Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Extreme Fatigue After Ingesting Gluten?

bigapplekathleen

Recommended Posts

bigapplekathleen Contributor
bigapplekathleen
Posted

Hey everyone, well 3.5 years and I haven't had too many 'mistakes'...but oh! I had one today. I took some charcoal tablets the instant I started having symptoms (about 3 hours after lunch) and made it through a concert I was singing. However, I am totally wiped out and feel the need to sleep immediately. I remember this happening when my doctor had me do a gluten challenge (which I failed miserably and had to stop)...I literally fell asleep after eating and couldn't be awoken by anyone. This happened several times.

Does this happen to anyone else? It is so rare that I accidentally ingest gluten that I can't even think of the last time...maybe a year ago....maybe two!? ( I usually only eat at GFRAP restaurants or else I call the chef in advance, but I didn't do that today..)

Thanks,

Kat

non-celiac gluten intolerant (severe) - had positive bloodwork, but negative genetic test

multiple food allergies (all have subsided after using the gluten-free diet)

gluten-free Diet since Aug. 2003

"Chef extraordinaire" (now!) by necessity and love of food!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

Kat:

Gluten give me the fatigue, dry mouth and irritability in addition to brain fog. I am curious though, why take charcoal pills?

darlindeb25 Collaborator
darlindeb25
Posted

Hey Kat--long time no see--how are you doing other than being glutened?

Charcoal tablets are suppose to absorb stomach acid, I think anyways! I know I was told to try them once, yet never did.

ravenwoodglass Mentor
ravenwoodglass
Posted
Hey everyone, well 3.5 years and I haven't had too many 'mistakes'...but oh! I had one today. I took some charcoal tablets the instant I started having symptoms (about 3 hours after lunch) and made it through a concert I was singing. However, I am totally wiped out and feel the need to sleep immediately. I remember this happening when my doctor had me do a gluten challenge (which I failed miserably and had to stop)...I literally fell asleep after eating and couldn't be awoken by anyone. This happened several times.

Does this happen to anyone else? It is so rare that I accidentally ingest gluten that I can't even think of the last time...maybe a year ago....maybe two!? ( I usually only eat at GFRAP restaurants or else I call the chef in advance, but I didn't do that today..)

Thanks,

Kat

non-celiac gluten intolerant (severe) - had positive bloodwork, but negative genetic test

multiple food allergies (all have subsided after using the gluten-free diet)

gluten-free Diet since Aug. 2003

"Chef extraordinaire" (now!) by necessity and love of food!

Yea, it is part of the neurotoxic effect. I up my sublingual B12 and try to sleep as much as I can. Not much else I have ever found to help. I hope you feel better soon.

jerseyangel Proficient
jerseyangel
Posted

I am very fatigued after a gluten incident. Of course, it also causes me problems with sleeping, making matters worse. My anxiety kicks in and I end up laying there worrying.

Kind of a viscious cycle....

bigapplekathleen Contributor
bigapplekathleen
Posted
  • Author

Hi Everyone,

I feel better today, but a little groggy. I am going to get out into the sunshine for a nice walk, since it's in the 80s today (finally!).

Someone asked about activated charcoal....it helps to absorb the 'mistake' and stops all of the grumblings, etc. My celiac nutritionist and my naturopath both recommended it, and it really does work. Without it, I am miserable for days. With it, I am miserable for less than 24 hours.

Thanks!

kathleen

Nantzie Collaborator
Nantzie
Posted
Hi Everyone,

I feel better today, but a little groggy. I am going to get out into the sunshine for a nice walk, since it's in the 80s today (finally!).

Someone asked about activated charcoal....it helps to absorb the 'mistake' and stops all of the grumblings, etc. My celiac nutritionist and my naturopath both recommended it, and it really does work. Without it, I am miserable for days. With it, I am miserable for less than 24 hours.

Thanks!

kathleen

How cool is that! Thanks for sharing that with us. Do you find that it helps with other symptoms, or mostly just the GI ones (which is plenty)?

Nancy

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


aquamarine-queen Rookie
aquamarine-queen
Posted
How cool is that! Thanks for sharing that with us. Do you find that it helps with other symptoms, or mostly just the GI ones (which is plenty)?

