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For The "real" Teens

Kassie

By Kassie
in Introduce Yourself / Share Stuff

Recommended Posts

sarahann324 Newbie
sarahann324
Posted

i live in PA.

  • 2 weeks later...
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  • Replies 126
  • Created
  • Last Reply
swimchicky Newbie
swimchicky
Posted
Yay that's awesome! I'm from the bay area :)

i'm from the bay area too! i never knew there were other celiacs up here! has anyone been to the celiac conference at stanford university? they stopped holding it a few years ago, but it was great while it lasted! also, check out the blog on my profile! (it's a link)

swimchicky a.k.a. tan celiac girl

  • 1 month later...
Yellow Rose Explorer
Yellow Rose
Posted

I'm from Texas originally but I moved to Nebraska four years ago.

  • 2 weeks later...
Angels~Exist Newbie
Angels~Exist
Posted

I'm from Missouri...probably the only one! :lol:

Endevor Newbie
Endevor
Posted

I'm from Wyoming, but go to school in Idaho.

LBethanyC Newbie
LBethanyC
Posted

I'm from Canada. :).

  • 2 weeks later...
MasterGberry Newbie
MasterGberry
Posted

I am from LA in California. Anyone else from around here?

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  • 5 months later...
SJR Newbie
SJR
Posted

Indiana :)

  • 4 weeks later...
flowerpower12 Rookie
flowerpower12
Posted

I used to live in Idaho!

Thats my home..I'm in OK for now but we're working on getting home..we cant really do that though until I'm better and we find out whats goingon with me..

Im not diagnosed yet but I think I might have it.

Who knows.

Rebecca Madrid Newbie
Rebecca Madrid
Posted

I'm from Canada. :).

Whereabouts?? I'm from Ontario, but living in Newfoundland for school and was diagnosed about 3 weeks ago.

  • 2 weeks later...
gintare519 Newbie
gintare519
Posted

hi guys. i was just wondering where you guys are all from. everyone seems to be like from the east and i don't know anyone around the west with it. i live in idaho. so where do u guys live? just thought i would ask

~Kassie~

Wisconsin! xD

the cheese state. with lots of bakeries. O.O

  • 1 month later...
B R I A N A Apprentice
B R I A N A
Posted

Hey,

My names Briana and I'm seventeen.

I'm actually living in the overpopulated Southern California.

I'm planning on going to college in Colorado and I'm also thinking about Idaho.

In addition to celiac disease I have a dairy allergy, am a vegetarian, and have hypoglycemia.

If you ever have any questions or just want to talk feel free.

My email is:

Brii_1992@yahoo.com

Eilidh Newbie
Eilidh
Posted

what part of the bay area i am from palo alto. you should join the bay area celiac teens support group!

Hey I'm from B.C. Canada...

Anyone from Canada?

  • 5 weeks later...
Rebecca Madrid Newbie
Rebecca Madrid
Posted

anyone frommm cannnada?

Ontario you?

Rebecca Madrid Newbie
Rebecca Madrid
Posted

i'm from canada! ontario

Me too!!

Where in ON?

  • 3 weeks later...
Hineys <3 Newbie
Hineys <3
Posted

im from tennessee

Tennessee? That's kinda closer to me. I'm from Kentucky and everyone on here seams to be from other side of the continent. lol

Hineys <3 Newbie
Hineys <3
Posted

Indiana :)

Where about in Indiana? Cuz I live in Kentucky but go to Madison Indiana all the time.

Hineys <3 Newbie
Hineys <3
Posted

Im from Kentucky and No one besides my family has it around here, and besides my brother, Im the youngest!

  • 3 weeks later...
SoFLO Newbie
SoFLO
Posted

My name is Doug. I'm a 19 year old college student living in Miami, FL (lived here all my life). Only one of my family and friends who has celiac, makes it tough.

manpriya Newbie
manpriya
Posted

i am from india.............any teen from india on dis site????????????

zombietommie Newbie
zombietommie
Posted

I'm from Western WA just north of Seattle.

