Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Own Fault

Hells Bells

By Hells Bells
in Coping with Celiac Disease

Recommended Posts

Hells Bells Apprentice
Hells Bells
Posted

Its my own fault, I have been searching this site because I feel constantly fatigued. But then looking at my diet I eat out twice a week , a cooked breakfast with my friend and then last week I had take out chinese that I took 2 days to eat. Now feeling tired, crappy, nauseus, no energy.

I do it to myself, I can stop the chinese BUT the hard thing is the breakfast. Its my one social event, its soo nice, bacon, eggs, tomatoes, coffee and lots of chat. Sometimes after the meal its straight to the bathroom and D. Then my frind says oh its dumping syndrome she has that too. My friend is very persistant that we have it, she says you have to cheat sometimes, she is very disappointed if I don't go, its also work related, we are visiting nurses we network. I really should know better, but I am not very assertive. Its the story of my life I allow things to happen to me and pay the consequences. What can I do. I can't see any alternatives that can I do.

Can breaking the rules twice a week cause me week long fatigue. I really don't have any stamina, I am constantly craving food.

Anyones ideas welcome, I could use a good talking to.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CarlaB Enthusiast
CarlaB
Posted

I learned early on that eating breakfast out was nearly impossible. Sorry for the bad news. If I get glutened, I have at least 8 days of fatigue, so twice a week would hurt!

How about eating before you go, bringing along some kind of snack and just ordering a cup of coffee from the restaurant?

ravenwoodglass Mentor
ravenwoodglass
Posted
Its my own fault, I have been searching this site because I feel constantly fatigued. But then looking at my diet I eat out twice a week , a cooked breakfast with my friend and then last week I had take out chinese that I took 2 days to eat. Now feeling tired, crappy, nauseus, no energy.

I do it to myself, I can stop the chinese BUT the hard thing is the breakfast. Its my one social event, its soo nice, bacon, eggs, tomatoes, coffee and lots of chat. Sometimes after the meal its straight to the bathroom and D. Then my frind says oh its dumping syndrome she has that too. My friend is very persistant that we have it, she says you have to cheat sometimes, she is very disappointed if I don't go, its also work related, we are visiting nurses we network. I really should know better, but I am not very assertive. Its the story of my life I allow things to happen to me and pay the consequences. What can I do. I can't see any alternatives that can I do.

Can breaking the rules twice a week cause me week long fatigue. I really don't have any stamina, I am constantly craving food.

Anyones ideas welcome, I could use a good talking to.

First have a (((((((hug))))), yes this will harm you. And not just in the short term. Unfortunately the gluten free diet is not one you can 'cheat just a little bit' on unless you want to not only delay your healing but also increase your risk of developing some really nasty autoimmune stuff. Is there some way you can make this social event at your house in your safe gluten-free environment? You could make it a time to share the little effort that is involved with most breakfast items and still have fun. You could also use it as a time to try and to share gluten-free foods that you and everyone else might enjoy. I tryid Glutinos raisen bread today for cinnamon french toast and was pleasently surprised. I found it toasted pretty blah. It can be so hard especially at first when you really need to heal to keep the social circles open without making yourself sick or delaying healing.

ArtGirl Enthusiast
ArtGirl
Posted
How about eating before you go, bringing along some kind of snack and just ordering a cup of coffee from the restaurant?

This would be my suggestion, too. Sorry you're feeling so bad.

I'm sure your friend wouldn't mind if you didn't order the restaurant breakfast. It's the time together that is important, right?

Nooner Newbie
Nooner
Posted

Your friend cares for you and doesn't want to cause you harm. Yet she doesn't know these meals are causing you harm unless you tell her! Just let her know you are gluten intolerant, you get ill/fatigued, you will just have coffee. She'll understand.

Do you go to the same restaurant each time? Maybe you could speak to the manager about preparing eggs in a clean skillet, not on the griddle, just for you. Same with the bacon and tomatoes. If you are a repeat customer, they probably would be happy to do this for you. Many restaurants are accomodating if you just ask.

Definitely continue to go to these get togethers, just be safe. Your body will thank you.

