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Lets Talk Tests.

vampella

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vampella Contributor
vampella
Posted

Talk to me about the IGA test. I reguested this from our doctor on Emmah but not until after she was gluten-free. Does this test also have to be done when eatting gluten?

Sorry for the the questions

TIA

Char

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vampella Contributor
vampella
Posted
  • Author

If that's a really stupid question just tell me. I can take it LOL

Lisa Mentor
Lisa
Posted

Char:

The blood test are not one of my most informed areas...

But, I guess that would depend on how long Emma has been gluten free. My blood tests were negative after I was gluten free for two months. I did have a positive biopsy when i was dx'd.

If Emma is improving on the diet, you may want to consider not testing (mine cost $1,500) it is quite costly. The bottom line here is that if she is improving and continuing to thrive, your questions have been answered. But that is ALWAYS a parental choice.

Her picture is very sweet.

chrissy Collaborator
chrissy
Posted

what IgA test did you request? total Iga serum, Ttg Iga, AGA IGA?

vampella Contributor
vampella
Posted
  • Author

Chrissy, I'm not sure. I just told the Dr I want her IGA levels done because I heard something about and IGA diffeciency causing negs on the TTG.

Juliet Newbie
Juliet
Posted

I just posted this link on another topic - Open Original Shared Link . It explains pretty thoroughly what the different tests are, how they interact with each other, and how accurate they are. It also talks about how much gluten and for how long you should be eating it before taking the tests. After reading it, you may or may not want to have the tests done.

I know lots of people on this board were using Enterolab which supposedly doesn't need you to be as recently challenged with gluten and also doesn't require blood. You can read up more about them, too, at their website www.enterolab.com. I was thinking of going through them to get the gene test done on my daughter.

rez Apprentice
rez
Posted

If anything would be positive, I think it would be the tTG or the EMA. According to DR. Peter Green's book, these two are the last two to go negative. My son's tTG was still positive after being gluten free for 3 months. Our doctor, Dr. Guandalini at The University of Chicago Celiac Center, said that the tTG's half themselves every two months. So if you start at 50, at 2 months out it's 25, at 4months around 12....and so on. Do check for an IGA deficiency you need to run a total IGA, I think. I would highly recommend Dr. Green's Book. It's all based on actual proven data. You have to be careful on some of those websites. Anyone can start a blog and it's nice to make sure you're dealing with a medical professional. Not to say there isn't a lot of great info out there, but some of it is just opinion, again which is good too. Good luck!

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happygirl Collaborator
happygirl
Posted

If you are talking about being IgA deficient, the correct test is the total serum IgA. This is not affected by gluten, whereas the other IgA's are.

(I am IgA deficient)

If you are having the other tests done, there are two outcomes:

if she is positive, she definitely has it.

if she is negative, it doesn't mean she doesn't have it, given that she is gluten free.

(Rez, have to agree with you whole heartedly about Dr. Green's book!!!!!!!)

vampella Contributor
vampella
Posted
  • Author

What the name of DR. Peter Green's book, I will call chapters tomorrow and order it.

happygirl Collaborator
happygirl
Posted

See my signature for the book title.

rez Apprentice
rez
Posted

It's called Celiac Disease: A Hidden Epidemic, By Dr. Peter Green. It's hands down the BEST book on the market. It's all fact and very informative. I have read several and thought many were excellent, but as far as accurate, medical information, this is it! I love some of the others for an empathetic feel good read, but when I need the facts, this is where I dig! :)

vampella Contributor
vampella
Posted
  • Author

Thanks Rez & Happy, I ordered the book today and it's already been shipped.

rez Apprentice
rez
Posted

Good for you, let me know what you think! Have a great night!

happygirl Collaborator
happygirl
Posted

Hope you enjoy!

*just a note, this book deals almost exclusively with Celiac, not non-Celiac gluten intolerance. However, many of the chapters would still be applicable (eating gluten-free, dealing with the gluten-free lifestyle, etc).

KristenQld Newbie
KristenQld
Posted

Ladies, does this book provide information on Dermatitus Herpetiformus? If so, I will endeavour to track it down as I'm in Australia.

rez Apprentice
rez
Posted

Yes. There is a whole chapter on DH.

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      how much gluten do I need to eat before blood tests?

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      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
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    • catnapt
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      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
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