Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Ordered My Enterolab Test....


JerryK

Recommended Posts

JerryK Community Regular

Howdy,

I hope at least some of you remember me. Thanksgiving pushed me over the edge. Three days of foamy D later, I placed my order for Enterolab testing. Anyone that's followed my posts knows this is a big step for me, as I've been very much in denial.

Anyone experienced with Enterolab testing know how long it takes to get the stuff which which you

mail off your "poo" to them? :blink:

I look forward to learning if my dental enamel desintegration and gastro problems are indeed caused by Celiac. Jerry


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 58
  • Created
  • Last Reply
celiacgirls Apprentice

It takes 2 or 3 days to get the kit. You have to send off the results on a Mon, Tues, or Wed and then it is almost exactly 2 weeks later that you will hear.

CarlaB Enthusiast

Welcome to reality, Jerry. :D Pulling out of denial is a feat in itself!!! Now you're impatient :lol::lol::lol:

Sorry, but you deserved a bit of teasing here. ;)

JerryK Community Regular
Welcome to reality, Jerry. :D Pulling out of denial is a feat in itself!!! Now you're impatient :lol::lol::lol:

Sorry, but you deserved a bit of teasing here. ;)

Yes it's hard NOT to look forward to sending my poop off in a box ;) Wonder how I'll 'splain this to the

kids....

CarlaB Enthusiast
Yes it's hard NOT to look forward to sending my poop off in a box ;) Wonder how I'll 'splain this to the

kids....

Well, the whole thing is a lot easier than it sounds. No big deal. My 8 year old did it without any help from me! The important thing is to tell everyone that no, that's NOT ice cream in the freezer!! I don't know why it has to look like a sherbert container!!!

Nancym Enthusiast

I did a bit of a freak out realizing I had to freeze my poop! Then I had to take it to work with me and put it in the freezer until I could get to a DHL drop off location. I was so freaked out that someone might open my container in the freezer. Of course it was wrapped up well and stuck into bag, inside a bag. But still! I was SO happy to get that stupid thing into the DHL drop box.

JerryK Community Regular
Well, the whole thing is a lot easier than it sounds. No big deal. My 8 year old did it without any help from me! The important thing is to tell everyone that no, that's NOT ice cream in the freezer!! I don't know why it has to look like a sherbert container!!!

Is it hard to get it picked up? Do you have to keep it frozen?? yucky! I live out in the country and

I don't even know if the carrier will come out there to pick it up....

I am worried that I will find out I have it. I admit I don't want to cope with the lifestyle changes I will have to engage in. However testing and confirmation is what will force me into compliance. Jerry


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast

Jerry, I lived out in the country at the time. I know they'd pick up because Fed Ex and everyone else came out there, but I was going to be in town, so I dropped it off so I didn't have to wait for them. I just walked in and handed it to the lady at the desk, we didn't even need to discuss it ... everything was clearly labeled, and she had no way of knowing what it was.

You mention being afraid of the lifestyle changes .... are you worried you won't know what to do with your time when you're not spending it all in the bathroom? You could always put a recliner in the bathroom if you'll miss all the time you're spending in there now!! :lol:

Just kidding. You'll do fine. It becomes second nature.

lonewolf Collaborator

Good for you! If you do discover that you are gluten intolerant, which it sounds like, you'll be so happy by how well you feel that you won't mind the lifestyle change.

oceangirl Collaborator
Jerry, I lived out in the country at the time. I know they'd pick up because Fed Ex and everyone else came out there, but I was going to be in town, so I dropped it off so I didn't have to wait for them. I just walked in and handed it to the lady at the desk, we didn't even need to discuss it ... everything was clearly labeled, and she had no way of knowing what it was.

You mention being afraid of the lifestyle changes .... are you worried you won't know what to do with your time when you're not spending it all in the bathroom? You could always put a recliner in the bathroom if you'll miss all the time you're spending in there now!! :lol:

Just kidding. You'll do fine. It becomes second nature.

