Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ordered Test

confused

Recommended Posts

confused Community Regular
confused
Posted

Thank you all for your help in deciding what was best for my stepson. I decided to order the enterolab test. I do not want him to suffer anymore, i cant see him going 8 more weeks on gluten. I do feel that at least these results will be good enough for him. I am also hoping they will be enough for school, if not then i will just pack all his lunches and take extra snack stuff at school if they have parties, which they dont have that many in high school anyway..

His dad and I figured if he wants to challenge it later on in life when he is an adult then he can, but for now we know this is the best thing for him.

So i just wanted to tell you all thank you for your responses the last few weeks in helping me figure out what is best for him.

paula

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

Paula:

I know you and your husband have put a lot of thought into this decision. I think it's a wise one. There is no sense in your son being miserable with falling grades.

He's young and he need to be out enjoying his friends :)

JennyC Enthusiast
JennyC
Posted

What are entero tests? :huh: I don't want my son to get a biopsy. He's already had the blood work done.

Thanks.

missyf Newbie
missyf
Posted
Paula:

I know you and your husband have put a lot of thought into this decision. I think it's a wise one. There is no sense in your son being miserable with falling grades.

He's young and he need to be out enjoying his friends :)

missyf Newbie
missyf
Posted

Wow, this is confusing. I was diagnosed with Celiac a 18 months ago. What is this test? How do you get one? I think that I might be allergic to other things. I have been on the diet for 17 months and I am extremely sensitive. I still have episodes at least 3 times a month. They seem to last for days. I have resorted to eating only veggies, fruits, meat, and potatos. I don't know what else to do. Symptoms are still terrible stomach aches (want to go to hospital most times) and D or Const. I also have lower back pain and numbness in my arms, hands, and feet. My gastro doc says that he doesn't have any other answers or test that he can do. I have positive scopes and last one in Dec 06 was better than the others. He told me on the last visit that there is no need for me to see him anymore. Basically, I have it and the diet isn't totally helping symptoms. I am very careful. :blink: Anyone else have similar situation?

Lisa Mentor
Lisa
Posted

I don't have the website for enterolab, but there is a bounty of information here about the test.

Do a search, here

jerseyangel Proficient
jerseyangel
Posted

Here is the link to Enterolab--

Open Original Shared Link

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


JennyC Enthusiast
JennyC
Posted

Thanks for the link. I'm interested in the tests, and am surprised by how affordable they are. (About half the price of a full blood work up.)

confused Community Regular
confused
Posted
  • Author
Paula:

I know you and your husband have put a lot of thought into this decision. I think it's a wise one. There is no sense in your son being miserable with falling grades.

He's young and he need to be out enjoying his friends :)

Thank you momma goose, it was really funny once i hit the submit button i felt like a big sigh of relief, i really felt i did the right decision for him. I cant wait to talk to him when he gets home tonight. I am going to let him choose to start back on the gluten free diet tonight or wait til he goes to a big birthday party on saturday.

paula

confused Community Regular
confused
Posted
  • Author

Just wanted to update. Last night when he came home from wrestling we gave him an option, to quit gluten now, or wait til he went to a big party on saturday. Much to my belief he said he wanted to quit now. He had an regular sandwhich at lunch and he said he had sharp stabbing pains during his reading class, and he said he never ever wants to eat gluten again. Then i told him he would be doing the stool test and he said good, then i wont have to see another doctor or give any more blood anytime soon, and we said no. He was so happy. He also said he will never cheat on again, it isnt worth the pain.

I am so proud of him. and who said teenagers dont know anything lol

paula

jerseyangel Proficient
jerseyangel
Posted

Paula,

I just want to say that I think you have a very sensible son there :D

Keep us posted, please, on his progress.

NoGluGirl Contributor
NoGluGirl
Posted
Wow, this is confusing. I was diagnosed with Celiac a 18 months ago. What is this test? How do you get one? I think that I might be allergic to other things. I have been on the diet for 17 months and I am extremely sensitive. I still have episodes at least 3 times a month. They seem to last for days. I have resorted to eating only veggies, fruits, meat, and potatos. I don't know what else to do. Symptoms are still terrible stomach aches (want to go to hospital most times) and D or Const. I also have lower back pain and numbness in my arms, hands, and feet. My gastro doc says that he doesn't have any other answers or test that he can do. I have positive scopes and last one in Dec 06 was better than the others. He told me on the last visit that there is no need for me to see him anymore. Basically, I have it and the diet isn't totally helping symptoms. I am very careful. :blink: Anyone else have similar situation?

Dear missyf,

I have had similar problems. It is awful. I was doing a lot better the first two months, then I started to feel as bad as before. I stopped eating the dairy again, and that has helped. However, I may have other issues. There is a possibility I have Lyme, Babesia, Leaky-Gut, Bacterial Dysbiosis, plus maybe more food intolerances. I also had my gallbladder out several years ago, and my body does not tolerate any form of oil. I could have Post Cholecystolic Syndrome. :(

As for the Enterolab, it does identify other problem foods. I have not been able to get it done yet. I do not have insurance. I will do it as soon as I can, though! The entire work up is a stool test for antibodies for Celiac, gluten intolerance, casein, soy, and eggs. Plus, they test you for the Celiac genes and gluten intolerance genes. The entire thing costs about $380.

Dear Paula,

I am so glad you stepson is coming around! The misery this disease causes is too much. Even a slight amount makes me violently ill. Cheating is not tempting at all for me! I miss the food, but not enough to damage my intestines for it. Alas, poison is sweet and medicine bitter.

Sincerely,

NoGluGirl

kookaburra Rookie
kookaburra
Posted
Wow, this is confusing. I was diagnosed with Celiac a 18 months ago. What is this test? How do you get one? I think that I might be allergic to other things. I have been on the diet for 17 months and I am extremely sensitive. I still have episodes at least 3 times a month. They seem to last for days. I have resorted to eating only veggies, fruits, meat, and potatos. I don't know what else to do. Symptoms are still terrible stomach aches (want to go to hospital most times) and D or Const. I also have lower back pain and numbness in my arms, hands, and feet. My gastro doc says that he doesn't have any other answers or test that he can do. I have positive scopes and last one in Dec 06 was better than the others. He told me on the last visit that there is no need for me to see him anymore. Basically, I have it and the diet isn't totally helping symptoms. I am very careful. :blink: Anyone else have similar situation?

My son was treated with diflucan (for yeast) and this helped a lot.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,894
    • Most Online (within 30 mins)
      7,748
    Lostcha
    Newest Member
    Lostcha
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Patiently Waiting to See Results

      By Scott Adams · Posted

      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      Gluten free beer ?

      By Scott Adams · Posted

      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Patiently Waiting to See Results

      By trents · Posted

      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
    • trents
      How Come Gluten Didnt Bother Me In Italy

      By trents · Posted

      You state in an earlier post that you don't have celiac disease. Here in this post you state you will "be doing another test". What will this test be looking for? What kind of celiac disease testing have you had done? If you have used a Entero Labs it sounds like you have had stool testing done for celiac disease which is not widely accepted as a valid celiac disease diagnostic testing method. Have you had blood antibody testing for celiac disease done and do you realize that for antibody testing to be valid you must have been eating generous amounts of gluten for a period of weeks/months? 
    • Gigi2025
      How Come Gluten Didnt Bother Me In Italy

      By Gigi2025 · Posted

      No, I've not been diagnosed as celiac.  Despite Entero Labs being relocated to Switzerland/Greece, I'll be doing another test. After eating wheat products in Greece for 4 weeks, there wasn't any reaction.  However, avoiding it here in the states.   Thanks everyone for your responses.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.