Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Kimberly-clark

srokie

Recommended Posts

Mango04 Enthusiast
Mango04
Posted

Is it possible to close this thread? I'm not a moderator or anything so I don't know....but it started ugly..then got pretty funny...and well, I don't think there's much more we can do with it really....

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 252
  • Created
  • Last Reply
DingoGirl Enthusiast
DingoGirl
Posted

good idea. of course, every time we post, it bumps it up. :ph34r: Should we ask Scott to shut it down?

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

To be honest, I AM interested in hearing what Srokie posts about Dr. Saviano and what she has to say.

Viola 1 Rookie
Viola 1
Posted

I'm just surprised that she showed up again. I thought that she said she wasn't coming back, but I must have misunderstood her post.

It would be nice if she mellowed out her presentation a bit. :huh: Some of it might even be interesting about how other people think and live their lives with Celiac.

Mtndog Collaborator
Mtndog
Posted
To be honest, I AM interested in hearing what Srokie posts about Dr. Saviano and what she has to say.

This is not directed at ANYONE (cross my heart) but one option is to ignore a thread if you don't want to get into anything.

blueeyedmanda Community Regular
blueeyedmanda
Posted

I enjoyed when we talked about "the nasties" just reminded me of my own nasties at work ;)

Viola 1 Rookie
Viola 1
Posted
I enjoyed when we talked about "the nasties" just reminded me of my own nasties at work ;)

:lol: Yes, these threads do tend to go off the beaten path and take on a life of their own. :lol:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted
I'm just surprised that she showed up again. I thought that she said she wasn't coming back, but I must have misunderstood her post.

It would be nice if she mellowed out her presentation a bit. :huh: Some of it might even be interesting about how other people think and live their lives with Celiac.

Sure it would be nice if she mellowed out a bit. But for all we know, maybe she is just not a mellow person to start with, and how she was treated here did not help.

Continuing to criticize her is still not helping.

You guys just can't keep baiting someone and then complain when that person explodes.

blueeyedmanda Community Regular
blueeyedmanda
Posted

Sometimes going off the beaten path is more fun anyways ;)

Carriefaith Enthusiast
Carriefaith
Posted
I enjoyed when we talked about "the nasties" just reminded me of my own nasties at work
Yeah that was funny, I am giggling... the nasties :lol: I am thankful to have no nasties at my work.
blueeyedmanda Community Regular
blueeyedmanda
Posted

I only have one real nasty where I am...but that one nasty can influence the mood in the office and when the nasty gets next to my cubby neighbor I often wonder which are the true friends and who pretends, if you know where I am coming from.

On days when that one nasty is not around it is like working in a whole different world, everyone smiles. Sure Nasty smiles too but its FAKE! :)

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted
I only have one real nasty where I am...but that one nasty can influence the mood in the office

Isn't it amazing how so many usually nice people can just flock around a leader-type--whether the leader-tyupe is nice or Nasty--and just FOLLOW?

Did you ever see the movie "Heathers?" (At least, I think that's what it was called--with Winona Ryder.)

Carriefaith Enthusiast
Carriefaith
Posted
Sure Nasty smiles too but its FAKE!
:lol: lol... ah comic relief.
lovegrov Collaborator
lovegrov
Posted

I hope that somebody who srokie is still talking to has passed along how wrong her friend was about Kimberly-Clark. The friend needs to quit passing wrong info out and srokie can relax about using their toilet paper.

Srokie supposedly isn't reading our messages any more, but she returns to show us up with info about breathing in loose gluten. She claims that we all tell others that you have to eat gluten to get sick. That, of course, is not what WE were saying at all. If she had taken the time to read more posts, she'd know that most of us realize that if you get loose gluten into your breathing passages you can end up swallowing it and can get glutened. This is nothing new or revolutionary.

Everything that srokie's doctor and friend have told her that we've been able to check on has been wrong. We have yet to see proof that any of the rest of it's right.

I'm still hoping to hear from Kraft doubters who have called and grilled them about Planters and Crystal Light. I know some said they were going to inundate Kraft with calls to discover the truth, but I have yet to hear what happened. I haven't called because I have this apparently irrational trust of Kraft.

richard

blueeyedmanda Community Regular
blueeyedmanda
Posted

I have not seen that movie, is it a comedy?

I am glad I made someone laugh today :) Work will be nice, Nasty is off the last two days of the week!! Those are the days I actually enjoy going to work, all in all I enjoy my job.

Rachel--24 Collaborator
Rachel--24
Posted
I hope that somebody who srokie is still talking to has passed along how wrong her "doctor" was about Kimberly-Clark. The "doctor" needs to quit passing wrong info out and srokie can relax about using their toilet paper.

