Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Symptoms Does Your Child Have When Glutened?


hannahsue01

Recommended Posts

hannahsue01 Enthusiast

My daughter was never officialy diagnosed and had the full blood tests wich came back neg. She is five and had constipation, mood problems, always had a stomach ache, always hungry sneaking food, is only in the 5%, and so on. We put her on a gluten-free diet ourselves and saw improvment with everything except growth. When she would get glutened she would throw up. We just tested her with some cookies while she was off school this week without her knowing. She complained of a stomach ache and a bad headache wich she kept saying was getting worse throughout the day. She woke up this morning with quite a few mouth blisters. I was wondering if this is typical? I am still argueing with a few of our friends and family who says she doesn't have it and that they can grow out of it.....errr. I guess maybe I need some reasurance that I am on the right track with her....and if you think not let me know.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ptkds Community Regular

I think you have found your answer. I have heard of ppl getting mouth blisters when they have gluten. My dd gets a bad stomach ache when she gets glutened. ANd my mom gets headaches when she gets glutened.

Just ignore what others say and keep her on the diet. The improvement on the diet is a test by itself, and it came out positive. So you can tell ppl that she has celiac disease, or at least a gluten intolerance. You are her parent, so you get to decide what she eats, anyway.

Good Luck!

ptkds

  • 2 weeks later...
purplemom Apprentice

I agree! When glutened...Our daughter gets headache, stomach ache, leg cramps, extremely moody, complains about everything, D (sometimes), dry sticky eyes, it is a nightmare....so anyway I think this disease can bring on all sorts of symptoms. Trust your instinct and don't let people break you down. You know your childs behavior better than anyone else. It cannot hurt her to be gluten free!

Best of luck

Cali

natalie Apprentice

My daughter gets clammy, sweaty, tired and vommits for a few hours. She also get really irritable for a few days after. Her legs get sore

Natalie

FeedIndy Contributor

My kids symptoms are all over the map with gluten. They can get a stomachache (older 2-no idea on the baby), headache (DD9), flushed cheeks (all 3), insane hunger (DD4), very tired (DD1) and become generally cranky, mean, angry kids.

ssjrobbins Newbie

I was thinking of posting this same question earlier today. Both of my children have been diagnosed with celiac disease through biopsy and we are very strict with their diet. I have recently started eating Gluten Free as well. I do not have any glaring symptoms but it doesn't hurt to eat the same way they do. Anyhow, we went to a birthday party for my niece on Saturday and my sister specifically prepared a gluten-free menu for myself, my kids and her (she is gluten-free as well). That night I had a migraine and the next morning my daughter (4) woke up not feeling well and had a slight fever of about 100.4 and then today my son (20 months) had a fever of 101.3 and was very clammy, sweating and I could tell just not feeling well. I hate to blame it on the food at the party, but I think it is ironic that the three of us all eat gluten-free and in the next two days were all feeling ill and my husband is fine.

My question is this....do any of your kids get a slight fever when they have been glutened?

Thanks!!!

girlfromclare Apprentice

My son gets overwhelmingly cross; everything upsets him... we can always tell when he has had some form of cross contamination because he will come in to a room and if someone even says hello, he is grumpy and crying... banging things around the place, generally a nightmare. He will also complain of stomach ache but it is never generalised... kind of all over so I think (as he is only 5) that he just cant voice exactly whats wrong - that he feels horrible all over. Thats my reading of it but boy does he get mean and cranky!!! We try to avoid cross contamination at all costs!!!

By the way I have read in tonnes of places on this board and on other sites that children (and adults) with celiac suffer from canker sores (or blisters) in the mouth... so sounds definite to me.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Hmart replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Is this celiac?

    2. - knitty kitty replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Fiber Supplement

    3. - knitty kitty replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      ttg iga high (646 mg/dl) other results are normal

    4. - Trish G replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Fiber Supplement

    5. - Wheatwacked replied to Larzipan's topic in Related Issues & Disorders
      36

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,344
    • Most Online (within 30 mins)
      7,748

