Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Nebraska Checking In

loco-ladi

Recommended Posts

loco-ladi Contributor
loco-ladi
Posted

Well, I checked nd didn't see anyone yet posting for Nebraska so here I am little ole me anyone else?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Merritt Newbie
Merritt
Posted

Where in Nebraska do you live? I lived and worked in Lincoln for many, many years and have retired back to my home state Missouri. I have been gluten free since January of this year, still struggling but getting there. I am trying to learn how to use the message boards and respond. Will see if this works. I need more help learning how to use this than anything else. I HAVE learned from just reading the postings. My name is Bunnie as in Rabbit!

Guest aparde
Guest aparde
Posted
Well, I checked nd didn't see anyone yet posting for Nebraska so here I am little ole me anyone else?

Hi! I am from Nebraska too! :) My daughter has celiac and has been diagnosed for 3 years now. My dad is also celiac.

Welcome to the boards!

  • 1 month later...
fifthprofession47 Newbie
fifthprofession47
Posted

I'm from Omaha. It's been a long time since I've visited here.

loco-ladi Contributor
loco-ladi
Posted
  • Author

I am way out west, darn near into wyoming in fact.....

I moved here about 2000 and LOVE IT! its so totally great you can see for miles and miles and since I was raised in Maine, land of mountains and trees its a big change for me!

Nice to meet you all!

sctwelk Newbie
sctwelk
Posted

I've been diagnosed silent celiac just over 3 years. That means I have benefitted from the gluten-free diet, but am not bothered by "falling off" occasionally. Just an honor system. I was anemic and losing/not gaining weight regardless of what or how much I ate. The doctor in Lincoln diagnosing me said I could decide whether to go gluten-free or not. I called the Mayo Clinic and talked to one of their gastroenterologists for a second opinion. He said by all means I needed to be on the gluten-free diet as I would not be absorbing crucial vitamins I needed. He suggested I have a bone density scan done for osteoporosis. That proved valuable as I have been on Actonel and 1800 mg of supplemental calcium daily for 2 years. I tell people that I have gained 25 pounds since going on my "diet"! I live in Grand Island and know of a local support group in Kearney that meets 1-2 times a year. ;)

loco-ladi Contributor
loco-ladi
Posted
  • Author

Let me know when the support group next meets, if I can afford the gas prices at the time maybe I will just pop in!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 5 months later...
thepeach80 Rookie
thepeach80
Posted

Anyone still here? This is all new for me (for my son) and local help is always good.

Ann1231 Enthusiast
Ann1231
Posted
Anyone still here? This is all new for me (for my son) and local help is always good.

Hi! I live outside of Lincoln a little ways. I'm in Lincoln all the time though. Where are you from?

Ann

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,265
    • Most Online (within 30 mins)
      7,748
    V Arnold
    Newest Member
    V Arnold
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • RMJ
      Kan-101

      By RMJ · Posted

      It is more likely code for “we think there really was a good response to the treatment, but it was small or in a small percent of subjects so it would take a large clinical trial to try to prove it.”
    • Dana0207
      Celiac symptoms

      By Dana0207 · Posted

      Thank you so much for your replies. Luckily the rash went away when I completely swore off gluten. It took several months but I have not had a flare in months. So a biopsy is no longer possible. The itch was terrible and apart from bleaching my skin the steroid lotions and potions did nothing. The Gliadin is for accidents and shall be a part of my travel kit from now on. This past exposure has made a me a little leery about eating anything that was not cooked in my kitchen or a dedicated gluten-free restaurant. As much as I used to love baked goods, I am cured and have become quite the gluten free baker to the point that friends and family forget that my cakes/cookies/and bread are not "real". I guess I will have to wait for the new blood test to come out to get confirmation but I have a suspicion that the rash was dermatitis herpetiformis.
    • Jmartes71
      Nateral remedies

      By Jmartes71 · Posted

      Hello, I just wanted to share with the frustration of skin issues and seeing dermatologist and medications not working for years, I did my own healing experiment. As of last week I have been taking a drop internally under the tongue of Vetiver and putting on topically on sores Yellow/Pom.I am seeing a extreme difference at a rapid time.Im also noticing my nails a little harder. Ive always been into natural properties because I feel its safer for the body.I know short time, but really seeing a difference. I also feel the the trapped gases that causes bloating helps break down as well.Curious if any body else can benefit from and has tried. Products is made by Doterra by Dr Hill
    • Scott Adams
      Is Caputo gluten free flour really free of gluten?

      By Scott Adams · Posted

      We have a category of articles on this topic if you really want to dive into it: https://www.celiac.com/celiac-disease/miscellaneous-information-on-celiac-disease/gluten-free-diet-celiac-disease-amp-codex-alimentarius-wheat-starch/
    • Scott Adams
      Celiac symptoms

      By Scott Adams · Posted

      I agree with @trents, and the rash you described, especially its location and resistance to steroids, sounds highly characteristic of dermatitis herpetiformis, which is the skin manifestation of celiac disease. The severe and prolonged reaction you're describing five days after a small exposure is, while extreme, not unheard of for those with a high sensitivity; the systemic inflammatory response can absolutely last for several days or even weeks, explaining why you still don't feel right. Your plan to avoid a formal gluten challenge is completely understandable given the severity of your reactions, and many choose the same path for their well-being. While experiences with GliadinX (they are a sponsor here) are mixed, some people do report a reduction in the severity of their symptoms when taken with accidental gluten, though it is crucial to remember it is not a cure or a license to eat gluten and its effectiveness can vary from person to person. For now, the absolute best advice is to continue being hyper-vigilant about cross-contamination—buffets are notoriously high-risk, even with good intentions. Connecting with a gastroenterologist and a dermatologist who specialize in celiac disease is essential for navigating diagnosis and management moving forward. Wishing you a swift recovery from this last exposure. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
×
×
  • Create New...