Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Ordered My Enterolab Test....

JerryK

Recommended Posts

JerryK Community Regular
JerryK
Posted

Howdy,

I hope at least some of you remember me. Thanksgiving pushed me over the edge. Three days of foamy D later, I placed my order for Enterolab testing. Anyone that's followed my posts knows this is a big step for me, as I've been very much in denial.

Anyone experienced with Enterolab testing know how long it takes to get the stuff which which you

mail off your "poo" to them? :blink:

I look forward to learning if my dental enamel desintegration and gastro problems are indeed caused by Celiac. Jerry

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 58
  • Created
  • Last Reply
celiacgirls Apprentice
celiacgirls
Posted

It takes 2 or 3 days to get the kit. You have to send off the results on a Mon, Tues, or Wed and then it is almost exactly 2 weeks later that you will hear.

CarlaB Enthusiast
CarlaB
Posted

Welcome to reality, Jerry. :D Pulling out of denial is a feat in itself!!! Now you're impatient :lol::lol::lol:

Sorry, but you deserved a bit of teasing here. ;)

JerryK Community Regular
JerryK
Posted
  • Author
Welcome to reality, Jerry. :D Pulling out of denial is a feat in itself!!! Now you're impatient :lol::lol::lol:

Sorry, but you deserved a bit of teasing here. ;)

Yes it's hard NOT to look forward to sending my poop off in a box ;) Wonder how I'll 'splain this to the

kids....

CarlaB Enthusiast
CarlaB
Posted
Yes it's hard NOT to look forward to sending my poop off in a box ;) Wonder how I'll 'splain this to the

kids....

Well, the whole thing is a lot easier than it sounds. No big deal. My 8 year old did it without any help from me! The important thing is to tell everyone that no, that's NOT ice cream in the freezer!! I don't know why it has to look like a sherbert container!!!

Nancym Enthusiast
Nancym
Posted

I did a bit of a freak out realizing I had to freeze my poop! Then I had to take it to work with me and put it in the freezer until I could get to a DHL drop off location. I was so freaked out that someone might open my container in the freezer. Of course it was wrapped up well and stuck into bag, inside a bag. But still! I was SO happy to get that stupid thing into the DHL drop box.

JerryK Community Regular
JerryK
Posted
  • Author
Well, the whole thing is a lot easier than it sounds. No big deal. My 8 year old did it without any help from me! The important thing is to tell everyone that no, that's NOT ice cream in the freezer!! I don't know why it has to look like a sherbert container!!!

Is it hard to get it picked up? Do you have to keep it frozen?? yucky! I live out in the country and

I don't even know if the carrier will come out there to pick it up....

I am worried that I will find out I have it. I admit I don't want to cope with the lifestyle changes I will have to engage in. However testing and confirmation is what will force me into compliance. Jerry

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CarlaB Enthusiast
CarlaB
Posted

Jerry, I lived out in the country at the time. I know they'd pick up because Fed Ex and everyone else came out there, but I was going to be in town, so I dropped it off so I didn't have to wait for them. I just walked in and handed it to the lady at the desk, we didn't even need to discuss it ... everything was clearly labeled, and she had no way of knowing what it was.

You mention being afraid of the lifestyle changes .... are you worried you won't know what to do with your time when you're not spending it all in the bathroom? You could always put a recliner in the bathroom if you'll miss all the time you're spending in there now!! :lol:

Just kidding. You'll do fine. It becomes second nature.

lonewolf Collaborator
lonewolf
Posted

Good for you! If you do discover that you are gluten intolerant, which it sounds like, you'll be so happy by how well you feel that you won't mind the lifestyle change.

oceangirl Collaborator
oceangirl
Posted
Jerry, I lived out in the country at the time. I know they'd pick up because Fed Ex and everyone else came out there, but I was going to be in town, so I dropped it off so I didn't have to wait for them. I just walked in and handed it to the lady at the desk, we didn't even need to discuss it ... everything was clearly labeled, and she had no way of knowing what it was.

You mention being afraid of the lifestyle changes .... are you worried you won't know what to do with your time when you're not spending it all in the bathroom? You could always put a recliner in the bathroom if you'll miss all the time you're spending in there now!! :lol:

Just kidding. You'll do fine. It becomes second nature.

Jerry,

I can't see a DHL truck now without thinking of it as loaded with poop. Cracks me up everytime.

lisa

JerryK Community Regular
JerryK
Posted
  • Author
Jerry,

I can't see a DHL truck now without thinking of it as loaded with poop. Cracks me up everytime.

lisa

And NOW neither will I :lol:

JerryK Community Regular
JerryK
Posted
  • Author
Jerry, I lived out in the country at the time. I know they'd pick up because Fed Ex and everyone else came out there, but I was going to be in town, so I dropped it off so I didn't have to wait for them. I just walked in and handed it to the lady at the desk, we didn't even need to discuss it ... everything was clearly labeled, and she had no way of knowing what it was.

