Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gfcf Diet


dalma

Recommended Posts

dalma Newbie

I don't have any problem as far as I know with milk or dairy products, but I was tested positive for casein antibodies. I was wondering if I need to be cautious about consuming hidden casein as I need to be with gluten?

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

I would concentrate on the gluten because that is the bad guy that does the damage. As you heal from the gluten damage, you may find that you become more sensitive to casein. To my understanding, gluten will cause damage, but casein causes symptoms and not intestinal damage. I am not 100% on that, though.

Others are more informed.

CarlaB Enthusiast

If you have a casein intolerance, you need to read ingredients.

I tested positive for casein intolerance, went casein free for six months, then challenged it. I don't have any problems with casein. I noticed no difference whether I was consuming it or not.

dalma Newbie

Thank you very much for your replays. I am really not sure if any of my symptoms are either casein or gluten related but I am giving it try. It has been only couple of weeks since I've been on diet and don't feel any different yet, but I am willing to try.

kookaburra Rookie
If you have a casein intolerance, you need to read ingredients.

I tested positive for casein intolerance, went casein free for six months, then challenged it. I don't have any problems with casein. I noticed no difference whether I was consuming it or not.

What is the test for casein intolerance? Thanks!

dalma Newbie
What is the test for casein intolerance? Thanks!

I had Gluten Sensitivity Stool and Gene Panel Complete *Best test/best value from Enterolab. This test includes: Antigliadin, anti-tissue transglutaminase, malabsorption test, gene test, and milk sensitivity test.

CMCM Rising Star

I thought my entire life until last year that I had severe dairy problems. Last year I tested positive for casein and gluten. I eliminated both for quite some time, then later discovered that when not eating gluten, I actually did fine with somewhat limited casein (dairy) in my diet. However, I questioned Enterolab about this, and they told me that if one tests casein sensitive, you should not eat dairy any more than you should eat gluten, that eating casein could also do damage. I don't know what to think at this point, but for what it's worth, my obvious dairy problems seemed to be linked with eating gluten. I seem to do OK with limited dairy, but if I have too much, I do get digestive and D problems with it. :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dalma Newbie
I thought my entire life until last year that I had severe dairy problems. Last year I tested positive for casein and gluten. I eliminated both for quite some time, then later discovered that when not eating gluten, I actually did fine with somewhat limited casein (dairy) in my diet. However, I questioned Enterolab about this, and they told me that if one tests casein sensitive, you should not eat dairy any more than you should eat gluten, that eating casein could also do damage. I don't know what to think at this point, but for what it's worth, my obvious dairy problems seemed to be linked with eating gluten. I seem to do OK with limited dairy, but if I have too much, I do get digestive and D problems with it. :(

I pour regular milk by mistake (hard to get used to all this) in my gluten-free cereal. Didn't want to waste so I ate it, I didn't think it would hurt. Soon later I got nauseated and my heart started beating harder, not so much faster, but stronger. I wonder if that was because of the milk? I would need to do it again just out of curiosity.

Nancym Enthusiast

I tested positive for casein and I "cheat" every now on then, on the casein. I usually end up with a good case of "wind" (shall we say...) if not worse. So there's definitely stuff going on down under that brings on some stormy weather.

hathor Contributor

At first it would probably be good if you were as strict with the casein. You can always challenge later once your system is doing well on a Gluten-free Casein-free diet. You won't know if CF will make you feel better if you never truly go CF.

Just because you never noticed a problem doesn't mean it doesn't exist. I never noticed a problem with soy. But my test results said I had one. I cut out soy and found a few things improving that I had no idea were related. But since I was having soy all the time before, I never knew.

Another thing to consider is how high your score was and how much casein you had been having before the test. I was having very, very little casein and yet my score was pretty high. If you are used to lots of casein and your score was just over the threshold I don't know if you should be as concerned. Just thinking out loud ... I don't know if one can interpret the test results the way I am :rolleyes:

My husband and I are still arguing about whether I have a problem with yeast or not. My test result was just over the threshold. When I cut out yeast, I saw no impact. I also read of a test where a number of newly diagnosed celiacs also had yeast antibodies; after a year on a gluten-free diet, some of them were no longer creating them. I suppose the same thing could happen with anticasein antibodies, but I haven't run across any studies showing this happening. Yeast is the one I am planning on challenging at some point myself.

dalma Newbie
At first it would probably be good if you were as strict with the casein. You can always challenge later once your system is doing well on a Gluten-free Casein-free diet. You won't know if CF will make you feel better if you never truly go CF.

Just because you never noticed a problem doesn't mean it doesn't exist. I never noticed a problem with soy. But my test results said I had one. I cut out soy and found a few things improving that I had no idea were related. But since I was having soy all the time before, I never knew.

Another thing to consider is how high your score was and how much casein you had been having before the test. I was having very, very little casein and yet my score was pretty high. If you are used to lots of casein and your score was just over the threshold I don't know if you should be as concerned. Just thinking out loud ... I don't know if one can interpret the test results the way I am :rolleyes:

My husband and I are still arguing about whether I have a problem with yeast or not. My test result was just over the threshold. When I cut out yeast, I saw no impact. I also read of a test where a number of newly diagnosed celiacs also had yeast antibodies; after a year on a gluten-free diet, some of them were no longer creating them. I suppose the same thing could happen with anticasein antibodies, but I haven't run across any studies showing this happening. Yeast is the one I am planning on challenging at some point myself.

Thank for you the reply.

I am trying to avoid soy too because I have hypothyroidism and I know it's not good for me. I am not 100% soy free, though. I cook a lot but when you have to do it every single day it's not fun any more.

I was not high at all in any of antibodies that I have been tested positive. I had some milk on the day or the night before of the test.

Fecal Antigliadin IgA 23 (Normal Range <10 Units)

Fecal Antitissue Transglutaminase IgA 15 Units (Normal Range <10 Units)

Quantitative Microscopic Fecal Fat Score <300 Units (Normal Range <300 Units)

Fecal anti-casein (cow

sfm Apprentice
I don't have any problem as far as I know with milk or dairy products, but I was tested positive for casein antibodies. I was wondering if I need to be cautious about consuming hidden casein as I need to be with gluten?

Thanks!

I was diagnosed casein sensitive, as well - but I notice that as long as I don't overdo it, I'm okay - where with gluten the slightest bit makes me violently ill. So I don't think it's the same - at least for me.

Sheryll

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,025
    • Most Online (within 30 mins)
      7,748

    Amari Love
    Newest Member
    Amari Love
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.