    GFBB95
    Newest Member
    GFBB95
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Hmart
      Hello again. Thank you for the responses to date. I have had several follow-ups and wanted to share what I’ve learned. About a month after my initial blood test and going gluten free, my TtG went from 8.1 to 1.8. I have learned that my copper is low and my B6 is high. My other vitamins and nutrients are more or less in range. After I glutened myself on 10/24, I have been strict about being gluten free - so about a month. I have been eating dairy free and low FODMAP as well because it’s what my stomach allows. Baked fish, potatoes, rice, etc. Whole foods and limited Whole foods. I have continued to lose weight but it has slowed down, but a total of about 15 pounds since I went gluten free. Along with stomach pain, my symptoms included nausea, body and joint pain, a burning sensation throughout my body and heart rate spikes. I still have them but I have them less now. These are the symptoms that led to my doctor appointments and subsequent diagnosis. I also did the DNA screening and was positive. So, at this point, the answer is yes, I have celiac. I have two questions for this group. Any ideas on why my enteropathy was so severe (marsh 3B) and my TtG was so minimal? Is that common? Or are there other things to consider with that combo? And this recovery, still having pain and other symptoms a month later (7 weeks gluten free and 4 weeks after the glutening) normal? I’m going to continue down this path of bland foods and trying to heal but would love to understand the reasons for the long journey. I read so much about people who stop eating gluten and feel amazing. I wish that was my experience but it certainly hasn’t been. Thank you again!
    • knitty kitty
      @Trish G,  I like dates, they have lots if fiber as well.  But what I found helped most was taking Thiamine (in the form Benfotiamine which helps promote intestinal healing), Pyridoxine B 6, Riboflavin B 2, and magnesium, and Omega Three fats. The absorption of nutrients is affected by Celiac disease which damages the intestinal lining of the small intestines where our nutrients are absorbed.  If you have constipation, where your body is rather pushing your food away and not interacting with it, the nutrients in the food are not being released and absorbed.  You can develop deficiencies in all the vitamins and minerals necessary for the body to function properly.   The B vitamins cannot be stored for long, so they must be replenished daily.  Thiamine B 1 stores can run out in as little as three days.  Constipation (or diarrhea or alternating) is one of the first symptoms of thiamine deficiency.  Thiamine needs magnesium, Pyridoxine B 6, and Riboflavin B 2 to make the intestinal tract function.  Thiamine and Niacin make digestive enzymes.  Thiamine provides the energy for nerve impulses to carry messages to the brain and back about digestion.  Thiamine provides the energy for the muscle contractions which move your food through the digestive tract. High calorie meals containing lots of starches and sugars can deplete thiamine stores quickly because more thiamine is required to turn them into energy.   Are you taking any vitamin and mineral supplements?  Correction of malnutrition is very important in Celiac disease.  Thiamine, the other B vitamins and magnesium will help with constipation better than adding more fiber.  What did your nutritionist recommend you take, besides just the fiber? The association between dietary vitamin B1 intake and constipation: a population-based study https://pmc.ncbi.nlm.nih.gov/articles/PMC11100033/ Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Association between dietary vitamin B6 intake and constipation: a population-based study https://pmc.ncbi.nlm.nih.gov/articles/PMC11584952/
    • knitty kitty
      @kpf, Were you eating ten grams or more of gluten daily in the month preceding your antibody blood tests? TTg IgA antibodies are made in the intestines.  Ten grams of gluten per day for several weeks before testing is required to provoke sufficient antibody production for the antibodies to leave the intestines and enter the blood stream and be measured in blood tests. If you had already gone gluten free or if you had lowered your consumption of gluten before testing, your results will be inaccurate and inconclusive.   See link below on gluten challenge guidelines. Have you had any genetic testing done to see if you carry genes for Celiac disease?  If you don't have genes for Celiac, look elsewhere for a diagnosis.  But if you have Celiac genes, you cannot rule out Celiac disease. You mentioned in another post that you are vegetarian.  Have you been checked for nutritional deficiencies?  The best sources of the eight essential B vitamins are found in meats.  Do you supplement any of the B vitamins as a vegetarian? Deficiency in Thiamine Vitamin B 1 is strongly associated with anemia which can cause false negatives on antibody tests.  Fatigue, numbness or tingling in extremities, difficulty with coordination, headaches and anemia are strongly associated with thiamine deficiency.  Other B vitamins that contribute to those symptoms are Riboflavin B 2, Pyridoxine B 6, Folate B 9 and B12 Cobalamine.  The eight B vitamins all work together with minerals like magnesium and iron.  So your symptoms are indicative of B vitamin deficiencies.  You can develop vitamin and mineral deficiencies just being a vegetarian and not eating good sources of B vitamins like meat.  B vitamin deficiencies are found in Celiac due to the malabsorption of nutrients because the lining of the intestines gets damaged by the antibodies produced in response to gluten.    
    • Trish G
      Thanks, I'm not a big fan of prunes but did add them back after stopping the Benefiber. Hoping for the best while I wait to hear back from Nutritionist for a different fiber supplement.  Thanks again
    • Wheatwacked
      If you were wondering why milk protein bothers you with Celiac Disease.  Commercial dairies supplement the cow feed with wheat, which becomes incorporated in the milk protein. Milk omega 6 to omega 3 ratio: Commercial Dairies: 5:1 Organic Milk: 3:1 Grass fed milk: 1:1
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.