Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Ordered A Gene Test

JerryK

Recommended Posts

JerryK Community Regular
JerryK
Posted

I just ordered Enterolab's gene panel for Celiac. Inquiring minds need to know! What'll be interesting is..if it comes out that I don't have the Celiac gene markers...then what? Just non-genetic gluten intolerance? The way I understand it is a negative test indicates that Celiac Disease cannot develop in that individual...

I look forward to additional knowledge:) jerry

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

Jerry:

Please correct me if I am wrong, but have you not felt better eliminating gluten from your life. I know that you have added it into your diet to test. I know that everyone needs to do what they feel comfortable with. If you feel you need the written word, then go for the testing. It is all a personal choice

If you do test and it is negative, you still know that you feel better gluten free. Sooo, that's up for you to decide.

I was different. I was in the bathroom for two months and could not leave the house, much less the room. I was tested by a gastro dr. I had scalloped walls, flat villi, gastritis and a large hiatal hernia.

They told me I had Celiac, and I asked what in the world is that. And the door slammed on my you know what. Hence, my arrival here.

Judyin Philly Enthusiast
Judyin Philly
Posted

My full panel test is coming on Friday from Enterol labs...let's hope we kind some answers.

judy in Philly

chocolatelover Contributor
chocolatelover
Posted

I keep wondering if I should do the same. How long does it take to get them? How long for the results? Do they take credit cards?

Judyin Philly Enthusiast
Judyin Philly
Posted

HI

I tried to log into sight on a Thursday nite last week

Chickened out when it came to 'hitting send key'

Mmost of my infor was there.

I must link anyway to their site b/c called and placed my order on Fri late in Texas.

Since my info was there already, she took my card over the phone.

You can do it all on line.

There are many options you can pick to test.

My tests should arrive this Thurs or Fri..so that's fast and maybe 2 week turn around they said to get results.

There is a nurse on staff to go over the results if you want to call and talk to them.

This woman i talked to Cathy was really nice and very knowledgeable.

I hope this link will work for you

Open Original Shared Link

celiacgirls Apprentice
celiacgirls
Posted
I just ordered Enterolab's gene panel for Celiac. Inquiring minds need to know! What'll be interesting is..if it comes out that I don't have the Celiac gene markers...then what? Just non-genetic gluten intolerance? The way I understand it is a negative test indicates that Celiac Disease cannot develop in that individual...

I look forward to additional knowledge:) jerry

About 90% of the people with celiac disease have DQ2. Another 8% have DQ8. That leaves 1 - 2% who have celiac who don't have either one of those. So it is possible you could still have celiac disease.

Judyin Philly Enthusiast
Judyin Philly
Posted
About 90% of the people with celiac disease have DQ2. Another 8% have DQ8. That leaves 1 - 2% who have celiac who don't have either one of those. So it is possible you could still have celiac disease.

So given this fact, why should I do this test I just ordered?

There still would be no proof :ph34r::blink: right???

I know that I'll never eat gluten again reguardless of what the tests says as it makes me sick..but wanted for my son and also if not celiac ..still could be gluten intollerance which they're to test for.

Oh this gets so confusing..

sigh! Judy

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CMCM Rising Star
CMCM
Posted

The consensus of those "in the know" is that mere gluten sensitivity is NOT to be dismissed or taken lightly. Many doctors feel the syndrome should ALL be designated as gluten sensitivity, with celiac disease merely being a small subset of this. Gluten sensitivity can cause all the same symptoms/discomfort/sickness etc., and it can even cause intestinal damage. Without a specifically identified celiac gene you wouldn't likely get celiac disease....I say "likely" because there are still people who have gotten it without the known celiac genes....apparently there are still some unidentified celiac genes, but the % is tiny.

Gluten sensitivity that is ignored can still cause tissue and organ damage, and potentially lead to certain cancers. You don't ignore it, and the advice seems to be whether you have celiac disease or are gluten sensitive, you DON'T EAT GLUTEN!!! NOT EVER!

JerryK Community Regular
JerryK
Posted
  • Author
Jerry:

Please correct me if I am wrong, but have you not felt better eliminating gluten from your life. I know that you have added it into your diet to test. I know that everyone needs to do what they feel comfortable with. If you feel you need the written word, then go for the testing. It is all a personal choice

If you do test and it is negative, you still know that you feel better gluten free. Sooo, that's up for you to decide.

