we never win :()

we never win either .. the voting is corrupt ..Malta has had some good entries

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FaeLD Newbie
FaeLD
Posted

I don't really mind that we don't win. I just watch it for some good laughs with friends.

Because seriously, some of the songs verge on stupid :D

nikky Contributor
nikky
Posted
I don't really mind that we don't win. I just watch it for some good laughs with friends.

Because seriously, some of the songs verge on stupid :D

im not bothered either i just wish the voting was fairer

someone entered a turkey last year...... lol

FaeLD Newbie
FaeLD
Posted

I know! That really cracked me up.

As well as the Spanish Entry.

nikky Contributor
nikky
Posted
I know! That really cracked me up.

As well as the Spanish Entry.

lol.. and the year before that guy with the silver costume

  • 2 weeks later...
B R I A N A Apprentice
B R I A N A
Posted

The very polluted, over populated SOUTHERN CALIFORNIA.

  • 1 month later...
Kmarie Newbie
Kmarie
Posted

anyone from texas??

  • 2 weeks later...
Anna and Marie Newbie
Anna and Marie
Posted

How about kentucky? Louisville area...

eeyore Collaborator
eeyore
Posted

Raleigh, NC?

minton Contributor
minton
Posted

atlanta georgia area

nutrifoodie Apprentice
nutrifoodie
Posted

I'm 19, and in college.. so not "really" a teenager.

I'm from southern NH :D But I go to college is southern CA :D

LynziMarie Newbie
LynziMarie
Posted

I'm 18, so I'm at the end of teenagedom and also a college student (well soon to be anyways)

I live in Northern Utah :)

  • 3 weeks later...
Youngceliac16 Apprentice
Youngceliac16
Posted
what part of the bay area i am from palo alto. you should join the bay area celiac teens support group!

I'm in the bay area too (Novato)! I didn't know their was a bay area... support group. Just wanted to say thanks for posting that and i'll go look it up. :P

Youngceliac16 Apprentice
Youngceliac16
Posted

Me again. I couldn't find the bay area teen celiac support group. Could someone post the link? Thank you!

  • 2 weeks later...
kim:) Apprentice
kim:)
Posted
i'm from colorado and know of 2 other celiacs here, but no one around my age...

mia

What part of Colorado? Im from Steamboat Springs Colorado!!!!!

kim:) Apprentice
kim:)
Posted
The center of Colorado, only 17 year old I know is me. sad day.

I know its been forever since this post was posted haha 2 years ago...but haha Im 15 now um and live in Steamboat Springs Colorado

lostnaphotograph Newbie
lostnaphotograph
Posted

I'm Beth and I am from Michigan. I am 17 but soon to be 18 woot!! :)

CeliacJosie Newbie
CeliacJosie
Posted

I 'm in Canada. (:

kgies Newbie
kgies
Posted

I'm a legally an adult, but still 18. I noticed a few canadians and a MN. I'm from North Dakota, so you're the closest ones to me!

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      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By Samanthaeileen1 · Posted

      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By Wheatwacked · Posted

      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By RMJ · Posted

      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By Samanthaeileen1 · Posted

      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
    • JoJo0611
      Just diagnosed today

      By JoJo0611 · Posted

      I have been diagnosed with coeliacs disease today after endoscopy, bloods and CT scan. I have also been diagnosed with Mesenteric Panniculitis today. Both of which I believe are autoimmune diseases. I have been told I will need a dexa scan and a repeat CT scan in 6 months. I had not even heard of Mesenteric Panniculitis till today. I don’t know much about it? Has anyone else got both of these. 
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