Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Brother

JerryK

By JerryK
in Coping with Celiac Disease

Recommended Posts

JerryK Community Regular
JerryK
Posted

So my brother calls me today and he's all excited. The doctor agreed to prescribe Cymbalta for him..

I asked if he liked it, he said "Yes, I don't wake up all stiff and sore in the morning". I'm like you know, perhaps if you'd cut back on the wheat products, it would help out your pain level.

He says, oh I haven't had any wheat in several days now...

So at this point I'm at a loss. If he wants to take Cymbalta to perhaps counteract the effects of wheat,

I guess it's his business. I personally think what he's eating is making him need the AD, but who am I except his DNA double..... <_<

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

I wonder if he told this doctor that he has a twin with gluten intolerance? Jerry, I swear, ya gotta get him on this site.

That would be the fix, well, it may take some time as apparently you share the same scepticism.

Let us at'um :)

Phyllis28 Apprentice
Phyllis28
Posted

I agree with Momma Goose in wondering if your brother told his doctor that his identical twin is gluten intolerant. There is nothing to stop you from calling his doctor's office and asking the your gluten intolerence be added to the family medical history.

Of course, there is the possibility that your brother might take offense to this.

JerryK Community Regular
JerryK
Posted
  • Author
I agree with Momma Goose in wondering if your brother told his doctor that his identical twin is gluten intolerant. There is nothing to stop you from calling his doctor's office and asking the your gluten intolerence be added to the family medical history.

Of course, there is the possibility that your brother might take offense to this.

HE has the symptoms and won't even admit it to himself. JUST like I did only worse...

He's not going to discuss it with his doctor, he doesn't think it's real.

Arrrgghhhh(jerry's head banging on desk)

blueeyedmanda Community Regular
blueeyedmanda
Posted

Jerry,

Sorry to hear about your brother, it is very frustrating. Those are very cute kiddie's in your avatar. :)

JerryK Community Regular
JerryK
Posted
  • Author
Jerry,

Sorry to hear about your brother, it is very frustrating. Those are very cute kiddie's in your avatar. :)

Thanks, those are my sweeet little nieces...I dote on them shamelessly :P

Lisa Mentor
Lisa
Posted

I guess you can lead a horse to water, but you can't make him drink, :(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted
I asked if he liked it, he said "Yes, I don't wake up all stiff and sore in the morning". I'm like you know, perhaps if you'd cut back on the wheat products, it would help out your pain level.

He says, oh I haven't had any wheat in several days now...

I think this is the real reason he's feeling better when he wakes up. ;)

heathen Apprentice
heathen
Posted

be sure to watch him closely until he acclimates to the cymbalta. it's in the class of anti-depressants that can actually increase suicidal thoughts. usually it's most pronounced in teenagers, but you can never be too careful.

hope he'll come around some day. keep fighting the good fight.

NoGluGirl Contributor
NoGluGirl
Posted

Dear JerryK,

I would like to smack that doofus twin of yours right upside the head! :angry: He is as stupid as my parents and brother! My mother takes so many pills now it is unreal. I am surprised she knows her own name! Sometimes she even slurs her words a bit. That concerns me.

Unfortunately, stupidity and stubborness are two diseases no pill can fix. Personally, I feel anti-depressants and all of these other pills are just prescriptions for poison. Drugs like this are handed out like candy. Doctors do not take them very seriously. How many people have to flip out and commit suicide before it stops? Man, would I love to be the attorney prosecuting these drug companies! ;)

Sincerely,

NoGluGirl

JerryK Community Regular
JerryK
Posted
  • Author
Dear JerryK,

I would like to smack that doofus twin of yours right upside the head! :angry:

Oh man, you took the words right out of my mouth :P:P:P

JNBunnie1 Community Regular
JNBunnie1
Posted

Try beating HIS head against the desk instead of yours!!!!

NoGluGirl Contributor
NoGluGirl
Posted
Oh man, you took the words right out of my mouth :P:P:P

Dear Jerry,

Whack! There, that should do it! If not, maybe Tony Soprano should rough him up. ;) That could do the job. I am with JNBunnie1, he needs a good smack.

