Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Overaeacting


Nikki2003

Recommended Posts

Nikki2003 Contributor

My mother inlaw was talking with my husband and he is also convinced from her that alivia who is 7 years old may have a tapeworm. I think they are way over reacting. She eats ALOT cannot usually satisfy her she is still losing weight. She takes food at night up to her room and hides the evidence under her bed. She does this everynight and she is on a sleep aid becasue she doesn't sleep well atall. And her hunger wakes her up. I have even tried feeding her shortlt before bed,And it doesn't help. Any thoughts on what could be going on? She is on a gluten free diet for celiac.

I am clueless.

Thanks in advance


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast

I see from your signature that she's been gluten-free since Dec. 06. It took me more time than that to slow down in my eating (I used to eat two or three times what my 6'2" hubby eats!!) and gain weight, and I didn't have any intestinal damage at all! Be sure all the gluten is out of her diet ... look for places it may be hiding ... hopefully, they will take their determination and help you be sure she's 100% gluten-free!!

BTW, hubby still calls me a Hobbit because I eat so often!!

2kids4me Contributor

uh, I hope she is kidding about the tapeworm, to get tapeworms she would have to eat a mouse, or bird....(they require a secondary host).

Yes, she may need more time for her intestine to heal, but if you have concerns, please contact her doctor and mention it.

What kinds of food do you feed before bed? Protein will help slow digestion and satisfy hunger over long term - so combining a protein + starch/ fruit /vege/yogurt/ may help.

Does she show any signs of lactose intolerance?

Sandy

shayesmom Rookie
uh, I hope she is kidding about the tapeworm, to get tapeworms she would have to eat a mouse, or bird....(they require a secondary host).

You can get tapeworms by playing outdoors, eating undercooked meat or through being exposed to a human that has tapeworm (via infected feces on toilet seat and improper hygiene). It's really not that far-fetched....but not incredibly common either. Open Original Shared Link. There are tests that can be run to rule this out.

I suppose that you could also have a blood check done to screen for elevated antibodies (in case she's accidentally getting gluten). Or you could look into other food intolerances like casein, soy and possibly egg. It's hard to gauge how "extreme" the eating habits are unless you physically write it down and begin to look at real caloric intake and the ratio of carbs, fats and proteins. Some combinations promote weight maintenance/weight loss while others promote weight gain.

With that said, I can tell you that my dd wasn't gaining weight due to a problem with casein and soy. And with casein...her sleep habits were atrocious. Within a few days of taking it out of diet, she was like a different child and her weight started to climb. She's still a peanut...but a peanut who is growing at a steady rate that is on the growth charts.

Generic Apprentice

It took me about 4 years to start not feeling hungry all the time and to actually start putting weight on. I could feel physically full but still have the hunger sensation.

Nikki2003 Contributor
It took me about 4 years to start not feeling hungry all the time and to actually start putting weight on. I could feel physically full but still have the hunger sensation.

-Laurie

thanks everyone. She and nicole have a follow up with the gi dr on the 19th to redo blood work. And they have another appt on the 21st for food allergy testing. Alivia's should be interesting because not always but often after she eats anything she breaks out in a rash.

celina

gfp Enthusiast

Sorry ... but if she's hiding food then is she perhaps also cheating on her diet?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Nic Collaborator

For the first year my after my son was diagnosed he was like an eating machine. We used to call it the feeding frenzy. He would go from one thing to the next. We thought he just liked junk so we limited him to healthy foods only (yogurt, fruit, etc.) but he ate that the same way. I think his body was just catching up. Now, 2 years after diagnosis, he eats normally but has gained a total of 15 pounds in the past 2 years and has grown 6 inches. I would say he has caught up.

Nicole

Nikki2003 Contributor
For the first year my after my son was diagnosed he was like an eating machine. We used to call it the feeding frenzy. He would go from one thing to the next. We thought he just liked junk so we limited him to healthy foods only (yogurt, fruit, etc.) but he ate that the same way. I think his body was just catching up. Now, 2 years after diagnosis, he eats normally but has gained a total of 15 pounds in the past 2 years and has grown 6 inches. I would say he has caught up.

Nicole

all the food she takes is gluten free because she takes snacks and hides them under her bed, I totally gutted her room the other day so is she hides something I will find it.

But she went to the ped the other day and she was 49.6 lbs from 54 in nov. he wants her to eat a boost or protein bar a day or 2 a day and he wants to see her in 6 weeks to see if she is gaining or atleast maintaining the weight.

Thanks for all the info.

celina

ptkds Community Regular

Has she been checked for diabetes? Increased appetite is one symptom of type 1 diabetes

Just a thought. Good luck!

ptkds

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    2. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748

    Moooey
    Newest Member
    Moooey
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.