Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Extreme Fatigue After Ingesting Gluten?

bigapplekathleen

Recommended Posts

bigapplekathleen Contributor
bigapplekathleen
Posted

Hey everyone, well 3.5 years and I haven't had too many 'mistakes'...but oh! I had one today. I took some charcoal tablets the instant I started having symptoms (about 3 hours after lunch) and made it through a concert I was singing. However, I am totally wiped out and feel the need to sleep immediately. I remember this happening when my doctor had me do a gluten challenge (which I failed miserably and had to stop)...I literally fell asleep after eating and couldn't be awoken by anyone. This happened several times.

Does this happen to anyone else? It is so rare that I accidentally ingest gluten that I can't even think of the last time...maybe a year ago....maybe two!? ( I usually only eat at GFRAP restaurants or else I call the chef in advance, but I didn't do that today..)

Thanks,

Kat

non-celiac gluten intolerant (severe) - had positive bloodwork, but negative genetic test

multiple food allergies (all have subsided after using the gluten-free diet)

gluten-free Diet since Aug. 2003

"Chef extraordinaire" (now!) by necessity and love of food!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

Kat:

Gluten give me the fatigue, dry mouth and irritability in addition to brain fog. I am curious though, why take charcoal pills?

darlindeb25 Collaborator
darlindeb25
Posted

Hey Kat--long time no see--how are you doing other than being glutened?

Charcoal tablets are suppose to absorb stomach acid, I think anyways! I know I was told to try them once, yet never did.

ravenwoodglass Mentor
ravenwoodglass
Posted
Hey everyone, well 3.5 years and I haven't had too many 'mistakes'...but oh! I had one today. I took some charcoal tablets the instant I started having symptoms (about 3 hours after lunch) and made it through a concert I was singing. However, I am totally wiped out and feel the need to sleep immediately. I remember this happening when my doctor had me do a gluten challenge (which I failed miserably and had to stop)...I literally fell asleep after eating and couldn't be awoken by anyone. This happened several times.

Does this happen to anyone else? It is so rare that I accidentally ingest gluten that I can't even think of the last time...maybe a year ago....maybe two!? ( I usually only eat at GFRAP restaurants or else I call the chef in advance, but I didn't do that today..)

Thanks,

Kat

non-celiac gluten intolerant (severe) - had positive bloodwork, but negative genetic test

multiple food allergies (all have subsided after using the gluten-free diet)

gluten-free Diet since Aug. 2003

"Chef extraordinaire" (now!) by necessity and love of food!

Yea, it is part of the neurotoxic effect. I up my sublingual B12 and try to sleep as much as I can. Not much else I have ever found to help. I hope you feel better soon.

jerseyangel Proficient
jerseyangel
Posted

I am very fatigued after a gluten incident. Of course, it also causes me problems with sleeping, making matters worse. My anxiety kicks in and I end up laying there worrying.

Kind of a viscious cycle....

bigapplekathleen Contributor
bigapplekathleen
Posted
  • Author

Hi Everyone,

I feel better today, but a little groggy. I am going to get out into the sunshine for a nice walk, since it's in the 80s today (finally!).

Someone asked about activated charcoal....it helps to absorb the 'mistake' and stops all of the grumblings, etc. My celiac nutritionist and my naturopath both recommended it, and it really does work. Without it, I am miserable for days. With it, I am miserable for less than 24 hours.

Thanks!

kathleen

Nantzie Collaborator
Nantzie
Posted
Hi Everyone,

I feel better today, but a little groggy. I am going to get out into the sunshine for a nice walk, since it's in the 80s today (finally!).

Someone asked about activated charcoal....it helps to absorb the 'mistake' and stops all of the grumblings, etc. My celiac nutritionist and my naturopath both recommended it, and it really does work. Without it, I am miserable for days. With it, I am miserable for less than 24 hours.

Thanks!

kathleen

How cool is that! Thanks for sharing that with us. Do you find that it helps with other symptoms, or mostly just the GI ones (which is plenty)?

Nancy

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


aquamarine-queen Rookie
aquamarine-queen
Posted
How cool is that! Thanks for sharing that with us. Do you find that it helps with other symptoms, or mostly just the GI ones (which is plenty)?

Nancy

I have found that activated charcoal capsules work extremely well when I'm doubled over with gas pains. Unfortunately, I don't always remember this right away and suffer longer than needed. I have no idea if charcoal is "recommended" for celiacs, but it certainly does work! :)

AQ

Nantzie Collaborator
Nantzie
Posted

One of the big reasons I have to stay home when I'm glutened is because of the awful gas I get (why should everyone else suffer? ;) ). I'll get some to keep on hand for those times when I HAVE to go somewhere.

Thanks.

Nancy

bigapplekathleen Contributor
bigapplekathleen
Posted
  • Author
I have found that activated charcoal capsules work extremely well when I'm doubled over with gas pains. Unfortunately, I don't always remember this right away and suffer longer than needed. I have no idea if charcoal is "recommended" for celiacs, but it certainly does work! :)

AQ

Yes, activated charcoal is recommended for celiacs. Both my nutritionist and my doctor recommended it to me, and it really does work. In fact, I have given some to others with severe GI symptoms and they thought I was a genius. ha ha ha I would NEVER EVER be without a bottle in my purse!

