Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Am I A Kook?


JerryK

Is Jerry??  

16 members have voted

You do not have permission to vote in this poll, or see the poll results. Please sign in or register to vote in this poll.

Recommended Posts

JerryK Community Regular

So, last night..basking in the new found knowledge that I tested NEGATIVE for Celiac. I decided to treat myself to a very small piece of garlic bread.

This is around 6:30 or so...you know..dinner time.

By perhaps 8:30. I'm sitting there feeling like I've stumbled thru the stupid forest, climbed a stupid tree, fell out and hit every stupid branch on the way down. I can't even figure out how to use the remote. In addition, I feel pretty damn irritable, like throwing the TV out the window. My hands and

feet feel kind of numb AND I feel like weeping and pacing. Luckily I have a bottle of Xanax on hand and..it pretty much works for everything.

Now either I am just plain crazy (which I admit is entirely possible :P ) or I am VERY gluten sensitive.

You tell me am I off my nut? Am I running on all cylinders?

Too add to this, I now wonder if lactose intolerance is causing me more problems with the big D than I thought. I think PERHAPS...it's the MILK chocolate that I've continued to eat..thinking it's OK..(wheat free right)...that's causing these explosive events.

I've got a tendency to eat a candy bar...an hour or so before my runs(during which I get the runs) and perhaps it's the chocolate. Oh and BTW if you've never read the statistics about Lacose Intolerance it's quite interesting. I had no idea most of the world was LI...Turns out us adults weren't really intended to consume milk...

Jerry


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast

Jerry, sorry, I can't vote, there is no ALL OF THE ABOVE in your options!!!!! :lol::lol::lol:

JerryK Community Regular
Jerry, sorry, I can't vote, there is no ALL OF THE ABOVE in your options!!!!! :lol::lol::lol:

There you go, I added it for you ;)

Jestgar Rising Star

That's the option I needed! :lol: :lol:

CarlaB Enthusiast

ROFLMAO!!! :lol::lol::lol:

There, see 100% think you're all of the above!! At least until a few more vote!

Thanks for being so silly. You MIGHT someday get it that gluten makes you sick! LOL But I'm "only" gluten intolerant myself, so I understand the comfort in knowing it will "only" make me feel bad ... of course, it probably contributes to leaky gut, too ... but this thread is all about silliness.

JerryK Community Regular
ROFLMAO!!! :lol::lol::lol:

There, see 100% think you're all of the above!! At least until a few more vote!

Thanks for being so silly. You MIGHT someday get it that gluten makes you sick! LOL But I'm "only" gluten intolerant myself, so I understand the comfort in knowing it will "only" make me feel bad ... of course, it probably contributes to leaky gut, too ... but this thread is all about silliness.

I suppose there is some comfort in knowing that gluten is ONLY making you psycho, not actually damaging your intestings.... :o

jayhawkmom Enthusiast

Just for fun... I agreed with Carla! =)

There are many studies that conclude that milk is only necessary for infants (of any species) unable to feed themselves. Once we get beyond that point.... it's not good for anyone. No one needs it, especially when we can get calcium from soooo many other sources.

Could be the combination of the gluten intolerance WITH the lactose issue that's making you loopy.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast
I suppose there is some comfort in knowing that gluten is ONLY making you psycho, not actually damaging your intestings.... :o

Just be glad you don't have Lyme, too. Talk about brain problems!! At least I've been gluten-free for over a year so it's just the borrelia and babesia now!! I'm one egg shy of a carton myself!

aikiducky Apprentice

I can think of at least two possibilities why your blood test could be negative and you could still have celiac:

1. The more symptomatic a person is, the earlier they will seek testing, which will mean that the more symptomatic people might actually have LESS damage by the time they are tested, and get more false negatives. This might apply to you. You might end up with a celiac diagnosis if you continue eating gluten for a few more years. The blood test is only about 50% accurate in people with only beginning damage to the vili! The accuracy raises the more damage one develops.

