Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Am I A Kook?

JerryK

Is Jerry??  

16 members have voted

You do not have permission to vote in this poll, or see the poll results. Please sign in or register to vote in this poll.

Recommended Posts

JerryK Community Regular
JerryK
Posted

So, last night..basking in the new found knowledge that I tested NEGATIVE for Celiac. I decided to treat myself to a very small piece of garlic bread.

This is around 6:30 or so...you know..dinner time.

By perhaps 8:30. I'm sitting there feeling like I've stumbled thru the stupid forest, climbed a stupid tree, fell out and hit every stupid branch on the way down. I can't even figure out how to use the remote. In addition, I feel pretty damn irritable, like throwing the TV out the window. My hands and

feet feel kind of numb AND I feel like weeping and pacing. Luckily I have a bottle of Xanax on hand and..it pretty much works for everything.

Now either I am just plain crazy (which I admit is entirely possible :P ) or I am VERY gluten sensitive.

You tell me am I off my nut? Am I running on all cylinders?

Too add to this, I now wonder if lactose intolerance is causing me more problems with the big D than I thought. I think PERHAPS...it's the MILK chocolate that I've continued to eat..thinking it's OK..(wheat free right)...that's causing these explosive events.

I've got a tendency to eat a candy bar...an hour or so before my runs(during which I get the runs) and perhaps it's the chocolate. Oh and BTW if you've never read the statistics about Lacose Intolerance it's quite interesting. I had no idea most of the world was LI...Turns out us adults weren't really intended to consume milk...

Jerry

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CarlaB Enthusiast
CarlaB
Posted

Jerry, sorry, I can't vote, there is no ALL OF THE ABOVE in your options!!!!! :lol::lol::lol:

JerryK Community Regular
JerryK
Posted
  • Author
Jerry, sorry, I can't vote, there is no ALL OF THE ABOVE in your options!!!!! :lol::lol::lol:

There you go, I added it for you ;)

Jestgar Rising Star
Jestgar
Posted

That's the option I needed! :lol: :lol:

CarlaB Enthusiast
CarlaB
Posted

ROFLMAO!!! :lol::lol::lol:

There, see 100% think you're all of the above!! At least until a few more vote!

Thanks for being so silly. You MIGHT someday get it that gluten makes you sick! LOL But I'm "only" gluten intolerant myself, so I understand the comfort in knowing it will "only" make me feel bad ... of course, it probably contributes to leaky gut, too ... but this thread is all about silliness.

JerryK Community Regular
JerryK
Posted
  • Author
ROFLMAO!!! :lol::lol::lol:

There, see 100% think you're all of the above!! At least until a few more vote!

Thanks for being so silly. You MIGHT someday get it that gluten makes you sick! LOL But I'm "only" gluten intolerant myself, so I understand the comfort in knowing it will "only" make me feel bad ... of course, it probably contributes to leaky gut, too ... but this thread is all about silliness.

I suppose there is some comfort in knowing that gluten is ONLY making you psycho, not actually damaging your intestings.... :o

jayhawkmom Enthusiast
jayhawkmom
Posted

Just for fun... I agreed with Carla! =)

There are many studies that conclude that milk is only necessary for infants (of any species) unable to feed themselves. Once we get beyond that point.... it's not good for anyone. No one needs it, especially when we can get calcium from soooo many other sources.

Could be the combination of the gluten intolerance WITH the lactose issue that's making you loopy.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CarlaB Enthusiast
CarlaB
Posted
I suppose there is some comfort in knowing that gluten is ONLY making you psycho, not actually damaging your intestings.... :o

Just be glad you don't have Lyme, too. Talk about brain problems!! At least I've been gluten-free for over a year so it's just the borrelia and babesia now!! I'm one egg shy of a carton myself!

aikiducky Apprentice
aikiducky
Posted

I can think of at least two possibilities why your blood test could be negative and you could still have celiac:

1. The more symptomatic a person is, the earlier they will seek testing, which will mean that the more symptomatic people might actually have LESS damage by the time they are tested, and get more false negatives. This might apply to you. You might end up with a celiac diagnosis if you continue eating gluten for a few more years. The blood test is only about 50% accurate in people with only beginning damage to the vili! The accuracy raises the more damage one develops.

2. If you happen to be one of the people in who the gluten reaction actually does more damage to the nervous system and less to the intestine, the current tests will not detect your celiac in any case, since the tests actually depend on damage to the intestine.

I think it would be a good idea to be both gluten and dairy free for a while and then try some dairy again to see what if any reaction you have to dairy in isolation fro gluten.

