Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hiya. Gi Or Cd?


Mydnyt

Recommended Posts

Mydnyt Newbie

Hi All

Newbe here. This place has been an interesting read, because I have been trying to find info on the difference between Gluten Intolerance & coeliac.

Had been having trouble with constantly feeling bloated, lack of energy etc for years, and when I had a full checkup recently my GP ran some extra tests.

Came back with the anti-IgA reading of 190. Went searching on the web & found somewhere saying a reading over 30 was a very high indication of coeliac positive.

Then had a biopsy, which came back negative/inconclusive. The gastroenterologist said keep eating the same, GP said try gluten-free for 6 wks.

Well, I tried gluten-free, and took about a week and a half, and had lost an inch & a half just from lack of bloating, got energy to burn, and generally feel fantastic.

Been all of 6 wks now, and still getting used to what I can and can't eat - especially when out for work. Every now and then get something I shouldn't be having, and know it within 20 mins - crossed of the list for the future.

Now just having a lot of the 'traditional' meals - roasts, steak & vegies etc - along with the simple stir fry's. I have to admit, it hasn't been as hard as I imagined - am I doing something wrong? :unsure:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Alexolua Explorer

Doing something wrong, finding it easy? Naw! Sounds like you're doing well adapting to the diet. =)

There have been a few people asking the Celiac versus gluten intolerance question here lately, so believe my answer is more or less correct.

Celiac disease is when the small intestines gets damaged because of an intolerance to gluten. A gluten intolerance is when you have an intolerance to gluten. Difference then, is just the damage to the small intestines. Both are treated the same way, which is no more eating gluten.

And to the sound of it, you are getting better! So ignore your gastro and go with your GP. gluten-free is the way to be!

Err, sorry.. that kinda rhymed in my head, so had to say it that way, LOL.

But no, nothing wrong. Just keep trying to avoid gluten and learn from mistakes! =)

Mydnyt Newbie

Ah well, was beginning to think it was too easy, reading some of the problems some people are having... Good to know I've pretty much got it right :D but boy, do I know it when I don't... :(

haha - does kinda rhyme when you say it in yr head :P

Alexolua Explorer

I think the trouble most people have is not being able to eat fast food, lots of junk food, etc. If you are handling that fine, then yeah, should be easier for you. =P

And in a way your lucky then, kinda, your body will tell you right away if you eat a no no. Pretty sure mine won't do that, lol.

Mydnyt Newbie

Ah, so that's probly why I'm having little trouble. Seldom eat junk food - tho still have cravings for pizza :( Usually do my own cooking, except when away for work - I wonder how that'll go...

Yeah, I guess I am lucky that I know straight away. Unfortunately it takes about 3 days to pass... motviation not to do it again :D

Alexolua Explorer

LOL.. well least it keeps you safe for 3 days?

And that was another. If you loved breads, pizza, etc.. diet might be a bit hard too. Just gotta be off it long enough to forgot what those things were like, LOL.

Niteyx13 Explorer

I have run into some pretty decent pizza crust recipes. I even found some gluten-free waffles that I didn't have to choke down! Just keep looking around at stores, and online, there are some good gluten-free bread or bread type foods out there. So, don't mourn the pizza too much! =)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mydnyt Newbie

Figured I'd just work around the lack of pizza... Got a wood oven in the kitchen. I'll try making my own :D and a gluten-free'll bring the drinks

celiac3270 Collaborator

I think a lot of the problems people have aren't with the gluten-free diet, but with symptoms, other complications, or diets that are restricted even further (no casein, lactose, nuts, soy, dairy, corn, etc). My problems revolve around symptoms--other than that, I'd be fine

ponita Newbie

I'm a newbe too and it wasn't that difficult for me either to make the changes. I too wondered if I was doing something wrong but since I felt better and better with each day I figured I was on the right track.

I started looking at all the foods out there that I could eat and not what I couldn't. I really wanted to expand my cooking skills with basic foods by learning new recipes. (like gluten-free fruit compote, veg salads and in general broaden my horizens before I added the gluten-free baking goods)

Those things kept me busy from thinking of pizza, cakes, breads and cookies (which were the main staple of my diet 10 weeks ago!!). I'm just now looking at gluten-free breads, pasta and mixes.

Good luck with your pizza craving!

Melissa

CoolCat1 Rookie

I tried a gluten-free pizza by Mega Pizza. It was fine. It was great not to feel sick after eating pizza. I don't know if Mega Pizza is common. I live in Canada.

Niteyx13 Explorer

Add-on to my entry up yonder:

The waffles I found are made by "Wheatstone (haha...I take it that's a family name!). They are pretty yummy and gluten-free. Not those crumbly dry things that you have to choke down. I bought them at Sprouts.

Deanna

Mydnyt Newbie

yeah. not much I miss really. bread I just haven't had, never been big on biscuits etc anyway

Kind of good timing in that the local shops have suddenly decided to expand their range of gluten-free foods. Just gotta wonder if some of them really are... Bought some gluten-free corn & vege pasta, and my reaction to it was awful. Mind you, wasn't lasting, so probably something else that doesn't like me :(

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,217
    • Most Online (within 30 mins)
      7,748

    Sutto
    Newest Member
    Sutto
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.