Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Will This Ever End?!


Mandy F.

Recommended Posts

Mandy F. Apprentice

I guess I just need to rant a little bit but I'm so frustrated! I've been feeling ill since a few weeks before I was diagnosed with Celiac in March. I initially resisted the diet, but I began following it hoping that I would start feeling better, and for a little while I did. Then I got the same sort of symptoms again, extreme fatigue, swollen glands, aches and pains... the list goes on. Well, at the end of October, my doc hospitalized me for 3 days and ran a bunch of blood tests and had me seen by a neurologist and a rheumatologist. The neurologist said depression (go figure... <_< ) and the rheumy said maybe fibro or lupus (w/strong family history). Well, I found out I was hypothyroid and had a postive ANA. I went back a couple weeks later to have the ANA panel completed but it was negative. The same tests showed that my B12 was low but it was fine two weeks prior! So, through all of this, I have not actually felt any better. The rheumy suggested Plaquenil (I guess he's treating this as lupus even though the tests were kinda screwy) but I opted to try Provigil (for energy, and less side effects) until my next set of thyroid tests comes back. So, in the course of about a month I've gone from being on one allergy med to taking a handful of meds and a shot every morning!! This is not the way I wanted to start 2007! I feel like, all of a sudden, I'm falling apart...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Gluten tester

    2. - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Seeking advice on potential gluten challenge

    3. - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Seeking advice on potential gluten challenge

    4. - Mark Conway replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Have I got coeliac disease

    5. - trents replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Seeking advice on potential gluten challenge

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,148
    • Most Online (within 30 mins)
      7,748

    Kim Sherr
    Newest Member
    Kim Sherr
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jmartes71
      I saw the thing for testing for gluten when at public places.I absolutely love but I wonder if they would come up with a bracelet or necklace that can detect gluten in the air.I would LOVE that, i know i get debilitating migraine from smelling gluten wheat what have you, all I know is when I go into places like Chevron- gluten Subway, migraine, Costco that food smell of nasty gluten- migraine and same with Walmart subway.I absolutely HATE im that sensitive, my body reacts.Sadly medical hasn't taken core issue of celiac being an issue considering glutenfree ever since 1994 and in their eyes not because they didn't diagnose me. I am and wish I wasn't. If there was a detector of gluten in the air it would make a world of difference. 
    • JudyLou
      Oops! @Staticgypsy, I’ll get the book! Thank you! 
    • JudyLou
      Thank you so much for your help, @trents and @Staticgypsy! I so appreciate your thoughts. My diet is high in foods with oxalates and I don’t notice any issues there. If eliminating gluten from my diet had changed anything I’d be happy to just keep on the gluten-free diet, but with eating gluten several times with no rash, and having a rash when I was many years into gluten-free eating (and was much more careful at that point), I’m just baffled. Many, many thanks to you both. 
    • Mark Conway
      I did'nt know that, I will check what specifically the blood tests were for. Thanks
    • trents
      Sorry, @JudyLou, as reread your post, I see that you have had gene testing done already.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.