Guest cassidy
Guest cassidy
Posted

You may be surprised at how good you feel if you stop cheating. It really may make a big difference. I agree with either eating before and having coffee or talking to the restaurant and seeing if they can help you. I have found that my true friends don't care what I eat, they just want to spend time with me. Maybe you will be even more fun to be around once you are feeling better :)

Hells Bells Apprentice
Hells Bells
Posted
  • Author

I thank you all for your suggestions, I have explained to my friend who is a nurse about Celiac but she just does not get it. I am thinking of sharing coffee and if i can bear it watching her eat or cooking breakfast for us.

I think I just needed encouragement. I think I am still a little in denial, in my mind I still have this doubt that the doctors must have got it wrong.

thanks everyone, I will keep you informed.

This is the best support i get from anywhere.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CarlaB Enthusiast
CarlaB
Posted
This is the best support i get from anywhere.

This is why so many of us have become friends here. We all understand each other.

sunshinen Apprentice
sunshinen
Posted

Ahhh denial... I'm still working my way out of it. So here's what I have to tell myself on a regular basis and what I tell anyone who tries to make me cheat. "This diet isn't a choice. It isn't optional. It isn't a fad. It is the necessary management of a disease—one that can ultimately kill me if I continue to eat gluten. Trust me, I want to cry when I smell pizza. I would love to go back to a low maintenence life, but please don't torture me by acting as if I can cheat, because I can't."

I make a point of showing people that I am tempted, that I need their help to stay healthy. People like to help. They just need to realize that this is a disease not just a diet.

Talk to your friend not only about how bad it makes you feel, but about the damage you can't feel, the secondary conditions and diseases, and draw a line. You have to stop cheating and you have to let your friend know that cheating is OUT OF THE QUESTION.

You can't blame her for not taking it seriously when you have not been showing her that it is serious. Ask her for help finding a way you can still have social time that won't be physically damaging to you. But draw the line against hurting yourself and stick with it. You owe it to yourself to be healthy and any good friend will support you in your efforts.

You can do this. And you will be soooo glad you did. It is truly amazing to feel GOOD again. It takes some sacrifice, but it is definitely worth it. :D

sunshinen Apprentice
sunshinen
Posted
Can breaking the rules twice a week cause me week long fatigue. I really don't have any stamina, I am constantly craving food.

I was glutened last Tuesday. It has been 8 days, and I still am so fatigued I don't want to get up in the morning. And that was a speck of gluten.

The craving will go away when you break the cycle. I didn't believe it was possible, but it really does.

I definitely believe that you shouldn't have to give up your social life. I second that you should try talking to the restaurant manager. The bacon probably won't be safe, but they would probably be willing to cook the eggs in a fresh skillet. If they cannot do this for you, ask if you can bring food in. They might be willing to microwave something for you. Or ask if they have something that would be safe. This way they still get the business of your friend, and you can still have something to eat.

Hells Bells Apprentice
Hells Bells
Posted
  • Author

[quote name='sunshinen' date='Dec 7 2006, 10:38 AM' post='24356 "This diet isn't a choice. It isn't optional. It isn't a fad. It is the necessary management of a disease—one that can ultimately kill me if I continue to eat gluten.

happygirl Collaborator
happygirl
Posted

think of gluten like rat poison. to us who have a problem with gluten, it IS poison.

would you be comfortable eating poison twice a week? or even risk getting it through cross contamination? (that always helps me)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed. Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    2. knitty kitty
      - knitty kitty replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fruits & Veggies

      Hello, @Jordan Carlson, So glad you're feeling better. Tecta is a proton pump inhibitor. PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12. Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the...
    3. knitty kitty
      - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1. There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine. In Thiamine deficiency, the body...
    4. Scott Adams
      0

      Inmate with Celiac Disease Wins $630,000 After Jail Denies Gluten-Free Food

    5. trents
      - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,019
    • Most Online (within 30 mins)
      7,748
    Nancy Adams
    Newest Member
    Nancy Adams
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Fruits & Veggies

      By knitty kitty · Posted

      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Positive biopsy

      By trents · Posted

      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
      Positive biopsy

      By pothosqueen · Posted

      26F!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.