Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Last Night...


JerryK

Recommended Posts

JerryK Community Regular

Like I said last week, I've been feeling really well. I haven't had the runs in weeks and weeks. It's been so long since my stomach felt bad that the memory of it is fading...if you know what I mean.

I start to think...hmmm...there's nothing wrong with me....I feel great......and so forth...

So last night I'm sitting around...you know just wanting something...not really sure what, just know I'm not satisfied.

My daughter just graduated from college, and some of our friends were kind enough to bake her a big Chocolate Cake.

In addition to that we still have some of those Thin Mint Girl Scout Cookies around.

I finally couldn't stand it any longer and announced I was going to eat some cookies. My daughter followed me in to the kitchen saying "daddy are you sure you want to make your self sick?"

I had one of those Thin Mint Cookies in my mouth....and THEN had reservations and spit it out.

But I wanted it, I wanted it bad. It's like I need a shock collar to zap me every time I start thinking about cookies or cake....


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



confused Community Regular
Like I said last week, I've been feeling really well. I haven't had the runs in weeks and weeks. It's been so long since my stomach felt bad that the memory of it is fading...if you know what I mean.

I start to think...hmmm...there's nothing wrong with me....I feel great......and so forth...

So last night I'm sitting around...you know just wanting something...not really sure what, just know I'm not satisfied.

My daughter just graduated from college, and some of our friends were kind enough to bake her a big Chocolate Cake.

In addition to that we still have some of those Thin Mint Girl Scout Cookies around.

I finally couldn't stand it any longer and announced I was going to eat some cookies. My daughter followed me in to the kitchen saying "daddy are you sure you want to make your self sick?"

I had one of those Thin Mint Cookies in my mouth....and THEN had reservations and spit it out.

But I wanted it, I wanted it bad. It's like I need a shock collar to zap me every time I start thinking about cookies or cake....

Well i guess it is good u spit it out lol.

Im hoping you go home today and throw away the rest of the thin mints or have a family member eat them all, so you are no longer tempted by them.

I for one got gltuened last night and i have no idea from what, but im feeling terrible.

I sometimes wonder if it is best to get glutened from eating something really good, or getting glutened and having no idea what caused it lol

paula

Jestgar Rising Star

You do have a shock collar. It just doesn't work until several hour later and it's attached to your intestine :ph34r:

Phyllis28 Apprentice
But I wanted it, I wanted it bad. It's like I need a shock collar to zap me every time I start thinking about cookies or cake....

Jerry,

You have a shock collar, it is called aversion therapy. Just think about how sick you will be if you eat the gluten poison.

You might also consider keeping gluten free treats in the house such as ice cream, popcorn or gluten free candy. You can grab this instead of the cookies or cake.

It will get easier to resist temptation the longer you are gluten free.

UR Groovy Explorer

Frickin

GeoffCJ Enthusiast
Frickin
sfm Apprentice
Well i guess it is good u spit it out lol.

Im hoping you go home today and throw away the rest of the thin mints or have a family member eat them all, so you are no longer tempted by them.

I for one got gltuened last night and i have no idea from what, but im feeling terrible.

I sometimes wonder if it is best to get glutened from eating something really good, or getting glutened and having no idea what caused it lol

paula

I have been accidentally glutened several times, and had the same thought (darn, I didn't even enjoy it!!!)

:P


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sfm Apprentice
Like I said last week, I've been feeling really well. I haven't had the runs in weeks and weeks. It's been so long since my stomach felt bad that the memory of it is fading...if you know what I mean.

I start to think...hmmm...there's nothing wrong with me....I feel great......and so forth...

So last night I'm sitting around...you know just wanting something...not really sure what, just know I'm not satisfied.

My daughter just graduated from college, and some of our friends were kind enough to bake her a big Chocolate Cake.

In addition to that we still have some of those Thin Mint Girl Scout Cookies around.

I finally couldn't stand it any longer and announced I was going to eat some cookies. My daughter followed me in to the kitchen saying "daddy are you sure you want to make your self sick?"

I had one of those Thin Mint Cookies in my mouth....and THEN had reservations and spit it out.

But I wanted it, I wanted it bad. It's like I need a shock collar to zap me every time I start thinking about cookies or cake....

It sounds like you had an intervention from your daughter, Jerry! ;)

My children are very aware and sensitive to my problem, even though I've only been gluten free since November. But they remember me getting sick. Two weeks ago I accidentally glutened myself by serving them pizza, then forgetting to wash the flour off my hands before I ate. My 10 year old daughter unfortunately walked in on me while I was emptying my stomach, couldn't keep dinner down. And her reaction was, Oh no, Mom, did you have wheat?

It sounds like your daughter is on the ball, that's a blessing...!

:) Sheryll

GeoffCJ Enthusiast
I have been accidentally glutened several times, and had the same thought (darn, I didn't even enjoy it!!!)

:P

No kidding! I mean, if I'm going to get sick, an damage my insides, at least let me know I'm going to be sick. I'm ordering a real pizza and getting a 6-pack of beer. Getting sick because of some ingredient I didn't even know about just sucks.

