Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dairy Free-


Guest adamssa

Recommended Posts

Guest adamssa

Hi,

For those of you that are dairy free, how religious are you about eliminating it? (If you don't have an allergy.) For example, I feel fine if I eat choclate with milk as an ingredient, but adding half and half to coffee will give me a lasting reaction. Chocolate is the only thing I really want to eat with dairy in it, and its more expensive if its gluten-free and dairy free.

Sara


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mango04 Enthusiast

I'd completely eliminate all forms of dairy for a month, then slowly add small amounts back in and see if you react. If you do, you should probably avoid it religiously. Just my opinion. :) That's what I did with soy and it blatantly gave me my answer.

confused Community Regular

I have given up all dairy what so ever. I even bought gluten and dairy free butter. I am not taking any chances what so ever. In an yr i am going to try and add back some dairy and see what happens.

paula

Jestgar Rising Star

I avoid it after lunch, and am dairy light the rest of the time. Although I know it isn't doing me any good to eat it, the only symptom that bothers me is not being able to sleep, so that's the only one I control for.

HawkFire Explorer

I avoid it completely. I used to use a bit in a cup of coffee, but I have given that up as well. I purchase no processed foods, use coconut oil for "butter", use rice milk or water for "milk", no cheese, no yogurt, no ice cream. I make rice tapioca pudding with rice milk sometimes as a dessert. The only thing you cannot truly replace seems to be cheese. I make bruschetta rather than pizza, now. I use hummus on my pizza crust. It was difficult to adjust. In the beginning, we would backslide for a few favorites. Then we would talk about why we gave up dairy. We would be recommited. It took awhile. It's very easy now. My children will not eat it out with friends, either. My oldest child was on a weekend camping trip with another family, and the mom called me to ask if he was allergic to dairy because he wasn't eating some food items they'd brought. She simply wanted to be a careful person. I told her we do not eat dairy. I was very proud of him. It's not easy when you are a teenager to be so diligent even when it's for the right reasons.

num1habsfan Rising Star

I've almost eliminated everything. I follow the rule that celiac.ca tought me...with very sensitive lactose intollerance you are allowed 1/2 a cup a day, with meals. That rule usually does work. But I stick with lactose-free butter, Lactaid milk, and the most I use is occasionally i bit of sour cream in borscht, or cheese (I will only eat Old, since it has almost no dairy in it) on pizza. I'll never eat anything by itself. If I go to restaurants or something I take Lactaid pills, and those work also.

Hope that helps!

~ Lisa ~

georgie Enthusiast

I removed dairy completely from my diet and have felt so much better that I am not tempted to add it back. I did eat a huge chocolate easter bunny and get a reaction - and this has convinced me ! But - since then have had small amounts of hard goats milk cheese without a reaction. My next trial is to try pure Jersey Milk - and see if that is OK. Apart from not being able to find a gluten-free bread that did NOT have milk powder - I find dairy free no hassle. Except for Easter Bunnies ;)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



simplicity66 Explorer

I am lactose-intollerant and have been for years...(makes me really wonder how long i have had Celiac Disease before testing positive).....i cant even handle a drop or two in a cup of coffee...i did however find Old lactose-free cheese in my local health food store which for being a past cheese love was a amazing discovery....however i would like to know the brand name of the gluten-free , lactose-free butter and coconut butter that has been mentioned here....maybe i can purchase it here in canada

tarnalberry Community Regular

Depends - are you lactose intolerant or casein intolerant? The answer would be different depending on the two. I'm casein intolerant, and pretty much avoid it all - down to the ingredients. Dark chocolate shouldn't have milk in it anyway. :P (The better, "expensive", dark chocolates are satisfying in much smaller quantities, as well.)

ArtGirl Enthusiast

No dairy at all for me. Sure, I miss cheese, but there is life without dairy. I'm casein intolerant, so that means no dairy for the rest of my life. One doesn't "get over" that like is possible with lactose intolerance.

As with any other food intolerance/allergy - you have to read labels carefully. They put whey in a lot of things, and margarines usually have some dairy in them, although there are a few that are completely dairy-free. I eat dark chocolate only.

ArtGirl Enthusiast

Oops - double post!

num1habsfan Rising Star
I am lactose-intollerant and have been for years...(makes me really wonder how long i have had Celiac Disease before testing positive).....i cant even handle a drop or two in a cup of coffee...i did however find Old lactose-free cheese in my local health food store which for being a past cheese love was a amazing discovery....however i would like to know the brand name of the gluten-free , lactose-free butter and coconut butter that has been mentioned here....maybe i can purchase it here in canada

Fleishmanns! Theres salt-free/lactose-free and just lactose-free.

~ lisa~

Guest adamssa

thanks guys. i guess if i get such a big reaction from adding it to coffee i need to seriously consider giving it up altogether. it didn't show up as an allergen when i had testing done, but we all know how "accurate" blood tests are. what are some brands of dark chocolate without dairy? are there any that aren't made by allergen free companies? those are usually great, but sometimes more costly... hershey's has dairy, doesn't it?

