Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anxiety/joint Pain


sunshinen

Recommended Posts

sunshinen Apprentice

One of the unexpected benefits of going gluten free has been a huge reduction in anxiety and joint pain, but every now and then I have flare ups. My glutening experiences are not usually associated with severe gastric distress, so it is sometimes hard to know if I have been glutened. For me, the give away is a migraine, but I think there are times where I didn't get enough to trigger a migraine, but still suffer in more subtle ways.

Does anyone else associate anxiety, joint pain, and other non-GI symptoms with being glutened? How long does it take for these symptoms to show up and go away? When you start to feel symptoms, how far back do you question your diet?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

I get all of those symptoms when glutened. And I sometimes don't get obvious symptoms for up to a week after being glutened.

My symptoms don't usually start showing up until the next day, and can last up to two weeks.

jerseyangel Proficient

Yep--I get those reactions, too, when glutened. My joint pain is mostly in my hips and I get anxiety and extreme moodiness.

These begin within a few hours. They last from a few days to about a week.

kabowman Explorer

My knees hurt when I start having food problems. When they start to hurt, I really start checking my diet.

sunshinen Apprentice

thanks!! everyone sounds so similar to my experiences. the dumb thing is that i went to bed with a migraine, but still wanted confirmation that i'm not crazy and arthritic. i think that's what all those years of misdiagnosis do to you: hard to trust yourself and that there really is an answer.

BamBam Community Regular

Very seldom do I get diarrhea when I am glutened. I usually get extreme anxiety and fears and my joints usually hurt to but not all the time. I am just now going through some kind of gluteneing, and I don't know from what, I think it was my turkey, but anyway, I have severe anxiety/fears and they usually start a day or so after and last about a week.

BamBam

bluejeangirl Contributor

yep I'll have digestive problems like gas along with the pains but I don't get D I just feel like it. I got glutened this thanksgiving and my worse symptoms are joint pain especially in my neck because I sit at a lap top which kills my shoulders being that the key board is too high. I also get very depressed which will turn to anxiety if I have to go into public places. So I have to lay low until it goes away and this time its taking about a week. I've been having tummy upsets not because of the gluten but since my appetite is low I've been eating planters peanuts which worsened instead of help getting my system in the right tract.

So I figured that out about 4 days ago and on day 4 of prilosec feeling better in that regard but I then figured out this morning waking up with the neck and shoulder pain that I was in a hypoglycemic response. I could tell because I get so cranky and there's this overwhelming tiredness that won't go away until I eat then the pain and tiredness will slowly go away.

So I'm going to be more aware of eating something before I go to bed that will last me through the night. I don't know why one thing leads to another like that but I think its a matter of learning how your body response to gluten and then being careful if you have other allergies or blood sugar problems.

Gail


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CatandCanary Rookie
One of the unexpected benefits of going gluten free has been a huge reduction in anxiety and joint pain, but every now and then I have flare ups. My glutening experiences are not usually associated with severe gastric distress, so it is sometimes hard to know if I have been glutened. For me, the give away is a migraine, but I think there are times where I didn't get enough to trigger a migraine, but still suffer in more subtle ways.

Does anyone else associate anxiety, joint pain, and other non-GI symptoms with being glutened? How long does it take for these symptoms to show up and go away? When you start to feel symptoms, how far back do you question your diet?

One of the unexpected benefits of going gluten free has been a huge reduction in anxiety and joint pain, but every now and then I have flare ups. My glutening experiences are not usually associated with severe gastric distress, so it is sometimes hard to know if I have been glutened. For me, the give away is a migraine, but I think there are times where I didn't get enough to trigger a migraine, but still suffer in more subtle ways.

Does anyone else associate anxiety, joint pain, and other non-GI symptoms with being glutened? How long does it take for these symptoms to show up and go away? When you start to feel symptoms, how far back do you question your diet?

I was glad that someone brought this up because before I went Gluten free, I was suffering with memory and mood problems. I had no idea how bad they had been until I didn’t have them anymore. Now, I noticed if I do get some Gluten the memory and mood problems come right back and it takes about 2 days for them to go away.

I also suffer with the body pain, at times it is so bad, combine that with the mood and memory and everyone around me suffers. I just hide and hope for the symptoms to subside. I have a lot of gilt about the way my friends and family have also suffered with this awful problem. I am, most of the time, a very mild mannered person but can really loose my self-control when feeling that bad, snapping at and avoiding people. Thank God I have a forgiving and understanding family and friends.

I also feel that the many doctors I have had over the past 45 years have made me feel like I was stupid, crazy, a drug addict and even a hypochondriac. Finding out that I can’t eat Gluten helped me understand why I had so many problems, now the only problem is that the doctors don’t know enough about it to help much.

I understand how you feel. Thanks for bringing the subject up for discussion.

hineini Enthusiast

Yes! I don't see an increase in my joint pain from eating gluten, but I get immediate anxiety. Very intensely.

MrBob Newbie
One of the unexpected benefits of going gluten free has been a huge reduction in anxiety and joint pain, but every now and then I have flare ups. My glutening experiences are not usually associated with severe gastric distress, so it is sometimes hard to know if I have been glutened. For me, the give away is a migraine, but I think there are times where I didn't get enough to trigger a migraine, but still suffer in more subtle ways.

Does anyone else associate anxiety, joint pain, and other non-GI symptoms with being glutened? How long does it take for these symptoms to show up and go away? When you start to feel symptoms, how far back do you question your diet?

My symptoms appear 5-6 hours after a glutening. My first non-GI symptom is a stiffening or seizing up of my wrists & I get flushed. The joint pain will expand to include fingers & toes, elbows & knees, as well as an increase in my back pain. The pain will last through the next day, and I won't feel like myself for 4-7 days. My right eye usually wakes me up a day or two later, feeling as if someone put a match out in it & rubbed it with sand. It gets very light sensitive, tears excessively, & has even swollen shut.

simmadownnow Newbie

I had never connected my occasional joint pain in the ankles and knees when I walked but it was quite obvious after Thanksgiving when I went crazy (glutened) and I went walkies the next a.m. I realized that it was connected and by the next day of being gluten free, there was no pain when I walked. I'm slow to learn, I guess but by jove, I think I've got it now!

Y'all have taught me more (reading the boards) than I could ever have learned from the doctors, most of whom just threw antacids at me and patted me on the arm and said, 'you have developed a nervous tic'.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    2. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748

    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.