Jerry,

I can't see a DHL truck now without thinking of it as loaded with poop. Cracks me up everytime.

lisa

JerryK Community Regular
Jerry,

I can't see a DHL truck now without thinking of it as loaded with poop. Cracks me up everytime.

lisa

And NOW neither will I :lol:

JerryK Community Regular
Jerry, I lived out in the country at the time. I know they'd pick up because Fed Ex and everyone else came out there, but I was going to be in town, so I dropped it off so I didn't have to wait for them. I just walked in and handed it to the lady at the desk, we didn't even need to discuss it ... everything was clearly labeled, and she had no way of knowing what it was.

You mention being afraid of the lifestyle changes .... are you worried you won't know what to do with your time when you're not spending it all in the bathroom? You could always put a recliner in the bathroom if you'll miss all the time you're spending in there now!! :lol:

Just kidding. You'll do fine. It becomes second nature.

Thanks much, that makes me feel better about it:)

What I will miss most is the sudden attacks of Diarrhea when I'm out running. Nothing like stomach cramps and a frantic scramble thru the underbrush by the side of the road, searching for some leaves(besides Poison Oak) and a secluded spot, to make you feel truly alive....

CarlaB Enthusiast
Thanks much, that makes me feel better about it:)

What I will miss most is the sudden attacks of Diarrhea when I'm out running. Nothing like stomach cramps and a frantic scramble thru the underbrush by the side of the road, searching for some leaves(besides Poison Oak) and a secluded spot, to make you feel truly alive....

:lol::lol::lol:

I know I've felt that way, but did you really do that???

JerryK Community Regular
:lol::lol::lol:

I know I've felt that way, but did you really do that???

Yes and it wasn't one my proudest moments.

CarlaB Enthusiast
Yes and it wasn't one my proudest moments.

:lol::lol: I can see why you'll miss that invigorating and unpredictable lifestyle!!! :lol::lol:

gadgetgirl Newbie
What I will miss most is the sudden attacks of Diarrhea when I'm out running. Nothing like stomach cramps and a frantic scramble thru the underbrush by the side of the road, searching for some leaves(besides Poison Oak) and a secluded spot, to make you feel truly alive....

Ah, I know exactly how you feel. Unfortunately, I used to run on a path in the woods - but the path was very heavily traveled so I was always panicked that another runner or biker would come up upon me. I had MANY not so proud moments last summer - and more than one sweatband sacrified to the cause. :blink:

Thank YOU for reminding me of yet another BENEFIT that a gluten (and dairy, soy, yeast, almond, hazelnut) free lifestyle has brought me!

jerseyangel Proficient

Hi Jerry :D

Of course I remember you! I'm glad you decided to get tested once and for all. We have to do things in our own time--and you knew when you were ready to know.

I've not had the pleasure of "going" in the bushes, but I know that very special feeling of--"if I don't get to the restroom NOW, it all over!" (literally :ph34r: )

Anyway, good luck with averything--let us know as soon as you hear!

Guhlia Rising Star

Glad you've finally decided to get tested. You won't regret your decision. Keep us posted.

JerryK Community Regular
Hi Jerry :D

Of course I remember you! I'm glad you decided to get tested once and for all. We have to do things in our own time--and you knew when you were ready to know.

I've not had the pleasure of "going" in the bushes, but I know that very special feeling of--"if I don't get to the restroom NOW, it all over!" (literally :ph34r: )

Anyway, good luck with averything--let us know as soon as you hear!

Well, I was a boy scout and grew up out in the country. Bears go in the woods and so did we when we were out camping. However I don't like giving new meaning to the term "going for a run" :)

JerryK Community Regular

Hey, it's been a week now and I still have not received my yogurt container and funnel. :blink:

Am I being impatient, or should I have received the packet by now? Their website does say it was

shipped on or about Nov 29th.

On the flip side, I've had very little symptoms since ordering my test :P Maybe there's nothing wrong with me after all??

jerseyangel Proficient
Hey, it's been a week now and I still have not received my yogurt container and funnel. :blink:

Am I being impatient, or should I have received the packet by now? Their website does say it was

shipped on or about Nov 29th.

On the flip side, I've had very little symptoms since ordering my test :P Maybe there's nothing wrong with me after all??

