Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Kimberly-clark


srokie

Recommended Posts

Mango04 Enthusiast

Is it possible to close this thread? I'm not a moderator or anything so I don't know....but it started ugly..then got pretty funny...and well, I don't think there's much more we can do with it really....


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 252
  • Created
  • Last Reply
DingoGirl Enthusiast

good idea. of course, every time we post, it bumps it up. :ph34r: Should we ask Scott to shut it down?

Fiddle-Faddle Community Regular

To be honest, I AM interested in hearing what Srokie posts about Dr. Saviano and what she has to say.

Viola 1 Rookie

I'm just surprised that she showed up again. I thought that she said she wasn't coming back, but I must have misunderstood her post.

It would be nice if she mellowed out her presentation a bit. :huh: Some of it might even be interesting about how other people think and live their lives with Celiac.

Mtndog Collaborator
To be honest, I AM interested in hearing what Srokie posts about Dr. Saviano and what she has to say.

This is not directed at ANYONE (cross my heart) but one option is to ignore a thread if you don't want to get into anything.

blueeyedmanda Community Regular

I enjoyed when we talked about "the nasties" just reminded me of my own nasties at work ;)

Viola 1 Rookie
I enjoyed when we talked about "the nasties" just reminded me of my own nasties at work ;)

:lol: Yes, these threads do tend to go off the beaten path and take on a life of their own. :lol:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Fiddle-Faddle Community Regular
I'm just surprised that she showed up again. I thought that she said she wasn't coming back, but I must have misunderstood her post.

It would be nice if she mellowed out her presentation a bit. :huh: Some of it might even be interesting about how other people think and live their lives with Celiac.

Sure it would be nice if she mellowed out a bit. But for all we know, maybe she is just not a mellow person to start with, and how she was treated here did not help.

Continuing to criticize her is still not helping.

You guys just can't keep baiting someone and then complain when that person explodes.

blueeyedmanda Community Regular

Sometimes going off the beaten path is more fun anyways ;)

Carriefaith Enthusiast
I enjoyed when we talked about "the nasties" just reminded me of my own nasties at work
Yeah that was funny, I am giggling... the nasties :lol: I am thankful to have no nasties at my work.
blueeyedmanda Community Regular

I only have one real nasty where I am...but that one nasty can influence the mood in the office and when the nasty gets next to my cubby neighbor I often wonder which are the true friends and who pretends, if you know where I am coming from.

On days when that one nasty is not around it is like working in a whole different world, everyone smiles. Sure Nasty smiles too but its FAKE! :)

Fiddle-Faddle Community Regular
I only have one real nasty where I am...but that one nasty can influence the mood in the office

Isn't it amazing how so many usually nice people can just flock around a leader-type--whether the leader-tyupe is nice or Nasty--and just FOLLOW?

Did you ever see the movie "Heathers?" (At least, I think that's what it was called--with Winona Ryder.)

Carriefaith Enthusiast
Sure Nasty smiles too but its FAKE!
:lol: lol... ah comic relief.
lovegrov Collaborator

I hope that somebody who srokie is still talking to has passed along how wrong her friend was about Kimberly-Clark. The friend needs to quit passing wrong info out and srokie can relax about using their toilet paper.

Srokie supposedly isn't reading our messages any more, but she returns to show us up with info about breathing in loose gluten. She claims that we all tell others that you have to eat gluten to get sick. That, of course, is not what WE were saying at all. If she had taken the time to read more posts, she'd know that most of us realize that if you get loose gluten into your breathing passages you can end up swallowing it and can get glutened. This is nothing new or revolutionary.

Everything that srokie's doctor and friend have told her that we've been able to check on has been wrong. We have yet to see proof that any of the rest of it's right.

I'm still hoping to hear from Kraft doubters who have called and grilled them about Planters and Crystal Light. I know some said they were going to inundate Kraft with calls to discover the truth, but I have yet to hear what happened. I haven't called because I have this apparently irrational trust of Kraft.

richard

blueeyedmanda Community Regular

I have not seen that movie, is it a comedy?