You mention being afraid of the lifestyle changes .... are you worried you won't know what to do with your time when you're not spending it all in the bathroom? You could always put a recliner in the bathroom if you'll miss all the time you're spending in there now!! :lol:

Just kidding. You'll do fine. It becomes second nature.

Thanks much, that makes me feel better about it:)

What I will miss most is the sudden attacks of Diarrhea when I'm out running. Nothing like stomach cramps and a frantic scramble thru the underbrush by the side of the road, searching for some leaves(besides Poison Oak) and a secluded spot, to make you feel truly alive....

CarlaB Enthusiast
CarlaB
Posted
Thanks much, that makes me feel better about it:)

What I will miss most is the sudden attacks of Diarrhea when I'm out running. Nothing like stomach cramps and a frantic scramble thru the underbrush by the side of the road, searching for some leaves(besides Poison Oak) and a secluded spot, to make you feel truly alive....

:lol::lol::lol:

I know I've felt that way, but did you really do that???

JerryK Community Regular
JerryK
Posted
  • Author
:lol::lol::lol:

I know I've felt that way, but did you really do that???

Yes and it wasn't one my proudest moments.

CarlaB Enthusiast
CarlaB
Posted
Yes and it wasn't one my proudest moments.

:lol::lol: I can see why you'll miss that invigorating and unpredictable lifestyle!!! :lol::lol:

gadgetgirl Newbie
gadgetgirl
Posted
What I will miss most is the sudden attacks of Diarrhea when I'm out running. Nothing like stomach cramps and a frantic scramble thru the underbrush by the side of the road, searching for some leaves(besides Poison Oak) and a secluded spot, to make you feel truly alive....

Ah, I know exactly how you feel. Unfortunately, I used to run on a path in the woods - but the path was very heavily traveled so I was always panicked that another runner or biker would come up upon me. I had MANY not so proud moments last summer - and more than one sweatband sacrified to the cause. :blink:

Thank YOU for reminding me of yet another BENEFIT that a gluten (and dairy, soy, yeast, almond, hazelnut) free lifestyle has brought me!

jerseyangel Proficient
jerseyangel
Posted

Hi Jerry :D

Of course I remember you! I'm glad you decided to get tested once and for all. We have to do things in our own time--and you knew when you were ready to know.

I've not had the pleasure of "going" in the bushes, but I know that very special feeling of--"if I don't get to the restroom NOW, it all over!" (literally :ph34r: )

Anyway, good luck with averything--let us know as soon as you hear!

Guhlia Rising Star
Guhlia
Posted

Glad you've finally decided to get tested. You won't regret your decision. Keep us posted.

JerryK Community Regular
JerryK
Posted
  • Author
Hi Jerry :D

Of course I remember you! I'm glad you decided to get tested once and for all. We have to do things in our own time--and you knew when you were ready to know.

I've not had the pleasure of "going" in the bushes, but I know that very special feeling of--"if I don't get to the restroom NOW, it all over!" (literally :ph34r: )

Anyway, good luck with averything--let us know as soon as you hear!

Well, I was a boy scout and grew up out in the country. Bears go in the woods and so did we when we were out camping. However I don't like giving new meaning to the term "going for a run" :)

JerryK Community Regular
JerryK
Posted
  • Author

Hey, it's been a week now and I still have not received my yogurt container and funnel. :blink:

Am I being impatient, or should I have received the packet by now? Their website does say it was

shipped on or about Nov 29th.

On the flip side, I've had very little symptoms since ordering my test :P Maybe there's nothing wrong with me after all??

jerseyangel Proficient
jerseyangel
Posted
Hey, it's been a week now and I still have not received my yogurt container and funnel. :blink:

Am I being impatient, or should I have received the packet by now? Their website does say it was

shipped on or about Nov 29th.

On the flip side, I've had very little symptoms since ordering my test :P Maybe there's nothing wrong with me after all??

I'm sure it'll be there in a day or two. I ordered the gene testing kit recently, and it came in the regular mail (just a large envelope) and took over a week.

As far as not having symptoms now that you've sent for the kit, sounds a lot like when your tooth stops hurting when you're on your way to the dentist :lol:

JerryK Community Regular
JerryK
Posted
  • Author

So my cool whip container and shipping stuff came yesterday evening. Yaay, I am so looking forwards to

using it. Just like those Cialis commercials, I'll have to wait until "the time is right". I'm certainly not going to do this at work;)

OK, so seriously, I'm a little leery of Enterolab. I know they are not mainstream medicine. I see a few

threads here that talk about Celiac and question the validity of a stool test diagnoses. So, if this guy tells me I'm positive, do I base my entire life style, for the rest of my life, on this one guy's opinion?