I know two celiacs, but I have multiple intolerances/allergy thingies.

eeyore Collaborator
eeyore
Posted

I'm from Raleigh, NC ...

  • 1 month later...
fiwen30 Newbie
fiwen30
Posted

19 y/o female from Derby, UK here. Coeliac and non-meat eater. Anyone else in the area?

  • 2 months later...
Mikki.G Newbie
Mikki.G
Posted

anyone frommm cannnada?

hey im from ontario!! where are you from??

  • 1 month later...
Katah Newbie
Katah
Posted

Canada, Ontario. :-)

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    • knitty kitty
      Dried Chickpeas

      By knitty kitty · Posted

      Hello, @Aretaeus Cappadocia, My favorite source of B12 is liver.  😺 I react to nutritional yeast the same way as if I were glutened.  Casein, a protein in dairy, and nutritional yeast have protein segments that match certain antigenic protein segments in gluten.  The proteins in rice, corn (maize), and chicken meat have them as well.   Some people with Celiac might tolerate them without a problem, but I need to avoid them.  For those still having symptoms, cutting these out of our diet may improve symptoms. 
    • trents
      Confused about HLA-DQ Celiac gene test result

      By trents · Posted

      Welcome to the celiac.com community, @ainsleydale1700! First, it is very unlikely, given your genetic results, that you have celiac disease. But it is not a slam dunk. Second, there are some other reasons besides having celiac disease that your blood antibody testing was positive. There are some diseases, some medications and even (for some people) some foods (dairy, the protein "casein") that can cause elevated celiac blood antibody test scores. Usually, the other causes don't produce marginally high test scores and not super high ones. Having said that, by far, the most common reason for elevated tTG-IGA celiac antibody test scores (this is the most common test ordered by doctors when checking for celiac disease) is celiac disease itself. Please post back and list all celiac blood antibody tests that were done with their scores and with their reference ranges. Without the reference ranges for negative vs. positive we can't tell much because they vary from lab to lab. Third, and this is an terrible bum steer by your doc, for the biopsy results to be valid, you need to have been eating generous amounts of gluten up to the day of the procedure for several weeks.  Having said all that, it sounds most likely that you have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. The two share many common symptoms but NCGS is not autoimmune in nature and doesn't damage the lining of the small bowel. What symptoms do you have? Do you have any blood work that is out of norm like iron deficiency that would suggest celiac disease?
    • ainsleydale1700
      Confused about HLA-DQ Celiac gene test result

      By ainsleydale1700 · Posted

      Thank you, that is helpful! 
    • Scott Adams
      Confused about HLA-DQ Celiac gene test result

      By Scott Adams · Posted

      HLA testing can definitely be confusing. Classic celiac disease risk is most strongly associated with having the full HLA-DQ2 or HLA-DQ8 heterodimer, which requires specific DQA1 and DQB1 genes working together. Your report shows you are negative for the common DQ2 and DQ8 combinations, but positive for DQB102, which is one component of the DQ2 pair. On its own, DQB102 does not usually form the full DQ2 molecule most strongly linked to celiac disease, which is likely why your doctor said you do not carry the typical “celiac genes.” However, genetics are only part of the picture. A negative gene test makes celiac disease much less likely, but not absolutely impossible in rare cases. More importantly, both antibody testing and biopsy are only reliable when someone is actively eating gluten; being gluten-free for four years before testing can cause both bloodwork and intestinal biopsy to appear falsely negative. Given your positive antibodies and ongoing symptoms, it may be reasonable to seek clarification from a gastroenterologist experienced in celiac disease about whether proper gluten exposure was done before testing and whether additional evaluation is needed.
    • Aretaeus Cappadocia
      Dried Chickpeas

      By Aretaeus Cappadocia · Posted

      I agree with your post and have had similar experiences. I'm commenting to add the suggestion of also using nutritional yeast as a supplement. It's a rich source of B vitamins and other nutrients, and some brands are further supplemented with additional B12. I sprinkle a modest amount in a variety of savory recipes.
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