Geoff

CarlaB Enthusiast
But I wanted it, I wanted it bad. It's like I need a shock collar to zap me every time I start thinking about cookies or cake....

Your shock collar is a delayed reaction ... it's the bathroom run.

I eventually got sick of getting sick off gluten ... I'm finally starting to think you may be reaching that point! :lol:

MistressIsis Apprentice

Jerryk, man you slay me! I like that you retain your sense of humor with all this...so I am a junk food junkie! It's the hardest part for me living gluten-free...I found 2 cake mixes that are sooo yummy no one will ever know they're gluten-free.

Bob's Red Mill gluten-free Chocolate Cake mix & also their Brownie mix and Namaste cake mixes. Mom made me a Namaste for my 35th bday and my entire family had rude comments (I;m talking Aunts, Uncles, Cousins, Siblings) and that they wouldn;t eat it, they wanted store bought...I said Good, cause I plan on eating the whole thing. Yeah, turns out they ate my cake & never touched the store bought! I think both have cookie mixes too, I just haven't tried them yet.

I've tried Pamela's stuff and am not impressed (but i am a junkie!) I'll get their biscotti if I'm travelling but that's about it.

OH OH & Kinnickanic (or whatever) has the BEST chocolate covered doughnuts!!!

tarnalberry Community Regular

Your post reminds me of a quote from the vice principle of my high school. Something along the lines of "That's not really a need, that's a want, even though you think it's a need." (It was in relation to getting the classes we wanted/needed, but really, applies to everything.)

JNBunnie1 Community Regular

Actually, the best cookie I ever had was from the Whole Foods Gluten-Free Bakehouse in the freezer section. I used to BE a

Girl Scout, ok? If anyone knows about those bloody cookies, it's me. The Whole Foods gluten-free chocolate chip cookie is FAR better

than any girl scout cookie I ever had! And the peanut butter cookies are a close second. I HIGHLY recommend them for

people suffering cookie monster syndrome.

JerryK Community Regular
suffering cookie monster syndrome.

I like this...I have it :(

Nancym Enthusiast

You need to plan for these things. Have your own "treats" ready when everyone else is indulging.

NoGluGirl Contributor

Dear JerryK,

AAAAHHHHH NOOOOOO!!!!! :o You were doing so well! WTH did you do that for? Bad Jerry!

Bad! Where is that darn newspaper to smack you on the nose with?! I have programmed by brain to see anything with gluten (even my beloved Cheez-Its) as rat poison. Now, I pretty much overlook them, like they are not even there.

Sincerely,

NoGluGirl

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      Son's legs shaking

    2. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      Son's legs shaking

    3. - Scott Adams replied to Russ H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Anti-endomysial Antibody (EMA) Testing

    4. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      Son's legs shaking

    5. - Scott Adams replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Bob red mill gluten free oats

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,869
    • Most Online (within 30 mins)
      7,748

    MaryannHall
    Newest Member
    MaryannHall
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
    • Scott Adams
      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
    • knitty kitty
      @lizzie42, You're being a good mom, seeking answers for your son.  Cheers! Subclinical thiamine deficiency commonly occurs with anemia.  An outright Thiamine deficiency can be precipitated by the consumption of a high carbohydrate meal.   Symptoms of Thiamine deficiency include feeling shakey or wobbly in the legs, muscle weakness or cramps, as well as aggression and irritability, confusion, mood swings and behavior changes.  Thiamine is essential to the production of neurotransmitters like serotonin and dopamine which keep us calm and rational.   @Jsingh, histamine intolerance is also a symptom of Thiamine deficiency.  Thiamine is needed to prevent mast cells from releasing histamine at the slightest provocation as is seen in histamine intolerance.  Thiamine and the other B vitamins and Vitamin C are needed to clear histamine from the body.  Without sufficient thiamine and other B vitamins to clear it, the histamine builds up.  High histamine levels can change behavior, too.  High histamine levels are found in the brains of patients with schizophrenia.  Thiamine deficiency can also cause extreme hunger or conversely anorexia.   High carbohydrate meals can precipitate thiamine deficiency because additional thiamine is required to process carbohydrates for the body to use as fuel.  The more carbohydrates one eats daily, the more one needs additional thiamine above the RDA.  Thiamine is water soluble, safe and nontoxic even in high doses. Keep in mind that gluten-free processed foods like cookies and such are not required to be fortified and enriched with vitamins and minerals like their gluten containing counterparts are.  Limit processed gluten-free foods.  They are often full of empty calories and unhealthy saturated fats and additives, and are high in histamine or histamine release triggers.  It's time you bought your own vitamins to supplement what is not being absorbed due to malabsorption of Celiac disease.  Benfotiamine is a form of Thiamine that has been shown to improve intestinal health as well as brain function. Do talk to your doctors and dieticians about supplementing with the essential vitamins and minerals while your children are growing up gluten free.  Serve nutritionally dense foods.  Meats and liver are great sources of B vitamins and minerals. Hope this helps!  Keep us posted on your progress!
    • Scott Adams
      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.