Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Ordered My Enterolab Test....

JerryK

Recommended Posts

JerryK Community Regular
JerryK
Posted
  • Author

Just want to report that I had a successful rendevous :ph34r: with my Kool Whip container this morning and it looks like success!! Glad that's over...just hope no one gets in the freezer in the garage;)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 58
  • Created
  • Last Reply
Guest Kathy Ann
Guest Kathy Ann
Posted

I'm greatly anticipating Dr. Fine's publishing. I email them now and then and every time they refer to the fact that the main research testing is officially over and that they are now hard at work "writing the interpretation of his most recent research." That sounds mighty close to me. I really think it is forthcoming. It's just a mammoth job to properly present a new discovery like this. Hopefully it will open up a new era of non-invasive gold standard testing, allowing insurances to pay and a lot of questions to be answered! They also have told me that it will be "well worth the wait." I'm excited.

Canadian Karen Community Regular
Canadian Karen
Posted

This thread is bringing back some unpleasant memories for sure!

Try having to collect all your BM specimens in a paint can for 24 hours! Now for most, that won't be too bad at all, but for a celiac with collagenous colitis and who has had nothing but water for BM's for over a decade now and goes 20 - 30 times a day, let me tell ya, near the end of the 24 hours, opening up the paint lid was not a pleasant experience! Also, when the doctor told me what I had to do, the first thing I said to him was "You're only giving me ONE paint can? I'll need two for sure....." He looked extremely doubtful but gave two anyway...... 24 hours later, I dropped off 1 1/2 cans of toxic waste.......

Oh, and this thread has taught me to make sure I don't get into any accidents with UPS brown trucks!!!! I wouldn't want the sh** to hit the fanbelt! ;)

Hugs.

Karen

JerryK Community Regular
JerryK
Posted
  • Author

I sent my poo to Texas. I hope they find it of satisfactory quality. :blink:

Debra515 Newbie
Debra515
Posted

I want to thank you all for this wonderful thread!

I love to see the debate for Enterolab. I must confess, I'm right there hoping and praying that Dr. Fine will submit his finding very soon. The only road block I see is if the "Mainstream, sorry-I'll call them Traditionalists" decide not to publish his submission.

I think the uncertainty and confusion lies with terminology when it comes to diagnosing "Celiacs" vs. "Non-Celiac gluten sensitivity" which I believe Dr Fine does a much better job at diagnosing earlier. I also really think the Celiac specialists like Dr. Green want to keep the non-celiac gluten sensitive- non DQ2 and DQ8 people out of the picture as to muddy the waters of a true Celiac diagnosis.

Soooo where does that leave all the others who ARE gluten sensitive yet test negative with blood or biopsy or haven't developed a leaky gut and do well on a gluten-free diet? I'm just asking a rhetorical question.

Jerry, I think you should do both tests and hopefully you can educate a few doctors along the way regardless of how inept they are to Celiacs. Did you also order the gene test?

JerryK Community Regular
JerryK
Posted
  • Author

I ordered the Antigliadin Iga and Antitissue transglutaminase IgA tests. I didn't order gene testing.

You raise a good point about where that leaves us who KNOW we are gluten sensitive. If I test negative..

do I just go on about my business...eating gluten...dealing with the runs and cutting back when it gets too

bad? Do I simply assume all is well because not enough antibodies were found? These are questions I don't know the answer to. I'm hoping I test REALLY high or REALLY low...something in between is going to leave me hanging, wondering what to do next. Mabe a gene test would provide some additional ammo.

Regardless of whatever happens with Enterolab, I promise you that my HMO, Kaiser, will not care! Unless it showed up on the standard IgA blood test, Kaiser will simply label me a hypocondriac. :ph34r:

Jerry

I want to thank you all for this wonderful thread!

I love to see the debate for Enterolab. I must confess, I'm right there hoping and praying that Dr. Fine will submit his finding very soon. The only road block I see is if the "Mainstream, sorry-I'll call them Traditionalists" decide not to publish his submission.

I think the uncertainty and confusion lies with terminology when it comes to diagnosing "Celiacs" vs. "Non-Celiac gluten sensitivity" which I believe Dr Fine does a much better job at diagnosing earlier. I also really think the Celiac specialists like Dr. Green want to keep the non-celiac gluten sensitive- non DQ2 and DQ8 people out of the picture as to muddy the waters of a true Celiac diagnosis.

Soooo where does that leave all the others who ARE gluten sensitive yet test negative with blood or biopsy or haven't developed a leaky gut and do well on a gluten-free diet? I'm just asking a rhetorical question.

