Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Fat And Full

nursey70

Recommended Posts

nursey70 Newbie
nursey70
Posted

hello everyone,

i'm new here and am searching for answers. i really never thought much about celiac until i accidently came across some information and thought it might be a possibility.

i'm a 39 year old mom to two boys. work part time as a rn. for the past six months i've had so many strange symtpoms and am undiagnosed as of yet.

my symptoms

brain fog/dizzyness (kind of feel like i walk around drunk (and i'm not) and just can't shake it.

muscle aches/pain

no energy

sleep disturbance

weakness

irritibility

constant sinus congestion

dry skin, peeling hands

some tingling in strange places

abdominal bloating

excessive gas (i've never had this problem before)

i don't each much and don't lose weight

always feel full (and i've always been a good eater, i'm not small i'm 5'1, 145lbs)

bowel movements (four times a day, sorry but they're like tootsie rolls and my children's 5/6 are much bigger than mine)

i'm just not the same person anymore. yesterday i ate a blueberry muffin and two slices of pizza, that's it. and i'm still full and not hungry this morning.

i've been to a neurologist for possible ms, mri of head and c spine negative, neuro exam negative, went for an eng for vertigo, negative, cat scan of head negative, cardiac workup negative, tsh, folate, b12, cbc, chem 7, lyme, sed rate all normal. even had a mamogram, normal. went to ortho for sciatic pain, hips and knees normal. went to opthamologist, eyes normal, don't even need glasses. i go back to my primary next week.

does anyone have suggestions? has celiac presented like this and taken this long for dx for anyone?

thanks for listening, i'm just so tired of feeling like this and i'm starting to become very frightened i have some sort of cancer.

karen

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


missy'smom Collaborator
missy'smom
Posted
hello everyone,

i'm new here and am searching for answers. i really never thought much about celiac until i accidently came across some information and thought it might be a possibility.

i'm a 39 year old mom to two boys. work part time as a rn. for the past six months i've had so many strange symtpoms and am undiagnosed as of yet.

my symptoms

brain fog/dizzyness (kind of feel like i walk around drunk (and i'm not) and just can't shake it.

muscle aches/pain

no energy

sleep disturbance

weakness

irritibility

constant sinus congestion

dry skin, peeling hands

some tingling in strange places

abdominal bloating

excessive gas (i've never had this problem before)

i don't each much and don't lose weight

always feel full (and i've always been a good eater, i'm not small i'm 5'1, 145lbs)

bowel movements (four times a day, sorry but they're like tootsie rolls and my children's 5/6 are much bigger than mine)

i'm just not the same person anymore. yesterday i ate a blueberry muffin and two slices of pizza, that's it. and i'm still full and not hungry this morning.

i've been to a neurologist for possible ms, mri of head and c spine negative, neuro exam negative, went for an eng for vertigo, negative, cat scan of head negative, cardiac workup negative, tsh, folate, b12, cbc, chem 7, lyme, sed rate all normal. even had a mamogram, normal. went to ortho for sciatic pain, hips and knees normal. went to opthamologist, eyes normal, don't even need glasses. i go back to my primary next week.

does anyone have suggestions? has celiac presented like this and taken this long for dx for anyone?

thanks for listening, i'm just so tired of feeling like this and i'm starting to become very frightened i have some sort of cancer.

karen

I had the symptoms that I highlighted above. I had other symptoms as well that I never would have thought of as symptoms or put together as manifestations of one disease. Check out csaceliacs.org Celias Spru Association for a list of symptoms. I'm sure there's one here too. I was always thin but started gaining weight as my symptoms got worse. My short response is that it sounds like it could be celiac disease. I was sick for 8 years before I found help and answers.

jerseyangel Proficient
jerseyangel
Posted

Hi Karen, and welcome :)

Believe it or not, I had every one of your symptoms--except that I had diahrrea plus anemia. I'm also the mom of two (now grown) boys :D

I was sick for about 20 years before I was diagnosed correctly. I went to numerous doctors in 3 states over the years--had CT scans, blood and stool testing, was put on steroids (pills and injections), and so many rounds of antibiotics that I'm allergic to most now.

I also had trouble losing weight. I was always about 15-20 lbs overweight, no matter how little I ate. The only time I lost weight easily was when I tried the Atkins diet several years ago--of course that makes sense now because I was eating almost no carbs--so no gluten!

If you suspect Celiac, and since you're eating gluten now, I would suggest you get the full Celiac Blood Panel done--that would be a good first step. As a nurse, I'm sure you know to ask for the complete panel-

Anti-Gliadin (AGA) IgA

Anti-Gliadin (AGA) IgG

Anti-Endomysial (EMA) IgA

Anti-Tissue Transglutaminase (tTG) IgA

Total Serum IgA

Best of luck :)

mouse Enthusiast
mouse
Posted

Welcome to the board.

I had the majority of your symptoms for over 30 years. Plus, I would get what I called mini flu's several times a month with vomiting. I could never get anyone to take me seriously. I was 50 to 60 pounds overweight and worked out daily. Then about 4 years ago, I became what they call the classic Celiac when I started dropping the weight and started having D big time. Finally my GP thought of Celiac as he thought I was bulimic or anorexic, because of the huge weight loss.

I now am a size 8 and eat far more then I ever did when I was so overweight.

I also used to worry that I had cancer. Be sure to keep eating plenty of gluten for your blood tests. They also might want to do an endoscopy and that also requires that you keep eating gluten.

chocolatelover Contributor
chocolatelover
Posted

Jerseyangel, I have a question for you. I had blood work done that came back negative, however, I'm not sure what was done was right. I had two separate blood draws. The first was from my family physician's office and they did (as part of a general food allergy panel):

gliadin AB (IGA,IGG)

gliadin AB IGG

They were both negative.

Then, the GI's office did another blood draw and they did:

IGA, serum

TTG AB, IGA

They were both negative.

Are they these the same things that you recommended that missy'smom get?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,855
    • Most Online (within 30 mins)
      7,748
    Tara M
    Newest Member
    Tara M
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      Ibuprofen

      By cristiana · Posted

      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
    • Me,Sue
      Knowing what to do when feeling unwell.

      By Me,Sue · Posted

      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      The Happy Tart review

      By Francis M · Posted

      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      The Happy Tart review

      By Scott Adams · Posted

      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
    • Scott Adams
      Stomach burning and neuropathy

      By Scott Adams · Posted

      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.