2. If you happen to be one of the people in who the gluten reaction actually does more damage to the nervous system and less to the intestine, the current tests will not detect your celiac in any case, since the tests actually depend on damage to the intestine.

I think it would be a good idea to be both gluten and dairy free for a while and then try some dairy again to see what if any reaction you have to dairy in isolation fro gluten.

Pauliina

aikiducky Apprentice
I suppose there is some comfort in knowing that gluten is ONLY making you psycho, not actually damaging your intestings.... :o

How comforting is it to think it might be damaging your brain instead?

Pauliina

jerseyangel Proficient

Coming in late, but I vote for "all of the above", too :D

Personally, I don't believe humans were meant to drink the milk of another species. Cow's milk was intended to turn a baby calf into a 300 pound cow in 6 months. *Again, just my own opinion* :) I stopped using dairy a year before I had ever heard of Celiac.

A thought popped into my head about your chocolate. Since I've been gluten-free--and I know this happens to others too--I've become exquisitely sensitive to even the smallest amounts. There are several kinds of chocolate that I just can't tolerate anymore. Maybe there's a cross contamination issue with your brand?

Just a thought--could always be the milk, if it's in there.

Gluten makes me psycho, too!

JerryK Community Regular
How comforting is it to think it might be damaging your brain instead?

Pauliina

Ouch!! :blink:

JerryK Community Regular
I think it would be a good idea to be both gluten and dairy free for a while and then try some dairy again to see what if any reaction you have to dairy in isolation fro gluten.

Pauliina

Thanks for your thoughts. I'll try a diary challenge when I get back from my Mexico cruise.

Jestgar Rising Star
How comforting is it to think it might be damaging your brain instead?

On the up side, maybe at some point you won't (be able to) care anymore about damaging anything!

aikiducky Apprentice
On the up side, maybe at some point you won't (be able to) care anymore about damaging anything!

Ironically, when I get glutened I get so depressed I really hardly care about anything. I think it's scary, much scarier than the mild stomach ache etc. I get.

Jerry, I didn't mean to sound harsh, I was posting in a hurry. I hope you have a fabulous cruise! :)

Pauliina

zansu Rookie

all of the above, but in good company!

kbtoyssni Contributor

One egg shy of a carton, but I blame the gluten! And probably at least temporarily lactose intolerant. :)

darlindeb25 Collaborator

One egg shy of a carton--I like that. Is it the same as one shingle short of a roof, or one brick short of a load, lights on but nobody is home. I think these are what many of our doctors are, not us!!!!

Doesn't matter Jerry, you already know you are one of us, what difference does the blood test make??? :rolleyes:

Ursa Major Collaborator

I voted 'all of the above'. When are you going to STOP challenging what you know is the truth? Good grief! :ph34r::rolleyes::blink:

Have a great (and safe) cruise!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

    2. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

    3. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      44

      Supplements for those Diagnosed with Celiac Disease

    4. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,543
    • Most Online (within 30 mins)
      7,748

    Jeanette K.
    Newest Member
    Jeanette K.
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Mari
      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been  what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet  official, the Health Director of our nation is in trying to change what he considers outdated and incorrect health advisories. He does not have the education, background or experience to be in the position he occupies and is not making beneficial decisions. That man suffered a terrible trauma early in his life when his father was assonated. We see now how he developed and worked himself into a powerful position.  Unless you are willing to take some advice or  are willing to use a few of the known methods of starting on a path to better health then not many of us on this Celiac Forum will be able to join you in a continuing series of complaints about medical advisors.    I am almost 90 years old. I am strictly gluten free. I use 2 herbs to help me stay as clear minded as possible. You are not wrong in complaining about medical practitioners. You might be more effective with a clearer mind, less anger and a more comfortable life if you would just try some of the suggestions offered by our fellow celiac volunteers.  
    • Jmartes71
      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
    • knitty kitty
      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.