Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

3 People Close To Me Are All Dying Of Cancer!

Electra

Recommended Posts

Electra Enthusiast
Electra
Posted

I've just recently found out that my daughter and I have Celiac Disease and since going Glutan Free I'm staring to feel a whole lot better, but I find out that my Gram is dying of Leukemia, my best friends Mom is dying of cervical cancer, and my friends husband (who has 4 kids one who is only 4yr's old) is dying of Lymph Node cancer!! How in the world do you get through all of this without eating UG. I'm definitely a stress eater, and I am finding it hard because there are not a lot of nibbling foods I like that are Glutan Free. How in the world am I going to make it through 3 funerals this year and still get healthy :-(!! I guess it's a good thing I found out I had Celiac before I found out everyone had only a short time to live. This year is going to stink royally!! Oh and my brother in law's father is going to pass soon too. Man this is not going to be good!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

I wish I could cure them for you!!!!!

Since I'm not capable of that, I am simply sending you (and them)hugs, prayers, and positive energy. Where there is life, there is hope.

(And I eat Fritos and dark chocolate chips when I'm stressed.) ;)

Electra Enthusiast
Electra
Posted
  • Author

I'm so picky I don't like Fritos or dark chocoate :-( LOL!!

CarlaB Enthusiast
CarlaB
Posted

Sorry it's going to be a tough year ...

Do you like Ruffles? Popcorn?

marciab Enthusiast
marciab
Posted

WOW .. I feel for you. This is going to be hard...

I went through something similar. My mother and my daughter's father were diagnosed in 2001 and told they had only 6 months to live within a week of each other. My heart sank ... He is still alive, but my mother died. But, that is a whole other story .......

All I can say is that they need you to be strong for them right now. And you will not be strong if you are glutenned out.

Keep a good stock of your gluten free goodies / foods close by. I just recently tried Pamela's spicey ginger cookies with peanut butter on them ... YUM !!!! Somebody stop me ....

Chocolate has been scientifically proven to be good for you ... ;) Marcia

dlp252 Apprentice
dlp252
Posted
I've just recently found out that my daughter and I have Celiac Disease and since going Glutan Free I'm staring to feel a whole lot better, but I find out that my Gram is dying of Leukemia, my best friends Mom is dying of cervical cancer, and my friends husband (who has 4 kids one who is only 4yr's old) is dying of Lymph Node cancer!! How in the world do you get through all of this without eating UG. I'm definitely a stress eater, and I am finding it hard because there are not a lot of nibbling foods I like that are Glutan Free. How in the world am I going to make it through 3 funerals this year and still get healthy :-(!! I guess it's a good thing I found out I had Celiac before I found out everyone had only a short time to live. This year is going to stink royally!! Oh and my brother in law's father is going to pass soon too. Man this is not going to be good!!

I'm so sorry, you're right that DOES suck!

Snacky things are hard for me as well...don't really have a lot that I have on hand at any one time because I end up eating the whole thing. I snack mostly on nuts and fruit with nut butters.

tarnalberry Community Regular
tarnalberry
Posted

I'm very sorry. :( It is going to be a very rough year.

Please do take care of yourself. When you have the energy, brainstorm (either at home, on here, or at the store) things you would like to snack on, and have that list available for all the times you don't have the energy to think about it. (Conservation of thinking! :P)

*hugs*

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted
I'm so picky I don't like Fritos or dark chocoate :-( LOL!!

What gluteny things do you like? Maybe we can come up with good substitutes for you...

jamrock Rookie
jamrock
Posted
I'm very sorry. :( It is going to be a very rough year.

