Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Questions About My Tests......

DaCat

Recommended Posts

DaCat Rookie
DaCat
Posted

I have been seeing a Naturopath for approx. 5 months now. I have been tested for food sensitivities and also had a GI panel done. I do not know much about Celiacs, but started to look into in when my Gliadin came back positive (34). My Naturopath doesn't think at this point that I am dealing with Celiacs, because in his opinion, that number is rather low. And.............my food sensitivity test (blood) showed Gliadin, Wheat in the low range (there are 4 categories: no reaction, low, moderate, high). He said he usually sees those 2 things much higher with Celiacs. In fact, none of the other grains that have gluten were moderate or high either - all were either in no reaction zone or low.

I am just looking for a second opinion here to be on the safe side. I have struggled with Chronic Fatigue Syndrome, bloating, brain fog for 25 years (I am 40) and chronic constipation all my life, and I want to cover all the bases to get well.

FYI: I did eliminate wheat from my diet for approx. 4 months and only had oats occasionally (I checked labels extensively and did much reading on-line to know what to look for re: gluten). I've seen some improvement in my health, but it could be due to other things we have been working on - I don't know.

How do you know for sure that you have Celiacs? I've read about biopsies etc. on this board a little, but really am quite clueless. Any input would be greatly appreciated.

Thank you & God Bless,

~Shelly

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Michi8 Contributor
Michi8
Posted

I highly recommend you read Celiac Disease: A Hidden Epidemic by Dr. Peter Green and Rory Jones:

https://www.celiac.com/catalog/product_info...products_id=477 It is very thorough and informative about Celiac Disease, the symptoms and health issues associated with it, testing, diet, etc. You should be able to find it at your local library.

Michelle

Ursa Major Collaborator
Ursa Major
Posted

Shelly, a biopsy would be quite useless at this point (because of eating nearly gluten-free for a while), as would more blood testing (same reason). If you could afford it, I would suggest you get tested through Open Original Shared Link, their tests will be accurate up to a year of being gluten-free. If you get the full panel, you'd also know if you have the genes for either celiac disease or gluten sensitivity (same treatment either way, which is the gluten-free diet).

Also, if you really want to know if the diet helps, you'd have to try going completely gluten-free, not just wheat-free. Why don't you give it a try? It can't possibly hurt, and might just help.

You'd have to make sure you're completely gluten-free, though. Go through your personal care products (shampoo, conditioner, lipstick, lotion, soap etc.) and replace any that contain gluten (wheat germ oil, barley extract, oat bran). Also, you'd need to buy a new toaster, as it isn't possible to clean your old toaster well enough to be safe. The same goes for plastic colanders, wooden cutting boards, wooden cooking spoons and scratched non-stick cookware.

What is your naturopaths normal range for the gliadin antibodies?

DaCat Rookie
DaCat
Posted
  • Author

Thank you Michelle. I would like to locate that book and read it. ~Shelly

Ursula,

What is your naturopaths normal range for the gliadin antibodies?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,045
    • Most Online (within 30 mins)
      7,748
    Emj 86
    Newest Member
    Emj 86
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • tiffanygosci
      Celiac support is hard to find

      By tiffanygosci · Posted

      Hi Cristiana! It's so nice to meet you! Thank you for the kind reply I am glad I live in a time where you can connect with others through the Internet. That is a mercy I am grateful for.
    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Fruits & Veggies

      By knitty kitty · Posted

      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Positive biopsy

      By trents · Posted

      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.