Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Lets Talk Tests.

vampella

Recommended Posts

vampella Contributor
vampella
Posted

Talk to me about the IGA test. I reguested this from our doctor on Emmah but not until after she was gluten-free. Does this test also have to be done when eatting gluten?

Sorry for the the questions

TIA

Char

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


vampella Contributor
vampella
Posted
  • Author

If that's a really stupid question just tell me. I can take it LOL

Lisa Mentor
Lisa
Posted

Char:

The blood test are not one of my most informed areas...

But, I guess that would depend on how long Emma has been gluten free. My blood tests were negative after I was gluten free for two months. I did have a positive biopsy when i was dx'd.

If Emma is improving on the diet, you may want to consider not testing (mine cost $1,500) it is quite costly. The bottom line here is that if she is improving and continuing to thrive, your questions have been answered. But that is ALWAYS a parental choice.

Her picture is very sweet.

chrissy Collaborator
chrissy
Posted

what IgA test did you request? total Iga serum, Ttg Iga, AGA IGA?

vampella Contributor
vampella
Posted
  • Author

Chrissy, I'm not sure. I just told the Dr I want her IGA levels done because I heard something about and IGA diffeciency causing negs on the TTG.

Juliet Newbie
Juliet
Posted

I just posted this link on another topic - Open Original Shared Link . It explains pretty thoroughly what the different tests are, how they interact with each other, and how accurate they are. It also talks about how much gluten and for how long you should be eating it before taking the tests. After reading it, you may or may not want to have the tests done.

I know lots of people on this board were using Enterolab which supposedly doesn't need you to be as recently challenged with gluten and also doesn't require blood. You can read up more about them, too, at their website www.enterolab.com. I was thinking of going through them to get the gene test done on my daughter.

rez Apprentice
rez
Posted

If anything would be positive, I think it would be the tTG or the EMA. According to DR. Peter Green's book, these two are the last two to go negative. My son's tTG was still positive after being gluten free for 3 months. Our doctor, Dr. Guandalini at The University of Chicago Celiac Center, said that the tTG's half themselves every two months. So if you start at 50, at 2 months out it's 25, at 4months around 12....and so on. Do check for an IGA deficiency you need to run a total IGA, I think. I would highly recommend Dr. Green's Book. It's all based on actual proven data. You have to be careful on some of those websites. Anyone can start a blog and it's nice to make sure you're dealing with a medical professional. Not to say there isn't a lot of great info out there, but some of it is just opinion, again which is good too. Good luck!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


happygirl Collaborator
happygirl
Posted

If you are talking about being IgA deficient, the correct test is the total serum IgA. This is not affected by gluten, whereas the other IgA's are.

(I am IgA deficient)

If you are having the other tests done, there are two outcomes:

if she is positive, she definitely has it.

if she is negative, it doesn't mean she doesn't have it, given that she is gluten free.

(Rez, have to agree with you whole heartedly about Dr. Green's book!!!!!!!)

vampella Contributor
vampella
Posted
  • Author

What the name of DR. Peter Green's book, I will call chapters tomorrow and order it.

happygirl Collaborator
happygirl
Posted

See my signature for the book title.

rez Apprentice
rez
Posted

It's called Celiac Disease: A Hidden Epidemic, By Dr. Peter Green. It's hands down the BEST book on the market. It's all fact and very informative. I have read several and thought many were excellent, but as far as accurate, medical information, this is it! I love some of the others for an empathetic feel good read, but when I need the facts, this is where I dig! :)

vampella Contributor
vampella
Posted
  • Author

Thanks Rez & Happy, I ordered the book today and it's already been shipped.

rez Apprentice
rez
Posted

Good for you, let me know what you think! Have a great night!

happygirl Collaborator
happygirl
Posted

Hope you enjoy!

*just a note, this book deals almost exclusively with Celiac, not non-Celiac gluten intolerance. However, many of the chapters would still be applicable (eating gluten-free, dealing with the gluten-free lifestyle, etc).

KristenQld Newbie
KristenQld
Posted

Ladies, does this book provide information on Dermatitus Herpetiformus? If so, I will endeavour to track it down as I'm in Australia.

rez Apprentice
rez
Posted

Yes. There is a whole chapter on DH.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Mari
      - Mari replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

      There is much helpful 'truth' posted on this forum. Truths about Celiac Disease are based on scientific research and people's experience. Celiac disease is inherited. There are 2 main Celiac 'genes' but they are variations of one gene called HLa - DQ What is inherited when a person inherits one or both of the DQ2 or the DQ8 is a predisposition to develop...
    2. tiffanygosci
      - tiffanygosci posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Aldi Pueblo Lindo Yellow Corn Tortillas