Please do take care of yourself. When you have the energy, brainstorm (either at home, on here, or at the store) things you would like to snack on, and have that list available for all the times you don't have the energy to think about it. (Conservation of thinking! :P)

*hugs*

I am really sorry to hear but I do know as mentioned before once there is life there is hope and God is still in the healing business. In 2001 my huband was diagnosed with Lymphoma(lymp node cancer) there were legions everywhere ( just had a baby about 2 months old) things were looking pretty bad, major surgery Chemo the works its been over five years now he is well in total remission got a miracle from God and in addition I had another baby she is 2 years old. The doctors play their role but it is God who decides on our exit from this life. Pray for believe that they can be healed and commit it to God. Dont worry about the funeral for them because tomorrow is promised to no one neither you are me..

I pray the lord will give you courage.

Jamrock

Electra Enthusiast
Electra
Posted
  • Author

Thanks so much for the prayers and positive thoughts everyone. I'm hoping that by some miracle at least one of them will beat their cancer!!

As for snack foods I love caramel pop corn-I think I can have that too lol!!

My only snack food right now is POPCORN

I think I can have Rolos candy too YUM!!

I do like Peanuts but only the honey roasted ones, and I don't think I can have those.

I'm severely disappointed because the only way I like most meats is if it's cooked in Worshtireshire

sauce and tha's definitely out!!

I'm not fond of Peanut Butter unless it's in Reeses PB Cups lol!!

I only like Milk Chocolate and I don't like it plain but love it in most candy bars.

I can't have Butterfinger anymore :-(!!

I LOVE ice-cream but haven't checked any ice-cream labels yet

The hardest thing is that I have 4 children and am always on the go, so we used to go to the drive throughs a lot and now I have to put in an extra effort to make sure I pack fruit everywhere I go, and it's embarrassing when I get out a Granny Smith Apple and my husband orders French Fries or Pizza from the shop at whatever event we are attending. My entire family eats out and eats in front of me all the time and I just want to scream because I can't EVER have any of it again :-(!! My entire household is picky so I constantly have to fix chicken nuggest, fish sticks, waffles, pancakes, grilled cheese sandwiches, french toast and all kinds of other things that I can't have and it's so hard. On New Years Eve we ordered out Pizza and I ate an Apple while my kids and all their friends ate Pizza and Doritos :-(!! I did have some cheese puffs chips because they didn't appear to have Gluten in them, but the next day I didn't feel to well, so I think there was something in them that I shouldn't have had :-(!! Oh well I'm doing my best right now and that's all I can do ;-)!!

Guhlia Rising Star
Guhlia
Posted

Are you in the US? If so, Lea & Perrins worchestershire sauce is gluten free. I use it all the time. Reese's Peanut butter cups are also gluten free as are butterfingers. So, enjoy!

As for your household not being supportive.... Who does the cooking? You or them? I would just make gluten free stuff for meals and don't give in. If they want gluten, they can cook it themselves. I know it sounds harsh, but they need to be supportive of you, they're you're family. Try making gluten free chicken nuggets in bulk with Kinnikinnick's crispy chicken coating, then freeze them. You can do the same with fish too to make fish sticks. If they see you're making an effort to make this easier on them, hopefully they will reciprocate the effort.

If you like sinfully sweet and delicious treats, try some of the LesserEvil popcorns. They're fabulous. They have all different flavors to choose from, I really like the SINnamon and the BBQ flavors. You can them at www.shopbydiet.com.

Electra Enthusiast
Electra
Posted
  • Author

Actually I gave up the cooking a long time ago. I do get my 5 yr. old and 2 yr. old hot dogs and grilled cheese and chicken nuggets quite often, but I also do not allow them to eat them unless they have a fruit or veggie first. My hubby gets mad at me a lot because I won't cook him supper, but all he eats is potatoes (most of the time) and I stopped cooking those years ago because I had to make 2 or 3 different meals for all my other kids. I normally don't eat the chicken nuggets and things, but it used to be nice when we all ate Pizza together once a week.

All of my kids are being tested this month and I'm thinking that a least one more of my kids has Celiac, so if the tests come back positive then our entire household is going to have to change!!

I'll have to pick up some of that Lea and Perrins because I love my meat cooked in Worchestershire sauce.

