Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Am I A Kook?

JerryK

Is Jerry??  

16 members have voted

You do not have permission to vote in this poll, or see the poll results. Please sign in or register to vote in this poll.

Recommended Posts

JerryK Community Regular
JerryK
Posted

So, last night..basking in the new found knowledge that I tested NEGATIVE for Celiac. I decided to treat myself to a very small piece of garlic bread.

This is around 6:30 or so...you know..dinner time.

By perhaps 8:30. I'm sitting there feeling like I've stumbled thru the stupid forest, climbed a stupid tree, fell out and hit every stupid branch on the way down. I can't even figure out how to use the remote. In addition, I feel pretty damn irritable, like throwing the TV out the window. My hands and

feet feel kind of numb AND I feel like weeping and pacing. Luckily I have a bottle of Xanax on hand and..it pretty much works for everything.

Now either I am just plain crazy (which I admit is entirely possible :P ) or I am VERY gluten sensitive.

You tell me am I off my nut? Am I running on all cylinders?

Too add to this, I now wonder if lactose intolerance is causing me more problems with the big D than I thought. I think PERHAPS...it's the MILK chocolate that I've continued to eat..thinking it's OK..(wheat free right)...that's causing these explosive events.

I've got a tendency to eat a candy bar...an hour or so before my runs(during which I get the runs) and perhaps it's the chocolate. Oh and BTW if you've never read the statistics about Lacose Intolerance it's quite interesting. I had no idea most of the world was LI...Turns out us adults weren't really intended to consume milk...

Jerry

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CarlaB Enthusiast
CarlaB
Posted

Jerry, sorry, I can't vote, there is no ALL OF THE ABOVE in your options!!!!! :lol::lol::lol:

JerryK Community Regular
JerryK
Posted
  • Author
Jerry, sorry, I can't vote, there is no ALL OF THE ABOVE in your options!!!!! :lol::lol::lol:

There you go, I added it for you ;)

Jestgar Rising Star
Jestgar
Posted

That's the option I needed! :lol: :lol:

CarlaB Enthusiast
CarlaB
Posted

ROFLMAO!!! :lol::lol::lol:

There, see 100% think you're all of the above!! At least until a few more vote!

Thanks for being so silly. You MIGHT someday get it that gluten makes you sick! LOL But I'm "only" gluten intolerant myself, so I understand the comfort in knowing it will "only" make me feel bad ... of course, it probably contributes to leaky gut, too ... but this thread is all about silliness.

JerryK Community Regular
JerryK
Posted
  • Author
ROFLMAO!!! :lol::lol::lol:

There, see 100% think you're all of the above!! At least until a few more vote!

Thanks for being so silly. You MIGHT someday get it that gluten makes you sick! LOL But I'm "only" gluten intolerant myself, so I understand the comfort in knowing it will "only" make me feel bad ... of course, it probably contributes to leaky gut, too ... but this thread is all about silliness.

I suppose there is some comfort in knowing that gluten is ONLY making you psycho, not actually damaging your intestings.... :o

jayhawkmom Enthusiast
jayhawkmom
Posted

Just for fun... I agreed with Carla! =)

There are many studies that conclude that milk is only necessary for infants (of any species) unable to feed themselves. Once we get beyond that point.... it's not good for anyone. No one needs it, especially when we can get calcium from soooo many other sources.

Could be the combination of the gluten intolerance WITH the lactose issue that's making you loopy.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CarlaB Enthusiast
CarlaB
Posted
I suppose there is some comfort in knowing that gluten is ONLY making you psycho, not actually damaging your intestings.... :o

Just be glad you don't have Lyme, too. Talk about brain problems!! At least I've been gluten-free for over a year so it's just the borrelia and babesia now!! I'm one egg shy of a carton myself!

aikiducky Apprentice
aikiducky
Posted

I can think of at least two possibilities why your blood test could be negative and you could still have celiac:

1. The more symptomatic a person is, the earlier they will seek testing, which will mean that the more symptomatic people might actually have LESS damage by the time they are tested, and get more false negatives. This might apply to you. You might end up with a celiac diagnosis if you continue eating gluten for a few more years. The blood test is only about 50% accurate in people with only beginning damage to the vili! The accuracy raises the more damage one develops.

2. If you happen to be one of the people in who the gluten reaction actually does more damage to the nervous system and less to the intestine, the current tests will not detect your celiac in any case, since the tests actually depend on damage to the intestine.

I think it would be a good idea to be both gluten and dairy free for a while and then try some dairy again to see what if any reaction you have to dairy in isolation fro gluten.

Pauliina

aikiducky Apprentice
aikiducky
Posted
I suppose there is some comfort in knowing that gluten is ONLY making you psycho, not actually damaging your intestings.... :o

How comforting is it to think it might be damaging your brain instead?

Pauliina

jerseyangel Proficient
jerseyangel
Posted

Coming in late, but I vote for "all of the above", too :D

Personally, I don't believe humans were meant to drink the milk of another species. Cow's milk was intended to turn a baby calf into a 300 pound cow in 6 months. *Again, just my own opinion* :) I stopped using dairy a year before I had ever heard of Celiac.

