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For The "real" Teens


Kassie

Recommended Posts

sarahann324 Newbie

i live in PA.

  • 2 weeks later...

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  • Replies 126
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swimchicky Newbie
Yay that's awesome! I'm from the bay area :)

i'm from the bay area too! i never knew there were other celiacs up here! has anyone been to the celiac conference at stanford university? they stopped holding it a few years ago, but it was great while it lasted! also, check out the blog on my profile! (it's a link)

swimchicky a.k.a. tan celiac girl

  • 1 month later...
Yellow Rose Explorer

I'm from Texas originally but I moved to Nebraska four years ago.

  • 2 weeks later...
Angels~Exist Newbie

I'm from Missouri...probably the only one! :lol:

Endevor Newbie

I'm from Wyoming, but go to school in Idaho.

LBethanyC Newbie

I'm from Canada. :).

  • 2 weeks later...
MasterGberry Newbie

I am from LA in California. Anyone else from around here?


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  • 5 months later...
SJR Newbie

Indiana :)

  • 4 weeks later...
flowerpower12 Rookie

I used to live in Idaho!

Thats my home..I'm in OK for now but we're working on getting home..we cant really do that though until I'm better and we find out whats goingon with me..

Im not diagnosed yet but I think I might have it.

Who knows.

Rebecca Madrid Newbie

I'm from Canada. :).

Whereabouts?? I'm from Ontario, but living in Newfoundland for school and was diagnosed about 3 weeks ago.

  • 2 weeks later...
gintare519 Newbie

hi guys. i was just wondering where you guys are all from. everyone seems to be like from the east and i don't know anyone around the west with it. i live in idaho. so where do u guys live? just thought i would ask

~Kassie~

Wisconsin! xD

the cheese state. with lots of bakeries. O.O

  • 1 month later...
B R I A N A Apprentice

Hey,

My names Briana and I'm seventeen.

I'm actually living in the overpopulated Southern California.

I'm planning on going to college in Colorado and I'm also thinking about Idaho.

In addition to celiac disease I have a dairy allergy, am a vegetarian, and have hypoglycemia.

If you ever have any questions or just want to talk feel free.

My email is:

Brii_1992@yahoo.com

Eilidh Newbie

what part of the bay area i am from palo alto. you should join the bay area celiac teens support group!

Hey I'm from B.C. Canada...

Anyone from Canada?

  • 5 weeks later...
Rebecca Madrid Newbie

anyone frommm cannnada?

Ontario you?

Rebecca Madrid Newbie

i'm from canada! ontario

Me too!!

Where in ON?

  • 3 weeks later...
Hineys <3 Newbie

im from tennessee

Tennessee? That's kinda closer to me. I'm from Kentucky and everyone on here seams to be from other side of the continent. lol

Hineys <3 Newbie

Indiana :)

Where about in Indiana? Cuz I live in Kentucky but go to Madison Indiana all the time.

Hineys <3 Newbie

Im from Kentucky and No one besides my family has it around here, and besides my brother, Im the youngest!

  • 3 weeks later...
SoFLO Newbie

My name is Doug. I'm a 19 year old college student living in Miami, FL (lived here all my life). Only one of my family and friends who has celiac, makes it tough.

manpriya Newbie

i am from india.............any teen from india on dis site????????????

zombietommie Newbie

I'm from Western WA just north of Seattle.

I know two celiacs, but I have multiple intolerances/allergy thingies.

eeyore Collaborator

I'm from Raleigh, NC ...

  • 1 month later...
fiwen30 Newbie

19 y/o female from Derby, UK here. Coeliac and non-meat eater. Anyone else in the area?

  • 2 months later...
Mikki.G Newbie

anyone frommm cannnada?

hey im from ontario!! where are you from??

  • 1 month later...
Katah Newbie

Canada, Ontario. :-)

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      Great  post. The skin issue can be intolerable. I have been taking niacinamide for the past month and have improved with respect to the blistering lesions. 
    • knitty kitty
      I've found taking Niacin Vitamin B 3 in the form that causes flushing (nicotinic acid) helps immensely to clear my skin.  The flushing is harmless and goes away the longer Niacin is taken.  The flushing (vasodilation in the skin) helps the body get rid of the tTg 3 IgA antibodies that cause the blisters.  TTg 2 IgA antibodies are found in the blood and are measured in diagnostic testing for Celiac.  People with Dermatitis Herpetiformis make tTg 3 as well as tTg 2 antibodies.  Niacin Vitamin B3 in the non flushing form niacinamide also works without the flushing, but takes a bit longer.   I also avoid foods containing high levels of iodine because iodine activates the tTg 3 IgA antibodies to become more active and make more blisters.  I avoid kelp (nori, seaweed) and crustaceans,  eggs, dairy products, and iodized table salt.   Niacinamide and Nicotinic acid are water soluble and harmless.  I'd much rather take Niacin than Dapsone with scary side effects.  
    • meghanf
      We have a gluten-free household. It's the least stressful option. No one else in my family has Celiac, but they are all extremely supportive. We don't even have Play-doh for this kids.
    • trents
      @Ronnie d, there is a small percentage of celiacs who have dermatitis herpetiformis but have no small bowel mucosal involvement. Also, we have had some reports on this forum from dermatitis herpetiformis suffers who said Dapsone did not work for them. But for the vast majority it does.
    • Ronnie d
      yes, the above is true. however; if the doctor does the tests and finds your are a candidate then dapsone is the drug that will stop the blisters immediately. dapsone started as a drug for malaria and leprosy....I do not know how it became known for dermatitis herpetiformis. I can tell you that my doctor told me she had several patients that have taken it over 20 years. our dosage was one a day until clear,then we went to every other day for a while, working down to zero a day. I still have an active prescription for dapsone but have not had to take one in several years. in closing, if anyone reads this and has truly been diagnosed for dermatitis herpetiform is, then ask your doctor for dapsone..... for those of you reading this that have never had the blisters and infections from the scratching and oozing fluid...than you can't identify. you can have celiac without dermatitis herpetiform is....but all people with dermatitis herpetaformis have celiac...  a double whammy, so to say.
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