Just thinking out loud here...and I certainly want to hear opinions on this subject.

Guest nini
Guest nini
Posted

no, you don't base your entire future lifestyle on "one guys opinion" base it on how you feel once you've gotten all gluten out of your system for a while and then accidentally or on purpose gluten yourself... (keeping in mind not everyone reacts all the time) but if you feel better gluten-free, then it is most likely the culprit, or at least part of it.

CarlaB Enthusiast
CarlaB
Posted

Well, it's a hard call. I tested positive ... I feel better gluten-free, so I took that as evidence that gluten-free worked for me. I did not test positive in any of the traditional celiac tests. Originally, I thought maybe I just caught it early so didn't have the damage. Now, it's more than likely that the gluten intolerance is a result of the Lyme Disease I was just diagnosed with .... will it go away when I healed of the Lyme? That's a good question, and I will defianately "challenge" it once I'm better. For me, maybe the Lyme "triggered" it, or maybe the gluten intolerance is a symptom of the Lyme, much like my other sensitivities.

eleep Enthusiast
eleep
Posted

I agree that you'll probably want to go with what your body tells you in the long run -- I spent a long time trying to think my way through whether I "believed" things or not, but I practically developed an anxiety disorder doing so. Now I'm certain I did the right thing because I honestly feel better than I ever have for most of my adult life -- and the marked contrast with my last known glutening sealed the deal for me.

I was afraid the DHL guy would see the Enterolab address and just know what was in the box.....

eleep

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. catnapt
      - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

      learned I had a high PTH level in 2022 suspected to be due to low vit D got my vit D level up a bit but still have high PTH I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption
    2. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      how much gluten do I need to eat before blood tests?

      I am on day 13 of eating gluten and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone...
    3. Jmartes71
      - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Curious question

      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was...
    4. Amy Barnett
      - Amy Barnett posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Question

      What is the best liquid multivitamin for celiac disease?
    5. Scott Adams
      0

      Quick Gluten-Free Shrimp Stir-Fry With Crisp Vegetables

  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748
    avery144
    Newest Member
    avery144
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • catnapt
      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

      By catnapt · Posted

      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      I am on day 13 of eating gluten  and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone and/or the renal calcium leak.    I have spent the past 15 years working hard to improve my health. I lost 50lbs, got off handfuls of medications, lowered my cholesterol to enviable levels, and in spite of having end stage osteoarthritis in both knees, with a good diet and keeping active I have NO pain in those joints- til now.  Almost all of my joints hurt now I feel like someone has repeatedly punched me all over my torso- even my ribs hurt- I have nausea, gas, bloating, headache, mood swings, irritability, horrid flatulence (afraid to leave the house or be in any enclosed spaces with other people- the smell would knock them off their feet) I was so sure that I wanted a firm diagnosis but now- I'm asking myself is THIS worth it? esp over the past 2 yrs I have been feeling better and better the more I adjusted my diet to exclude highly refined grains and processed foods. I didn't purposely avoid gluten, but it just happened that not eating gluten has made me feel better.   I don't know what I would have to gain by getting a definitive diagnosis. I think possibly the only advantage to a DX would be that I could insist on gluten-free foods in settings where I am unable to have access to foods of my choice (hospital, rehab, nursing home)  and maybe having a medical reason to see a dietician?   please let me know if it's reasonable to just go back to the way I was eating.  Actually I do plan to buy certified gluten-free oats as that is the only grain I consume (and really like) so there will be some minor tweaks I hope and pray that I heal quickly from any possible damage that may have been done from 13 days of eating gluten.    
    • Jmartes71
      Curious question

      By Jmartes71 · Posted

      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
    • Amy Barnett
      Question

      By Amy Barnett · Posted

      What is the best liquid multivitamin for celiac disease?
    • Jmartes71
      Alarming

      By Jmartes71 · Posted

      I've noticed with my age and menopause my smell for bread gives me severe migraines and I know this.Its alarming that there are all these fabulous bakeries, sandwich places pizza places popping up in confined areas.Just the other day I suffered a migraine after I got done with my mri when a guy with a brown paper bag walk in front of me and I smelled that fresh dough bread with tuna, I got a migraine when we got home.I hate im that sensitive. Its alarming these places are popping up in airports as well.I just saw on the news that the airport ( can't remember which  one)was going to have a fabulous smelling bakery. Not for sensitive celiacs, this can alter their health during their travel which isn't safe. More awareness really NEEDS to be promoted, so much more than just a food consumption!FYI I did write to Stanislaus to let them know my thoughts on the medical field not knowing much about celiac and how it affects one.I also did message my gi the 3 specialist names that was given on previous post on questions on celiac. I pray its not on deaf door.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.