Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Losing My Doctor


Rusla

Recommended Posts

Rusla Enthusiast

Finally, I find a decent doctor who knows about Celiac disease. Everything is going swimmingly and I go see him last Thursday at his office and he doesn't say he is leaving. There are six other doctors in the clinic and he was the most popular. He did work a great deal out of the hospital but no office there.

Well I find out this week that he is no longer at the clinic and the other doctors will refuse to take his patients.

I am so lost and have no idea where I will find a doctor who doesn't pull the "oh you can't be celiac" or hasn't a clue to what I am talking about routine. I am so very sad and the list of doctors that are taking patients, forget it they have been on the taking patients list for years meaning they are probably lousy ones.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

Rusla, I am sorry your lost your doctor. I know it will be tough finding another one who actually understands. Don't give up, and I hope you'll find another great doctor soon.

Carriefaith Enthusiast

I am really sorry :( So you do have that list of doctor's taking patients in Calgary? I went to see one of the doctors still on the list and I really liked him. I've went in a few times now and I'm considering him my new doctor. I'm going to PM you.

lorka150 Collaborator

I'm sorry you are losing your doctor and I hope that Carriefaith's info can help you.

For what it's worth, I don't have a doctor - instead, I just go to my internist. It helps a lot, we have regular appt's, and so on. Maybe you can just work with your GI or if you have an internist, also?

LyndaCanada Rookie

Wow, that's awful! I'm so sorry. Do you think maybe if you contacted your local Celiac Association chapter they might have a list of good doctors? Where did your doctor go, is he still praticing in Calgary or what?

Is this your GP that you mean or your GI doctor?

To be honest, my GP was completely useless in helping me with my diagnosis, she was the one that told me "I couldn't possibly have Celiac Disease" because of my negative blood test after TWO positive biopsies. I depend soley on my GI doctor now.

Do you have a good GI doctor you go to in Calgary? You should try to get into the GI clinic in Edmonton, it's really awesome. They have a whole office building next to the U of A hospital.

There are at least 6-8 doctors that practice out of there.

Good luck!!

Lynda

jennyj Collaborator

I can sympathize with you my doctor left at Thanksgiving, right after I was really sick. I have another doctor that I haven't been to yet but he was my mother's doctor nad he is currently my husbands doc. He is a great man but I don't know what he knows about celiac. I have to see him next Thursday for an earache I can't seem to shake so I guess I'll see whats going to happen with the rest of my problems. Good luck.

kbtoyssni Contributor

Sorry and good luck finding a new doctor. I try to look for someone younger. They may not know a lot about celiac, but they tend to be more willing to learn and try non-traditional things. They would probably still be on the "accepting patients" list just because they're new. I'm not sure if the reason doctors don't believe you is because you don't have an official biopsy, but if I were going to a new doc and they started to doubt me, I'd probably lie and said I had a positive biopsy and blood test. Not that I recommend lying to your doctor... I just get so frustrated with things sometimes it's easier.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Creative-Soul Newbie

So sorry to hear that...I wonder why he didn't say that he was leaving? I hope you find an understanding doctor soon!

  • 4 weeks later...
floridanative Community Regular

That totally sucks Rusla. I'm so sorry to hear this news....why didn't the guy at least say he was leaving? How odd - maybe he was fired. I'll be thinking good thoughts that you find an even better doctor but I know how frustrating the search can be. Good luck and keep up posted on your progress.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,749
    • Most Online (within 30 mins)
      7,748

    tatish201
    Newest Member
    tatish201
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @Healthforme, No prescription needed for thiamine hydrochloride, Benfotiamine, and TTFD (Tetrahydrofurfuryl Disulfide).  They are available over the counter.   Thiamine Mononitrate is not recommended because the body doesn't absorb or utilize it well.  
    • knitty kitty
      @Zuma888,  I'm so happy you're feeling better!   Thanks for letting us know of your improvement!
    • RMJ
      HLA-DQ2 is NOT a continuum 2.01 to 2.99, but I don’t understand HLA genetics well enough to explain it further.  It is not just one gene that is either this or that.
    • trents
      Okay, I'm taking a guess here. We are used to hearing in layman terms that having either the HLA-DQ2 or the HLA-DQ8 gene, either heterozygous or homozygous, presents the possibility of developing active celiac disease. So, I'm guessing that the HLA-DQ2 gene is actually a range of variants (2.01-2.99) with HLA-DQ 2.5 being in the centerpiece of the range. I'm also guessing that "permissive" is equivalent to "possessing the possibility" to develop active celiac disease and does not address the issue of hetero vs. homozygus per se. But the fact that 2.01,2.01 is a couplet may indicated homozygousity? All wild guesses.
    • Kirita
      I received the results that my child has the genes for celiac disease (she is still undergoing testing and it has been complicated). Can someone explain if this is homozygous HLA DQ 2.5 or not? The interpretation just says permissive for celiac disease. Thank you! DQ Alpha 1  05:01, 5 DQ Beta 1 02:01, 02:01 DQ serologic equivalent 2,2     
×
×
  • Create New...