Kat

Kyalesyin Apprentice
Kyalesyin
Posted

Charcoal huh? I'll see if I can get hold of some of that, my wife my find it useful.

The tiredness hits her about 12 hours post-glutening. I've known her to sleep 16-18 hours before non stop and just keep going. Extreme fatigue is definitley a good description.

  • 2 years later...
hansonr55 Newbie
hansonr55
Posted

I had an incident yesterday.

I have recently been buying cinnamon and strawberry chex which are now gluten free. They have a big Gluten Free logo on the front. Well, my grocery store puts them with all of the other cereal, which is fine, but the box has the same exact graphics just without the big gluten-free logo.

I purchased 5 boxes and thought that I had checked them all.

Apparently one slipped by me and it was the old cinnamon chex.

It only takes about an hour for the brain fog/irritability/extreme fatigue/sleepiness to set it.

I fell asleep on the couch at 1pm, relocated to the bed at 2pm, and woke up at 7pm wondering what I possibly could have eating.

It didn't take long to find the non gluten-free chex that say "barley malt extract" on them.

I still feel a bit foggy but I'm much better than yesterday when I felt like I'd been hit by a truck.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Anne G
      - Anne G posted a topic in Related Issues & Disorders
      0

      celiac disease and braces

      Hello, My 17 yr old daughter was diagnosed with celiac disease 2 yrs ago. She does not have gum disease and no history of cavities. Her dentist is recommending braces for her lower teeth but I read it may worsen gum recession or possibly increase cavity risk which I know are already issues for patients with celiac. Has anyone here had braces and...
    2. trents
      - trents replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      This is a common experience across the board with various brands of gluten-free bread products. Prices go up, size goes down. Removal of the egg component may be for the purpose of cost-cutting related to bird flu supply shortages or it may be catering to those with egg allergy/sensitivity, fairly common in the celiac community.
    3. HAUS
      - HAUS posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      Living with Coeliac Disease since birth, Bread has always been an issue, never too nice, small slices and always overpriced, But Sainsbury's Free From White Sliced Bread seemed to me to be an exception with it's large uniform 12 x 12cm slices that had the bounce, texture and taste of white bread even after toasting with no issue that it was also Milk Free...
    4. Mari
      - Mari replied to Jmartes71's topic in Related Issues & Disorders
      15

      My only proof

      Years ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came...
    5. Rejoicephd
      - Rejoicephd commented on Jefferson Adams's article in Gluten-Free Cooking
      1

      Your Complete Gluten-Free Thanksgiving Plan: Recipes, Tips & Holiday Favorites

      Wow what a helpful article!! I am just seeing this now but I hosted a small group of family for Thanksgiving at my house this year and I did some of these things- got a butterball gluten-free turkey, got gluten-free stuffing, had a few gluten-free sides, and a gluten-free nothing-Bundt-cake. I had other non gluten-free things there too for others, and I also...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,434
    • Most Online (within 30 mins)
      7,748
    Malia Ana
    Newest Member
    Malia Ana
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Anne G
      celiac disease and braces

      By Anne G · Posted

      Hello, My 17 yr old daughter was diagnosed with celiac disease 2 yrs ago. She does not have gum disease and no history of cavities. Her dentist is recommending braces for her lower teeth but I read it may worsen gum recession or possibly increase cavity risk which I know are already issues for patients with celiac. Has anyone here had braces and did it cause any problems or issues with gum recession?  Her dentist seemed oblivious that celiac patients are at higher risk of gum disease /cavities. Her bottom teeth are crooked but are pretty hidden even when she smiles. Thank you!!
    • trents
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By trents · Posted

      This is a common experience across the board with various brands of gluten-free bread products. Prices go up, size goes down. Removal of the egg component may be for the purpose of cost-cutting related to bird flu supply shortages or it may be catering to those with egg allergy/sensitivity, fairly common in the celiac community.
    • HAUS
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By HAUS · Posted

      Living with Coeliac Disease since birth, Bread has always been an issue, never too nice, small slices and always overpriced, But Sainsbury's Free From White Sliced Bread seemed to me to be an exception with it's large uniform 12 x 12cm slices that had the bounce, texture and taste of white bread even after toasting with no issue that it was also Milk Free. Unfortunately Sainsbury's have changed the recipe and have made it 'Egg Free' too and it has lost everything that made the original loaf so unique. Now the loaf is unevenly risen with 8 x 8cm slices at best, having lost it's bounce with the texture dense and cake like after toasting resembling nothing like White Bread anymore. Unsure as to why they have had to make it 'Egg Free' as the price is the same at £1.90 a loaf. Anyone else experiencing the same issue with it? - also any recommendations for White Bread that isn't prescription? / Tesco's / Asda's are ok but Sainsbury's was superior.
    • Mari
      My only proof

      By Mari · Posted

      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.