Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Ordered My Enterolab Test....

JerryK

Recommended Posts

JerryK Community Regular
JerryK
Posted

Howdy,

I hope at least some of you remember me. Thanksgiving pushed me over the edge. Three days of foamy D later, I placed my order for Enterolab testing. Anyone that's followed my posts knows this is a big step for me, as I've been very much in denial.

Anyone experienced with Enterolab testing know how long it takes to get the stuff which which you

mail off your "poo" to them? :blink:

I look forward to learning if my dental enamel desintegration and gastro problems are indeed caused by Celiac. Jerry

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 58
  • Created
  • Last Reply
celiacgirls Apprentice
celiacgirls
Posted

It takes 2 or 3 days to get the kit. You have to send off the results on a Mon, Tues, or Wed and then it is almost exactly 2 weeks later that you will hear.

CarlaB Enthusiast
CarlaB
Posted

Welcome to reality, Jerry. :D Pulling out of denial is a feat in itself!!! Now you're impatient :lol::lol::lol:

Sorry, but you deserved a bit of teasing here. ;)

JerryK Community Regular
JerryK
Posted
  • Author
Welcome to reality, Jerry. :D Pulling out of denial is a feat in itself!!! Now you're impatient :lol::lol::lol:

Sorry, but you deserved a bit of teasing here. ;)

Yes it's hard NOT to look forward to sending my poop off in a box ;) Wonder how I'll 'splain this to the

kids....

CarlaB Enthusiast
CarlaB
Posted
Yes it's hard NOT to look forward to sending my poop off in a box ;) Wonder how I'll 'splain this to the

kids....

Well, the whole thing is a lot easier than it sounds. No big deal. My 8 year old did it without any help from me! The important thing is to tell everyone that no, that's NOT ice cream in the freezer!! I don't know why it has to look like a sherbert container!!!

Nancym Enthusiast
Nancym
Posted

I did a bit of a freak out realizing I had to freeze my poop! Then I had to take it to work with me and put it in the freezer until I could get to a DHL drop off location. I was so freaked out that someone might open my container in the freezer. Of course it was wrapped up well and stuck into bag, inside a bag. But still! I was SO happy to get that stupid thing into the DHL drop box.

JerryK Community Regular
JerryK
Posted
  • Author
Well, the whole thing is a lot easier than it sounds. No big deal. My 8 year old did it without any help from me! The important thing is to tell everyone that no, that's NOT ice cream in the freezer!! I don't know why it has to look like a sherbert container!!!

Is it hard to get it picked up? Do you have to keep it frozen?? yucky! I live out in the country and

I don't even know if the carrier will come out there to pick it up....

I am worried that I will find out I have it. I admit I don't want to cope with the lifestyle changes I will have to engage in. However testing and confirmation is what will force me into compliance. Jerry

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CarlaB Enthusiast
CarlaB
Posted

Jerry, I lived out in the country at the time. I know they'd pick up because Fed Ex and everyone else came out there, but I was going to be in town, so I dropped it off so I didn't have to wait for them. I just walked in and handed it to the lady at the desk, we didn't even need to discuss it ... everything was clearly labeled, and she had no way of knowing what it was.

You mention being afraid of the lifestyle changes .... are you worried you won't know what to do with your time when you're not spending it all in the bathroom? You could always put a recliner in the bathroom if you'll miss all the time you're spending in there now!! :lol:

Just kidding. You'll do fine. It becomes second nature.

lonewolf Collaborator
lonewolf
Posted

Good for you! If you do discover that you are gluten intolerant, which it sounds like, you'll be so happy by how well you feel that you won't mind the lifestyle change.

oceangirl Collaborator
oceangirl
Posted
Jerry, I lived out in the country at the time. I know they'd pick up because Fed Ex and everyone else came out there, but I was going to be in town, so I dropped it off so I didn't have to wait for them. I just walked in and handed it to the lady at the desk, we didn't even need to discuss it ... everything was clearly labeled, and she had no way of knowing what it was.

You mention being afraid of the lifestyle changes .... are you worried you won't know what to do with your time when you're not spending it all in the bathroom? You could always put a recliner in the bathroom if you'll miss all the time you're spending in there now!! :lol:

Just kidding. You'll do fine. It becomes second nature.