      Another annoying thing about trying to figure this Celiac life out is reading all of the labels and considering every choice. I shop at Aldi every week and have been for years. I was just officially diagnosed Celiac a couple weeks ago this October after my endoscopy. I've been encouraged by my local Aldi in that they have a lot of gluten free products...
    3. tiffanygosci
      - tiffanygosci replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

      Thank you all for sharing your experiences! And I am very thankful for that Thanksgiving article, Scott! I will look into it more as I plan my little dinner to bring with on the Holiday I'm also glad a lot of research has been done for Celiac. There's still a lot to learn and discover. And everyone has different symptoms. For me, I get a bad headache...
    4. trents
      - trents replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

      @Mari, did you read that second article that Scott linked? It is the most recently date one. "Researchers comparing rates of headaches, including migraines, among celiac patients and a healthy control group showed that celiac subjects experienced higher rates of headaches than control subjects, with the greatest rates of migraines found in celiac women...
    5. Mari
      - Mari replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

      As far as I know and I have made severalonline searches, celiac disease disease has not been recognized as a cause of migraines or any eye problems. What I wrote must have been confusing.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,979
    • Most Online (within 30 mins)
      7,748
    Susan Upchurch
    Newest Member
    Susan Upchurch
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      There is much helpful 'truth' posted on this forum. Truths about Celiac Disease are based on scientific research and people's experience. Celiac disease is inherited. There are 2 main Celiac 'genes' but they are variations of one gene called HLa - DQ What is inherited when a person inherits one or both of the DQ2 or the DQ8 is a predisposition to develop celiac disease after exposure to a environmental trigger. These 2 versions of the DQ gene are useful in diagnosing  celiac disease but there are about 25 other genes that are known to influence celiac disease so this food intolerance is a multigenic autoimmune disease. So with so many genes involved and each person inheriting a different array of these other genes one person's symptoms may be different than another's symptoms.  so many of these other genes.  I don't think that much research on these other genes as yet. So first I wrote something that seem to tie together celiac disease and migraines.  Then you posted that you had migraines and since you went gluten free they only come back when you are glutened. Then Scott showed an article that reported no connection between migraines and celiac disease, Then Trents wrote that it was possible that celiacs had more migraines  and some believed there was a causal effect. You are each telling the truth as you know it or experienced it.   
    • tiffanygosci
      Aldi Pueblo Lindo Yellow Corn Tortillas

      By tiffanygosci · Posted

      Another annoying thing about trying to figure this Celiac life out is reading all of the labels and considering every choice. I shop at Aldi every week and have been for years. I was just officially diagnosed Celiac a couple weeks ago this October after my endoscopy. I've been encouraged by my local Aldi in that they have a lot of gluten free products and clearly labeled foods. I usually buy Milagro corn tortillas because they are cheap and are certified. However, I bought a package of Aldi's Pueblo Lindo Yellow Corn Tortillas without looking too closely (I was assuming they were fine... assuming never gets us anywhere good lol) it doesn't list any wheat products and doesn't say it was processed in a facility with wheat. It has a label that it's lactose free (hello, what?? When has dairy ever been in a tortilla?) Just, ugh. If they can add that label then why can't they just say something is gluten free or not? I did eat some of the tortillas and didn't notice any symptoms but I'm just not sure if it's safe. So I'll probably have to let my family eat them and stick with Milagro. There is way too much uncertainty with this but I guess you just have to stick with the clearly labeled products? I am still learning!
    • tiffanygosci
      New Celiac Mama in My 30s

      By tiffanygosci · Posted

      Thank you all for sharing your experiences! And I am very thankful for that Thanksgiving article, Scott! I will look into it more as I plan my little dinner to bring with on the Holiday I'm also glad a lot of research has been done for Celiac. There's still a lot to learn and discover. And everyone has different symptoms. For me, I get a bad headache right away after eating gluten. Reoccurring migraines and visual disturbances were actually what got my PCP to order a Celiac Panel. I'm glad he did! I feel like when the inflammation hits my body it targets my head, gut, and lower back. I'm still figuring things out but that's what I've noticed after eating gluten! I have been eating gluten-free for almost two months now and haven't had such severe symptoms. I ate a couple accidents along the way but I'm doing a lot better
    • trents
      New Celiac Mama in My 30s

      By trents · Posted

      @Mari, did you read that second article that Scott linked? It is the most recently date one. "Researchers comparing rates of headaches, including migraines, among celiac patients and a healthy control group showed that celiac subjects experienced higher rates of headaches than control subjects, with the greatest rates of migraines found in celiac women.  Additionally, celiacs had higher rates of migraine than control subjects, especially in women. In fact, four out of five women with celiac disease suffered from migraines, and without aura nearly three-quarters of the time."
    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      As far as I know and I have made severalonline searches, celiac disease disease has not been recognized as a cause of migraines or any eye problems. What I wrote must have been confusing.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.