A thought popped into my head about your chocolate. Since I've been gluten-free--and I know this happens to others too--I've become exquisitely sensitive to even the smallest amounts. There are several kinds of chocolate that I just can't tolerate anymore. Maybe there's a cross contamination issue with your brand?

Just a thought--could always be the milk, if it's in there.

Gluten makes me psycho, too!

JerryK Community Regular
JerryK
Posted
  • Author
How comforting is it to think it might be damaging your brain instead?

Pauliina

Ouch!! :blink:

JerryK Community Regular
JerryK
Posted
  • Author
I think it would be a good idea to be both gluten and dairy free for a while and then try some dairy again to see what if any reaction you have to dairy in isolation fro gluten.

Pauliina

Thanks for your thoughts. I'll try a diary challenge when I get back from my Mexico cruise.

Jestgar Rising Star
Jestgar
Posted
How comforting is it to think it might be damaging your brain instead?

On the up side, maybe at some point you won't (be able to) care anymore about damaging anything!

aikiducky Apprentice
aikiducky
Posted
On the up side, maybe at some point you won't (be able to) care anymore about damaging anything!

Ironically, when I get glutened I get so depressed I really hardly care about anything. I think it's scary, much scarier than the mild stomach ache etc. I get.

Jerry, I didn't mean to sound harsh, I was posting in a hurry. I hope you have a fabulous cruise! :)

Pauliina

zansu Rookie
zansu
Posted

all of the above, but in good company!

kbtoyssni Contributor
kbtoyssni
Posted

One egg shy of a carton, but I blame the gluten! And probably at least temporarily lactose intolerant. :)

darlindeb25 Collaborator
darlindeb25
Posted

One egg shy of a carton--I like that. Is it the same as one shingle short of a roof, or one brick short of a load, lights on but nobody is home. I think these are what many of our doctors are, not us!!!!

Doesn't matter Jerry, you already know you are one of us, what difference does the blood test make??? :rolleyes:

Ursa Major Collaborator
Ursa Major
Posted

I voted 'all of the above'. When are you going to STOP challenging what you know is the truth? Good grief! :ph34r::rolleyes::blink:

Have a great (and safe) cruise!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,745
    • Most Online (within 30 mins)
      7,748
    Barbfh
    Newest Member
    Barbfh
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Theresa2407
      How Come Gluten Didnt Bother Me In Italy

      By Theresa2407 · Posted

      Maybe you have a low  intolerance to Wheat.   Rye, Barley and Malt are the gluten in Celiac disease.  It has always been stated Wheat and Gluten, not just a Wheat intolerance.  Barley will keep me in bed for (2) weeks.  Gut, Migrains, Brain fog, Diahrea.  It is miserable.  And when I was a toddler the doctor would give me a malt medicine because I always had Anemia and did not grow.  Boy was he off.  But at that time the US didn't know anyone about Celiac.  This was the 1940s and 50s.  I had my first episode at 9 months and did not get a diagnosis until I was 50.  My immune system was so shot before being diagnoised, so now I live with the consequences of it. I was so upset when Manufacturers didn't want to label their products so they added barley to the product.  It was mostly the cereal industry.  3 of my favorite cereals were excluded because of this. Malt gives me a bad Gut reaction.
    • Gigi2025
      How Come Gluten Didnt Bother Me In Italy

      By Gigi2025 · Posted

      Thanks much Scott.  Well said, and heeded.   I don't have Celiac, which is fortunate.
    • Scott Adams
      Possible celiac - need advice

      By Scott Adams · Posted

      Do you have the results of your endoscopy? Did you do a celiac disease blood panel before that?  Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      Celiac or not??

      By Scott Adams · Posted

      It is odd that your Tissue Transglutaminase (TTG) IgA level has bounced from the "inconclusive" range (7.9, 9.8) down to a negative level (5.3), only to climb back up near the positive threshold. This inconsistency, coupled with your ongoing symptoms of malabsorption and specific nutrient deficiencies, is a strong clinical indicator that warrants a more thorough investigation than a simple "satisfactory" sign-off. A negative blood test does not definitively rule out celiac disease, especially with such variable numbers and a classic symptomatic picture. You are absolutely right to seek a second opinion and push for a referral to a gastroenterologist. A biopsy remains the gold standard for a reason, and advocating for one is the most direct path to getting the answers you need to finally address the root cause of your suffering. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      How Come Gluten Didnt Bother Me In Italy

      By Scott Adams · Posted

      There is a distinction between gluten itself and the other chemicals and processing methods involved in modern food production. Your experience in Italy and Greece, contrasted with your reactions in the U.S., provides powerful anecdotal evidence that the problem, for some people, may not be the wheat, but the additives like potassium bromate and the industrial processing it undergoes here. The point about bromines displacing iodine and disrupting thyroid function is a significant one, explaining a potential biological mechanism for why such additives could cause systemic health issues that mimic gluten sensitivity. It's both alarming and insightful to consider that the very "watchdog" agencies meant to protect us are allowing practices banned in many other developed countries. Seeking out European flour and your caution about the high-carb, potentially diabeticgenic nature of many gluten-free products are excellent practical takeaways from your research, but I just want to mention--if you have celiac disease you need to avoid all wheat, including all wheat and gluten in Europe.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.