Jerry,

I can't see a DHL truck now without thinking of it as loaded with poop. Cracks me up everytime.

lisa

JerryK Community Regular
JerryK
Posted
  • Author
Jerry,

I can't see a DHL truck now without thinking of it as loaded with poop. Cracks me up everytime.

lisa

And NOW neither will I :lol:

JerryK Community Regular
JerryK
Posted
  • Author
Jerry, I lived out in the country at the time. I know they'd pick up because Fed Ex and everyone else came out there, but I was going to be in town, so I dropped it off so I didn't have to wait for them. I just walked in and handed it to the lady at the desk, we didn't even need to discuss it ... everything was clearly labeled, and she had no way of knowing what it was.

You mention being afraid of the lifestyle changes .... are you worried you won't know what to do with your time when you're not spending it all in the bathroom? You could always put a recliner in the bathroom if you'll miss all the time you're spending in there now!! :lol:

Just kidding. You'll do fine. It becomes second nature.

Thanks much, that makes me feel better about it:)

What I will miss most is the sudden attacks of Diarrhea when I'm out running. Nothing like stomach cramps and a frantic scramble thru the underbrush by the side of the road, searching for some leaves(besides Poison Oak) and a secluded spot, to make you feel truly alive....

CarlaB Enthusiast
CarlaB
Posted
Thanks much, that makes me feel better about it:)

What I will miss most is the sudden attacks of Diarrhea when I'm out running. Nothing like stomach cramps and a frantic scramble thru the underbrush by the side of the road, searching for some leaves(besides Poison Oak) and a secluded spot, to make you feel truly alive....

:lol::lol::lol:

I know I've felt that way, but did you really do that???

JerryK Community Regular
JerryK
Posted
  • Author
:lol::lol::lol:

I know I've felt that way, but did you really do that???

Yes and it wasn't one my proudest moments.

CarlaB Enthusiast
CarlaB
Posted
Yes and it wasn't one my proudest moments.

:lol::lol: I can see why you'll miss that invigorating and unpredictable lifestyle!!! :lol::lol:

gadgetgirl Newbie
gadgetgirl
Posted
What I will miss most is the sudden attacks of Diarrhea when I'm out running. Nothing like stomach cramps and a frantic scramble thru the underbrush by the side of the road, searching for some leaves(besides Poison Oak) and a secluded spot, to make you feel truly alive....

Ah, I know exactly how you feel. Unfortunately, I used to run on a path in the woods - but the path was very heavily traveled so I was always panicked that another runner or biker would come up upon me. I had MANY not so proud moments last summer - and more than one sweatband sacrified to the cause. :blink:

Thank YOU for reminding me of yet another BENEFIT that a gluten (and dairy, soy, yeast, almond, hazelnut) free lifestyle has brought me!

jerseyangel Proficient
jerseyangel
Posted

Hi Jerry :D

Of course I remember you! I'm glad you decided to get tested once and for all. We have to do things in our own time--and you knew when you were ready to know.

I've not had the pleasure of "going" in the bushes, but I know that very special feeling of--"if I don't get to the restroom NOW, it all over!" (literally :ph34r: )

Anyway, good luck with averything--let us know as soon as you hear!

Guhlia Rising Star
Guhlia
Posted

Glad you've finally decided to get tested. You won't regret your decision. Keep us posted.

JerryK Community Regular
JerryK
Posted
  • Author
Hi Jerry :D

Of course I remember you! I'm glad you decided to get tested once and for all. We have to do things in our own time--and you knew when you were ready to know.

I've not had the pleasure of "going" in the bushes, but I know that very special feeling of--"if I don't get to the restroom NOW, it all over!" (literally :ph34r: )

Anyway, good luck with averything--let us know as soon as you hear!

Well, I was a boy scout and grew up out in the country. Bears go in the woods and so did we when we were out camping. However I don't like giving new meaning to the term "going for a run" :)

JerryK Community Regular
JerryK
Posted
  • Author

Hey, it's been a week now and I still have not received my yogurt container and funnel. :blink:

Am I being impatient, or should I have received the packet by now? Their website does say it was

shipped on or about Nov 29th.