Nancy

I have found that activated charcoal capsules work extremely well when I'm doubled over with gas pains. Unfortunately, I don't always remember this right away and suffer longer than needed. I have no idea if charcoal is "recommended" for celiacs, but it certainly does work! :)

AQ

Nantzie Collaborator
Nantzie
Posted

One of the big reasons I have to stay home when I'm glutened is because of the awful gas I get (why should everyone else suffer? ;) ). I'll get some to keep on hand for those times when I HAVE to go somewhere.

Thanks.

Nancy

bigapplekathleen Contributor
bigapplekathleen
Posted
  • Author
I have found that activated charcoal capsules work extremely well when I'm doubled over with gas pains. Unfortunately, I don't always remember this right away and suffer longer than needed. I have no idea if charcoal is "recommended" for celiacs, but it certainly does work! :)

AQ

Yes, activated charcoal is recommended for celiacs. Both my nutritionist and my doctor recommended it to me, and it really does work. In fact, I have given some to others with severe GI symptoms and they thought I was a genius. ha ha ha I would NEVER EVER be without a bottle in my purse!

Kat

Kyalesyin Apprentice
Kyalesyin
Posted

Charcoal huh? I'll see if I can get hold of some of that, my wife my find it useful.

The tiredness hits her about 12 hours post-glutening. I've known her to sleep 16-18 hours before non stop and just keep going. Extreme fatigue is definitley a good description.

  • 2 years later...
hansonr55 Newbie
hansonr55
Posted

I had an incident yesterday.

I have recently been buying cinnamon and strawberry chex which are now gluten free. They have a big Gluten Free logo on the front. Well, my grocery store puts them with all of the other cereal, which is fine, but the box has the same exact graphics just without the big gluten-free logo.

I purchased 5 boxes and thought that I had checked them all.

Apparently one slipped by me and it was the old cinnamon chex.

It only takes about an hour for the brain fog/irritability/extreme fatigue/sleepiness to set it.

I fell asleep on the couch at 1pm, relocated to the bed at 2pm, and woke up at 7pm wondering what I possibly could have eating.

It didn't take long to find the non gluten-free chex that say "barley malt extract" on them.

I still feel a bit foggy but I'm much better than yesterday when I felt like I'd been hit by a truck.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,540
    • Most Online (within 30 mins)
      7,748
    Josiemc
    Newest Member
    Josiemc
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
    • Celiac50
      Unusual bright yellow but odourless discharge

      By Celiac50 · Posted

      That sounds so very likely in my case! I will absolutely ask my doctor on my next bone check coming up in March... Thanks a lot! 
    • trents
      Unusual bright yellow but odourless discharge

      By trents · Posted

      Calcium levels as measured in the blood can be quite deceiving as the body will rob calcium from the bones to meet demands for it by other bodily functions. Also, supplementing with calcium can be counterproductive as it tends to raise gut pH and decrease absorption. More often than not, the problem is poor absorption to begin with rather than deficiency of intake amounts in the diet. Calcium needs an acidic environment to be absorbed. This is why so many people on PPIs develop osteoporosis. The PPIs raise gut pH. And some people have high gut PH for other reasons. Low pH equates to a more acidic environment whereas high pH equates to a more basic (less acidic) environment.
    • Celiac50
      Unusual bright yellow but odourless discharge

      By Celiac50 · Posted

      Kind thanks for all this valuable information! Since my Folate was/is low and also my Calcium, there IS a chance I am low in B vitamins... My doctor only measured the first two, oh and Zinc as I has twisted her arm and guess what, that was mega low too. So who knows, until I get myself tested properly, what else I am deficient in... I did a hair mineral test recently and it said to avoid All sources of Calcium. But this is confusing for me as my Ca is so low and I have osteoporosis because of this. It is my Adjusted Ca that is on the higher side and shouldn't be. So am not sure why the mineral test showed high Ca (well, it was medium in the test but relative to my lowish Magnesium, also via hair sample, it was high I was told). But anyway, thanks again for the VitB download, I will look into this most certainly!
    • ElisaAllergiesgluten
      Allergy medication: cetirizine by the HealthA2Z is it gluten free?

      By ElisaAllergiesgluten · Posted

      Hello good afternoon, I was wondering if anyone has ever brought their anti-allergy pills? I have been wanting to use their Cetirizine HCI 10mg. They are called HealthA2Z and distributed by Allegiant Health.I’m also Asthmatic and these allergies are terrible for me but I also want to be sure they don’t have any sort of gluten compound.    I have tried calling them but to no avail. Has anyone ever used them? If so, did you had any problems or no problems at all?    thank you
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.