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For The "real" Teens


Kassie

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sarahann324 Newbie

i live in PA.

  • 2 weeks later...

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  • Replies 126
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swimchicky Newbie
Yay that's awesome! I'm from the bay area :)

i'm from the bay area too! i never knew there were other celiacs up here! has anyone been to the celiac conference at stanford university? they stopped holding it a few years ago, but it was great while it lasted! also, check out the blog on my profile! (it's a link)

swimchicky a.k.a. tan celiac girl

  • 1 month later...
Yellow Rose Explorer

I'm from Texas originally but I moved to Nebraska four years ago.

  • 2 weeks later...
Angels~Exist Newbie

I'm from Missouri...probably the only one! :lol:

Endevor Newbie

I'm from Wyoming, but go to school in Idaho.

LBethanyC Newbie

I'm from Canada. :).

  • 2 weeks later...
MasterGberry Newbie

I am from LA in California. Anyone else from around here?


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  • 5 months later...
SJR Newbie

Indiana :)

  • 4 weeks later...
flowerpower12 Rookie

I used to live in Idaho!

Thats my home..I'm in OK for now but we're working on getting home..we cant really do that though until I'm better and we find out whats goingon with me..

Im not diagnosed yet but I think I might have it.

Who knows.

Rebecca Madrid Newbie

I'm from Canada. :).

Whereabouts?? I'm from Ontario, but living in Newfoundland for school and was diagnosed about 3 weeks ago.

  • 2 weeks later...
gintare519 Newbie

hi guys. i was just wondering where you guys are all from. everyone seems to be like from the east and i don't know anyone around the west with it. i live in idaho. so where do u guys live? just thought i would ask

~Kassie~

Wisconsin! xD

the cheese state. with lots of bakeries. O.O

  • 1 month later...
B R I A N A Apprentice

Hey,

My names Briana and I'm seventeen.

I'm actually living in the overpopulated Southern California.

I'm planning on going to college in Colorado and I'm also thinking about Idaho.

In addition to celiac disease I have a dairy allergy, am a vegetarian, and have hypoglycemia.

If you ever have any questions or just want to talk feel free.

My email is:

Brii_1992@yahoo.com

Eilidh Newbie

what part of the bay area i am from palo alto. you should join the bay area celiac teens support group!

Hey I'm from B.C. Canada...

Anyone from Canada?

  • 5 weeks later...
Rebecca Madrid Newbie

anyone frommm cannnada?

Ontario you?

Rebecca Madrid Newbie

i'm from canada! ontario

Me too!!

Where in ON?

  • 3 weeks later...
Hineys <3 Newbie

im from tennessee

Tennessee? That's kinda closer to me. I'm from Kentucky and everyone on here seams to be from other side of the continent. lol

Hineys <3 Newbie

Indiana :)

Where about in Indiana? Cuz I live in Kentucky but go to Madison Indiana all the time.

Hineys <3 Newbie

Im from Kentucky and No one besides my family has it around here, and besides my brother, Im the youngest!

  • 3 weeks later...
SoFLO Newbie

My name is Doug. I'm a 19 year old college student living in Miami, FL (lived here all my life). Only one of my family and friends who has celiac, makes it tough.

manpriya Newbie

i am from india.............any teen from india on dis site????????????

zombietommie Newbie

I'm from Western WA just north of Seattle.

I know two celiacs, but I have multiple intolerances/allergy thingies.

eeyore Collaborator

I'm from Raleigh, NC ...

  • 1 month later...
fiwen30 Newbie

19 y/o female from Derby, UK here. Coeliac and non-meat eater. Anyone else in the area?

  • 2 months later...
Mikki.G Newbie

anyone frommm cannnada?

hey im from ontario!! where are you from??

  • 1 month later...
Katah Newbie

Canada, Ontario. :-)

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      very interesting thanks for the info  
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      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
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      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting in the mouth corners, and dry mouth to name but some. The link below is for paediatric dentistry but it applies to adults too.  Have you had follow up for you coeliac disease to check that your anti-tTG2 antibodies levels have come down? Are you certain that you not being exposed to significant amounts of gluten? Are you taking a PPI for your Barrett's oesophagus? Signs of changes to the tongue can be caused by nutritional deficiencies, particularly iron, B12 and B9 (folate) deficiency. I would make sure to take a good quality multivitamin every day and make sure to take it with vitamin C containing food - orange juice, broccoli, cabbage etc.  Sebaceous hyperplasia is common in older men and I can't find a link to coeliac disease.   Russ.   Oral Manifestations in Pediatric Patients with Coeliac Disease – A Review Article
    • cristiana
      Hi @Charlie1946 You are very welcome.   I agree wholeheartedly with @knitty kitty:  "I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants." I had a type of tingling/sometimes pain in my cheek about 2 years after my diagnosis.  I noticed it after standing in cold wind, affecting  me after the event - for example, the evening after standing outside, I would feel either tingling or stabbing pain in my cheek.   I found using a neck roll seemed to help, reducing caffeine, making sure I was well-hydrated, taking B12 and C vitamins and magnesium.  Then when the lockdowns came and I was using a facemask I realised that this pain was almost entirely eliminated by keeping the wind off my face.  I think looking back I was suffering from a type of nerve pain/damage.  At the time read that coeliacs can suffer from nerve damage caused by nutritional deficiencies and inflammation, and there was hope that as bodywide healing took place, following the adoption of a strict gluten free diet and addressing nutritional deficiencies, recovery was possible.   During this time, I used to spend a lot of time outdoors with my then young children, who would be playing in the park, and I'd be sheltering my face with an upturned coat collar, trying to stay our of the cold wind!  It was during this time a number of people with a condition called Trigeminal Neuralgia came up to me and introduced themselves, which looking back was nothing short of miraculous as I live in a pretty sparsely populated rural community and it is quite a rare condition.   I met a number of non-coeliacs who had suffered with this issue  and all bar one found relief in taking medication like amitriptyline which are type of tricyclic anti-depressant.   They were not depressed, here their doctors had prescribed the drugs as pain killers to address nerve pain, hence I mention here.  Nerve pain caused by shingles is often treated with this type of medication in the UK too, so it is definitely worth bearing in mind if standard pain killers like aspirin aren't working. PS  How to make a neck roll with a towel: https://www.painreliefwellness.com.au/2017/10/18/cervical-neck-roll/#:~:text=1.,Very simple. 
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