Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

More Questions


lilmama

Recommended Posts

lilmama Apprentice

Ok I'm still trying to take in as much as possible. I bought 2 boxes of Vans waffles, they say they are wheat free and gluten-free. Upon further reading I find they have been processed on or by machines that have wheat products. So techinally they most likely have be glutenated, right? Best to avoid them? You have to look hard for this warning.

Is oat flour ok? I read it MIGHT contain low levels to no levels gluten in it depending on where is was processed. I have a box of Captain Crunch and was wondering if that is a ok cereal to eat.

Also I'm trying to explain to hubby how this really works. He is trying very hard to help me find foods we can all eat. Chinesse food , I said no he said well the fried rice would be ok. I found out last night no fried rice after stomach pains and a major headach this morning. He is really shocked in how many things have wheat.

So far in the way of foods I have found that Walmart brands(not all) are gluten-free

I can eat bacon,grits,milk,chips,fruits canned or fresh,veggies, meats potatoes, found some dried magos and craisins.

Still looking for snack ideas. ANy suggestion would be great.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sunshinen Apprentice

Fried rice would be bad because soy sauce is usually made from wheat. There are gluten-free soy sauces, and PF Changs is one of the best restaurants with a gluten free menu (IMHO).

Oat flour is probably contaminated because many places that process oats process wheat and often is grown on fields that have grown wheat, leaving some wheat growing alongside the oats. I would suggest avoiding oat flour altogether at first and then after you heal try to find some brands that you are okay with if you still want to try it.

This is my personal take and I suspect many would disagree. If it says gluten free, I eat it. If they have put this label on it, I assume they wash down the equipment before switching products. For now, you might want to avoid it, and then as you heal start to see if you can tolerate it or not.

Snacks: fresh fruit and vegies; apple slices/cellery and peanut butter (if you are tolerating nuts); tortilla chips and salsa/guacamole (homemade or check ingredients); homemade nachos (if tolerating milk); kinnikinnick muffins/donuts/etc; boiled eggs; deviled eggs; sliced salmon (or other meat) on rice crackers

kbtoyssni Contributor

I would not eat oats or oat flour. Most oats are contaminated. There is also some debate about whether oats do damage to celiacs - it seems that some do and some don't. So even if you got gluten-free oats you might react to them.

If you are looking for take-out type food, I suggest Thai food (rice noodles), Mexican (corn tortillas), Indian.

mamaw Community Regular

I think the only way to be totally gluten-free without any worries would be to wash all cooking items in scalding soapy hot water. And from there cook everything that goes into your mouth. I truly think it is very hard not to get a crumb from somewhere or to breathe in ....

Everyone of us react differently to foods,soaps & shampoo, so what fits one may not fit all... I know many will not eat oats because of cross contamination. I eat the gluten-free oats with no problems but I eat only 1/2 cup at a time a couple times a week.Being a new person trying to figure out this diet I would not eat oats at first..

Some snacks we like are Glutino pretzels, Doritos ranch chips, popcorn,gluten-free crackers with peanut butter.gluten-free pretzels with a melted hersey kiss then another top pretzel ( good for the holidays& quick).ANd of course veggies,dip & jerky.Bagged potato skins are usually gluten-free too.

good luck

mamaw

CarlaB Enthusiast

I eat Van's waffles. Neither my daughter nor I have a problem with them.

Restaurants are very difficult because of contamination issues. But, in your case, with the fried rice, it was the soy sauce. Learn from that -- you can't just be "pretty sure" something is okay! You must be positive!!

I only eat at restaurants that have gluten-free menus because they are better equipped to avoid contamination. Many times you can go to a restaurant and something looks safe, but it's not because of contamination. My son worked at a tea shop -- the sandwiches and salads were made at the same station. You would think their salads would be gluten-free, but if you saw their kitchen, you would know they are not.

I do have a couple exeptions -- I eat Chick-fil-a's grilled chicken salad and waffle fries. I also eat Skyline Chili on a potato (local Cincinnati chili).

Guest cassidy

I'm not sure how long you have been on the diet, but it seems like you are still figuring things out, and it takes a while. I would recommend starting with a more basic diet for two reasons. If you stick to veggies, fruits, meats, rice - things that are naturally gluten-free, you don't have to worry about labels and your healing body doesn't have to worry about harsh processed foods.

I would definitely stay away from oats. I believe there are two companies that make oats that are ok. They are grown in states that don't grow wheat so there is no cc. I wouldn't think captain crunch is made with those oats, so I would avoid it.

As far as eating things that are produced in the same facility/same lines as gluten - that is a personal choice. I am extremely sensitive and unfortunately have found that I usually get sick if I don't eat things from a dedicated facility. It isn't that I want to be so strict, I just get sick if I'm not. I'm sure you will figure out soon enough how sensitive you are and if you can handle things that may have a bit of cc. Also, some companies are very good about avoiding cc so even if there is gluten around you may find that everyone seems to be able to tolerate that product. I don't eat waffles so I don't know about those.

I snack on cheese - cracker barrel and land o lakes makes little individually wrapped cheese "bars" that are good. I usually also eat fruit. Lay's stax are ok so I eat those if I want some salty chips.

lilmama Apprentice

I've been on the diet the 27 of Nov(I think) I'm still learning alot about foods. I did receive an email back from the makers of Capt crunch and they told me their products arent safe for those who can't tolorate gluten. They did tell me that Aunt Jemima Syrups were safe to use. I've order a few boxes of bread mix and waiting for it to arrive. I miss my breads in my meals.

I'm back to basic as my gma use to call it. (fruits,veggie and gluten free dairy) I want to thank everyone for their help in guiding me threw the diet. I would be so lost w/out ya'lls help.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,166
    • Most Online (within 30 mins)
      7,748

    melindakathleen
    Newest Member
    melindakathleen
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...