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Epilepsy, Candida, Parasites


ginag

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ginag Newbie

I am not familiar with forums, but I know that I cannot do this alone. I am gluten intolerant, have epilepsy, candida albicans, and gastrointestinal parasites. Neurologists/Doctors don't seem to want to touch the idea of the diet playing a role in any part of this. My seizures have increased, and I am getting desparate for some guidance. My family wants me to get better, but is quick to believe that my meds should be changed. Does anyone have problems similar to the ones that I have listed ablove? Any input would be greatly appreciated.

Thak you

ginag


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zkat Apprentice
I am not familiar with forums, but I know that I cannot do this alone. I am gluten intolerant, have epilepsy, candida albicans, and gastrointestinal parasites. Neurologists/Doctors don't seem to want to touch the idea of the diet playing a role in any part of this. My seizures have increased, and I am getting desparate for some guidance. My family wants me to get better, but is quick to believe that my meds should be changed. Does anyone have problems similar to the ones that I have listed ablove? Any input would be greatly appreciated.

Thak you

ginag

I was diagnosed with idiopathic epilepsy in 1994. Looking back, all my seizures were right after major allergic reactions that could not be explained. (Hives, etc) Since gluten-free, I have not had any seizures. It is amazing what a difference it has made.

  • 2 weeks later...
moonlight Rookie
I am not familiar with forums, but I know that I cannot do this alone. I am gluten intolerant, have epilepsy, candida albicans, and gastrointestinal parasites. Neurologists/Doctors don't seem to want to touch the idea of the diet playing a role in any part of this. My seizures have increased, and I am getting desparate for some guidance. My family wants me to get better, but is quick to believe that my meds should be changed. Does anyone have problems similar to the ones that I have listed ablove? Any input would be greatly appreciated.

Thak you

ginag

Hello, my husband has gluten intolerance and we have been gluten free since last july. Eventhough his stomach/intestine problems got better in time, a lot of other things were still going on. during november-december, he started to have intense muscle spasms, jerks like seisures/epilepsy so we saw two different neurologist, they couldnt find anything..he lost 35 pounds.. he still has very low fever occasionally, therefore we suspect that he might have parasites, (although his doctor did a test last summer couldnt find anything) now he is seeing a nutritionist about that and this person thinks that the reason could be parasites and we are following his advices. it seems to help so far. I hope this helps.

ravenwoodglass Mentor
I am not familiar with forums, but I know that I cannot do this alone. I am gluten intolerant, have epilepsy, candida albicans, and gastrointestinal parasites. Neurologists/Doctors don't seem to want to touch the idea of the diet playing a role in any part of this. My seizures have increased, and I am getting desparate for some guidance. My family wants me to get better, but is quick to believe that my meds should be changed. Does anyone have problems similar to the ones that I have listed ablove? Any input would be greatly appreciated.

Thak you

ginag

I can answer about the seizures, I had temporal lobe seizures for years, the only time I get them now is when glutened. The candida I know is fairly common amongst celiacs. As for the parasites, your doctor is the one to go to for this. He will give you some stool sample tubes with chemicals that you bring back to the lab that will clearly show any parasites that are present.

  • 4 years later...
frustratedwithdoctors Newbie

I have the exact same issues, seizures (no clue why-every test done possible)-candida, which i beleive, and stomach issues like crazy. A few days ago i went to a homeopathic doctor who did an allergy test and organ test, and it showed i was allergic to gluten/wheat/corn/caffeine..and the list goes on. So i'm on a strict diet, plus a candida cleanse and tons of vitamins. im drinking this liquid called"silver" which supposed to help. Also it showed my pancreas, small intestine, and adrenal gland were way off, and my ph was 5.5 should be 7 and over.

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    • Russ H
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    • knitty kitty
      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
    • NanceK
      So interesting that you stated you had sub clinical vitamin deficiencies. When I was first diagnosed with celiac disease (silent), the vitamin levels my doctor did test for were mostly within normal range (lower end) with the exception of vitamin D. I believe he tested D, B12, magnesium, and iron.  I wondered how it was possible that I had celiac disease without being deficient in everything!  I’m wondering now if I have subclinical vitamin deficiencies as well, because even though I remain gluten free, I struggle with insomnia, low energy, body aches, etc.  It’s truly frustrating when you stay true to the gluten-free diet, yet feel fatigued most days. I’ll definitely try the B-complex, and the Benfotiamine again, and will keep you posted. Thanks once again!
    • knitty kitty
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