Absolutely the results of this test will not make me deviate from my plan to go gluten free. I have a doctors appointment in 1 week...after I have a blood test, I do not plan to eat gluten again.

I'm looking at the gene test as another piece of data that I can take to family members and urge them to be on the lookout for Celiac type symptoms. It's just more data. The symptoms I feel are enough to convince me.

Slackermommy Rookie
Slackermommy
Posted

I just ordered the full panel from Enterolab. It took about a week and a half for the results but they said to give them 3 weeks. They do take credit cards.

I got the gene test, and found out I carry 2 genes for gluten sensitivity, meaning that both of my children have at least one gene, and that both my parents carry them. I am so glad I got the gene test, for my children and my family.

My brother is going to get himself tested, and his 3 sons, one of which has unexplained seizures. So, who knows? I am glad that they took it so seriously. My other brother, not so much, but at least I gave them the information, and they can decide what to do with their health.

And, Dr. Fine himself said that a positive response from going gluten free should be evidence enough, but I have to admit, it's great to see something in black and white, and KNOW.

Judyin Philly Enthusiast
Judyin Philly
Posted

'264569']

....I say "likely" because there are still people who have gotten it without the known celiac genes....apparently there are still some unidentified celiac genes, but the % is tiny.

Gluten sensitivity that is ignored can still cause tissue and organ damage, and potentially lead to certain cancers. You don't ignore it, and the advice seems to be whether you have celiac disease or are gluten sensitive, you DON'T EAT GLUTEN!!! NOT EVER!

oK NOW THIS MAKES TOTAL SENSE TO ME...

THANKS FOR THE ANSWER..

MY COMPUTERS BEEN DOWN FOR 2 DAYS..

GOT MY 'TEST KIT' BOX YESTERDAY AND NOW HAVE TO WAIT CAUSE CAN'T SENT THURS -SUN BUT THAT'S OK THEY SAID TO SAVE WHAT I GOT TODAY DIDN'T HAVE TIME TO READ ALL DIRECTIONS WHICH ISN'T LIKE ME BUT ALOT GOING ON TODAY..

SO AGREE WITH WHAT YOU SAID HERE---

Gluten sensitivity that is ignored can still cause tissue and organ damage, and potentially lead to certain cancers. You don't ignore it, and the advice seems to be whether you have celiac disease or are gluten sensitive, you DON'T EAT GLUTEN!!! NOT EVER!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      21

      Headaches / Migraines and Hypoglycaemia

      @Sarah Grace, Thank you for the update! It's so good to hear from you! I'm glad Thiamine, B Complex and magnesium have helped you. Yes, it's important to take all three together. I had to quit eating cheese and nuts a long time ago because they triggered migraines in me, too. They are high in tyrosine, an amino acid, found also in fermented...
    2. Jmartes71
      - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Related issues

      Its been a complete nightmare dealing with all these health issues one thing after another and being told many different things.I am looking for a new primary care physician considering when I told my past doctor of 25 years I was diagnosed before any foods eliminated from my diet and now this year at age 54 no longer able to push considering Im always exhausted...
    3. trents
      - trents replied to Sarah Grace's topic in Related Issues & Disorders
      21

      Headaches / Migraines and Hypoglycaemia

      My migraines generally have their onset during the early morning hours as well. Presently, I am under siege with them, having headaches all but two days so far this month. I have looked at all the things reported to be common triggers (foods, sleep patterns, weather patterns, stress, etc.). Every time I think I start to see a pattern it proves not to pan...
    4. Scott Adams
      - Scott Adams replied to jessicafreya's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Tamale ingredients

      These are labeled gluten-free: https://www.amazon.com/Corn-Husks-Tamales-Authentic-Flavorful/dp/B01MDSHUTM/
    5. Wheatwacked
      - Wheatwacked replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      GI DX celiac despite neg serology and no biopsy

      Just a gluten free diet is not enough. Now you have to identify and replenish your malnutrition. Celiac disease is co-morbid with malabsorption syndrome. Low vitamin D, Low Thiamine caused Gastointeston Beriberi, low choline, low iodine are common the general population, and in newly diagnosed Celiacs in the western culture its is more likely. It takes...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,144
    • Most Online (within 30 mins)
      7,748
    Jenny0384
    Newest Member
    Jenny0384
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Headaches / Migraines and Hypoglycaemia