I am glad I made someone laugh today :) Work will be nice, Nasty is off the last two days of the week!! Those are the days I actually enjoy going to work, all in all I enjoy my job.

Rachel--24 Collaborator
I hope that somebody who srokie is still talking to has passed along how wrong her "doctor" was about Kimberly-Clark. The "doctor" needs to quit passing wrong info out and srokie can relax about using their toilet paper.

Richard it wasnt her doctor who passed her the info...it was her friend.

Her doctor told her to avoid Planters and Crystal Light.

Lisa Mentor

I personally would like this thread to be shut down. The header and the sub liner indicates that there is flour in toilet paper. That pretence has been disproved, sighting the prevalence in research presented in this thread. Therefore, it is a documented a non- issue regarding Celiac.

It is an unnecessary concern to the new ones that may inquire here, that they have to travel through over 4,000 views and I don't recall the posts, to get to the answers. That is not realistic, nor is it fair to know whether toilet paper is safe to use.

With over 4,000 views, it is obvious that every one wants to watch the controvery. Yeah, good entertainment.

I would like to request that this thead be closed as not to confuse those that will come behind us.

Lisa

psawyer Proficient

I agree--it is time to kill this thread which is full of misinformation and unproven allegations. It can not bring any benefit to anyone by being allowed to continue. At the risk of self-destruction, I am going to report my own post (this one) to draw the attention of Scott and the moderators to this thread. :ph34r:

Fiddle-Faddle Community Regular

Lisa and psawyer, I respectfully disagree with you. If you kill this post, you might as well tell everybody not to pass on any information they have heard until it is published in the Lancet, and that anecdotal evidence is not allowed here. So those who are diagnosed by dietary response would not be allowed, as that is anecdoatl evidence.

Perhaps the title of the thread might be reworded to be a question rather than a strong statement?

And perhaps the Srokie-bashers can just stop reading this thread if they don't like her?

blueeyedmanda Community Regular

We can talk about other stuff too, like we were after the toliet paper deal calmed down. We were having a lot of fun.

lovegrov Collaborator

I see no effort here to kill off anecdotal evidence or personal experience. I DO see an effort to ask people not to post something that is easily checkable until you've checked it yourself. Srokie was not offering anecdotal evidence; she was presenting erroneous information and claiming it was correct because somebody told her it was correct.

The KC and Kraft allegations were simple to check. They had nothing to do with anecdotal evidence.

richard

lovegrov Collaborator
Richard it wasnt her doctor who passed her the info...it was her friend.

Her doctor told her to avoid Planters and Crystal Light.

You're right. I edited it. Thanks.

richard

Michi8 Contributor

I think it might be time to lock this thread. It would be a waste to completely delete it, but to just lock it would keep others from posting more (mis)info in it, yet keep it accessible for reading/searching.

Michelle

jerseyangel Proficient

I'm going to go ahead and post this--I spoke to Faith at Kraft Foods this morning.

I asked about Planter's Nuts, and was told the following: The various products are made in several different facilities. It is their policy to clearly indicate on the labels whether the product contains any gluten grains. *This policy also goes for any gluten grains used in the manufacturing process*.

I also asked about Crystal Light, and was told that the same goes for this product as well as all Kraft products.

They will include a cross contamination warning on the label if applicable.

Fiddle-Faddle Community Regular
I'm going to go ahead and post this--I spoke to Faith at Kraft Foods this morning.

I asked about Planter's Nuts, and was told the following: The various products are made in several different facilities. It is their policy to clearly indicate on the labels whether the product contains any gluten grains. *This policy also goes for any gluten grains used in the manufacturing process*.

I also asked about Crystal Light, and was told that the same goes for this product as well as all Kraft products.

They will include a cross contamination warning on the label if applicable.

Thanks for clearing that up!

Sounds to me like Kraft's cross-contamination warnings are much more than CYA statements and should be taken very seriously.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,901
    • Most Online (within 30 mins)
      7,748

    tessycork47
    Newest Member
    tessycork47
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.