Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What's That Lab That Does Fecal Testing?


vampella

Recommended Posts

vampella Contributor

I want to get Emmah tested through them, I know they ship to canada I talked to them once but I can't remember who they are.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



vampella Contributor

I found the name, but are they for real? am I waisting my money?

happygirl Collaborator

Enterolab is who you are talking about, I believe.

www.enterolab.com

happygirl Collaborator

You will find three camps of people on here:

those who love it, because it has given them a diagnosis, and for many, has improved their life dramatically

those in the middle, who aren't quite sure what to think, and acknowledge that it might be correct, but seem skeptical for various reasons (his studies and methods are not published)

those who think its worthless (most of the medical profession feels this way)

I know---that doesn't help very much, but that is what it boils down to, in my opinion.

Nancym Enthusiast

Well said, Happy!

I'm in Category #1.

tarnalberry Community Regular

ditto what happy said - and I'm in camp 2. I'd add that while some doctors will accept the results, most won't - but it doesn't really matter because you don't need a doctor's prescription to go gluten free!

celiacgirls Apprentice

I'm in Camp #1.

One of my daughters had GI symptoms and tested positive with Enterolab and negative with the regular blood tests.

My other daughter and I didn't have GI symptoms but tested positive with Enterolab and feel much happier gluten free.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



stef-the-kicking-cuty Enthusiast

I didn't get tested myself with EnteroLab, but I will get my baby tested with them for sure. I mostly heard good stuff and the doctors around here suck. So there are not many other options.

Hugs, Stef

hathor Contributor

Part of the problem is how many doctors define the problem. If they believe that the only problem that can exist is celiac disease and it is defined as damage to the small intestine, any testing prior to that point establishes nothing. The fecal testing, in theory, can catch a reaction prior to observable damage.

How Dr. Fine of Enterolab describes the situation:

Open Original Shared Link

A description by someone else:

Open Original Shared Link

I tried researching this subject and this was what I found. There was some discussion a few years ago where people thought Dr. Fine was about to publish but then he didn't. Perhaps he feels no need to or he is enjoying his monopoly :rolleyes:

I've decided to do the testing. Indeed, I have the lovely little package in my freezer waiting to be shipped tomorrow.

I figure that if I feel better going gluten-free and something does indeed show up in the testing, then I'm not fooling myself. I don't need an official diagnosis to avoid foods I find troublesome.

Enterolab also does testing for milk, egg, soy, and yeast sensitivities and the presence of genes associated with celiac disease.

Rachel--24 Collaborator

Hi,

I was tested through Enterolab about 17 months ago.

I used to be in Camp #1.....GO ENTEROLAB!! :D

I've since switched to Camp # 2.....for all of the reasons previously mentioned.

I'm just not so sure anymore and have been waiting for him to publish...and still waiting. <_<

e&j0304 Enthusiast

Since you already have your ped. on your side I would NOT waste money on Enterolab. You have positive dietary response and since you already tried the blood tests that's all you can do. I tested both of my kids through Enterolab and wish that I wouldn't have. My daughter's came back positive and my son's came back negative. They BOTH have issues with gluten and I honestly think that my son's symptoms are more severe than my daughter's. He has total blowouts of watery diarrhea while eating gluten and it clears up on the diet. He also suffers terribly from reflux.

I am not trying to tell you what to do, but I REALLY think it's a waste of money. Unless he publishes anytime soon you will keep questioning if he's really valid, if you're anything like me anyway! I'm all for trying to get a proper medical diagnosis, but if you can't get one then just do the diet. I have yet to really find any drs. who fully believe in Enterolab....

Good luck with whatever you decide.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

    2. - tiffanygosci posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Aldi Pueblo Lindo Yellow Corn Tortillas

    3. - tiffanygosci replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

    4. - trents replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

    5. - Mari replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,979
    • Most Online (within 30 mins)
      7,748

    Susan Upchurch
    Newest Member
    Susan Upchurch
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Mari
      There is much helpful 'truth' posted on this forum. Truths about Celiac Disease are based on scientific research and people's experience. Celiac disease is inherited. There are 2 main Celiac 'genes' but they are variations of one gene called HLa - DQ What is inherited when a person inherits one or both of the DQ2 or the DQ8 is a predisposition to develop celiac disease after exposure to a environmental trigger. These 2 versions of the DQ gene are useful in diagnosing  celiac disease but there are about 25 other genes that are known to influence celiac disease so this food intolerance is a multigenic autoimmune disease. So with so many genes involved and each person inheriting a different array of these other genes one person's symptoms may be different than another's symptoms.  so many of these other genes.  I don't think that much research on these other genes as yet. So first I wrote something that seem to tie together celiac disease and migraines.  Then you posted that you had migraines and since you went gluten free they only come back when you are glutened. Then Scott showed an article that reported no connection between migraines and celiac disease, Then Trents wrote that it was possible that celiacs had more migraines  and some believed there was a causal effect. You are each telling the truth as you know it or experienced it.   
    • tiffanygosci
      Another annoying thing about trying to figure this Celiac life out is reading all of the labels and considering every choice. I shop at Aldi every week and have been for years. I was just officially diagnosed Celiac a couple weeks ago this October after my endoscopy. I've been encouraged by my local Aldi in that they have a lot of gluten free products and clearly labeled foods. I usually buy Milagro corn tortillas because they are cheap and are certified. However, I bought a package of Aldi's Pueblo Lindo Yellow Corn Tortillas without looking too closely (I was assuming they were fine... assuming never gets us anywhere good lol) it doesn't list any wheat products and doesn't say it was processed in a facility with wheat. It has a label that it's lactose free (hello, what?? When has dairy ever been in a tortilla?) Just, ugh. If they can add that label then why can't they just say something is gluten free or not? I did eat some of the tortillas and didn't notice any symptoms but I'm just not sure if it's safe. So I'll probably have to let my family eat them and stick with Milagro. There is way too much uncertainty with this but I guess you just have to stick with the clearly labeled products? I am still learning!
    • tiffanygosci
      Thank you all for sharing your experiences! And I am very thankful for that Thanksgiving article, Scott! I will look into it more as I plan my little dinner to bring with on the Holiday I'm also glad a lot of research has been done for Celiac. There's still a lot to learn and discover. And everyone has different symptoms. For me, I get a bad headache right away after eating gluten. Reoccurring migraines and visual disturbances were actually what got my PCP to order a Celiac Panel. I'm glad he did! I feel like when the inflammation hits my body it targets my head, gut, and lower back. I'm still figuring things out but that's what I've noticed after eating gluten! I have been eating gluten-free for almost two months now and haven't had such severe symptoms. I ate a couple accidents along the way but I'm doing a lot better
    • trents
      @Mari, did you read that second article that Scott linked? It is the most recently date one. "Researchers comparing rates of headaches, including migraines, among celiac patients and a healthy control group showed that celiac subjects experienced higher rates of headaches than control subjects, with the greatest rates of migraines found in celiac women.  Additionally, celiacs had higher rates of migraine than control subjects, especially in women. In fact, four out of five women with celiac disease suffered from migraines, and without aura nearly three-quarters of the time."
    • Mari
      As far as I know and I have made severalonline searches, celiac disease disease has not been recognized as a cause of migraines or any eye problems. What I wrote must have been confusing.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.