Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Should I Push?


sarahelizabeth

Recommended Posts

sarahelizabeth Contributor

I visited these boards this time last year when our GI dr was debating testing my youngest for celiac. He never did end up testing him but now I am wondering whether I should push for it?? He's 21 months old now. This time last year he wasn't gaining weight (at all) and was falling completely off the growth charts. He had chronic constipation issues that wouldn't resolve even with miralax. He had chornic ear infectiosn (11 in 18 months and has had 2 sets of tubes), and horrible eczema as well. The GI Dr wanted us to do allergy testing first before he started looking at celiac or even possible hirshprungs. We thought he had a dairy allergy. Ended up he didn't and we started him on whole milk which he did MUCH better on than formula... finally started gaining some weight.

We found out at 11 months he had a peanut allergy... then at 20 months we found out he was also allergic to most all tree nuts, as well as vanilla, and green peppers. We've finally removed all his allergens but aren't seeing much improvement (some but not what we were hoping for). He's still constantly got a pimply eczema rash (does flare something awful if he does get an accidently exposure to an allergen), now he goes back and forth between diarrhea and constipation... his stools are often a very light yellow color and smell something fierce. He's still small BUT he's actually gaining weight now... up to the 10-25th percentile for weight now finally (up from below the 3rd before a year). He NEVER eats... its not that he's picky... seems totally disinterested and acts like it makes him sick to eat. Lately (the reason I've become concerned again) he's been sleeping ALL the time... falling asleep less than 2 hours after he wakes up and sleeping 16-17 hours a day... 3-4 hours more than he used to. I thought maybe it was a growth spurt but its been going on WAY longer than that and he's not eating to support a growth spurt. I am not sure what to think???


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast

I'd have him tested.

If gluten is not the problem, keep looking for what is. Some of us feel better on a gluten-free diet but have other health problems causing some of the symptoms.

Many different diseases that have a systemic reaction all have very similar symptoms.

I'd still try the diet once the testing is completed just to see if he responds favorably to it. But don't do it before the testing or it can affect the results.

plantime Contributor

Insist his docs run the tests. They are not near as bad as docs claim they are, and the diet is not even close to as bad. If your docs absolutely refuse to do the tests, then go glutenfree for him, and see if he gets better.

Juliet Newbie

Yes - insist that he run the test. This is very similar to how my son started getting very noticeably sick. It was during the time that he started getting very lethargic that he began to lose weight and get the distended belly and grey skin tones. Up until that time, he was only having the constipation/diarrhea cycle; he was still gaining weight and height.

ryebaby0 Enthusiast

Why not just start him on a gluten-free diet? The doctor's opinion is interesting, but not actually necessary....

happygirl Collaborator

If your doctor is not interested in running the tests, I would find another doctor who is open to it. Make sure the run the FULL Celiac panel.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,215
    • Most Online (within 30 mins)
      7,748

    Louise P
    Newest Member
    Louise P
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Fayeb23
      Thank you that’s really helpful, hopeful won’t have to have a biopsy.
    • RMJ
      That means the normal range (i.e. not celiac disease) would be a result less than 14.99.  Your result is WAY above that. Some gastroenterologists would diagnose that as celiac disease even without a confirming biopsy because it is more than ten times the top of the normal range.
    • Redanafs
      Hi everyone. Back in 2022 I had blood work drawn for iga ext gliadin. Since then I’ve developed worse stomach issues and all other health issues. My doctor just said cut out gluten. He did no further testing. Please see my test results attached. I just need some direction cause I feel so ill and the stomach pain is becoming worse. Can this test show indications for other gastrointestinal diseases?
    • Fayeb23
      Thank you. These were the results TTG ABS NUMERICAL: > 250.0 U/mL [< 14.99]  Really don’t understand the results!
    • Scott Adams
      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
×
×
  • Create New...