I'm sure it'll be there in a day or two. I ordered the gene testing kit recently, and it came in the regular mail (just a large envelope) and took over a week.

As far as not having symptoms now that you've sent for the kit, sounds a lot like when your tooth stops hurting when you're on your way to the dentist :lol:

JerryK Community Regular

So my cool whip container and shipping stuff came yesterday evening. Yaay, I am so looking forwards to

using it. Just like those Cialis commercials, I'll have to wait until "the time is right". I'm certainly not going to do this at work;)

OK, so seriously, I'm a little leery of Enterolab. I know they are not mainstream medicine. I see a few

threads here that talk about Celiac and question the validity of a stool test diagnoses. So, if this guy tells me I'm positive, do I base my entire life style, for the rest of my life, on this one guy's opinion?

Just thinking out loud here...and I certainly want to hear opinions on this subject.

Guest nini

no, you don't base your entire future lifestyle on "one guys opinion" base it on how you feel once you've gotten all gluten out of your system for a while and then accidentally or on purpose gluten yourself... (keeping in mind not everyone reacts all the time) but if you feel better gluten-free, then it is most likely the culprit, or at least part of it.

CarlaB Enthusiast

Well, it's a hard call. I tested positive ... I feel better gluten-free, so I took that as evidence that gluten-free worked for me. I did not test positive in any of the traditional celiac tests. Originally, I thought maybe I just caught it early so didn't have the damage. Now, it's more than likely that the gluten intolerance is a result of the Lyme Disease I was just diagnosed with .... will it go away when I healed of the Lyme? That's a good question, and I will defianately "challenge" it once I'm better. For me, maybe the Lyme "triggered" it, or maybe the gluten intolerance is a symptom of the Lyme, much like my other sensitivities.

eleep Enthusiast

I agree that you'll probably want to go with what your body tells you in the long run -- I spent a long time trying to think my way through whether I "believed" things or not, but I practically developed an anxiety disorder doing so. Now I'm certain I did the right thing because I honestly feel better than I ever have for most of my adult life -- and the marked contrast with my last known glutening sealed the deal for me.

I was afraid the DHL guy would see the Enterolab address and just know what was in the box.....

eleep

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

    2. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

    3. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

    4. - SilkieFairy posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748

    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
    • SilkieFairy
      After the birth of my daughter nearly 6 years ago, my stools changed. They became thin if they happened to be solid (which was rare) but most of the time it was Bristol #6 (very loose and 6-8x a day). I was on various medications and put it down to that. A few years later I went on this strict "fruit and meat" diet where I just ate meat, fruit, and squash vegetables. I noticed my stools were suddenly formed, if a bit narrow. I knew then that the diarrhea was probably food related not medication related. I tried following the fodmap diet but honestly it was just too complicated, I just lived with pooping 8x a day and wondering how I'd ever get and keep a job once my children were in school.  This past December I got my yearly bloodwork and my triglycerides were high. I looked into Dr. William Davis (wheat belly author) and he recommended going off wheat and other grains. This is the first time in my life I was reading labels to make sure there was no wheat. Within 2 weeks, not only were my stools formed and firm but I was only pooping twice a day, beautiful formed Bristol #4.  Dr. Davis allows some legumes, so I went ahead and added red lentils and beans. Nervous that the diarrhea would come back if I had IBS-D. Not only did it not come back, it just made my stools even bigger and beautiful. Still formed just with a lot more width and bulk. I've also been eating a lot of plant food like tofu, mushrooms, bell peppers, hummus etc which I thought was the cause of my diarrhea before and still, my stools are formed. In January I ran a genetics test because I knew you had to have the genes for celiac. The report came back with  DQ 2.2 plus other markers that I guess are necessary in order for it to be possible to have celiac. Apparently DQ 2.2 is the "rarer" kind but based on my report it's genetically possible for me to have celiac.  I know the next step is to bring gluten back so I can get testing but I am just not wanting to do that. After suffering with diarrhea for years I can't bring myself to do it right now. So that is where I am!   
    • catnapt
      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.