Sincerely,

NoGluGirl

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. rei.b
      - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      High DGP-A with normal IGA

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
    2. knitty kitty
      - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      High DGP-A with normal IGA

      Food and environmental allergies involve IgE antibodies. IgE antibodies provoke histamine release from mast cells. Celiac disease is not always visible to the naked eye during endoscopy. Much of the damage is microscopic and patchy or out of reach of the scope. Did they take any biopsies of your small intestine for a pathologist to examine? Were...
    3. rei.b
      - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      High DGP-A with normal IGA

      I was tested for food allergies and environmental allergies about 7 months before I started taking Naltrexone, so I don't think that is the cause for me, but that's interesting! The main thing with the celiac thing that is throwing me off is these symptoms are lifelong, but I don't have intestinal damage to correlate with lifelong undiagnosed celiac...
    4. trents
      - trents replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Finding gluten free ingredients

      Welcome to the forum, @Kara S! Warrior bread is a grain free bread product. Google it. There are commercial mixes available, I believe, Youtube videos and many recipes.
    5. knitty kitty
      - knitty kitty replied to Colleen H's topic in Coping with Celiac Disease
      6

      Gluten related ??

      @Colleen H, I have had similar reactions and symptoms like yours. I started following the low histamine Autoimmune Protocol diet developed by a doctor with Celiac Disease herself, Dr. Sarah Ballantyne. Her book, The Paleo Approach, is very helpful in understanding what's going on in the body. Not only do you have antibodies attacking the body...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,130
    • Most Online (within 30 mins)
      7,748
    Tony White
    Newest Member
    Tony White
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      Food and environmental allergies involve IgE antibodies.  IgE antibodies provoke histamine release from mast cells.   Celiac disease is not always visible to the naked eye during endoscopy.  Much of the damage is microscopic and patchy or out of reach of the scope.  Did they take any biopsies of your small intestine for a pathologist to examine?  Were you given a Marsh score? Why do you say you "don't have intestinal damage to correlate with lifelong undiagnosed celiac disease"?   Just curious.  
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for food allergies and environmental allergies about 7 months before I started taking Naltrexone, so I don't think that is the cause for me, but that's interesting!  The main thing with the celiac thing that is throwing me off is these symptoms are lifelong, but I don't have intestinal damage to correlate with lifelong undiagnosed celiac disease.
    • trents
      Finding gluten free ingredients

      By trents · Posted

      Welcome to the forum, @Kara S! Warrior bread is a grain free bread product. Google it. There are commercial mixes available, I believe, Youtube videos and many recipes. 
    • knitty kitty
      Gluten related ??

      By knitty kitty · Posted

      @Colleen H, I have had similar reactions and symptoms like yours.  I started following the low histamine Autoimmune Protocol diet developed by a doctor with Celiac Disease herself, Dr. Sarah Ballantyne.  Her book, The Paleo Approach, is very helpful in understanding what's going on in the body.   Not only do you have antibodies attacking the body, there are mast cells spreading histamine which causes inflammation.  Foods also contain histamine or act as histamine releasers.  Our bodies have difficulty clearing histamine if there's too much.  Following the low histamine AIP diet allows your body time to clear the excess histamine we're making as part of the autoimmune response, without adding in extra histamine from foods.  High histamine foods include eggs, processed foods and some citrus fruits.  The AIP diet allows meat and vegetables.  No processed meats like sausage, luncheon meats, ham, chicken nuggets, etc. No night shades (potatoes, tomatoes, peppers, eggplant).  No dairy.  No grains.  No rice.  No eggs.  No gluten-free processed foods like gluten free breads and cookies.  No nuts.  No expensive processed gluten-free foods.  Meat and vegetables.  Some fruit. Some fruit, like applesauce, contains high levels of fructose which can cause digestive upsets.  Fructose gets fermented by yeasts in the gastrointestinal tract.  This fermentation can cause gas, bloating and abdominal pain.   The AIP diet changes your microbiome.  Change what you eat and that changes which bacteria live in your gut.  By cutting out carbohydrates from grains and starchy veggies like potatoes, SIBO bacteria get starved out.  Fermenting yeasts get starved out, too.  Healthy bacteria repopulate the gut.   Thiamine Vitamin B 1 helps regulate gut bacteria.  Low thiamine can lead to SIBO and yeast infestation.  Mast cells release histamine more easily when they are low in Thiamine.  Anxiety, depression, and irritability are early symptoms of thiamine insufficiency.  A form of thiamine called Benfotiamine has been shown to promote intestinal healing.   Thiamine works with the seven other B vitamins.  They all need each other to function properly.   Other vitamins and minerals are needed, too.  Vitamin D helps calm and regulate the immune system. Thiamine is needed to turn Vitamin D into an active form.  Thiamine needs magnesium to make life sustaining enzymes.  Taking a B Complex and additional Benfotiamine is beneficial.  The B vitamins are water soluble, easily lost if we're not absorbing nutrients properly as with Celiac Disease.  Since blood tests for B vitamins are notoriously inaccurate, taking a B Complex, Benfotiamine, and magnesium Threonate, and looking for health improvements is a better way to see if you're insufficient.   I do hope you will give the low histamine AIP diet a try.  It really works.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.