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Update On Mom Accused Of Msbp

concerned-mom061

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concerned-mom061 Rookie
concerned-mom061
Posted

Hello...I haven't had a alot of time to get on here as of late..so I wanted to check in and give an update. Just to make sure everyone remembers....I am the mother from Georgia who was accused of MSBP by a doctor. My little girl was taken from me for 30 days, but I won in the end. First, I wanted to thank you all again for all the wonderful and kind things you all did to help. I still give you guys credit for helping me win.

My little girl is 16 1/2 months old now. She has finally up to 22 pounds and 29 inches. She has been officially diagnosed with Primary Immune Deficiency and Hypogammagloblenemia. She has been started on Vivaglobin treatments...where a nurse comes once a week and hooks her to a little pump and injects plasma that contains the antibodies she needs. The immunologist can not believe that the accusing doctor just left that bit of information out...for the tests on her were done by that doctor before they took her from me. The immunologist done furter testing to confirm the diagnosis. She was also found to be highly allergic to milk, wheat, eggs, peanuts, soy, and fish. Her pediatrician along w/her immune doctor have unofficially diagnosed her with Celiac disease...for she does not eat enough foods to be able to give the official diagnosis...and they usually wait until the infant is at least 2 years of age. However, they have put her on the Celiac diet along with cutting out all the other things she is allergic to.

They also recently found a test that was also performed by the accusing doctor that showed that Kylie was lacking an enzyme that breaks down sugars and fats...which explains why that doctor changed her to a formula for babies who can't digest fat.

All this information was gathered from tests that were performed before they took Kylie..and then confirmed by another doctor.

Everything they found explains exactly why my little girl was so sick all the time, and explains why she can't digest foods or does not grow well.

She is still on 24 calorie formula as her main source of nutrition along w/certain stage one and two baby foods as tolerated. She cannot have solid foods, or any kind of food that we eat. She also still has her feeding tube which we have had to use on several occasions due to her chronic infections in which she either will not eat or cannot eat enough...but she primarily eats without it now.

She still has many battles with diarhea, constipation, colds, chest infections, maintaining weight, vomiting, extreme gas, persistent rashes, mouth infections, and her button getting infected. The rash on her bottom has never left....it has been over 8 months now. They put tubes in both of her ears 2 months ago due to persistent ear infections that required antibiotic shots to get rid of them.

But, all in all, she is doing so much better than before..and we have a lot of hope as to what the future holds.

Family and Children services will officially be out of my life in less than a month. They have had very little involvement and have done everything but say that they know they were wrong. Theyhave only checked in on her by calling or asking me to stop by maybe 4 or 5 times since September.

So, I hope this can maybe help someone else that has a child that has went through what my little one has. It took us over a year.....but we finally know what is wrong w/her....and we are making progress. Thank you all again!

_________________

God Bless You All!

Bree

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Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Bree, I am so glad things are finally going better! I know you don't have time or energy to waste on lawsuits, but I hope the state brings some kind of action on your behalf against that accusing doctor.

Someone like that should not be allowed to be near people ever again! :ph34r:

concerned-mom061 Rookie
concerned-mom061
Posted
  • Author
Bree, I am so glad things are finally going better! I know you don't have time or energy to waste on lawsuits, but I hope the state brings some kind of action on your behalf against that accusing doctor.

Someone like that should not be allowed to be near people ever again! :ph34r:

I agree...and that is what everyone has been telling me. I do want to place a suit against her mainly so that she can never do what she did to us to anyone else. I often fear what might happen to the next child she takes away.

However, right now I do not have the time that is needed to go forward with the lawsuit. I have to get everything w/Kylie to a point where I am not busy every day of the week w/appointments and such. Also, her doctors are still sorting through all of her records.....for the hospital would not allow us to have them until after the case was over. But, when we do move forward, we will be ready.

Thanks again!

Judyin Philly Enthusiast
Judyin Philly
Posted

Congratulations Bree.

I'm so happy for you and your famiily.

I think you were in contact with Cindy weren't you when this was all going on.

Last i heard from Cindy was that she had to leave the home and Gregg had the children.