Pauliina

aikiducky Apprentice
aikiducky
Posted
I suppose there is some comfort in knowing that gluten is ONLY making you psycho, not actually damaging your intestings.... :o

How comforting is it to think it might be damaging your brain instead?

Pauliina

jerseyangel Proficient
jerseyangel
Posted

Coming in late, but I vote for "all of the above", too :D

Personally, I don't believe humans were meant to drink the milk of another species. Cow's milk was intended to turn a baby calf into a 300 pound cow in 6 months. *Again, just my own opinion* :) I stopped using dairy a year before I had ever heard of Celiac.

A thought popped into my head about your chocolate. Since I've been gluten-free--and I know this happens to others too--I've become exquisitely sensitive to even the smallest amounts. There are several kinds of chocolate that I just can't tolerate anymore. Maybe there's a cross contamination issue with your brand?

Just a thought--could always be the milk, if it's in there.

Gluten makes me psycho, too!

JerryK Community Regular
JerryK
Posted
  • Author
How comforting is it to think it might be damaging your brain instead?

Pauliina

Ouch!! :blink:

JerryK Community Regular
JerryK
Posted
  • Author
I think it would be a good idea to be both gluten and dairy free for a while and then try some dairy again to see what if any reaction you have to dairy in isolation fro gluten.

Pauliina

Thanks for your thoughts. I'll try a diary challenge when I get back from my Mexico cruise.

Jestgar Rising Star
Jestgar
Posted
How comforting is it to think it might be damaging your brain instead?

On the up side, maybe at some point you won't (be able to) care anymore about damaging anything!

aikiducky Apprentice
aikiducky
Posted
On the up side, maybe at some point you won't (be able to) care anymore about damaging anything!

Ironically, when I get glutened I get so depressed I really hardly care about anything. I think it's scary, much scarier than the mild stomach ache etc. I get.

Jerry, I didn't mean to sound harsh, I was posting in a hurry. I hope you have a fabulous cruise! :)

Pauliina

zansu Rookie
zansu
Posted

all of the above, but in good company!

kbtoyssni Contributor
kbtoyssni
Posted

One egg shy of a carton, but I blame the gluten! And probably at least temporarily lactose intolerant. :)

darlindeb25 Collaborator
darlindeb25
Posted

One egg shy of a carton--I like that. Is it the same as one shingle short of a roof, or one brick short of a load, lights on but nobody is home. I think these are what many of our doctors are, not us!!!!

Doesn't matter Jerry, you already know you are one of us, what difference does the blood test make??? :rolleyes:

Ursa Major Collaborator
Ursa Major
Posted

I voted 'all of the above'. When are you going to STOP challenging what you know is the truth? Good grief! :ph34r::rolleyes::blink:

Have a great (and safe) cruise!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,051
    • Most Online (within 30 mins)
      7,748
    Anna4386
    Newest Member
    Anna4386
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Russ H
      KAN-101 Treatment for Coeliac Disease

      By Russ H · Posted

      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
    • Scott Adams
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By Scott Adams · Posted

      BTW, we've done other articles on this topic that I wanted to share here (not to condone smoking!):    
    • Colleen H
      Gluten related ??

      By Colleen H · Posted

      Hi everyone  This has been a crazy year so far... How many people actually get entire sensory overload from gluten or something similar ?  My jaw is going nuts ..and that nerve is affecting my upper back and so on ...  Bones even hurt.  Brain fog. Etc  I had eggs seemed fine.   Then my aid cooked a chicken stir fry in the microwave because my food order shorted a couple key items .   I was so hungry but I noticed light breading and some ingredients with SOY !!! Why are we suffering with soy ? This triggered a sensitivity to bananas and gluten-free yogurt it seems like it's a cycle that it goes on.  The tiniest amount of something gets me I'm guessing the tiny bit of breading that I took one tiny nibble of ...yikes ..im cringing from it .. Feels like my stomach is going to explode yet still very hungry 😔  How long does this last?! Thank you so much 
    • Scott Adams
      Celiac getting dentures

      By Scott Adams · Posted

      This is an older article, but may be helpful.  
    • gfmom06
      Celiac getting dentures

      By gfmom06 · Posted

      I have had orthodontic work done. The 3M invisalign material was no problem. BUT my retainers are another matter. They seemed okay for a few months. Now, however, they cause a burning sensation on my tongue, gums and insides of my lips. The burning sensation is now spreading to my throat. I notice it when I breathe. This is annoying and interferes with my enjoyment of eating. I am visiting with my provider tomorrow. We'll see where this goes from here.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.