Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What To Eat


confused

Recommended Posts

confused Community Regular

I have no idea what i can eat and what i cant eat now. I am feeling a little overwhelmed. I always figured i had a dairy problem, but to actually know about it now, makes it so much worse. Will i need to take calcium pills now? And what all is included in casein, i know milk, cheese, ice cream, but what else?

paula


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kabowman Explorer

I take calcium pills and have been DF/CF for years. I take one in the AM and one in the PM.

Avoid all milk products. Non-dairy cheeses add casein back in so thos should be avoided too. Sorry.

You adjust to the lifestyle and it really isn't so bad, once you do and the non-dairy milks work great for cooking and are actually good once you get used to them.

If soy isn't a problem for you, you can still have some margarines - others here should be able to give you a list of what you can have, I can't have soy so I can't have any.

confused Community Regular
I take calcium pills and have been DF/CF for years. I take one in the AM and one in the PM.

Avoid all milk products. Non-dairy cheeses add casein back in so thos should be avoided too. Sorry.

You adjust to the lifestyle and it really isn't so bad, once you do and the non-dairy milks work great for cooking and are actually good once you get used to them.

If soy isn't a problem for you, you can still have some margarines - others here should be able to give you a list of what you can have, I can't have soy so I can't have any.

So what about soy milk or rice milk?

Im taking it soy cheese is a no-no.

paula

kabowman Explorer

Check the ingredients for the soy cheese. Soy, rice, almond, hazelnut milks are all OK. I cannot tolerate something in them myself so I use Vance's which is only through mail order but so far, the only one that doesn't make me sick. I liked the hazelnut milk too...

Jestgar Rising Star

There are some vegan cheeses as well. Also dairy-free ice cream. And you can make your own ice cream using coconut milk. Coconut milk fudge is very good.

confused Community Regular
Check the ingredients for the soy cheese. Soy, rice, almond, hazelnut milks are all OK. I cannot tolerate something in them myself so I use Vance's which is only through mail order but so far, the only one that doesn't make me sick. I liked the hazelnut milk too...

thanks for your replies, i have never looked for hazelnut milk, that sounds really good, i use to love hazelnut creamer in my coffee during my college days, even tho i dont like coffee anymore lol.

I will look at the ingredients on the soy cheese, i am going to go shopping tonight when my hubby gets off work so i can take my time and look at things.

paula

Mango04 Enthusiast

A gluten-free/casein-free diet is much easier to follow if you stick to more natural/organic foods. (That's assuming you don't find an organic diet difficult :)) You'll really find an abundance of food you can eat at health food stores, farmer's markets and the like.

I like hemp milk, rice milk and almond milk. If you eat a variety of whole foods, including things like green vegetables and almonds, you shouldn't have to worry too much about calcium.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



hathor Contributor

Remember, google is your friend :lol: Here is one list of ingredients one must avoid on a Gluten-free Casein-free diet:

Open Original Shared Link

There are lists for just milk allergies, too, like: Open Original Shared Link

Always check ingredients. I've seen soy milk with casein in it. Things identified as "veggy" having it too.

I don't worry about calcium because I don't eat the things that leach it out of my bones. I also eat calcium-rich plant foods.

If you are a meat-eater you may need supplemental calcium. You can always keep track of what you eat for a few typical days, look up the calcium content, and see where you end up. If you do supplement, read up on it. You need to have the right balance with magnesium for one thing.

You can google for yourself and find a list of calcium-rich foods besides dairy.

confused Community Regular
Remember, google is your friend :lol: Here is one list of ingredients one must avoid on a Gluten-free Casein-free diet:

Open Original Shared Link

There are lists for just milk allergies, too, like: Open Original Shared Link

Always check ingredients. I've seen soy milk with casein in it. Things identified as "veggy" having it too.

I don't worry about calcium because I don't eat the things that leach it out of my bones. I also eat calcium-rich plant foods.

If you are a meat-eater you may need supplemental calcium. You can always keep track of what you eat for a few typical days, look up the calcium content, and see where you end up. If you do supplement, read up on it. You need to have the right balance with magnesium for one thing.

You can google for yourself and find a list of calcium-rich foods besides dairy.

I have been having fun with google today. But thank you for those 2 sites. I think i will just live in the produce and veggie aisles for the rest of my life. I use to be a vegatarian, and i think life was easier then lol.

But thanks for everyones help today. I know i can get threw this. And i will love how i feel in a few days, weeks or months

paula

Juliebove Rising Star

My daughter and I love this stuff!

Open Original Shared Link

She likes the pasta and chreese, although I don't care for it too much. Tastes too much like mustard to me. I do like the nacho chreese sauce though. Can't tell it from the real thing!

For pasta that's close to mac and cheese I like:

Open Original Shared Link

The Say Cheez. Very good!

I also make raw vegan nut cheeses from time to time. And I use nutritional yeast to give foods a cheesy flavor. You can put it in/on bread, crackers, popcorn, casseroles, etc.

confused Community Regular
My daughter and I love this stuff!

Open Original Shared Link

She likes the pasta and chreese, although I don't care for it too much. Tastes too much like mustard to me. I do like the nacho chreese sauce though. Can't tell it from the real thing!

For pasta that's close to mac and cheese I like:

Open Original Shared Link

The Say Cheez. Very good!

I also make raw vegan nut cheeses from time to time. And I use nutritional yeast to give foods a cheesy flavor. You can put it in/on bread, crackers, popcorn, casseroles, etc.

thanks for all those, im going to look into them ASAP

im having withdrawls alrady lol

paula

Mango04 Enthusiast

Yeah Mac and Chreese is good. The trick is to add about 3/4 cup liquid (as opposed to the 1/4 cup they tell you to add) and then plenty of Earth Balance or olive oil. Sea salt and italian herbs help too. :)

HawkFire Explorer

Kinkinnick .com has a full line of Gluten-free Casein-free breads. All are very good. We are dairy free. I use coconut oil in place of butter. coconut oil is good in all baked goods with chocolate. Coconut milk *only from a young coconut* is great in baked good. And on chicken and fish. Hummus is a wonderful spread when cream cheese is no longer an option.

Juliebove Rising Star
Yeah Mac and Chreese is good. The trick is to add about 3/4 cup liquid (as opposed to the 1/4 cup they tell you to add) and then plenty of Earth Balance or olive oil. Sea salt and italian herbs help too. :)

I add cubes of ham to it when I make it. Of course as luck would have it, I don't like ham either. But everyone else who has tried it this way has liked it. The ham and the mustard flavor seem to go well together.

harriedlate Newbie
thanks for all those, im going to look into them ASAP

im having withdrawls alrady lol

paula

hi Paula,i found a dairy free,egg free ,soy free gluten free english muffin that is from Joans gfgreatbakes.She has a website and you can look at the muffins.They are really delicious.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    2. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

    3. - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    4. - trents replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Taking Probiotics but Still Getting Sick After Gluten – Advice?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,216
    • Most Online (within 30 mins)
      7,748

    Athenablue
    Newest Member
    Athenablue
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.