Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cocoa ?

georgie

Recommended Posts

georgie Enthusiast
georgie
Posted

Would a sprinkle of cocoa on my coffee have Glutened me ? :blink: I can't think of anything else that could have done it. I feel really sick and have had cramping and D for 2 days. :(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


larry mac Enthusiast
larry mac
Posted
Would a sprinkle of cocoa on my coffee have Glutened me?....

g,

I haven't heard about cocoa containing gluten. Was it just regular cocoa powder or some kind of cocoa mix, like hot chocolate or something.

Also, I'm fairly new (7 weeks), and was curious about that "challenge diet". Is that something a gastroenterologist gives you? And if you fail it he diagnoses you with celiac despite a negative blood test and no biopsy? Just wondering. Oh sorry, it says gluten intolerant. That's a different thing I guess. Does that mean you can eat gluten if you want to sometimes?

best regards, lm

Ursa Major Collaborator
Ursa Major
Posted

Georgie, cocoa is usually gluten-free, but as Larry mentioned, hot chocolate mix may not be.

Larry, some celiac specialists are doubting that there is a difference in celiac disease and gluten intolerance, and want the distinction removed. Celiac disease (destroyed villi) is just one possible form of gluten intolerance, there are many other ways it can manifest. Such as DH, or mental illness for instance.

And no, if you're gluten intolerant as opposed to being officially diagnosed with celiac disease, you're still not allowed to eat any gluten at all. Because it makes you just as sick, even though it may not destroy your villi (it may just destroy your brain, or wreak havoc with your neural pathways, making you unable to walk or use your hands, for instance).

georgie Enthusiast
georgie
Posted
  • Author

I asked my Dr what was the difference between GI and Celiac and she held her hand up and indicated a gap of 1mm! I think I have Celiac but as a Gastro hasn't dx me - I can't officially be called that ! Not here anyway. Our state has a Society you can join but you need a letter from a Gastro Dr before you can. They do not recognise the Gluten Challenge Diet. And I am NOT going back to Gluten just for a colonoscopy and Gastro Dr dx.

I have had a skin rash too - that resembled mild DH, and which disappeared after going gluten-free and which gets itchy when I am Glutened.

I have so much pain at the moment and can only think that the cocoa was a drinking choc blend. It was sweet - now I think of it. Ouch - won't do that again!

Saz Explorer
Saz
Posted

Where abouts did you get the coffee? Mcdonalds capuinchino have gluten in the chocolate powder, I'm not sure about the Mccafe one but would asume it is the same. Also the powder that Gloria Jeans use on their capuinchino has gluten in it, but you can ask for it without.

Feel better soon.

JayT Rookie
JayT
Posted

I think just plain cocoa does not contain any gluten. I must agree with the above comments that if it was a mixture of a chocolate powder with various ingredients then your illness may be a result of it.

georgie Enthusiast
georgie
Posted
  • Author
Where abouts did you get the coffee?

It was a trendy cafe. I asked if their risotto was gluten-free and they told me rice had Gluten :lol: so I don't have much confidence now in the coffee ! I had my risotto at a proper Italian restuarant just down the road, and ALL their risottos are made fresh and are gluten-free. tip - eat Italian. You are not made to feel a nuisance. The waitress at the door knew all the risottos were gluten-free. And it was the same price as that cafe that didn't know rice was gluten-free!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


larry mac Enthusiast
larry mac
Posted
.....I had my risotto at a proper Italian restuarant just down the road, and ALL their risottos are made fresh and are gluten-free. tip - eat Italian.... The waitress at the door knew all the risottos were gluten-free....

g,

I've heard of risotto before but honestly didn't know what it was. I vaguely thought it was couscous (another dish I've never had) or something like that. We don't go out to eat much, even less now. I always got lasagna or chicken florentine.

I'll definately have to try that risotto, it sounds good.

best regards, lm

georgie Enthusiast
georgie
Posted
  • Author

I love risottos as my throat is still constricted by my enlarged Thyroid. Hubbie does them. He uses his own chicken stock, and you simmer the rice in that slowly and keep adding more until its right - so you need to stand over it abit and keep stirring and adding stock.Then you just add meat , veges as you like. I had a lovely roasted pumpkin , green peas , spinach, onion and parmasan cheese one the other day. recipezaar has good authentic recipes. As Celiac is so well recognised in Italy - if you are looking for a place to eat anytime - head to an authentic Italian Ristorante!

flowergirl Rookie
flowergirl
Posted

Hi georgie, I'm sorry to hear to are feeling bad. I get glutened by any chocolate but two days ago I visited the Gluten free shop in Ormond that you suggested on the Aussie/NZ thread. I had two rows of a dark chocolate with chili they sell (threw wrapper away sadly :( ) and had no symptoms. It is the first time I've had chocolate in months and I'm quite glad there is at least something I can have. :rolleyes: My diet is already very restrictive as it is.

georgie Enthusiast
georgie
Posted
  • Author

Thats great news. Was it nice with the chilli ? I do mail orders with that shop. They have drinking chocolate powder so may carry my own to cafes in the future :lol: I am about to go dairy free for a trial and am dreading it - so glad that you thought the choc was OK ( as I see you are dairy free too)

flowergirl Rookie
flowergirl
Posted

Yes, I can't tolerate dairy at the moment but I'm planning on re-introducing it when I feel my gut has healed. Therefore I avoid milk chocolate and eat dark chocolate instead. I have a feeling that it is the soy (from the lechithin) in the dairy-free chocolates that I've been trying in the past that makes me sick. The chili chocolate has very basic ingredients like cocoa mass, cocoa butter, lechithin (from sunflower) and cane suger (if I remember correctly). B) It is devine though I only take 4 blocks a day. :D

Best wishes with going dairy free. I hope it makes a world of difference in your health.

Flowergirl

georgie Enthusiast
georgie
Posted
  • Author

Thanks ! 2 days now and I start DF. I just have realised that means black coffee :blink: Is it common to have healing and go back to dairy?

jnclelland Contributor
jnclelland
Posted
Thanks ! 2 days now and I start DF. I just have realised that means black coffee :blink: Is it common to have healing and go back to dairy?

:) Giving up half and half in my coffee was the hardest thing about going dairy-free to me! I can't stand black coffee, but I've found some decent substitutes. If you can tolerate soy, Silk makes a soy-based creamer that is quite good. Unfortunately for me, not long after discovering it, I realized I had a problem with soy too. :angry: So now I make my own lattes with hazelnut milk, and they're yummy! I asked for a cappucino machine for Christmas so I could make my own at home (and hazelnut milk foams up quite nicely!), but when I'm at work I just go buy an espresso at the coffee shop across the way, microwave some hazlenut milk, and mix it all up. Kind of a pain, but better than going without my coffee! ;)

Jeanne

Felidae Enthusiast
Felidae
Posted
Thanks ! 2 days now and I start DF. I just have realised that means black coffee :blink: Is it common to have healing and go back to dairy?

After one year of being gluten free I could have dairy again. So, there may be hope for you too.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,549
    • Most Online (within 30 mins)
      7,748
    Blough
    Newest Member
    Blough
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Taken Seriously

      By Scott Adams · Posted

      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      Looking for a gluten-free roomie in Denver CO

      By Scott Adams · Posted

      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Allergy medication: cetirizine by the HealthA2Z is it gluten free?

      By Scott Adams · Posted

      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      Protein or fat?

      By Scott Adams · Posted

      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.