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Help - Need Info Quick

Jalar

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Jalar Newbie
Jalar
Posted

I am having an upper GI with a biopsy on Monday, Feb 26th :blink: . I had a gastric ulcer last year and for the past six months have been having nausea, constipation, pasty stool, gas, cramping and so forth. When it came up that I was having this 2nd upper endoscopy my mom mentioned that several people in my family have Celiac's (many more have irritable bowel). What do I need to do to make SURE that they doctors check for gluten intolerance. What do I need to know for Monday? I hate to miss this opportunity because I have SO little time for research. Can you help me??? :unsure: Thank you ! Thank you!

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CarlaB Enthusiast
CarlaB
Posted

They need to take several biopsies -- 7-10 -- to see if you have villi damage. As long as they're in there, they may as well do the biopsies. I'd insist on it!!

chocolatelover Contributor
chocolatelover
Posted

Absolutely make sure they do multiple biopsies from multiple spots. I had an endoscopy that was a complete waste of time because they only took one biopsy because "everything looked normal". Unless the damage is significant, they won't be able to see anything with the scope. Usually they find the damage when looking microscopically at the biopsies.

Also make sure that they know that you have a family history of celiac disease.

Good luck!

sherylj Rookie
sherylj
Posted
I am having an upper GI with a biopsy on Monday, Feb 26th :blink: . I had a gastric ulcer last year and for the past six months have been having nausea, constipation, pasty stool, gas, cramping and so forth. When it came up that I was having this 2nd upper endoscopy my mom mentioned that several people in my family have Celiac's (many more have irritable bowel). What do I need to do to make SURE that they doctors check for gluten intolerance. What do I need to know for Monday? I hate to miss this opportunity because I have SO little time for research. Can you help me??? :unsure: Thank you ! Thank you!

Just had my biopsy done a month ago,,it was easy, cause they sedated me completely. I highly recommend complete sedation,,not just numbing the throat as some folks have reported.

And yes serveral biopsies of the villi(lining of the small intestine). My report states the biopsies came from the second a part of the duodenum?? I guess there are diffeent parts to the small intestine?? Can someone answer that question

?

Your symptoms sound so close to mine,,the nausea,,vomiting, constipation, excess gas and belching. I just joined the forum yesterday and finding a wealth of experiences to draw on. It always helps to talk to someone who has been THERE.

Good luck!!

sherylj Rookie
sherylj
Posted
Absolutely make sure they do multiple biopsies from multiple spots. I had an endoscopy that was a complete waste of time because they only took one biopsy because "everything looked normal". Unless the damage is significant, they won't be able to see anything with the scope. Usually they find the damage when looking microscopically at the biopsies.

Also make sure that they know that you have a family history of celiac disease.

Good luck!

I came away from my biopsy thinking I didn't have celiac because it wasn't apparent from dr. initial internal scope exam. The microscopic exams of biopsies were the key. The dr. told my husband it didn't look like celiac (while I was still sedated) and I went home and ate gluten for a week until dr. called and said,,,oh, by the way, the biopsies show celiac.

Maybe the reason my villi looked "normal" UNTIL UNDER THE MICROPSCOPE is because I have off and on followed a gluten-free diet for 10 years...I ate gluten foods the week before the test and had prob not caused enough damage for the naked eye to see. My symptoms however had gotten so bad prior to the testing I was off and on the gluten-free diet. It seems I can eat about a week worth of 1 gluten a day and then "TILT" the bad symtoms start and I have a painful night. So then I would go gluten-free for a week or so and start the whole cycle of "cheating" again. Now that I have a definite diagnosis and am no longer self diagnosed I am going to dedicate myself to totally gluten free to try and lift my depression and see if I can l live life with joy and happiness instead of anxiety/depression.

Hope you find a definite diagnosis cause it really does change your outlook on life when you feel you have the power and choices to change how you feel!! Sherylj

mamabear Explorer
mamabear
Posted
I am having an upper GI with a biopsy on Monday, Feb 26th :blink: . I had a gastric ulcer last year and for the past six months have been having nausea, constipation, pasty stool, gas, cramping and so forth. When it came up that I was having this 2nd upper endoscopy my mom mentioned that several people in my family have Celiac's (many more have irritable bowel). What do I need to do to make SURE that they doctors check for gluten intolerance. What do I need to know for Monday? I hate to miss this opportunity because I have SO little time for research. Can you help me??? :unsure: Thank you ! Thank you!

Everyone has given you great advice. The standard for biopsy is in the second portion of the duodenum which is the first 1/3 if the small intestine. 6 biopsies should be made. It is absolutely important that the doc is made aware of your family history of celiac. If you can, find out who in your family had celiac as well as IBS and any other GI related illness;and I suggest writing all that down to give to the doctor. Hopefully you'll have an answer by this time next week. Be assertive and request that the biopsies be done.

Let us know how it goes.

happygirl Collaborator
happygirl
Posted

Discuss with your GI before the procedure that you want "multiple biopsies, in multiple locations" to check for Celiac damage, even if it doesn't look like damage while he is in there. Tell him regardless of what it looks like, you want the full biopsies taken, because you don't want to have to go through this again. Best of luck.

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mamabear Explorer
mamabear
Posted
Just had my biopsy done a month ago,,it was easy, cause they sedated me completely. I highly recommend complete sedation,,not just numbing the throat as some folks have reported.

And yes serveral biopsies of the villi(lining of the small intestine). My report states the biopsies came from the second a part of the duodenum?? I guess there are diffeent parts to the small intestine?? Can someone answer that question

?

Your symptoms sound so close to mine,,the nausea,,vomiting, constipation, excess gas and belching. I just joined the forum yesterday and finding a wealth of experiences to draw on. It always helps to talk to someone who has been THERE.

Good luck!!

The small intestine has 3 parts....first after the stomach is the duodenum, The second part is the jejunum and the third part is the ileum which adjoins the large intestine or colon.

babygirl1234 Rookie
babygirl1234
Posted

my GI doctor did both scops and did the biopscys on both, so the GI doctor i have is a good doctor and supper nice

Jalar Newbie
Jalar
Posted
  • Author

I am home from my upper GI. Good news - my ulcer is gone. :P Bad news - Dr. said my stomach and intestinal track look irriated and inflammed. :( I asked for several biopsies to be taken and mentioned my family history of Celiacs. The doctor agreed and said she would send the biopsy off and we would know something in about a week. Soooo..... I go back to see her in an office setting in a week or two.

Thanks everyone for your help! ;) I will keep you posted!

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      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
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