Have you heard how she is doing or do you keep in touch with her?

I read a article in a paper she referenced about a attourny whoes child was taken and she won the case and won a judgement against the DCS I think it was in CO or Utah..not sure..

anyway congrats..and so happy for your little girl.

judy

AndreaB Contributor
AndreaB
Posted

Bree,

I was just thinking about emailing you this last week. Just hadn't gotten it done yet.

I'm so glad she's doing better and you've got some answers. Despite all the appointments I'm sure that is a relief.

Andrea

concerned-mom061 Rookie
concerned-mom061
Posted
  • Author
Bree,

I was just thinking about emailing you this last week. Just hadn't gotten it done yet.

I'm so glad she's doing better and you've got some answers. Despite all the appointments I'm sure that is a relief.

Andrea

I haven't heard from Cindy....I sure hope all is well w/her.

It is a big relief. We have really enjoyed jsut being at home w/her. It's still really hard to know what she can and cannot have. We have been limited to so little. It's hard to know what is safe and what is not. But, we are making real improvement with it all.

zachsmom Enthusiast
zachsmom
Posted

no way.. i cant believe doctors .. i am glad you got your child back......... sue.... sue till the message is sent to do every medical test first before you assume its neglegence .... sue.....

we sadly here have seen all doctors .. some good some awful.... i am glad for you.

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Nancym Enthusiast
Nancym
Posted

Can you sue that doctor? He sure deserves it!

I'm so sorry your daughter has that genetic condition. I think I recall hearing that they can give bone marrow transplants or stem cells or something to treat it, have you heard about that?

blueeyedmanda Community Regular
blueeyedmanda
Posted

I am very glad to hear you got your baby back. It is horrible how fast they take your children without asking any questions.

mommida Enthusiast
mommida
Posted

I am so glad you have your baby back. I know whatever conditions she has been diagnosed with or will be diagnosed with, she will flourish because she is with you.

Stick around so we can help you with the gluten free part of her diet.

((HUGS))

Laura

concerned-mom061 Rookie
concerned-mom061
Posted
  • Author
I am so glad you have your baby back. I know whatever conditions she has been diagnosed with or will be diagnosed with, she will flourish because she is with you.

Stick around so we can help you with the gluten free part of her diet.

((HUGS))

Laura

Well, thanks to you all. We are all so happy to have her back. It took her a while to get back to her old self....but once she did she came back with flying colors.

And, yes, I have been told about the bone marrow transplant, but they have really cut back on that for many patients have contracted a form of leukemia. But, thanks for letting me know.

As far as the diet goes, if anyone has any suggestions..I would be grateful. She can not swallow solid foods very well, and she does not digest them....so she really is limited. And, she is a texture baby......so she is really picky! However, I know she has to be tired of the same old things.

Thank you all again!

Bree

happygirl Collaborator
happygirl
Posted

Bree:

I don't have any good ideas or advice to help out, but I wanted to extend my congratulations to you! What a relief. And although I'm sad that she "has" these medical problems, at least they are identified and documented .... which gives you the chance to move on and raise your sweet girl.

My best,

Laura

kbtoyssni Contributor
kbtoyssni
Posted

Congratulations - I'm so happy for you. You must be so relived to have your daughter back.

hannahsue01 Enthusiast
hannahsue01
Posted

I'm so glad you got your little girl back. It had to be very hard having her taken away. It's terrible that the doctor knew what was wrong but still went ahead and did what he did. I luckly have never had either of my girls taken away. We were blamed for not feeding our oldest daughter who was 4 last year. She has always been well underwieght and started loosing wieght even though she had a very harty appatite and is not picky at all. But then we had our youngest girl three months early and the oldest daughter spent the next three months in the care of family and friends yet she continued to loose wieght. We now know that she was celiac and is finaly gaining wieght and now wieghs 33 lbs at age 5. Our youngest is 14 months and wieghs only 15lbs. They have her eating 30 cal formula and is on a pump for almost all of her food through her button. I am glad your little one is getting the proper treatment and that you got her back. Thank you for posting this as it might help somebody else out in a similar situation.

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