Jerry, I think you should do both tests and hopefully you can educate a few doctors along the way regardless of how inept they are to Celiacs. Did you also order the gene test?

CarlaB Enthusiast
CarlaB
Posted

Jerry, if you test were to come out low, which it won't, then I would keep looking for what's really wrong!! I didn't get completely well gluten-free, though it certainly is PART of my puzzle. I kept looking and ends up I am not a hypochondriac and do not have a psychosomatic illness as my doctor told me I did, I have Lyme Disease. I encourage everyone to keep looking till they find the answer!!! Took me 30 years to find out what's wrong.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted

Jerry--

Glad that part is behind you. Keep us posted--can't wait to hear your results :)

Nancym Enthusiast
Nancym
Posted
I ordered the Antigliadin Iga and Antitissue transglutaminase IgA tests. I didn't order gene testing.

You raise a good point about where that leaves us who KNOW we are gluten sensitive. If I test negative..

do I just go on about my business...eating gluten...dealing with the runs and cutting back when it gets too

bad? Do I simply assume all is well because not enough antibodies were found? These are questions I don't know the answer to. I'm hoping I test REALLY high or REALLY low...something in between is going to leave me hanging, wondering what to do next. Mabe a gene test would provide some additional ammo.

Regardless of whatever happens with Enterolab, I promise you that my HMO, Kaiser, will not care! Unless it showed up on the standard IgA blood test, Kaiser will simply label me a hypocondriac. :ph34r:

Jerry

You had positive results on the gluten-free diet, right? Even Dr. Fine says some people that test negative will still have positive results from a gluten-free diet.

Its kind of the "Doctor, it hurts when I do this!" old joke. The doctor always responds: "Well stop doing that!" We pay these guys that kind of money to tell us what should probably be obvious to us.. :P Although nowadays the doctors seem to be telling us to go ahead and hurt ourselves because the blood test doesn't show anything. Geez, you send them to school and this is what they learn?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      2

      Keytones

      I haven't been up to date with taking my vitamins these past few months since I've been dealing with blood work and things that don't want you to have vitamins for imaging and mri's , scans.Im getting confused so I'm just not taking it to not disrupt the tests.My skin has issues.Im dealing with burning sibo pain .Im being extremely sensitive at my age my...
    2. Known1
      - Known1 replied to oceangirl's topic in Gluten-Free Foods, Products, Shopping & Medications
      17

      Lubriderm-gluten-free?

      I put lotion on every morning. I also eat a banana every morning. Sometimes I wash my hands prior to eating my banana and sometimes I do not. I started noticing a reaction and couldn't figure out what it was from. I found this thread regarding Lubriderm lotions. (Actually there are several, but this is the most recent, which is why I am replying here...
    3. cristiana
      - cristiana replied to lehum's topic in Super Sensitive People
      12

      4.5 years into diagnosis, eating gluten-free and still struggling: would love support, tips, & stories

      Hello @Heavenly Flower Welcome to the forum! It will take time to master the diet and find what foods you can eat but I'd suggest what might make it easier is to keep a food diary. You can write down what you ate, and then any symptoms that arise in a day. Patterns do start to emerge. Also, it is worth bearing in mind that sometimes intolerances...
    4. trents
      - trents replied to lehum's topic in Super Sensitive People
      12

      4.5 years into diagnosis, eating gluten-free and still struggling: would love support, tips, & stories

      Welcome to celiac.com, @Heavenly Flower! You're off to a good start but you can certainly branch out some. White rice is fairly devoid of nutrition. Baked potatoes with the skin (washed) would be a better choice for the starch unless, that is, you don't do well with members of the nightshade family. Yams or sweet potatoes would be even better because...
    5. Heavenly Flower
      - Heavenly Flower replied to lehum's topic in Super Sensitive People
      12

      4.5 years into diagnosis, eating gluten-free and still struggling: would love support, tips, & stories

      I was just diagnosed with celiac disease after Thanksgiving. I can't imagine what all you had to do to get all the information you have, it just seems so overwhelming. I am still trying to figure it all out and don't know if the information I'm getting is correct. I have been eating only white rice and chicken breast, pork, or steak and fresh vegetables....
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,420
    • Most Online (within 30 mins)
      7,748
    LifeOfBryan
    Newest Member
    LifeOfBryan
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Jmartes71
      Keytones

      By Jmartes71 · Posted

      I haven't been up to date with taking my vitamins these past few months since I've been dealing with blood work and things that don't want you to have vitamins for imaging and mri's , scans.Im getting confused so I'm just not taking it to not disrupt the tests.My skin has issues.Im dealing with burning sibo pain .Im being extremely sensitive at my age my tolerance level after menopause and glutenfree has been terrible. I was advised to drink lots of carbohydrates by pcp as well which I do drink lot's  of water and several teas a day.Thankyou
    • Known1
      Lubriderm-gluten-free?