Richard it wasnt her doctor who passed her the info...it was her friend.

Her doctor told her to avoid Planters and Crystal Light.

Lisa Mentor
Lisa
Posted

I personally would like this thread to be shut down. The header and the sub liner indicates that there is flour in toilet paper. That pretence has been disproved, sighting the prevalence in research presented in this thread. Therefore, it is a documented a non- issue regarding Celiac.

It is an unnecessary concern to the new ones that may inquire here, that they have to travel through over 4,000 views and I don't recall the posts, to get to the answers. That is not realistic, nor is it fair to know whether toilet paper is safe to use.

With over 4,000 views, it is obvious that every one wants to watch the controvery. Yeah, good entertainment.

I would like to request that this thead be closed as not to confuse those that will come behind us.

Lisa

psawyer Proficient
psawyer
Posted

I agree--it is time to kill this thread which is full of misinformation and unproven allegations. It can not bring any benefit to anyone by being allowed to continue. At the risk of self-destruction, I am going to report my own post (this one) to draw the attention of Scott and the moderators to this thread. :ph34r:

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Lisa and psawyer, I respectfully disagree with you. If you kill this post, you might as well tell everybody not to pass on any information they have heard until it is published in the Lancet, and that anecdotal evidence is not allowed here. So those who are diagnosed by dietary response would not be allowed, as that is anecdoatl evidence.

Perhaps the title of the thread might be reworded to be a question rather than a strong statement?

And perhaps the Srokie-bashers can just stop reading this thread if they don't like her?

blueeyedmanda Community Regular
blueeyedmanda
Posted

We can talk about other stuff too, like we were after the toliet paper deal calmed down. We were having a lot of fun.

lovegrov Collaborator
lovegrov
Posted

I see no effort here to kill off anecdotal evidence or personal experience. I DO see an effort to ask people not to post something that is easily checkable until you've checked it yourself. Srokie was not offering anecdotal evidence; she was presenting erroneous information and claiming it was correct because somebody told her it was correct.

The KC and Kraft allegations were simple to check. They had nothing to do with anecdotal evidence.

richard

lovegrov Collaborator
lovegrov
Posted
Richard it wasnt her doctor who passed her the info...it was her friend.

Her doctor told her to avoid Planters and Crystal Light.

You're right. I edited it. Thanks.

richard

Michi8 Contributor
Michi8
Posted

I think it might be time to lock this thread. It would be a waste to completely delete it, but to just lock it would keep others from posting more (mis)info in it, yet keep it accessible for reading/searching.

Michelle

jerseyangel Proficient
jerseyangel
Posted

I'm going to go ahead and post this--I spoke to Faith at Kraft Foods this morning.

I asked about Planter's Nuts, and was told the following: The various products are made in several different facilities. It is their policy to clearly indicate on the labels whether the product contains any gluten grains. *This policy also goes for any gluten grains used in the manufacturing process*.

I also asked about Crystal Light, and was told that the same goes for this product as well as all Kraft products.

They will include a cross contamination warning on the label if applicable.

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted
I'm going to go ahead and post this--I spoke to Faith at Kraft Foods this morning.

I asked about Planter's Nuts, and was told the following: The various products are made in several different facilities. It is their policy to clearly indicate on the labels whether the product contains any gluten grains. *This policy also goes for any gluten grains used in the manufacturing process*.

I also asked about Crystal Light, and was told that the same goes for this product as well as all Kraft products.

They will include a cross contamination warning on the label if applicable.

Thanks for clearing that up!

Sounds to me like Kraft's cross-contamination warnings are much more than CYA statements and should be taken very seriously.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      results from 13 day gluten challenge - does this mean I can't have celiac?

      highly unlikely NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean...
    2. cristiana
      - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      21

      Insomnia help

      Thank you for your post, @nanny marley It is interesting what you say about 'It's OK not to sleep'. Worrying about sleeping only makes it much harder to sleep. One of my relatives is an insomniac and I am sure that is part of the problem. Whereas I once had a neighbour who, if she couldn't sleep, would simply get up again, make a cup of tea, read,...
    3. SilkieFairy
      - SilkieFairy replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      results from 13 day gluten challenge - does this mean I can't have celiac?