      By knitty kitty · Posted

      @Sarah Grace,  Thank you for the update!  It's so good to hear from you!  I'm glad Thiamine, B Complex and magnesium have helped you.  Yes, it's important to take all three together.    I had to quit eating cheese and nuts a long time ago because they triggered migraines in me, too.  They are high in tyrosine, an amino acid, found also in fermented foods like sauerkraut and red wine.   I found taking Tryptophan very helpful with migraines.  Tryptophan is a precursor of serotonin and people with migraines are often low in serotonin.  (Don't take tryptophan if you're taking an SSRI.)     This recent study shows tryptophan really helps. The association between dietary tryptophan intake and migraine https://pubmed.ncbi.nlm.nih.gov/31254181/   For immediate respite from a migraine, try smiling REALLY BIG, mouth closed, tongue pressed against roof of mouth, and crinkle up your eyes like you just heard or saw the funniest thing...  This causes an endorphin release in the brain.  Usually it's the funny event, then the endorphin release and then the smile.  Smiling first makes the endorphin center think it missed something and it catches up quickly by releasing endorphins after the big crinkle eyed smile.  Must make crinkly eyes with smile or it won't work.  If you do this too frequently within a short time frame (several hours), you can deplete your endorphins, but you'll make more in a couple of hours, so no worries. Get your thyroid checked, too.  Migraines are also seen in low thyroid function (Hashimoto's or hypothyroidism).  Celiac and thyroid problems go hand in hand.   Vitamin D helps, too.  Low Vitamin D is found in migraine.   I'm so glad you're doing better.  
    • Jmartes71
      Related issues

      By Jmartes71 · Posted

      Its been a complete nightmare dealing with all these health issues one thing after another and being told many different things.I am looking for a new primary care physician considering when I told my past doctor of 25 years I was diagnosed before any foods eliminated from my diet and now this year at age 54 no longer able to push considering Im always exhausted, leg pain , stomach,skin and eye issues,high blood pressure to name a few all worsen because I was a  school bus driver and few years until my immune system went to hell and was fired because of it.Im still struggling now, Im sibo positive and been told im not celiac and that I am.I have a hernia and dealing with menopause. Its exhausting and is causing depression because of non medical help. Today I saw another gastrointestinalist and he said everything im feeling doesn't add up to celiac disease since my ITg levels are normal so celiac disease is under control and it's something else. I for got I had Barrett's esophagus diagnosed in 2007 because recent doctors down played it just like my celiac disease. Im currently looking for a pcp in my area because it is affecting me personally and professionally. Im told since celiac looks under control it's IBS and I need to see a therapist to control it. Gastrointestinalist around here think only food consumption and if ITG looks normal its bit celiac disease it's something else. Is this right? This is what im being told. I want medical help but told its IBS.Im feel lost by " medical team "
    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      My migraines generally have their onset during the early morning hours as well. Presently, I am under siege with them, having headaches all but two days so far this month. I have looked at all the things reported to be common triggers (foods, sleep patterns, weather patterns, stress, etc.). Every time I think I start to see a pattern it proves not to pan out in the long run. I'm not sure it's any one thing but may, instead, be a combination of things that coalesce at certain times. It's very frustrating. The medication (sumatriptan or "Imatrix") is effective and is the only thing that will quell the pain. NSAIDs, Tylenol, even hydrocodone doesn't touch it. But they only give you 9 does of sumatriptan a month. And it doesn't help that medical science doesn't really know what causes migraines. They know some things about it but the root cause is still a mystery.
    • Scott Adams
      Tamale ingredients

      By Scott Adams · Posted

      These are labeled gluten-free: https://www.amazon.com/Corn-Husks-Tamales-Authentic-Flavorful/dp/B01MDSHUTM/
    • Wheatwacked
      GI DX celiac despite neg serology and no biopsy

      By Wheatwacked · Posted

      Just a gluten free diet is not enough.  Now you have to identify and replenish your malnutrition.  Celiac disease is co-morbid with malabsorption syndrome.  Low vitamin D, Low Thiamine caused Gastointeston Beriberi, low choline, low iodine are common the general population, and in newly diagnosed Celiacs in the western culture its is more likely.  It takes time to heal and you need to focus on vitamins and minerals.  Gluten free foods are not fortified like regular processed foods.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.