Sara

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - tiffanygosci posted a topic in Coping with Celiac Disease
      0

      New Celiac Mama in My 30s

    2. - knitty kitty replied to klmgarland's topic in Dermatitis Herpetiformis
      8

      Help I’m cross contaminating myself,

    3. - Yaya replied to Jhona's topic in Introduce Yourself / Share Stuff
      29

      Does anyone here also have Afib

    4. - larc replied to Jhona's topic in Introduce Yourself / Share Stuff
      29

      Does anyone here also have Afib

    5. - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      8

      Help I’m cross contaminating myself,


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,921
    • Most Online (within 30 mins)
      7,748

    Serena Rodriguez
    Newest Member
    Serena Rodriguez
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • tiffanygosci
      Hello all! My life in the last five years has been crazy. I got married in 2020 at the age of 27, pregnant with our first child almost two months later, gave birth in 2021. We had another baby in April of 2023 and our last baby this March of 2025. I had some issues after my second but nothing ever made me think, "I should see a doctor about this." After having my last baby this year, my body has finally started to find its new rhythm and balance...but things started to feel out of sorts. A lot of symptoms were convoluted with postpartum symptoms, and, to top it all off, my cycle came back about 4m postpartum. I was having reoccurring migraines, nausea, joint pain, numbness in my right arm, hand and fingers, tummy problems, hives. I finally went to my PCP in August just for a wellness check and I brought up my ailments. I'm so thankful for a doctor that listens and is thorough. He ended up running a food allergy panel, an environmental respiratory panel, and a celiac panel. I found out I was allergic to wheat, allergic to about every plant and dust mites, and I did have celiac. I had an endoscopy done on October 3 and my results confirmed celiac in the early stages! I am truly blessed to have an answer to my issues. When I eat gluten, my brain feels like it's on fire and like someone is squeezing it. I can't think straight and I zone out easily. My eyes can't focus. I get a super bad migraine and nausea. I get so tired and irritable and anxious. My body hurts sometimes and my gut gets bloated, gassy, constipated, and ends with bowel movements. All this time I thought I was just having mom brain or feeling the effects of postpartum, sleep deprivation, and the like (which I probably was having and the celiac disease just ramped it up!) I have yet to see a dietician but I've already been eating and shopping gluten-free. My husband and I have been working on turning our kitchen 100% gluten-free (we didn't think this would be so expensive but he assured me that my health is worth all the money in the world). There are still a few things to replace and clean. I'm already getting tired of reading labels. I even replaced some of my personal hygiene care for myself and the kids because they were either made with oats or not labeled gluten-free. I have already started feeling better but have made some mistakes along the way or have gotten contamination thrown into the mix. It's been hard! Today I joked that I got diagnosed at the worst time of the year with all the holidays coming up. I will just need to bring my own food to have and to share. It will be okay but different after years of eating "normally". Today I ordered in person at Chipotle and was trying not to feel self-conscious as the line got long because they were following food-allergy protocols. It's all worth it to be the healthiest version of myself for me and my family. I would be lying if I said I wasn't a little overwhelmed and a little overloaded!  I am thankful for this community and I look forward to learning more from you all. I need the help, that's for sure!
    • knitty kitty
      On the AIP diet, all processed foods are eliminated.  This includes gluten-free bread.  You'll be eating meats and vegetables, mostly.  Meats that are processed, like sausages, sandwich meats, bacons, chicken nuggets, etc., are eliminated as well.  Veggies should be fresh, or frozen without other ingredients like sauces or seasonings.  Nightshade vegetables (eggplant, potatoes, tomatoes, peppers) are excluded.  They contain alkaloids that promote a leaky gut and inflammation.  Dairy and eggs are also eliminated.   I know it sounds really stark, but eating this way really improved my health.  The AIP diet can be low in nutrients, and, with malabsorption, it's important to supplement vitamins and minerals.  
    • Yaya
      Thank you for responding and for prayers.  So sorry for your struggles, I will keep you in mine.  You are so young to have so many struggles, mine are mild by comparison.  I didn't have Celiac Disease (celiac disease) until I had my gallbladder removed 13 years ago; at least nothing I was aware of.  Following surgery: multiple symptoms/oddities appeared including ridges on fingernails, eczema, hair falling out in patches, dry eyes, upset stomach constantly and other weird symptoms that I don't really remember.  Gastro did tests and endoscopy and verified celiac disease. Re heart: I was born with Mitral Valve Prolapse (MVP) and an irregular heartbeat, yet heart was extremely strong.  It was difficult to pick up the irregular heartbeat on the EKG per cardiologist.  I had Covid at 77, recovered in 10 days and 2 weeks later developed long Covid. What the doctors and nurses called the "kickoff to long Covid, was A-fib.  I didn't know what was going on with my heart and had ignored early symptoms as some kind of passing aftereffect stemming from Covid.  I was right about where it came from, but wrong on it being "passing".  I have A-fib as my permanent reminder of Covid and take Flecainide every morning and night and will for the rest of my life to stabilize my heartbeat.   
    • larc
      When I accidentally consume gluten it compromises the well-being of my heart and arteries. Last time I had a significant exposure, about six months ago, I had AFib for about ten days. It came on every day around dinner time. After the ten days or so it went away and hasn't come back.  My cardiologist offered me a collection of pharmaceuticals at the time.  But I passed on them. 
    • klmgarland
      So I should not eat my gluten free bread?  I will try the vitamins.  Thank you all so very much for your ideas and understanding.  I'm feeling better today and have gathered back my composure! Thank you kitty kitty   I am going to look this diet up right away.  And read the paleo diet and really see if I can make this a better situation then it currently is.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.