On the flip side, I've had very little symptoms since ordering my test :P Maybe there's nothing wrong with me after all??

jerseyangel Proficient
jerseyangel
Posted
Hey, it's been a week now and I still have not received my yogurt container and funnel. :blink:

Am I being impatient, or should I have received the packet by now? Their website does say it was

shipped on or about Nov 29th.

On the flip side, I've had very little symptoms since ordering my test :P Maybe there's nothing wrong with me after all??

I'm sure it'll be there in a day or two. I ordered the gene testing kit recently, and it came in the regular mail (just a large envelope) and took over a week.

As far as not having symptoms now that you've sent for the kit, sounds a lot like when your tooth stops hurting when you're on your way to the dentist :lol:

JerryK Community Regular
JerryK
Posted
  • Author

So my cool whip container and shipping stuff came yesterday evening. Yaay, I am so looking forwards to

using it. Just like those Cialis commercials, I'll have to wait until "the time is right". I'm certainly not going to do this at work;)

OK, so seriously, I'm a little leery of Enterolab. I know they are not mainstream medicine. I see a few

threads here that talk about Celiac and question the validity of a stool test diagnoses. So, if this guy tells me I'm positive, do I base my entire life style, for the rest of my life, on this one guy's opinion?

Just thinking out loud here...and I certainly want to hear opinions on this subject.

Guest nini
Guest nini
Posted

no, you don't base your entire future lifestyle on "one guys opinion" base it on how you feel once you've gotten all gluten out of your system for a while and then accidentally or on purpose gluten yourself... (keeping in mind not everyone reacts all the time) but if you feel better gluten-free, then it is most likely the culprit, or at least part of it.

CarlaB Enthusiast
CarlaB
Posted

Well, it's a hard call. I tested positive ... I feel better gluten-free, so I took that as evidence that gluten-free worked for me. I did not test positive in any of the traditional celiac tests. Originally, I thought maybe I just caught it early so didn't have the damage. Now, it's more than likely that the gluten intolerance is a result of the Lyme Disease I was just diagnosed with .... will it go away when I healed of the Lyme? That's a good question, and I will defianately "challenge" it once I'm better. For me, maybe the Lyme "triggered" it, or maybe the gluten intolerance is a symptom of the Lyme, much like my other sensitivities.

eleep Enthusiast
eleep
Posted

I agree that you'll probably want to go with what your body tells you in the long run -- I spent a long time trying to think my way through whether I "believed" things or not, but I practically developed an anxiety disorder doing so. Now I'm certain I did the right thing because I honestly feel better than I ever have for most of my adult life -- and the marked contrast with my last known glutening sealed the deal for me.

I was afraid the DHL guy would see the Enterolab address and just know what was in the box.....

eleep

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to Jhona's topic in Introduce Yourself / Share Stuff
      35

      Does anyone here also have Afib

      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will...
    2. Jacki Espo
      - Jacki Espo replied to CDFAMILY's topic in Related Issues & Disorders
      5

      Covid caused reoccurrence of DH without eating gluten

      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure.
    3. Mari
      - Mari replied to tiffanygosci's topic in Coping with Celiac Disease
      1

      New Celiac Mama in My 30s

      Hi Tiffany. Thank you for writing your dituation and circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines. Way back when I was in my 2...
    4. Mari
      - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      My only proof

      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but...
    5. knitty kitty
      - knitty kitty replied to Jhona's topic in Introduce Yourself / Share Stuff
      35

      Does anyone here also have Afib

      Fascinating.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,957
    • Most Online (within 30 mins)
      7,748
    Dogdad21
    Newest Member
    Dogdad21
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Does anyone here also have Afib

      By Scott Adams · Posted

      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will take readings 24/7 and give reports on how much of the time he's in it. Actual data like this should be what should guide his treatment.
    • Jacki Espo
      Covid caused reoccurrence of DH without eating gluten

      By Jacki Espo · Posted

      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      My only proof

      By Mari · Posted

      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
      Does anyone here also have Afib

      By knitty kitty · Posted

      Fascinating.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.