      It could be a fructan intolerance? How do you do with dates? https://www.dietvsdisease.org/sorry-your-gluten-sensitivity-is-actually-a-fructan-intolerance/
    4. Lkg5
      - Lkg5 replied to Matthias's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Unexpected gluten exposure risk from cultivated mushrooms

      Thank’s for addressing the issue of mushrooms. I was under the impression that only wild mushrooms were gluten-free. Have been avoiding cultivated mushrooms for years. Also, the issue of smoked food was informative. In France last year, where there is hardly any prepared take-out food that is gluten-free, I tried smoked chicken. Major mistake!
    5. catnapt
      - catnapt posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      results from 13 day gluten challenge - does this mean I can't have celiac?

      my IGG is 815 IGA 203 but tTG-Iga is <0.4!!!!!!!!!!!!! oh my god- 13 days of agony and the test is negative? I don't even know what to do next. There zero doubt in my mind that I have an issue with wheat and probably more so with gluten as symptoms are dramatically worse the more gluten a product has I am...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,353
    • Most Online (within 30 mins)
      7,748
    ace14219
    Newest Member
    ace14219
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
    • cristiana
      Insomnia help

      By cristiana · Posted

      Thank you for your post, @nanny marley It is interesting what you say about 'It's OK not to sleep'. Worrying about sleeping only makes it much harder to sleep.  One of my relatives is an insomniac and I am sure that is part of the problem.  Whereas I once had a neighbour who, if she couldn't sleep, would simply get up again, make a cup of tea, read, do a sudoku or some other small task, and then go back to bed when she felt sleepy again.  I can't think it did her any harm - she lived  well into her nineties. Last week I decided to try a Floradix Magnesium supplement which seems to be helping me to sleep better.  It is a liquid magnesium supplement, so easy to take.  It is gluten free (unlike the Floradix iron supplement).  Might be worth a try.        
    • SilkieFairy
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By SilkieFairy · Posted

      It could be a fructan intolerance? How do you do with dates?  https://www.dietvsdisease.org/sorry-your-gluten-sensitivity-is-actually-a-fructan-intolerance/
    • Lkg5
      Unexpected gluten exposure risk from cultivated mushrooms

      By Lkg5 · Posted

      Thank’s for addressing the issue of mushrooms.  I was under the impression that only wild mushrooms were gluten-free.  Have been avoiding cultivated mushrooms for years. Also, the issue of smoked food was informative.  In France last year, where there is hardly any prepared take-out food that is gluten-free, I tried smoked chicken.  Major mistake!
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      my IGG is 815 IGA 203  but tTG-Iga is   <0.4!!!!!!!!!!!!!   oh my god- 13 days of agony and the test is negative?  I don't even know what to do next. There zero doubt in my mind that I have an issue with wheat and probably more so with gluten as symptoms are dramatically worse the more gluten a product has   I am going to write up the history of my issues for the past few years and start a food/symptom diary to bring with me to the GI doctor in March.   I googled like crazy to try to find out what other things might cause these symptoms and the only thing that truly fits besides celiac is NCGS   but I guess there are some other things I maybe should be tested for ...? like SIBO?   I will continue to eliminate any foods that cause me distress (as I have been doing for the past couple of years) and try to keep a record. Can anyone recommend an app or some form or something that would simplify this? I have a very full and busy life and taking the time to write out each symptom name in full would be tedious and time consuming- some sort of page with columns to check off would be ideal. I am not at all tech savvy so that's not something I can make myself ... I'm hoping there's some thing out there that I can just download and print out   do I give up on testing for celiac with such a low number? I am 70 yrs old I have been almost completely off gluten for the most part for about 2 yrs. I had a meal of vital wheat gluten vegan roast,  rolls and stuffing made from home baked bread and an apple pie- and had the worst pain and gas and bloating and odd rumblings in my gut etc - almost went to the ER it was so bad. I was thinking, since I'm spilling a lot of calcium in my urine, that perhaps this was a kidney stone (never had one before but there's always that first time, right?)    Saw my endo on Jan 20th and after hearing the story about the symptoms from eating that holiday meal, she suggested doing a gluten challenge. She said 2 weeks was fine- she said stopping it in the middle if symptoms got bad was fine- In the meantime I'd read that 2 weeks was not enough- called and argued with the nurse about this, but ultimately decided to stop the gluten on the 13th day and get the test done because I was in too much pain and almost suicidal and knew I could not continue.   so.............. that's where I am now I have had no bread since Sunday. I did have some rolled oats today and had some gas and bloating afterwards I did have some wheat germ in a smoothie on Tuesday and had a stomach ache later that night.   but overall I feel so much better! all the joint pain is gone! the nausea is gone. The stomach pain and gas and bloating are going away. Still a bit gassy but no more of that horrible odor. wow, that would clear a room if I was out in public!  I see a GI nurse March 4th  I hope she'll be able to help sort this out! can you think of what my next steps might be?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.