      By Known1 · Posted

      I put lotion on every morning.  I also eat a banana every morning.  Sometimes I wash my hands prior to eating my banana and sometimes I do not.  I started noticing a reaction and couldn't figure out what it was from.  I found this thread regarding Lubriderm lotions.  (Actually there are several, but this is the most recent, which is why I am replying here.) This thread did not provide a definitive answer, so I contacted the manufacturer via their website.  Below is their exact reply.  I inquired about two of their products, Daily Moisturizer (in the white/blue bottle) and Advanced Therapy (in the white/pink bottle).  In short, Lubriderm IS NOT guaranteed to be gluten-free. --Start quote: Thank you for contacting Lubriderm®. We appreciate your interest in our products. Kenvue fully complies with all regulations on ingredients in the countries in which our products are sold. Wherever regulatory authorities have set limits on certain ingredients, our product formulations either meet those limits or contain a lesser amount of the regulated ingredient. We are committed to maintaining the high standards of quality and safety that have been our hallmark for generations of consumers. Although the gluten was not added to the Daily Moisture Lotion, we cannot guarantee that cross-contamination with gluten did not occur in the manufacturing process. In addition, some of the ingredients in the product may have been purchased by us from outside distributors, and we cannot say with absolute certainty that cross-contamination did not occur at their facilities. We recommend that you speak with your treating physician if you are concerned that, with your particular sensitivity, the product’s listed ingredients may trigger an allergic reaction.  Thank you for understanding. If you have any more comments or questions in the future, please don't hesitate to reach out again. With care, Cris Lubriderm® Consumer Care Center --End Quote For reference, here is an article found on this site that discusses gluten-free options when it comes to lotions: Stay well, Known1
    • cristiana
      4.5 years into diagnosis, eating gluten-free and still struggling: would love support, tips, & stories

      By cristiana · Posted

      Hello @Heavenly Flower Welcome to the forum!  It will take time to master the diet and find what foods you can eat but I'd suggest what might make it easier is to keep a food diary.   You can write down what you ate, and then any symptoms that arise in a day.  Patterns do start to emerge. Also, it is worth bearing in mind that sometimes intolerances are temporary. I was temporarily dairy intolerant following diagnosis, and my gastroenterologist advised I should come off dairy for 3 weeks to see if it helped with painful lower abdominal bloating, and it did.  As I have healed I have been able to consume it again. If you get symptoms consuming 'pure oats' (gluten free oats, i.e. oats grown apart from and processed separately to gluten containing crops, andthe only oats we as coeliacs should be eating), the advice here in the UK is to stop eating them, then try them again in about six months.   Not to discourage you but it too me some years to be able to eat them without getting a sore stomach, but now so long as I don't overdo things, I can eat them every day.
    • trents
      4.5 years into diagnosis, eating gluten-free and still struggling: would love support, tips, & stories

      By trents · Posted

      Welcome to celiac.com, @Heavenly Flower!  You're off to a good start but you can certainly branch out some. White rice is fairly devoid of nutrition. Baked potatoes with the skin (washed) would be a better choice for the starch unless, that is, you don't do well with members of the nightshade family. Yams or sweet potatoes would be even better because of the beta carotene. Do you have issues with eggs and dairy? How about fresh fish? What about fresh fruit? There are also non gluten alternative grains like quinoa, buckwheat (not related to wheat) groats and sorghum that are sold by companies like Bob's Red Mill that can be used for hot breakfast cereals. Gluten free oats is also an option, though some celiacs can't do oats because the protein in them (avenin) is similar enough to gluten to cause a reaction. Gluten is found only in wheat, barley and rye.
    • Heavenly Flower
      4.5 years into diagnosis, eating gluten-free and still struggling: would love support, tips, & stories

      By Heavenly Flower · Posted

      I was just diagnosed with celiac disease after Thanksgiving. I can't imagine what all you had to do to get all the information you have, it just seems so overwhelming. I am still trying to figure it all out and don't know if the information I'm getting is correct. I have been eating only white rice and chicken breast, pork, or steak and fresh vegetables.  Gluten free pretzels and rice cakes to snack on. But that's about it cause I don't know what I can eat it's to overwhelming.  I don't even know what symptom to look for for possible cross contamination cause I also have microscopic Colitis which has the same symptoms as celiac disease. I'm hoping at least being on this forum I can get information that will help me figure it all out. Sorry I am not able to help you and hope you get the relief you are looking for. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.