Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Symptoms Now Showing Since Going gluten-free


Nikki Rediker

Recommended Posts

Nikki Rediker Newbie

I was diagnosed in February. Since I have changed my diet I have been lethargic, weak, tired all the time and last night had a sever ache in my right leg (like growing pains). I never experienced symptoms (only diagnosed because of family history) but since going gluten-free I feel like now I have symptoms. Is this a stage for newbies or normal? Am I being contaminated and now can feel the effects? Any suggestions welcome. Thanks, Nikki


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



4getgluten Rookie

Nikki, Welcome to the board! The only idea I can offer is that now that you are gluten-free, your body is much more sensitive to it. I know when I first started eating gluten-free; I could eat gluten-free products that were manufactured on equipment that was also used for products containing wheat. Cross contamination didn

ravenwoodglass Mentor

"Am I being contaminated and now can feel the effects?"

There is a good chance this is exactly what is going on. Are you eating out? Have you checked your toiletries? Have you checked your pet food and litters? Are you an Arts and Crafts person and if so have you checked your glues, clays, paints? Are you eating a lot of mainstream food? Many companys do not divulge shared lines. Lays is notorious for CC in their products.

There is a withdrawl aspect to going gluten free also, and if you get CC'd it will prolong the withdrawl. The best way to heal at first is to eat as much naturally gluten free food as you can. Fresh fruit and veggies and meats, fresh potatoes and rice.

One more vital thing with the effect your having is to add a Sublingual B12, this dissolves under the tongue bypassing the digestive system by being absorbed in the mouth by your mucous membranes. Being even a little low can cause fatigue and other nerve related problems and we won't absorb this from our food until healed.

I hope you feel better soon.

Nikki Rediker Newbie

Thanks so much for the replies! I have been eating out (I travel a lot) but I always wonder if the kitchen has any idea. I'll try the B12 and trying all natural to see if it helps. Thanks! Nikki

chocolatelover Contributor

Hi Nikki,

I just wanted to add a couple of quick things...this disease is so strange and can really affect people quite differently. I'm sure it was quite a shock to you to be feeling fine, take out the gluten, and now are feeling rotten!

I suspect your body is going through a type of withdrawl and and it will just take some time to get the gluten out of your system. Once that happens, you'll probably notice that there are symptoms that you have never even noticed that have gone away! It's pretty amazing how that happens.

It's definitely possible that you are being cc'd and don't know it, as ravenwoodglass suggested. It's amazing that wheat and gluten can be in so many things that we would never suspect. Shampoo? Soy sauce? Envelope glue? Most of us were completely clueless until we started really researching it. Restauarants can also be tricky...I'm a newbie at this as well, and I've had some good experiences and some nightmares so far. There are some great places to go like Outback, PF Chang's, Carrabas has a gluten free menu, as does Maggiano's, I believe. There are also a great number of resources here--all you have to do is ask!

Feel better!

CL

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,007
    • Most Online (within 30 mins)
      7,748

    Comb0001
    Newest Member
    Comb0001
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Welcome @Martha Mitchell, I too would like to know more about your prior lenses, and especially about the potential of gluten in lenses. In theory this should not harm most celiacs, as the autoimmune reaction normally begins in the gut, however, in those who are super sensitive or have dermatitis herpetiformis it may be a potential issue. 
    • Scott Adams
      It's most likely going to be a celiac disease diagnosis based on your blood test results, but wait for your doctor to give you a green light for going gluten-free, as they may want to do additional testing. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • Wheatwacked
      Welcome @JoJo0611. That is a valid question.  Unfortunately the short answer is slim to none.  Be proactive, when the diagnosis process is completed, start GFD.  Remember also that the western diet is deficient in many nutrients that governments require fortification.  Read the side of a breakfast cereal box. Anti-tTG antibodies has superseded older serological tests It has a strong sensitivity (99%) and specificity (>90%) for identifying celiac disease. A list of symptoms linked to Celiac is below.  No one seems to be tracking it, but I suspect that those with elevated ttg, but not diagnosed with Celiac Disease, are diagnosed with celiac disease many years later or just die, misdiagnosed.  Wheat has a very significant role in our economy and society.  And it is addictive.  Anti-tTG antibodies can be elevated without gluten intake in cases of other autoimmune diseases, certain infections, and inflammatory conditions like inflammatory bowel disease. Transient increases have been observed during infections such as Epstein-Barr virus.Some autoimmune disorders including hepatitis and biliary cirrhosis, gall bladder disease. Then, at 65 they are told you have Ciliac Disease. Milk protein has been connected to elevated levels.   Except for Ireland and New Zealand where almost all dairy cows are grass fed, commercial diaries feed cows TMR Total Mixed Rations which include hay, silage, grains and concentrate, protein supplements, vitamins and minerals, byproducts and feed additives. Up to 80% of their diet is food that cannot be eaten by humans. Byproducts of cotton seeds, citrus pulp, brewer’s grains (wheat and barley, rye, malt, candy waste, bakery waste. The wheat, barley and rye become molecules in the milk protein and can trigger tTg Iga in persons suseptible to Celiac. I can drink Grass fed milk, it tastes better, like the milk the milkman delivered in the 50's.  If I drink commercial or Organic milk at bedtime I wake with indigestion.    
    • captaincrab55
      Can you please share your research about MMA acrylic containing gluten?   I comin up blank about it containing gluten.  Thanks in Advance,  Tom
    • Aretaeus Cappadocia
      I strongly recommend 2 dedicated gluten free (gluten-free) restaurants in my area (East Bay of San Francisco Bay Area) (2025) -- Life is Sweet Bakery and Café in Danville. I've been a few times with friends and tried multiple entrees and salads. All very good and worth having again. I've also tried a number of their bakery goods. All extremely good (not just "good for gluten-free"). https://lifeissweetbakeryandcafe.com/ -- Kitara Kitchen in Albany (they have additional locations). I've been once and had the "Buritto Bowl". Six individual items plus a sauce. Outstanding. Not just "for gluten-free", but outstanding in its own right. Vibrant flavors, great textures. I can't wait to go back. https://www.kitava.com/location/kitava-albany/  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.