I looked on the back of butterfinger candybars and I could have sworn I saw wheat on there? If not then I am in HEAVEN hehe!!

Eventually I'll try that crispy coating but right now I have absolutely no time to try and cook UG!! I did make a shephards pie today, but as usual it didn't come out all that well.

Thank God I can still have Nachos or I'd probably starve hehe!! I'm not sure if the Sour Cream or Salsa are Glutan Free but they sure do taste good LOL!!

Guhlia Rising Star
Guhlia
Posted

Pace salsa and Breakstone (Kraft) sour cream are both gluten free. I buy everything Kraft because they will list their ingredients clearly. It makes life easier. Also, planters honey roasted peanuts appear gluten free. I think they're made by Kraft, if so, then they should be safe if the ingredients appear safe. Kraft will clearly list wheat, barley, rye, or oats on the label.

Butterfingers are definitely gluten free. At least they used to be. I haven't had one in a while, but they're made by Nestle Foods and Nestle will clearly list WBRO (gluten).

AndreaB Contributor
AndreaB
Posted

I'm so sorry Angie. :(

I agree with jamrock's post. We take for granted we will be here the next day but we truly don't know if we will. It's hard to sit by when you know someone has cancer. My father does as well, but he's the only one so I can't say I know what you are going through.

For me I had to take a break from the board as I couldn't be there for everyone else for awhile. That may be different for you though. It sounds like you really need support on the diet. It also saddens me that your family doesn't appear to be that supportive. Hopefully you'll be able to get the family to come together for at least dinner so you can all enjoy the same meal together.

jkmunchkin Rising Star
jkmunchkin
Posted

Ughh, I am so sorry for you. I wish there was something I could say or do to help. I wish i could snap my fingers and they'd be cured.

Maybe make sure you always have some carrot sticks, candy bars... anything gluten free around that appeals to you so that when you find you need a snack you have something and won't be tempted to make a rash decision and get something that will make you sick.

Mtndog Collaborator
Mtndog
Posted

Oh Angie- that's brutal. I had a year like that. My mom, my uncle, my friend's brother and dad all in a row (like within 6 months of each other- all cancer). It was brutal!

I'm so sorry.

Lay's potato chips

Reese's pb Cups

Butterfingers

Nutella (so so so so so good)

carrots and hummus

Anything by Enjoy Life (their snickerdoodle cookies rock!)

apples (Honeycrisp or Fuji- prefereably smeared with nutella)

Cheese

all my favs!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,133
    • Most Online (within 30 mins)
      7,748
    Exhausted-momma
    Newest Member
    Exhausted-momma
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Sarah Grace
      Headaches / Migraines and Hypoglycaemia

      By Sarah Grace · Posted

      Dear Kitty Since March I have been following your recommendations regarding vitamins to assist with various issues that I have been experiencing.  To recap, I am aged 68 and was late diagnosed with Celiac about 12 years ago.  I had been experiencing terrible early morning headaches which I had self diagnosed as hypoglycaemia.  I also mentioned that I had issues with insomnia, vertigo and brain fog.   It's now one year since I started on the Benfotiamine 600 mg/day.  I am still experiencing the hypoglycaemia and it's not really possible to say for sure whether the Benfotiamine is helpful.  In March this year, I added B-Complex Thiamine Hydrochloride and Magnesium L-Threonate on a daily basis, and I am now confident to report that the insomnia and vertigo and brain fog have all improved!!  So, very many thanks for your very helpful advice. I am now less confident that the early morning headaches are caused by hypoglycaemia, as even foods with a zero a GI rating (cheese, nuts, etc) can cause really server headaches, which sometimes require migraine medication in order to get rid off.  If you are able to suggest any other treatment I would definitely give it a try, as these headaches are a terrible burden.  Doctors in the UK have very limited knowledge concerning dietary issues, and I do not know how to get reliable advice from them. Best regards,
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Finding gluten free ingredients

      By captaincrab55 · Posted

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.